My Husband, My Life, My Love, My Family, My Cancer
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50’s girl I love your tea set story. It really touched my heart. Have the tea party soon so your heart can smile as you plan and look forward to it.
Take care all
Tanya
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My ultrasound guided Liver BX was successful yesterday. PTL. I'm so relieved. They gave me the good stuff so I was out into a blissful white sleep. I don't remember telling the nurses and doc that I was Happy Happy Happy but evidently I did. Lol
Now my next step is to start AA on Monday. But, my greatest hope is that when my pathology comes back it will show a change in my hormone status so that I can take a more effective TX for my mets. He did get enough tissue to send to genomic testing too. That was my goal. Try to get all the information available to possibly outsmart my smart MBC.
It sounds like everyone had a good Christmas. I hope so, I did. I even got a painting by my talented granddaughter. She is truly gifted in art.
I don't have any New Years plans, except to start AA on New Year's Eve, Happy New Year to me. LOL
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Grannax~ Goad they were able to access the area needed. I’m glad you enjoyed your birthday and got some artwork from your lovely Granddaughter!! So special.
We had company today my sister Andrew granddaughter. It was so nice... I am happy to have my sister back in my life. Long time to long. My dad is declining. I need to see him and I am just exhausted. From all the visiting and staying up late. Ugh Calgon take me away. My luck i would never get out of the bathtub.
Good night ladies
Hello muddling. Hello Tanya hope you all had a great Christmas! we made some cookies tonight it was fun. My back is slightly better, but now it’s moved into my neck! Yuck. @ stiff necks. It just seems to be in the same place that my cancer is on the scans. So It’s clearly irritated. I need a week to recover from all this fast paced crap.
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Grannax, fingers crossed for a hormone change and more or better treatment options.
Micmel, glad you’re enjoying family.
I’m getting back into my routine, which is good, anyway bedtime for me. Sleep well ladies and gent.
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I wanted to take a picture of our cookies. But I ate them. We are making more today. They are delicious with my morning coffee! Yum! I'm not doing one thing today nada. No! Resting my back and neck for sure.
My son started his New job the day after Christmas. He's working his butt off. Ten hour days. Going from sitting at a desk, to running around all over the place, taking orders for parts. Keeping the mechanics stocked with things they need and keeping the shelves stocked fully for whatever they need. He's working overtime today already. I believe he may have found his niche. This is a young man who as a child loved matchbox the second I put one in his chubby little fists. I always knew he would be working with cars somehow. He is already grooming his assistant. And when his boss is at another location. They will go to my son as his replacement. So he was hired already to start at assistant manager. I am so proud of him. This man hand picked him. I have been praying for this. I know that may sound weird. To some and that's ok I've never had a relationship with religious things. It's nice to have some things happen good. I'm starting to believe slowly. I honestly am. Seeing my father dying also I have to admit makes me realize there must be something. Just because of the things he says. Things he doesn't know because we were estranged. That is what is so weird. He could have never known these things. Only. My DH and I know them. It's very odd actually. Enjoy the rest of the holidays it will soon be over. Ugh. ! And yuck at the same time. Love to all!
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thinking of you all as I recover my back. I over did it of course!! DH is enjoying a small road trip to see some waterfalls today, I used to go with him. But can’t hike the inclines anymore. I hate that loss but I love that he still does it. He takes his camera and walks about. He’s such a golden nugget in a sea of stones this man is. Hope all is well! Much love ~M~
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Hello ladies!
Tomorrow (what a great way to end our year, huh!?) is Leslie's turn for scans, so any prayer/good thought sent our way is welcome and highly appreciated. I am more nervous than she is, or at least she seems calmer than me.
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Daniel, tell Leslie to wear something with big pockets since we will all be in there with her. Prayers for smooth and comfortable scans and great results.
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Hi all
Daniel I’m in there with muddling hopeful for great results.
Tanya
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Micmel,
Just hang with me awhile, and you’ll know for sure there is more to this life than what we experience on Earth. I honestly believe I’m still here because God is not finished with me yet. I am not a person who will bug people or try to shove it down your throat. I try to live it the best way I can. Iserve a living God, and you see His work every day in these pages. The love we share as MBC sisters was first modeled by His son, and there are way too many unexplained things in my life to allow me to know the truth. God is real.
Oh yeah....prayer really works too!
Hope your back is feeling better.
Hugs,
Laurie
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Daniel~ please tell Leslie this crew here makes a lot of noise. We require super yummy snacks and we will come prepared to support Leslie-and you. Please tell her there are many going up like in Harry Potter with the wands in the night. To light up the skies. We love you guys. Your both like family here of course. Please let her know we are holding her hand every step of the way. I know caretakers get upset. So the other side of our shoulders are for you. I know my loving DH hates that time also. Hang in there Daniel. You're a good husband to Leslie. And wonderful father to your son. We are with you !
Muddling~ hello honey so good to see you. Hope your Christmas was good. I'm still so tired from everything. I woke up at 815 and napped from noon till 430. I am a professional napper. If anyone needs lessons! You are. Loved here sweet sister!
Tanya ~ Hello gorgeous. How is that special family of yours. I hope you're feeling well also and you also know how loved you are! 😃!!
BooBoo~I am resting my back for sure. I'm looking forward to our lunch soon! It will be wonderful for us both. As they say birds of a feather flock together! My precious DH is in his chair and I am I my bed. I adore being with him. There is nothing better. Hope your medical marijuana plight is coming along! Hugs ~M~
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For Leslie!
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Daniel, I am sending prayers and positive thoughts for Leslie and you. I hope the San results are good. I will be thinking of her tomorrow.
Hugs and prayers from, Lynne
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Daniel, I hope Leslie's scans go well tomorrow!
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good morning! Was up again last night to late. It’s a lovely feeling when you can’t get enough of the one that you love. Even after all these years. It’s a-wonderful life—even with cancer my family brings me such joy. My son is at his new job. He is an assistant manager at a ford service center. Someone must have been listening to me. This job seriously came out of no where and his salary literally doubled . It’s amazing to see him start to fly. I am so proud of them both. Turning into little adults right under my nose. Now if I can only get him to clean his room.
Leslie ~In your pocket. We are with you guys.
Sheila Marie? You ok beautiful?
Sending out thoughts and support for Delvzy. She’s having a scary time of it and needs some of those good vibes.
Parry? Holmes ? Masons? Lynne man? Hope all my sisters are safe! New year eve! Time flys.0 -
Happy New Year to everyone! Praying this is the year they have a huge breakthrough that will make Mets a thing of the past and cure all of us!!!
Daniel, thinking of you and Leslie today! Praying for great results!
Hi to everyone!!!
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Gracie, I am praying right along with you. It is high time for a breakthrough and cure.
Happy New Year, everyone.
Hugs and prayers from, Lynne
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Gracie~🤗🤗 it’s always so good to see you here! I am in full agreement with you on the cure. It’s definitely time to make it happen for all kinds of cancer..hope you’re New Years is a good one we all need a good pain free easy decade at this point.
Waving hello to Lynne (50’s)~ hope you’re doing well. Happy New Year!!🎊 be safe if anyone is venturing out. Mae??
Much love ~M~
Thinking of Leslie!!
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Grab some popcorn folks it's a long one.
Illimae that looks like you had so much fun
Micmel I love that you wrapped your pupper. Had a good little chuckle at how cute he looks.
Marian wow gorgeous photo!
50s that is a wonderful gift. My best friend & soul sister always do ladies tea when she comes to visit.
Praying for everyone with scans/scanxiety. Good stuff is around the corner I feel.
Sorry I haven't been on as much lately. I say that every time recently it seems. It's just been a mad house & mad dash dealing with cancer, holidays, and 2 weddings. Some updates: left breast now has 2 tumors (lame), right breast is a dumpster fire of problems with extensive skin mets (LE has been bad as well and not sure if it's true LE or the cancer...both armpits hurt) & 2 tumors, recent brain MRI showed slight decrease in dural thickening so not too much there. At this point I wonder if the docs still believe it's just swelling. The Avastin they raved about hasn't done much...sooo swelling? Sure why not. There's a mass in my soft tissue in my stomach now. The skin mets are working their way to my mid abdomen like they want to hold hands with this new, heck let's just call it a tumor and be happily surprised if it's not, tumor. I've named it Tabitha, Tabitha the tummy tumor. MO wanted to see if I could do one big session of radiation to help with the skin. So I did and they didn't want to get me in for over a week (wedding is next week so that doesn't work!), then somehow they came through and were able to get my planning scan on Thursday with treatment that Saturday (last Saturday) so I could start my new chemo, Halaven, Monday (today). Which was crucial for me since it's a one dose for 2 weeks then 1 week off. I need to find something that works. Nothing so far has done much and I couldn't afford to put treatment off to the end of January!!! Oh Lungs I think are the same...scans at the end of January for that. Another reason for the urgency over the one week is I can see and feel the cancer growing almost daily...it's just mind blowing to see/feel & see pics of to keep track. A week is just so much at this point. Also i didn't let them access my port today...too worried about transferring skin mets to my heart. Been taking CBD again nownthat Immunotherapy is out...seems like it’s helping a wee bit so yay
Wedding news: I have appointments everyday this week and my fiancé just now tried of his suit and discovered it's navy not black. We are just going to go with it
he also wanted to add a harpist last minute, so sure let's do it. So many last minute stuff to take care of & pay! I almost forgot it was New Years Eve.Happy New Years everyone!!!! I hope this year brings us all good things, peace and pain free days filled with love and contentment.
Had my first Halaven today. So far so good. Work damn you! You are taking my hair my shit body actually did a good job of growing so there u go. Round 2 next Monday morning then at noon I fly to San Francisco. Wish me luck. I may not be on for a few weeks. Stay strong ladies even when that means crying. Crying isn't weak. It takes a lot of strength to feel stuff and then deal with it. Love you all. Sorry if I missed anything going on with you guys.
Micmel, my SIL gave us a hand drawn picture framed of my fiancé and I at a waterfall from our family camping this this last year. Made me cry. Also got a weighted blanket from fiancé - comfort ensued!Here are some pics of those falls in your honor.
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Happy New Year Mae!!!
Parry~ honey I know weddings are terribly busy times to plan. Time just seems to accelerate when you know-its coming. Ty for the update. I worry about my family here online. Everyday is a challenge. I am sending so much strength to you in hopes, that this halaven will kick some major ass. We love you. Ty for the waterfall pics. I’ll show my DH. He loves that stuff!! Much love to all ladies. ~M~0 -
Grannax~Hope the treatment is not too rough on you. Have you started yet ?
Daniel~ how is Leslie? Results soon I would assume? We all are holding her hand!
Much love
Happy New Year!
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micmel. I took the first one last night. My pharmacy ordered the dexa mouthwash but it won't be in until Wednesday. The AA girls say it's really important to use it four times a day. I thought about delaying start date for AA but decided it's time to get this show on the road. Starting the new year with a new TX.
My next modeling gig is in NYC on February 16. I got to pick out my gown. It looks very similar to the black one but in red. I'm going bold. When will I ever have a chance to wear a striking red gown if not in NYC during fashion week? 💞
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I've finally got through the 5 pages I missed!
Happy New Year!
I've loved all the pics, and so sorry for what eveyone is going too.
Tanya, so sorry for your loss.
Grannax-Glad you liver biopsy went well. I'm having mine at Brigham and Woman's, in Boston, on Thursday. I have to be there at 6:30 am (UGH), that means getting out the door by 4:30 am at the latestt. Of cours that's rush hour. They said it should take no more than 2 hrs. Sounds like the same plan you're doing. I will be starting Gamicitibine (Gemzar) next Friday. I was suppose to start it this Fri, but my local oncologist though it would be better to wait another weeik. I haven't had chmeo since Nov 1st and my port accessed Nov 30th. It's making me a little craxy waiting so long.
Lynne-I loved your teas set story. I had one growing up and loved it (our neighborhood was 99% girls, so we had a ball with it. Mine wasn't handed down to me, although, Mom got one sent in the mail from her favorite uncle (who was killed in an Italian church, during world war II. He also sent her a china doll. Both made out of porcellin, which it was impossible to get toys here.
Mae-Happy Anniversary!
The past 3 weeks have been a nighmare for me. Night fevers every evening (they'b been gone for a couple of days now thow), diarrhea for 2 months. I've been on 3 rounds of antibiotic too, because I have a bad cough, which is hurting, my upper right side and ribs, my lower back. My lower back has been awful to walk. It's so bad that I have a really hard time getting out of my terperpedic adjustible bed. I am exhausted. It ruined the holidays for mel. I really hate Christmas now. I said it at my in=laws Christmas eve. I hat what it's become. The presents and money and everyone trying to outdo that too. I felt sick at all 3 of our Christmases. Really bad week for me. Just had to run to the toilet again. I'm on prescription anti-diarrheal meds. I haven't eaten or drank much these past few weeks, and I know that's not good, just have no appetite.I fell yesterday morning. It was a "slow motion one". I hurt my lower left back and it took me 15 min to get back up. I crawled to my bedframe (my knees are bad) and got myself half up from there, then thankfully Bryan put our daughter's walker, she got last year after skiing and sprained both he legs. then lied down on the bed, and 2 secs my husband came home early from work thankfully. I'll just have tomorrow and Fri to get through now. My youngest sister, who lives 4 houses from me took last week and this week off. I can call her when I've "Fallen and can't get up".
Well my husband is making a prime rib, and has invited our 3 local kids and the 3 grands for a New Year's dinner Thank God for him taking over everything.. I've got to call Mom back. My sisters and her are driving me crazy telling me what to do..I'm finally eating regular foodl. Of course I can't have dairy for 3 days before my liver biopsy. My main staple were instant breakfast and yogurt.
Everyone, have a safe, happy, healthy, prosperous New Year!
Love,
Lynne
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Grannax you are so inspiring I can’t wait to see your beautiful pictures I’m hoping you will share of this next show/dress. No time like the present to kick cancer down a notch!
Lynne sounds just dreadful so I’m sending you lots of soft hugs and love. I hope it can get better soon. I will say I’ve come to the point where I prefer, tmi warning ahead, diahrea to constipation. Thank goodness your sister is close just in case. I’ve had the same feeling about Christmas is the last few years. We have scales ours down to drawing for names and only getting one present for that person so we can make the day more about family. Another reason why i put on that Christmas scavenger hunt where everyone had to take a selfie with their partner. Now everyone’s has the fun memory of the game and ridiculous pictures. I did do prozes but they were some candy and body soap and a gift card for first place. Last year I got ginger breast houses for everyone and we spent a good while laughing covered in frosting. It’s just become so much about money and presents that it felt fake and kind of disgusting to me. We only did what we had to do because it was ‘Christmas’ if your know what i mean. Maybe you can turn it around in your family next year? Make it what you think it should be about anyways, please get to feeling better! And good luck with your bx.
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Parry, I am fairly new here so did not know any of your story. You have so much happening, yet you give us a major update. When is your wedding and I hope you can get some of the treatments done so you can stop "seeing" the cancer grow! The waterfall photos and memories plus a hand drawing of same~~very nice not to mention the photos been in honour of Micmel!
Lynne, a big hug from Canada from me~~you too have way too much happening. Someone above mentioned crying and I cried for an hour Christmas Eve~~I cried for myself but also so sad for so many of you going through real horror. I am not much of a crier but lately tears come from nowhere.
I wish everyone as happy a new year's day as possible. I cannot possibly keep up like Micmel but am trying.
Marian
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Thanks Parrynd!
I love the story of the breast cancer ginger bread houses. My nephew had brain cancer 5 years ago at 33. They took 75% of it out (he had been complaining about terrible headaches for year. They'd just give him pain meds and never did an MRI or CT for years. Once they did them, then they saw 2 tumors, one benign, one malignant. He just graduated to having an MRI once a year and seeing his oncologist once a year. I'm happy for him, I'm 18 years older than him, He always asks how I'm doing, of course it's been lousy for awhile. He couid have brain cakes for him. The brother-and sister in laws always donate to his brain walks, not once to mine, or even acknowledge it. I get the preaching from my side and say how I should do this and that (from my mother and 3 younger sisters). Thank God I have nieces and nephew on both sides who generally care.
Enough complaining!
I hope your new chemo is working for you,and you're feeling better.
HUGS!
Thanks!
Lynne
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hello Ladies. Complain all you want. We gotta let it out. Or else we will explode. Now the holidays are officially done. I’m glad we really didn’t decorate too much this year. That way it will be a lot less to be taken down! Parry and Lynne(Man) both amazing women. Soldiering on! My DH and I Are just plain tired. He especially, hasn’t stopped since the day before Christmas Eve. He has to drive back today! Which sucks!!
Living with cancer is so difficult. This year at least for a while I placed it on a shelf. I was in the moment and didn’t really talk
About it much. Then the night after Christmas, we were watching “house” the medical show. Which I love!! His best friend Wilson had decided. Not to do more chemo. They said without it he would have five months to live. I remember those words ringing in my ear. Three years the average I was told. January 22 it will be three years. I never knew time flew so quickly l, after a diagnosis of such. I feel scared as I venture out farther into this. It could be good and bad. Good that I’m doing so well on this treatment. But bad that the medium they give on this medicine. Is 24-29 months average. I just started month 25. The waiting and worrying will put us all into the looney bin for sure. 🤪🤪 hugs to you strong women
Hello Marian~ always so nice to see you.
Hello Tanya my sweet. 🌸🌸
Minnie~ you ok? 💐
Sheila? 🌺
JKL....Jfl.... hello lovelies
Runor ~ miss your humor.
Much love ~M~
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Lynne, I really hate going to Brigham and Womens because traffic to Boston can be so bad. I hope you are lucky and miss the morning traffic jams and that you are able to escape before the evening commute begins. From what I read on the liver mets thread, it sounds like you will be going to the main B&W building at 75 Francis St. The parking garage for B&W is across the street, next to the Shapiro building, but there is valet parking at 75 Franklin St which is the main entrance to Brigham and Women's. Valet service is available 24 hours a day and will save you the walk to and from the garage. Admitting is close to the entrance. If you can't find it, the people at the front desk are available to help. The elevator you need to take for scans are next to the front entrance. I am sorry you have been having such a difficult time. You have been off treatment for a long time, and it is time to start back up again. It makes me angry that so many people experience delays in getting appointments, treatments, and scans. There is no excuse for it, and it is always the patients who pay the price in the form of pain and suffering. I am glad that you are able to eat again, but I wish you had an appetite. I hope 2019 is a very good year for you. Why is it that people who love us give us such a hard time? I know that their "advice" is meant to be helpful, but sometimes it is neither wanted nor needed. I will be thinking of you on Thursday
Parry, How are you managing to do all that you are doing? I was exhausted just reading your post. Blue? Black? As long as your fiance's suit fits, it's good. I have to admit that I laughed when I read that he wanted to add a harpist at the last minute. It sounds like a lovely idea, of course, but it would have been nice to hear about it a few weeks ago. I am sure the weddings will be absolutely beautiful. I can't wait to hear all about them.
Marian, It's always good to hear from you. I no longer try to keep us on the boards. If I miss a few days, it takes forever to catch up. Now I just post about some of most recent messages. I hope no one feels slighted. I do keep everyone in my thoughts and prayers.
Happy New Year to all.
Hugs and prayers from, Lynne
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Lynne(50’s)~ How could anyone feel slighted by you ever.?You’re a very sweet a thought woman. This is a place to dump your feelings. A place to where your seat is always. Yours. Wether it be a week or a month.
Or in honor of sisters lost; the open chairs remain..
Keetmom.....Patty....Mags...Kandy...Ebru..Raewyn.....
LindaE...
I know there Are more. But I get upset thinking of it. We need a great year. A really great one for us all!
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