My Husband, My Life, My Love, My Family, My Cancer
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Debbie, That party sounds wonderful. If I remember correctly, you were given a back-to-work party when you returned to you job a couple of years ago, no? I think you posted a picture of yourself standing in front of a big "Welcome back, Deb" sign. You have good friends who obviously appreciate you and hold you close in their hearts. Btw, I usually take the easy route with pictures and email them to myself. Since I have email on both my phone and my iPad, I can send it from the phone and open the message on my iPad and save the pix there.
Hugs and prayers to all, Lynne
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That is such a nice story to hear. It makes my heart warm. friends can be so important to support and love you through thick and thin. My best gf is like that, she stuck by me,when everyone else didn't. I would do anything for her. She's my closest girl friend and I have known her since 12 years old. She was my neighbor. I can't believe over 30 years have gone by. You deserve to be treated good and I am so excited to hear of all the goodies you got as gifts. Please treat yourself nicely and enjoy every single second. Good thoughts and strong vibes. Such a nice thing. There are good people in the world. Big hugs ~M~
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Good evening ladies
I am just checking in from my Dr. appt. yesterday. My WBC was 1.8 with an infection at my surgical incision, so I'm off of Ibrance 4 days early. I got a culture taken and a shot of nupogen.
On my way to the doctor appt. I picked up my son from work bc he said he was in pain and wanted to go to the hospital. He was admitted and had emergency surgery, perforated colon.
I was with him at the hospital all day yesterday and came home exhausted. I'm trying to get something to eat so I'll have enough strength to go pay him a visit. it will be a short visit but I'll be glad to see him.
Have a great weekend all. Lots of hugs
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Tanya~~~~OMG!!!!! I am so sorry that your son had that happen, I hope to goodness that he is ok and recovering from such a surgery. That is some scary stuff!!! How does something like that happen?? Geeze you're a strong woman and mother. I am in awe of your ability to power through your pain and infection, to be with him!!! How old is he? I know that ibrance can be very finicky when it comes to blood work. Just please take Claritin to help with this bone aches and pains, from those shots! Once your levels reach the range, they will start you again. I am sending good thoughts and big hugs to you and your precious son!!! Please keep us updated on everything. I'll be sending as many good thoughts as I can darling !! Much love ~M~
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Hey all, way behind all here....with Emma in the hospital last week, we escaped up North for the day yesterday it was a beautiful fall day for a ride.
Dealing with how to deal with Emma's newest biggest health issue, her brain tumors have caused her to have adrenal insufficiency, the easiest way to explain it is when we get sick or injured our body makes cortisol to help the body fight, Emma's doesn't make it. She went bad really fast this week, I have always worried that her brain tumors would kill her, now I am worried about this...
On a happier note here are some pictures of yesterday!
On our way up north every time we stop and get fresh cheese curds, they are the best thing ever!
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So sorry Tanya and keetmom for all you are dealing with, all this worry in addition to your own health
I love cheese curds and those potato wedges sold a gas stations and corner stores. My best friend lived in Port Wash for many years and I recall eating those wedges on vacation, oh and drinking Leinies!
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Keetmom~loving those family photos and those precious girls smile. I amsorry to hear of the problems, poor Emma and you're family have in front of you. Like Mae said, with your health issues going on as well. Sometimes it's all too much to even take in. I am sending you huge hugs and good thoughts. Hugs to the girls.
Mae~ hope your pain is subsiding for you. Here is hoping everyday gets better for you. Enjoy your what's left of the weekend. It's been beautiful here. Nice and cool. Old Man winter doesn't feel far now!!! Yuck no thanks ! Hugs
~M~
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......so damn true it makes me sick. ~M~0 -
Keetmom and Tanya, what the heck? As if you don't have enough problems! Tanya, please be very careful while you are visiting son. I know wild horses couldn't keep you away! Make sure you wear face mask and wash your hands a lot. Protect yourself against infections and germs. Keetmom, is there anything they can do to help Emma? You all look so happy and relaxed on your drive!
Mae, I hope your blistering is getting better! You get Ann A+ for all your walking! Is your cabin in the mountains? I love the mountains, any mountains! We are actually considering a move to NC, to be closer to grandkids. I just love those little guys! I know, after all the work we have done here, right!
Micmel, we never had a small dog before our Westie. When I opened up his crate and got my first look at him, I asked St what in the heck do you do with such a little dog? He didn't know, but he was what our Akita's trainer recommended for a companion for her. He is a doll baby! The Mali-poo is just like a cat! He will cuddle close on your bad days, and he will happily play with you on your good days! They are extremely loving! Ours only weighs 7.5lbs . We don't get HBO, but I'm sure we can sign up for it. We watched a limited series on Netflix last night called Frankie and grace. Today we are searching for property in NC.
Nan, how are you doing? I have missed talking to you.
Debbie, that sounds so nice for you! What lovely people!
Waving hi to everyone! Hugs, Claudia
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Claudia~ I know that Verizon is running a free special for 48 hours for all the cable channels. It's a once a year trial. I watch the calendar yearly to get something free from those robbers!!! Glad to hear you're seeing your grandchildren!! It gives me hope maybe I'll see mine someday! Hugs to all ! ~M~
50's hi there. Always nice to see you here. Hope you're enjoying your weekend. Be safe, hugs!
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Claudia- Not really we just need to learn to manage her meds, and keep on top of illnesses.
Tanya- Hope your son is doing better and your counts bounce back quickly0 -
Keetmom I've never had cheese curds and now I must find them! They look delicious. I'm sorry that Emma is not well now. I know how this pouring rain thing happens. Everyone in the car looks like they're enjoying the ride
Thanks for all the prayers and encouragement. My son will be 42 tomorrow. He's divorced and lives alone. He had a fever this evening. I'm determined to just go once a day. I'm slathering myself in disinfectant and shedding clothes as soon as I get home.
My husband cannot console us he's down with the flu. In the next room talking through clouds of lysol.
My grandson and I got the front porch cleaned off after Irma that makes me happy because I can sit outside and enjoy the scenery again.
Micmel I did contact my sister and tell her about my son. She texted me back twice and she actually called him. In all fairness she always loved him. He was happy about it.
Goodnight warriors.
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Micmel, I love the pic of your dog!!! Wish things would have worked out with mine!!!
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Tanya- there is nothing like fresh cheese curds though, those you have to get the day they are made...
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Gracie~ Hi sweetheart, I do love my doggies. I'd have to be crawling on my knees not to keep them. They are the ones who never treat me badly. So glad to see your beautiful face here. I love you my friend.
Keetmom~ Hi darling. Never had the cheese curds. These days nothing appeals to me whatsoever, it's a wonder I don't weigh a few ounces now. Hoping sweet Emma and Dapheny are doing great. Such a happy family. Love the pics of all smiles. You're so pretty and Have such a great smile. I Adore you!
Tanya~ my sister called me the other day and asked me to have lunch. We had to cancel because I am feeling a little coldlike. And I can't catch anything right now. I am happy your sister called your son. That's important for him to know he's loved and supported no matter what.I am keeping him close I thought and I hope you're feeling better also. Much love to all!
NKB~ you doing ok? Havent seen your smiling face in a few days. Just sending thoughts your way. Happy Monday. Ugh!!!
~M~
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My son is doing better today. The NG tube is out and the catheter. His spirits are upbeat. Spending his birthday in the hospital was no fun today, but he was a trooper.
My WBC is coming up. It was 2.2 today and I'll be receiving neupogen shots for the rest of the week, including the day of the Pet Scan. Any tips for the neupogen side effects. Come on you ladies know everything.
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Hello ladies,
Keetmom- I have been reading your posts since I was first dx. I am honored to be meeting you. Your family remains in my prayers! I am humbled in your presence. Your ability to push on with a big radiant smile on your face. Or maybe it's those delicious cheese curds.
Tanya- when it rains,it pours doesn't it. Hang in there!!! Hoping you and dh and son are all doing much better very soon!
Claudia- your property looks like heaven!! Why NC? If it's mountains you want, come and be my neighbor!!!
Mae- sounds wonderful! Where is your cabin? Do you want to adopt a 48 yr.old? I would love to live in a small secluded cabin!!! That's how I picture heaven for me.
Gracie- I am sooo glad that you had the whole crown thing figured out!! I hate that you are alone!!!! You are stronger that Samson!!! You may not feel it sometimes,but you are a true warrior of life!! Again I am humbled!!
Micmel- such a cute doggie!! I have three. Two little mutts and two big ones!! I love them to pieces! The little ones sleep in bed with us. They are so comforting!!
Lynn- I just love reading your well written, heartfelt posts. You are a true sweetheart! I bet New England is beautiful right now! Would love to see it someday!!! I see the pictures of the fall foliage,and it looks like heaven on earth. Beautiful!!🍂🍁
I have already written so much,but figured I would continue on with the next oprah segment.
As you would imagine,while my sister was declining,I was becoming an adult. I married very young. 19 years old. I thought that shaping my own life,would give me some of the stability I was looking for. Haha!! My husband began cheating on me,two years into the marriage. I could feel that there was something missing,but never knew for sure, until he told me of his many affairs 10 years into our marriage. We went to marriage counseling and figured out our problems.... At the same time,Teresa was deemed terminal and was put on hospice. I lost forty pounds that year,due to stress. I was able to put the marriage problems on the back burner and focus on my sister. He was jealous of the time I spent with her. Even if it was to feed her and change her diapers. He didn't care. I wasn't giving him enough attention. I also had a four year old daughter of my own,to look after,as well as Teresa's daughter Elizabeth 9 years old at the time. Teresa passed away November 19,1999 I don't even remember Christmas that year. But I remember New Year's Eve. My ex said that he was going to take me and the girls to the fireworks. He never came home that night. By Valentine's Day, He came to me and told me that his girlfriend was pregnant, and would I please forgive him!!!! Hahahaha I loaded up my pick up with my kid and her toys. Pulled out of the driveway and threw the garage door opener in the lawn. I was done!!!! I have never looked back. Funny,I thought that I loved him. I had no idea what love could feel like,until a few short weeks later......
My ex has now been divorced four times and filed bankruptcy three times!! So glad that I didn't stick it out!!! 11 years of marriage with him. I still hold the record. His other marriages have lasted five or less. He still cheats and lies. He even has a tinder account. People never change.
Love and hugs to everyone!!!!
Chelle
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My little shazi,loves to sleep on her back
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Here's her funny face while awake
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Tanya ~ take Claritin before the shots and after the shots, it helps tremendously. I actually take it everyday to keep whatever inflammation may be happening. It seems to help wonders. I am happy to hear your son is doing better. Being a mom i know how are hard it is to even have them stub their toes sometimes ! You're a wonderful mother. Shine on !! Hugs !
Chelsea~ I love your fuzzy puppy dog. I am such a sucker for dogs. They make me so happy. I am blown away by your story about your ex hubby, I have never been so proud to call someone and ex for you!!!! You deserve so much better than that. Talk to the hand ex jerk! So glad you loaded up the truck and hit the highway. Such a strong woman to do that. Thinking of your sister breaks my heart. You're a lovely beautiful soul and person. I am honored to call you my friend.
Keetmom~ hugs to you and the beautiful girls. You're all always in my thoughts.
Lynn~😘 Hope all is well with you. Sending hugs
Mae~ what's up girl ? Hope the blistering has subsided!!
So here is my story about last night. I woke up to my DH shaking me and next thing I know I was in a full out seizure, apparently I had 15 over the course of an hour. The ambulance came and took me to the er where I laid for hours, they missed all my veins AGAIN! Wanted me to have every scan I had already had. I am not doing another scan when I just had one last month, like leave me alone. I knew I was feeling sick and hadn't eaten In two days. It was a combination of some medicines on an empty stomach. I've never seized before. I never have headaches. I have no weakness anywhere. I know my body. So I said uh no thanks I'm out of here. Took off all the monitors and split! I hate the ER more than anything! They walk around and say nothing but oh another hour for blood work results? Really. I could tell you the results faster!!! Argggggh! So. Now my body feels like a truck ran over it and my tongue hurts worse from biting down on it. Such a bad night. All of us deserve a medal for what we deal with! You're all so strong and I Iove each and everyone of you, for the special way you all are. Huge hugs ~M~
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Micmel-How scary! What an ordeal. Thank God your DH was right there. Please try and eat something today and drink your water. (( Gentle hugs))
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micmel- what a horrifying experience!!! Please take care of yourself! We have no appetite most days. But, it is so important to eat,before taking medication!!! I am just figuring out now,how to deal with the se's of tamoxifen. I take gabapentin for hot flashes. Without it,I have a panty soaking flash,every twenty minutes. Which makes me feel nauseous. For that,there's an endless supply of zofran. Then there is the joint pain. My hips,shoulders,feet,hands. All stiff and painful!!!! I take morphine slow release. Ugh!!!! I don't dare stop the tamoxifen as it has made me NED!!! But this sh[+ sucks!!!! I feel like a junkie!!!!
With love and concern
Chelle
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I'm doing ok, busy working on more emergency stuff and trying to keep my head straight. MO ordered a brain MRI for tomorrow because that headache lasted for days, trying not to overthink it and freak out
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Micmel!!-yikes. I hope that there is a simple explanation for your seizures-especially if it is something you can avoid to prevent them. Did you get any electrolyte imbalances or anything from not eating? Please update as you find out more.
ChelleG- I had a lot of joint pain with the arimidex that yoga really helped me with-i don't know if you can get to a class-find a teacher that is experienced with this.
My friend just died of leukemia😿 and another friend has Glioblastoma- what's going on?
got my flu shot today-don't want to add flu to my life
Illimae-good luck with MRI.
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Micmel, yikes! That's scary! Hope that was your first and last experience with seizures!
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Michel, How frightening! I am so glad you were not alone. Are you going to have any tests to determine what caused the seizure sa they can be prevented in the future? And, since I always think like a mother, make sure you don't skip meals in the future and always stay well-hydrated!
Chelle, You have been through so many challenges and tragedies in your life. Those experiences would be more than most people could survive without significant scars and resentment. In spite of everything, you possess an inner strength and goodness that few will ever have. I feel blessed to know you.
Mae, When will you have the MRI? I am praying that the results are good
Hugs and prayers to all, Lynne
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thank you all! I am not having anymore scans until November when I have my orders to have them. It absolutely was an electrolyte imbalance, i hadn't eaten in two days and my stress level was off the charts! I feel If i have anything happen close to that again. I'll head over immediately! But we tend to know our bodies, sometimes better than the doctors do. Terrible night for me. Just terrible!!
Mae~I am thinking of you honey. Picture me with you making goofy faces. I care deeply my friend. Hugs
Chelle~ loving that precious puppers. They make us smile. My dog was howling last night when the paramedics were here, he was flipping out with worry, they love us more than even we could even think possible for a dog, we are their lives also! Give the little cutey a snuggle for me please!?
Gracie~ I miss your puppy too. I know how we love them dearly. I wish cancer never entered our lives ever. Evil seeds! Love you my friend!
Lynn and Lynne~ thank you ladies I had to laugh at the mother in me comment, you're absolutely correct. For me it was a huge fail!!! Mothers know better right ? You're both kind to give me good thoughts and wishes. We all have to band together!
NKB~I have never had any problems and I don't get headaches much at all. So it made no sense. Those doctors just want to scan away, Medicare pays 80% pal!!! I don't have over 2k laying around every time they want to test. For everything and anything. ! Thanks for caring!!
Hugs and kisses to all
Hugs to Keetmom and our Nan!!! Waving Hi to Tanya !
~M~
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Micmel!!!! Gosh girl you had a horrible night!!!! Please try to eat and get some liquids down!!! Love ya!!!!
Chelle, I am not brave at all...Micmel talked me down over the phone (she is truly a blessing to have as a friend!) After we talked for a while I did feel a lot better!
Illimae, gosh I was just there a few weeks ago with waiting for a brain MRI. Prayers for good results!!!
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hello friends.....wow this thread took a lot to read thru after missing it for a few days....i laughed,i cried,got angry,felt heart broken, and overjoyed at all the heartfelt posts....thank you all for sharing, it makes me feel so close to all of you
so i got my biopsy results and it looks like i'm back to being a science experiment......my doc scooted his lil chair closer to me (now its trouble) he says "what you have is very interesting, and we dont want interesting".....my bone marrow showed that i have a disease called "Pure Red Cell Aplasia" and you can find it in the national rare disease database(doc doing my biopsy says "wheres the marrow?" me="please dont drill me again to look for more, you guys have powerful microscopes")this one really hurt me....it means my bone marrow has stopped making red blood cells, just the red tho.... i dont think they know much about this cuz it seems like there could be dozens of causes for it (even procrit which is supposed to build your blood)....so now they have stopped all treatment and are running all kinds of tests on my blood, one test my doc wanted they only do in Sweden (everyone offered to escort me lol) needless to say i wont be getting that....hopefully they can find whats causing this fast cuz i'm still in the middle of treatment from when everything woke up in april with my brain surgery ....they all fought so hard to get me on that parp-inhibitor too....i hope those nasty buggers stay quiet while they are working on this, i cant even think about not having options or having to get a transfusion every week and still be in the low 6s and still be so wiped out ALL the time....i'll try to be better about updating, i miss you all when i dont have the energy to be here and typing....sometimes i speak of some of your experiences and i've noticed that i no longer use the term online before friend anymore....you have all become just friends.
keep shining bright my dear friends
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Nan- wow! Thanks for checking in. How weirdly interesting. Sounds from the little googling I did that there are treatments for it- I can't wait for you to make a little more blood-hanging out at 6 must be pretty exhausting-even 7.5 feels hard to do much to me.
Hoping for good news soon and run of the mill solutions!
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