My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Thanks for anniversary well wishes!
Bigbhome, wonderful to see you post but I’m so sorry to hear how difficult everything has been for you all. Time for some good fortune, miracles, luck to come your way.
I’m a bit hungover today but we made it out for the cafe du monde beignets this morning, then a bacon happy hour and a fantastic dinner, with more crab cakes!
0 -
Merry Christmas everyone. Yes, and Happy Birthday to me tomorrow. Just got home from my second Christmas, Tomorrow the third one will be just our little family. I'm looking forward to a more relaxed day and night with my grandchildren.
I wish I could name off all of you but that will have to wait. To do. tired tonight. 🎅🎄🎂
0 -
Mae~ just hearing about your adventures makes me very happy. I have never even heard of bacon happy hour ever! I love love bacon. How can you be taking meds and be able to have cocktails. You're pretty amazing. I can't even think about that. I'm more of a medical marijuana woman!! Have a blast!
Happy anniversary again!
Grannax~Happy Birthday to you Happy Birthday to you, Happy Birthday Grannax... Happy Birthday to you! My DH is a Christmas Eve baby so tonight is his birthday. I always get him his chocolate. My dog got it. Three tiers of Whitman's samplers down the dogs hatch ba bye. 🍫 🍫🍫🍫🍫🌸 🍰🎂🎁🍬💐🥧🍭🍩🍨🍡🥛🍪🍦 your choice.
Merry Christmas 🎄🎄🎄🎄🎄🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻🎅🏻
0 -
micmel, I don’t drink for a few days after my H&P infusion (every 3 weeks) to be kind to my liver, other than that, my only other cancer med is tamoxifen, which is just an estrogen blocker. I’d be pretty sad if couldn’t enjoy my wine or cocktails.
Goodnight all, more tomorrow 🙂
0 -
Mae~ still I was never a drinker!!
Merry Christmas to those who celebrate it. To those who don’t. Be safe and much love.
My Deeohgee says Merry Christmas!
0 -
Hope everyone is having a marry Christmas! xoxo
Daniel
0 -
Such a handsome pup!
We did a lot of walking today, along the river and through the French quarter, 12,555 steps so far! Stopped in to New Orleans 2nd oldest restaurant (est. 1856) for a cocktail. DH took the hard wooden chair, while I got the throne, lol (love him!). Flying home in the morning and planning our next adventure. So far, we have a quick Bahamas cruise in February, I’m going to visit my BFF in Wisconsin in March, then DH and I will see our niece in Vermont in April and hopefully Catalina Island after that. Whew!
0 -
Mae~the queen correspondent deserves the throne. That paddle boat would have to be on my bucket list. For sure. I love how it looks. Love the bridge, and I can't believe you have that many steps my goodness. That is really something. I guess love conquers all. For sure ! Continue to enjoy your evening and I am sure your next jaunt will be here quicker than. You know it. Today my spine is yelling at me.... too much wrapping and bending and moving and wrapping and carrying and moving. So I am resting for the next 24 hours for sure.
My DH is incredible. He always manages to amaze me for sure. He got me a diamond and sapphire bracelet to go with my wedding ring set. Although he does incredibly well always with jewelry. The rings he chooses are amazing. My DS got me my Chanel body lotion and parfum. My daughter gave me money for my medical marijuana!! Which I am beyond thrilled about. My DH got me the neatest pill organizers one for am and the other for pm. They are truly perfect. I love them. My step son got me my other parfum and the candle that goes with it. Candles. A new blanket, some chocolate, ramekins, new make up, new lotions, hair treatments, an Alexa from amazon for my sleeping sounds and whatever I would like. It was a wonderful day..I enjoyed every second of it. My DD came to open presents with us and then her DH came for our dinner. It was very nice and calm and really fun. I would love it again in a moment. I feel so lucky to have my family together. All
Together. Hope all of you had a great day as well!
Much love ~M~
0 -
Early morning from inside thus the spots. Can you see the moon? Some skiing, boarding and tomorrow we will see.
0 -
I have popped in over the last while to read. Not posting much as Christmas is always a tough time for me and other family issues have had me down for quite a while now. So much is going on with so many of you. It amazes me what human beings endure. We stagger on under amazing amounts of adversity and just keep going. Tough, we are, us humans. Fragile and tough as nails.
You are all in my thoughts even though I do not name names. Reading your posts is like feeling a pulse and knowing that I am part of something that I share here, with you, because in my 'real' life there are so many who care very much, but just don't quite get it. How can they? I hope they never get it. I hope no one ever gets it! If you know what I mean. Goodnight, good fellows.
0 -
Hi All and My Dear Micmel,
Love the photos. Good thing to remember that dogs like those sweets as much as we do. Once I get onboard with my medical marijuana, I’ll keep an eye on my brownies!
I can’t thank you enough, dear Micmel, for you kindness and support through my crazy attempt to end everything. It was a decision fueled by alcohol, so I’m giving an end of year warning to all of my lovely MBC friends to be very careful with alcohol. It depressed me enough to do what some of us have only thought about.
But a new day is here, and so am I. Ready to fight this disease with all that I have. I hope you all enjoyed the holidays. Glad your DH and DS put the tree up, Micmel. I was so tempted myself this year to forego the tree, but very glad hubby said no. I must admit I’m glad Christmas is over. We had my DH’s Mother overnight; she is 89 and has alzheimer’s. So sad. It will most likely be our last year to have her overnight.
Anyway, hope you are all doing okay and got through the festivities ok.
Love to all,
Laurie
0 -
BooBoo~❤️💙 I am thrilled to see you here. You have no idea!!! 🤗🤗 I cant wait to see how it helps you, like it helps me everyday. With sleep, with anxiety. Just about with everything . Our sister Tanya has had great results with Cbd oil. The stuff is amazing. Every state needs access!
I can't wait to spend some time with you soon! Hugs to you and I am right there with you!
Much love ~M~
0 -
Laurie, I am glad that you are feeling better. This disease is not easy to face, and we all have our dark times. My DH had to convince me to put up a tree this year , too. I have to admit that I loved having it up once it was here.
Mae, It sounds like you had a wonderful anniversary trip and celebration. Thank you for posting the pictures.
Grannax, I hope you enjoyed your birthday. Some people don't like having a birthday on Christmas, but it sounds like you embrace it and enjoy the day.
I have had a very busy week visiting family. I was lucky enough to see all of my sons, just not all at the same time. It spread out the celebrations, and my DH and I enjoyed every minute. Oh, and I didn't host any of the celebrations! For those who have been here for a while, you won't be surprised that I have a sappy story to share. My favorite gift was from my 12 year old granddaughter. When everyone was here on Thanksgiving, I showed my DIL a simple tea set that had belonged to my great-grandmother. I explained that it had no monetary value, but my mother had told me about her fond memories of the set while having tea with her grandmother when she was young. My granddaughter overheard the conversation, and apparently it made an impression on her. I opened a gift from her yesterday. It was a tin of tea, a bottle of honey, two boxes of shortbread cookies, and an envelope. The envelope contained a handwritten "fomal" invitation to a grandmother-granddaughter tea party with her and her cousin (my other 12 year old granddaughter). I was both touched and excited. I can't wait. Of course, I will use my great-grandmother's tea set. The tea set was one of several items that I thought no one would want when I am gone. Now I know that my thoughtful granddaughter will cherish it as much as I do, so it will go to her. I think that my mother, grandmother, and great-grandmother would be pleased. Now if only I could find homes for some of the other special items, I would be happy!
I hope everyone had a good Christmas or at least was able to get through the day without too much pain and heartache. I have always loved Christmas, but this year I had some dark thoughts about how many more holidays I will have. Those thoughts left my head when I was with my family. Sharing time with them and making new memories act like a secret medicine that makes everything better. Of course, it doesn't hurt that I am feeling much better than I have in several months.
The new year is just around the corner. Let's hope that there are significant breakthroughs in the treatment of MBC in 2019.
Hugs and prayers from, Lynne
0 -
Lynne~ I am truly touched by you gift as well. How wonderful when you see someone so young notice the history and importance of something so dear. I am excited to hear about the tea party myself ! What a creative thing to do! She's a smart one for sure.. it sounds like you had a great holiday spending time with your closest people in your life. It's amazing when you can not think about cancer.
I did the same thing. Until my lower back kicked in and reminded me. Hey im here. Go lay down ! And so I did with my beautiful DH's help. When he put me to bed he handed me the most romantic Christmas card I have ever seen. I went to bed very happy and loved. My family treated me beautifully and except for this cancer, I have not one thing to complain about. Ive gotten my sister back and my great niece. My nephew back he's now 28....and getting married. But a great kid. Graduated from Drexel on deans list. The only bird that flew out of the nest. Not fell... the other kids didn't fare well at all. My father is declining and that is awful. One day at a time is all we can do. But some of those days are wonderful and filled with love.... much love ~M~
0 -
Grannax~ with you in your pocket waiting for some good results (hoping hoping) hope your birthday was filled with love. ! 🎂🎂🎂🎂🎁🎁🎁🌸🥧🍭🍬🎄!!
0 -
Mae it sounds like you had a great anniversary and planning for a lot more great adventures! Remember to always take us along I love seeing your pictures and hearing about the different cocktails you come across.
BigBhome- I am so glad to hear from you; I was getting so worried. I'm sorry to hear about your husband having further complications; just when you thought you were seeing light at the end of the tunnel. I will be praying that you find a wonderful team that will have a lot of treatment options for you. I feel the same as you when it comes to IV Chemo (it scares me) but I will probably do it when it is time if it can give me more time with my family.
50's- I also had a great time with family with a few times of the black cloud of "how many". It's like everyone says we have to live in the moment because we will drive our selves crazy putting a number on everything.
booboo1- I;m glad that Micmel was able to be there and talk you down from your dark hour (she has a habit of being there when needed). We all have our dark hours and it's great that we have such a great support system here to talk us out of them.
0 -
Oh yeah! Christmas was great!! We actually celebrated on Christmas Eve with my brother and everyone had such a fun time. On Christmas morning we watched our grandchildren unwrap their presents and then my husband and I had a quite afternoon to ourselves which we don't get a lot of.
0 -
Lynne,
Thank you. Your posts have always touched me, and this one is no exception. I can feel ypur love and acceptance over the words. So glad you enjoyed your holidays with your family, and I, too, love the tea set story. Can’t wait to hear about the tea party!
I am certainly feeling much better. I am completely off all opioids and obviously thete will be no more alcohol in my future. I am on stronger depression meds, although my doctor may change them because neither of us is convinced they are working. So onward!
Take care, and may God bless you always,
Laurie
0 -
Micmel,
Thrilled to be here. You are such an inspiration. I heard back from the medical marijuana doctor, and I have an appt. with him on Jan. 7th (so I can get my MM card). Question...did you have to pay cash before you could get your card? This doctor is saying you have to pay him $250 and then he sends in the data for the state to send you the card. Does that sound right?
Anyway, wishing you an awesome time with your family and especially your DH. He sounds like one in a million.
I’ll be in touch.
Love you girl,
Lauri
0 -
50’s, the tea story, so sweet 😢
I’m home and cooking chicken and broth for the annual Butterball Soup (not the turkey but balls of mostly butter and breadcrumbs, similar to a matzo ball), a tradition I adopted from my BFF’s family and I’ll be using the pot and utensils given to us as a wedding gift 18 years ago by BFF’s mom.
0 -
Bigbhome, good to hear from you. Hoping everything works out for you, and 2019 is a good year.
Lynn, what a lovely story, I hope you all enjoy the tea party!
Mae, looks like a great place to visit. Happy Anniversary.
Well, that's Christmas Day over for another year. We had a good day with good friends, and a lovely lazy day today. Scan on Friday, so not a lot of time to stress about it. What will be will be. I also use cbd oil, and honestly feel better since starting last March.
Preparation now for New Years Eve, Chinese meal with friends, so I don't have to cook, then back to ours to bring in the new year
0 -
BooBoo~ since I had an established patient relationship with my palliative care group. I didn't have to pay anything. It was included like a regular co pay. However, if this is something that you do not have already in your Care group,(which they should have) finding one would be a good idea, because of renewal. I don't want you getting sucked into the system like that. I have heard some doctors that is all they do, and those are the doctors that charge $250.. the card itself costs $50. So every year if you kept that same doctor it would cost 250$. I only pay $50 because I'm an established patient. I hope that makes sense.. either way get the card and work into another practice at the same time. Much love ~M~
0 -
Mae~ you’re making me hungry...lol you’re cooking and always doing something.. makes me very jealous lol. I wish I could do half of what you do!
0 -
Good evening all
Welcome home Mae and thanks for sharing your travels, 12,000 steps and happy hour.
Boo Boo I’m in FL and I think every state is different. I am sad to say that I had to pay $250 cash only to get the prescription after seeing the doctor and then FL has you pay $75 to get the state registration card. I have to see them in January and I’ll see what that costs. The CBD oil works for me and I’m grateful no opioids.
My grandkids just rang the doorbell and they want baked ziti so I’m off to give them food
0 -
0 -
Micmel, Tanya,
Thanks so much for the info. I will contact my pallative care group, and go from there. So glad I asked. I was very surprised about the cost, so I can wait a bit longer to go the right route!
Love to all,
Laurie
P.S. Tanya, I’m coming for dinner. That baked ziti looks AWESOME
0 -
Tanya~ my oh my. I am now officially hungry. Looks delicious yum! Love you my friend !
Gracie ~. You ok darling ?
Minnie~ Hello my sweet. I know what you mean about rest. My goodness I am running on fumes ova here ! 🤪
BooBoo~there has to be a certified doctor somewhere in that practice! I wish you nothing but luck. It helps me so much! Hugs to you! Sweet woman.
Runor ~ Hello beautiful. Hugs to you as well!
Scwilly~ hope you're still feeling better !
Divine Hello beautiful !
Showertime ugh! My back went out two days ago. Ouchie!! Wish me luck. Much love to all ~M~
0 -
Hi all! Trying to catch up on read ing here. Not yet, lol! I'm so glad to read all your posts.
50's, so sweet that your granddaughter set up the tea party! Please post on here about it when you three have the party.
Bigbhome, so good to hear from you here and I hope all the complications in your life can be resolved soon and without too much stress.
Micmel, sounds like you had a nice family Christmas. I'm glad you could all be together.
Had a nice Christmas! Very happy my DS came and stayed a few days! Wow! I was sad when he had to leave but glad he came. We talked a lot and he helped us with things here in between the festivities. I stayed up so late each night, not wanting to miss a minute. I've been trying to rest up!
I hope 2019 will be kind to all of us and bring a cure for MBC, BC, and every other kind of C.
0 -
Micmel,
I hope you are not in too much pain. I have pulled my back out more than once, and you are right. Ouch! Take care of yourself, my dear friend, and I'll be praying that you get back on your feet soon.
So I emailed my onc and asked her about the pallative care group in her practice,and if she would support me getting medical marijuana. Response (from her nurse): “You need to talk to your psychiatrist about pain management". Huh? So I guess I'm not going to get any pain support from her group.
May be time to consider another onc and practice. We'll see what she says when I see her in January.
Lol,
Lauri
0 -
BooBoo~It is a shame you cannot get into st lukes which is where I am. It's a wonderful group and your medical records will speak volumes. I can't imagine Easton would be all that far off. Bethlehem would also maybe even closer still. You may just pay this amount this one time so you can get started and then find a practice. That is pain management related and palliative Mine is palliative/hospice group. She is luckily one of the first in Pa to be certified to issue the medical marijuana certification. You'll get one for sure. It's just finding the right one for you. Go on google and google pa medical marijuana website and look by county at the docs that are certified in your area. There have to be some. I'll do some digging also. Hugs my friend. Goodnight ladies. Early night for me. ~M~
0
