My Husband, My Life, My Love, My Family, My Cancer
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Nan-both you and your daughter look absolutely gorgeous! Looks like it was a wonderful celebration. Thanks for sharing the pictures.
Micmel and friends-This is my "Happy to be Alive" day. One year ago I received my diagnosis of being grossly metastatic. It's been a rough year at times but I am feeling so grateful to be alive and feeling so much better than I did a year ago. I had a scare earlier this week-my chem panel showed that my alkaline phosphate had doubled over the past month which made me think that cancer was back in my liver. I got an edited result today and it looks back to normal. Phew! I thank God for all the blessings and support of this past year.
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Chicago~ Congrats! One year! I am pleased that you got your blood work updated. That is some scary stuff there I honestly wonder why things like that even happen. It's already scary enough worrying every day about every single ache and pain that comes along. I am very thankful for your getting a revised result. No one needs that kind of scare!! I hope that you can have many many More years of doing so well. January 23, of 2018 will Be two years for me. I was diagnosed in January 23,2016 de novo! Out of the gate!! Let's all keep making sure these years turn into decades ! Big hugs~M~
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Nan, You and your dh make a beautiful couple! Your dd...Wow!! You did her hair? Oh my...I'm So impressed!!! I'm so glad it was a wonderful memory for you and your family! You worked so hard to get there!! I agree with Micmel, now that the wedding is over, you need some serious rest!! You have been going strong for a long time! Do yourself a favor and be kind to yourself. Maybe a relaxing day at a spa, or some restorative yoga and rest, rest, rest!
Chicagoan, Yahoo to a year!! This calls for a big celebration!🎉🎈🎶 Doing the happy dance for you!
Micmel, that is great news about your brother! I know it seems fast, but they feel patients do better at home. Keep an eye on him for emotional issues. Sometimes cardiac patients go into depression afterwards. I think it has something to do with facing their own mortality.
Hugs and prayers everyone
Claudia
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hi mic, the little dollie with my daughter is my grand daughter, she just turned 4.......i have been getting blood transfusions once a week and the double dose of procrit weekly....it seems like alot to me and the thing is that its keeping my numbers stable but not bringing them up at all.....wondering where i would drop to without it.....this has been going on for over a month....keep shining bright
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Nan~ omg she is a little angel. Wow good looking family you have my dear. Including yourself! Lovely lady. I hope upon hope I'll be able to see that happen for my daughter, not so much the grand child because they aren't ready for that. No way. But getting married. I want nothing more than to watch them grow into themselves and find their person. I really hope you get rest. Please start to feel better. Hopefully once you settle down, your numbers will start to rise again, since your not over doing it anymore. I Am sending good thoughts and thank you for sharing your special family's moments with us! Love you lots.
Claudia~hello sweetheart. How is the preparation coming for your trip? When are you leaving.? I thought I remembered a MRI coming up soon? I can't believe that you said something about my brother going home so soon, and depression. I literally just got a text from him saying he couldn't sleep because of the anxiety from everything that happened flashing before his eyes. He said he feels depressed! They have him on Wellbutrin, you know your stuff!! Hoping you're feeling well!
Shout outs to Keetmom , Nkb, Tanya, Scwilly, Lynne (50's girl) and anyone else my tired brain missed!much love all ~M~
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Lol Micmel and friends lol sounds like a morning show on cable news television. That made me laugh Chicago lol
🍭🍹🍹🎆🎈💥💫😘💐 congrats on one year my friend!!! Here is to many many more !!
~M~
Mae~ I am so annoyed at the jury people on big brother. Are they serious right now ? There is no way Josh should have won. They are sore losers. Paul stole the show. I am so mad. Alex and Jason. What babies. Elena needs a better bra and new hair color! Mark, you idiot don't you remember Josh throwing condiments in your face? Good job Matt and Raven, you're not as dumb as you seemed, at least you both voted correctly! Cody, If You weren't cute, there would be nothing to you! Christmas, I adored! Kevin is a cool dude! Stupid stupid!
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Nan- I don't know you, but, beautiful dresses and smiles in your pictures. I'm so glad it went well.
Micmel- One reason in favor of leaving a hospital earlier is that hospitals are full of very sick people and you can get infections and other illness the longer you are there,when you are in a very vulnerable health state yourself. Also ICUs are super stressful places to be and people often get ulcers when they stay there a while. If your brother knows he needs to make lifestyle changes that can be very anxiety provoking also. I think having an experience like his is very scary and leaves you not trusting your body to work correctly for awhile. He will need to build up confidence again.
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NKB~ Hi there! I hope you're having a good day! I guess what you said does make a lot of sense. I do totally agree that the trust in his body will take time and he will need to slowly make changes, and be watched by his doctor. I guess I just am also worried it will happen again. I talked to him last night and I still think he is in shock about what happened. I know I am. I hope all is good with you and yours. Hugs! ~M~
We all know that hospitals are crawling with infection so I do agree. But something so life threatening sends you into paincattacks. Which he has been fighting off this afternoon. So scary
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Micmel - My husband totally agreed with you about Big Brother. I read him what you wrote and he said that summed it up!
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Mistyeyes~hello darling! Welcome to our thread! Lol!! I have to say that made me laugh!! I am so pleased I am. Not alone in that feeling! I mean seriously? People are just dumb sometimes. I mean only a fool could even try to understand what the heck Josh was saying during his speech! Paul was awesome. Makes me so mad. I cant believe there isn't more backlash being mentioned, because that sucked. Puppetmaster Paul! All the way!
And lol at Raven calling Herself a puppet master. Lol wake up woman.
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time for some Game Of Thrones, then to sleep. I have to say I just don't ever sleep like I used to. I feel like every night I am up two or three times a night. It is really annoying. I have a hell of a time falling asleep. I tossand turn. I already have my left arm that is bad from Lymphedema, and my right arm has Thoracic outlet syndrome from a prior injury/tubing accident. I have limited feeling onky nerve pain 24/7. Laying on that feels like needles and stabbing pains. Laying on my left arm feels like pressure and pain. Now I constantly have to move To avoid pain. Drives Someone's crazy. I know they didn't really explain what lymphedema really is. When you're going through something so scary, you just don't really comprehend the chances. Rest well ladies ~M~
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Good morning~Happy Friday! My DH and DSSS are coming up for the weekend! It's supposed to be hot, which I am not really happy with at all. I'm sick of heat and humidity. I need cool air, I want to start walking again, I need something physical to do that isn't inside. I spent most of the winter inside.....so after the "talk" with my DS, yesterday I knew that it was "lawn" day. I didn't mention it because I wanted to see if he taken away anything from the talk we had. He wasn't feeling well, this head cold is making its way around. But low and behold he got up and mowed the lawn and weedwacked and are you sitting down?? Pooper scooped! Be still my beating heart. That should make DH very pleased ! Slowly but surely maybe the snail will learn to take care of his responsibilities more and more. Here is hoping!!🤞 Any plans for the weekend ?
Hope all is ok with everyone and theirs! Hugs ~M~
Why is it that on my last day of my week off of medicine. My tongue starts to feel better? Tomorrow night I start round number #11, then my tongue will start hurting all over again for another many weeks. I am not looking forward to it at all, but in order to stay stable, I'll take It obviously!!! Btw some the remedies did help a lot! I am starting to think that it's all accumulative!
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I just have come to learn that someone, who we all know and care about has received notice of some progression. I am sending out strong thoughts and good vibes to Zarovka! She is a book of knowledge and is always a shining star amongst these clouds of sickness!! You are strong. You are our friend. you are one of us. We care so much. But feel so helpless. Sending love to Z. Sending many strong supportive hugs to her. Always.
Love you guys. ~M~
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Micmel- Congrats on DS and the lawn mowing. If you think about it from your kid's prospective (which I tried to do-remembering what I was like and how willing I was to help as a kid-not) it is not his lawn and he doesn't really care if it is mowed. It is your lawn and you care. So, just presenting it as this is your job if you live here and not trying to make them think about the lawn and care about the lawn or attach their caring about you to how they treat the lawn. Just assign it, give a date and guidelines. our son seemed to be in the Mohawk style of mowing-hope yours does better.
When my DH tried to tell my son to put the toilet seat down for me, my son was all logic about it- how it did not make sense, I should pay attention and not fall into the toilet expecting the seat to be down and it was just as inconvenient for him etc. No argument worked with him. Finally DH said-Look, just do it as a favor to mom, ok-you don't have to agree to the concept-just do it.
Keep in mind that it is said that frontal lobe maturity is complete at 25 years old.
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NKB~ He was great today. Had work at 1245 and got up at nine thirty and did his laundry and changed his sheets. I almost fell over. He said don't be afraid to keep after me, because I know I need it. I was like wow. Hoping against hope it will come around with some loving guidance and coaxing! But it is a challenge to walk the balancing act, between enabling them and it helping them. I know in a few years they will be gone and I'll be an empty nester wishing for those sounds of them coming home. But with this diagnosis, I have to start thinking about being able to live out what I can. Where I want to. Which is with my DH.
Hope you're having a good day today. I went to the grocery store and now I feel like a truck ran over me. Geeze I hate that place. $200 later! Also it's too warm outside again! Yuck
Big hugs ~M~
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YES!!!!!!!
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Oh Mae~ I am so happy that is in the rear view mirror, you're an amazing woman. Ring that damn Bell, you go! I hope the burning is not too bad, I know you said that it was bothering you last time. It's over!! Yaaaaahhhoo! 💥🍹💐💥💥💥😊🎆💫💫 Now you can heal up and be as good as new! I hope you're doing something special this weekend to celebrate!! This is the weekend. That my DH, DD, and her significant other, DS,DSS and Iare all going to see the movie IT! The first time of really doing anything like this. I am hoping that I'll be able to not self combust during the main show! Sunday night American horror? This last one was pretty good. Big hugs ~M~
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Hottest week of whole summer here in WI, not sure I like this looking forward to the cooler summer weather,
Found out yesterday the my Sisters Niece (BILs nephew is same age as him, 2nd marriage for their mom) was diagnosd with breast cancer, they think stage 2 but aggressive don't know to much else haven't talked to her more then say "When you are ready I'm here, sad because she was already on disability for her RA, it amazes me how many people we know who are young and diagnosed with breast cancer.0 -
Keetmom~I agree, most of the people that I see dealing with cancer are actually not even middle age yet. I am a 70's child, was it something then? No smoking in public limitations and or second hand smoke? The paint that covered our walls as children,. Knowing now they contained lead paint? The pipes from my childhood home that were old and contaminated well water, that we drank from every day as children? It has to be something that occurred as a young person. I ate healthy and excersised a lot. I was in great shape and always athletic as a young girl. It's gotta be something we were exposed to, or our food and orenvironment, I am sorry for that person you know as well. It's so upsetting seeing all this cancer all around. There is nothing we can even do about it. Scary thought! hope you and the girls are doing well. Big hugs ~M~
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Exactly! I guess I was middle age at 21, now 42 and doing my best to enjoy my "golden years", lol
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Mae~Congrats on finishing your radiation!! Way to go! Now healing and meeting your step goal everyday! It makes me sad to also think my 47 years is considered more than half of my life. If I think about it I could never think about seeing myself as an old woman. No matter how hard I try I could not see it. I always thought I would die young. Every ache and pain I Am convinced its spread more. Tonight, I start my 11th month of ibrance and every month i worry, is this the month it will fail. What a way to live! Hope all is well! Big hugs hug~M~
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......these days I'm just feeling a bit round!! Or can we just call it fluffy? Hot today in the northeast ! Yuck again. I want fall. Have a good day ladies! ~M~0 -
Micmel- fluffy is one of my favorite words. connotes Warm and cuddly.
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NKB~ I will certainly take that! That works for me. It's the damn Medicine tHat makes me feel like the holiday ham! Going to see IT with my family. Can't wait! Hugs ~M~
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Saw IT tonight with my family. I really enjoyed the movie and being out with them. It's been so long since I could even go any where with out feeling exhausted in a short time. The movie was really good. That clown is pretty scary 🤡 🤡🤡! But really enjoyed being with everyone more then anything. Oh and the pop corn. Now I am going to have to tie my mouth shut, so I can loose the weight from all the pop corn I ate. But i don't usually have that Type of food. The movie was worth seeing! Rest well everyone! ~M~
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I Was playing with the puppy Chief, (the Saint Bernard puppy that I posted a while back) and you know those needle teeth and while I was playing with him and he got a hold of my lymphedema arm! I had no idea that even the littlest scratch could be so damn painful and annoying. It also bled a lot. I didn't know having no lymph nodes in my arm would make my arm bleed that much. Now I have to watch for infection apparently, and it's already a little swollen. And it hurts! Amazing. I never ever gave it another thought. But I am thinking about it now! Anyone else ever have that happen? Geeze. Just what I need. Hope everyone is having a good weekend. Slow on the boards this weekend. Be safe everyone. Hugs ~M~ This damn cancer just screws everything up!
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.......this is the little guy who grabbed a hold of my arm!! But I love love him!
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Cute Puppy! We watched A Dogs Purpose last night it was a good movie....really struggle to find stuff our kids can watch, neither are typical for their age, we have a theater room in our basement and it is getting to time of year where hiding in basement is ok...
Hope your arm gets better...0 -
Keetmom~ I want to see that so much. Was it sad? I don't need sad anymore. I am an emotional mess lol. I have been put on antidepressants and it has helped. But the reality is I am sick. Although I have been feeling better. I'm so scared of every ache and pain. I would love to have a theatre in our basement. Considering tv has become my lifeline for distraction! Since my brother had his heart attack, I guess my estranged sister has learned about this and has been giving some things thought. Now she wants to have lunch with me. I haven't seen her in over 13 years at least. Strange territory for me. Complicated issues I don't really need. Have a great Sunday everyone!! ~M~ I hope my arm gets better too! Thanks!!
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Micmel- The darling exuberant puppy! I hope that you heal well. My cat got a little rough a few weeks ago and his teeth grabbed my arm- I was scared for few days-their mouths are more dangerous than dogs. All was well-but, I used antibacterial ointment for a few days also.
I would never see "It", but, I have a DD who would love it. Comedies for me. I did see an old French movie the other night, which was very good-but, did not have a Hollywood ending by a long shot-left me a bit sad. I must say-I like the Hollywood happy endings.
I have an estranged sister-almost everyone I know has some weirdness with a relative or two. Good luck with your re-encounter if you have one.
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