My Husband, My Life, My Love, My Family, My Cancer
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Hi Lynne from Manchester Life is unfair, but it seems so cruel that any one person has to experience as much loss, pain, and sadness as your friend. It is unfortunate that your chemo was on the same day as the burial and gathering, but I am sure your friend understands. You are a good friend to stop by yesterday to see her and give her some desserts. Friends and family are what she needs right now even though nothing will ever replace the loved ones she has lost. I think that it is good that her son and his family moved in with her so she won't be alone right now. I will include your friend in my prayers.
Hugs and prayers, Lynne (from Bedford)
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Lynne~(Manchester) I am speechless in what I just read. I do completely agree, how much can one person take? I sometimes wonder and never understand why things happen. It's mind boggling to me. So much struggle. Everyone has their own. But we can only live our own, I wish that things were easier, and we could find some more closure and understanding. Makes no sense. Hugs to you hope you're feeling better after chemo. I know how hard that walk is.
Lynne~(50s) you're always so supportive and say such kind things. You're a bright light in some dark days. Hope all is well for you. Hugs!
Keetmom~❤️Hope you're also doing well. Friday oh yes Friday! Hope you have a restful weekend, and the girls and DH are doing well!
Mae~ thinking of you. Sending thoughts and good vibes my friend. Will be here waiting.
Hugs to all ~M~
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Obviously yesterday was a bad day, I was devastated and angry but today I had a neuro rads consult, bone scan and whole body CT and walked about 3 miles at MDA. I passed my neuro exam with no symptoms from the lesions and as it turns out, the migraine may have been a lucky coincidence. Today, I feel good like usual but confused, I just don't get this cancer crap, how can I be in such poor condition without feeling the effects of it. It's so bizarre.
Hopefully Mondays meeting with my MO comes with no news of any additional progressions.
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Mae~I am not going to be all cliche and say something people would just say to say. You're on my mind, you're our get up and go getter. I believe in your strength and good attitude always. I am sending you thoughts of kindness and support. Even though I can't be with you, doesn't mean my energy isn't trying to reach you. We are here, waiting to hear from you, any little word Or thought. I also agree with the confusion about not understanding how it works. I never had one symptom at all. I understand!!! I am glad you're moving quickly, the sooner they get them out the better. Sending you deep thoughts of strength! ~M~
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Lynne from Manchester- It is totally crummy! Your friend will need you for a good long time after the burial. My friend's husband died unexpectantly right before his 62nd Birthday- and she was literally in shock for over a year. That is how I came to make a quilt to have a project together with her.
Have you heard of the concept of the 2 casserole friend? Lots of people will bring you 1 casserole when the times are bad- the special ones bring you another one (and another etc) they are the 2 casserole friends.
Mae- Im glad that the migraine gave you an early warning-however I think that you ( and others) are way too young for this S***. I think that I read somewhere that 80% of cancer is in super healthy people who didn't do any known thing that was a risk factor.
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Mae~ YOU! Are not in poor condition. No you are not. You are walking three miles, something people who don't have cancer can't even do. You are living your life and you're amazing at doing so. One day at a time. 💕💕~M~
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Thank you everyone for your kind words. Yes, my friend and her sons told me not to come yesterday, they understood, but I still felt bad. She puts on a strong front, but as I said before, she still hasn't healed from the loss of her youngest son and father.
Mae-good luck with your appointment on Monday. I agree, walking 3 miles, you're doing great! I don't think I could walk a mile, at this point! Glad to see the lesions are not affecting you. Hugs!
Lynne-Same name, almost same town (I live on the Manchester/Bedford line), and same age (I'm in my 50's too)! Thanks again for your kindness!
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good morning ladies ~ another Saturday is here. Hopefully it won't be too warm today! Waving hi to Lynne from Manchester! Waving hello to our NKB! Hope you're having a good start to your weekends! Mae~ you're On my mind, sweet friend!! Sending hugs and good thoughts to all. It's times like this that I wish we all lived closer. We could be bringing Mae all kinds of goodies!! ❤️❤️❤️❤️❤️❤️ ~M~
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Gamma knife scheduled for 10/20 and MRI's every 2 months after that. No activity restrictions, so the 5k I planned to walk is still on and DH quit his tour early and will be home tonight
Sunday night dinner and TV are still on, American Horror Story and Taco's!
Good morning everyone and thank you so much for the well wishes. I'm considering this a speed bump, I will step over it and continue on my way
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I realized during my seizures they tried to place an IV in my lymphedema arm. And boy is it telling me a thing or two about that. It's swelling and hurting more today than since it first was known that I even had it. Boy oh boy! Enough already you stupid cancer. Leave us alone!!!!!!!!
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Hello,new friends!!! You have all had a very eventful,week. Prayers for a restful uneventful weekend!!! Happy thanksgiving to our friends up north!!
Lynn of Manchester- You are an amazing friend. In my family tragedy experience,most people disappear,as if you had the plague!!! You are a gem! Your friend appreciates your support! Wheather you were at the burial,or not! Your true friendship means the world to her,right now!!!
Love Chelle.
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Lynne from Manchester, I'm sure your friend understands. You will be there for her when you can. She is very blessed to have you. Most people stop by at first, then they forget about you. I will pray for your friend.
Mae, have a great weekend with your dh! Thank goodness for that fluke migraine. God works in mysterious ways. Obviously, he wanted it found sooner rather than later.
Sending hugs and prayers to all!
Claudia
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Lynne from Manchester, she knows you would be there if you could! I lost my father-in-law and my mother and my beloved husband all in one years time, and in fact the day before my mother died as I was sitting by her bedside I got the news that my husband had had his second massive heart attack , so I had to decide whether to leave my mother or go be with my husband and I left of course and went to be with my husband who ended up living a little while longer my mother died the next day and luckily I was able to get back home and be there with her, but then my husband passed at a later date,and a week after his funeral I had to go with my brother to an oncologist to find out that he had stage four head and neck cancer. So then I was his caregiver for two years. It was the hardest time I've ever gone through. And that first year after my husband died I can tell you that I just was in a complete fog. There's so much time that I don't even remember things I did that I have no memory of what so ever. I am sorry for your friend because she's going through something very similar. But through it all I always knew that my friends were there for me and would come if they could. And I think that she knows that too about you. Just remember that you still have lots of time to spend with her. And believe me the worst of times it is about 10 days after the funeral when everyone goes home. She will need you more then than any other time. Blessings to you.
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Mae~ way to get moving on zapping those idiots! I am not surprised at all that you're already on track for treatment and right with it, our special Mae attitude and spunk! American Horror! I have one more to watch as well. Most likely the same week you still haven't seen. I do enjoy it. Makes you really think and pay close attention. What creepy neighbors! Thinking about you often!
Much love ~M~
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I spent time with my Grand Puppy today. He gets bigger every week. I can't even take it. I love this doggie !
........many hugs ~M~ My little Chief!
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Everytime I go out anymore, people are just mean. No one treats anyone with respect. It's disgusting. No one holds doors for older ladies with walkers and oxygen tanks. I am astonished at the way these young kids are being brought up. I am in shock honestly. ~M~
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Micmel- what part of the country do you live in?
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The burbs of Philadelphia, a beautiful area country, lovely area. I have lived in this general area since I was born. It just seems like the kids that are like 17-29ish. Feel like. They are entitled to anything and everything. They have an uneducated opinion about anything and everything, and while some spout off saying whatever it is they think they know, there is a war veteran sitting at a table alone, enjoying his coffee, shaking his head head remembering what he has sacrificed for this country's freedoms and the way we are able to live. I just worry for the future. If everyone is always fighting with each other. What will become of each and everyone of them ? Mind boggling actually. The kids now do not understand the history of this country. If you ask them basic questions about this country and it's pivotal and America forming historical battles, speeches,constitutional rights and factual information , Maybe one of them would even know one or two answers. Some don't even know who Abraham Lincoln was!!!!! I just don't know what these schools are even teaching anymore. So worrisome!
Hope your weekends were pain free and easy. I had a bad week, I am still recovering from my medication interference and seizures. I never had one before so Ihad no idea every single muscle would hurt for days. My Tongue feels shredded. I need, we all need a better week on tap.
Mae ~ you're in my thoughts my sweet friend.
Much love to all ~M~
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my little cuddle bug. Helping me feel better after this event filled week. Poor DH, it was supposed to be his much needed vacation. And poof it's over! Have a good night sleep well!!! This is My precious grand puppy! ~M~
Thinking of everyone
Sending Mae hugs and support
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........ yup! Except my summer body and winter body are the same these days. I spent all that time losing weight and getting toned. Not so much when mr Cancers gym opened up in my body. Somehow, Limited people were even invited to this gym. Happy Monday!! ~M~0 -
Hope all had a good weekend...Had a birthday party for my dad who turned 70 last week, it was exhausting to reassure people I really am doing ok and feeling good, but got to see lots of their friends I don't see often so that was nice...
I got to run out and stop the bus this morning with my house coat and bald head because Emma forgot to take her pills, always a great way to start the day...0 -
Keetmom~ at least you caught the bus!!!! Those pills are vital! I am sure you looked just fine doing it. You always look so good in your pictures. I am still trying to get my energy back from those seizures. I never realized how much energy something like that causes. Weekend went too fast us usual. I'm so sick of being sick and tired of feeling tired all the time. This relentless awful disease. I still can't believe even really happened. I hate it.
Hugs to you and the girls.
Haven't seen Mae around. I am thinking of you my sweet friend.
~M~
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Just finished up with my MO. Scan results show my hip bone met site is healing and there are no other areas of changes or progression. Looks like the brain business probably started before chemo but were to small to detect. There's nothing I could have done about that and everything else is going as planned, so I zap these lesions on 10/20 and move on. It would have been great to have no brain involvement but things could still be much worse, so I consider this a good day
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Mae~ the same exact thing happened to me when we thought their was no pelvic involvement during my 9 sessions of Abraxane! Even though I was on chemo. They ended up there anyway! They are definitely annoyingly little buggers. I have been thinking of you and wishing there was something I could do. Your spirit and the way you look at things is truly something I admire about you. I want nothing more, than to be able to help the people that are surrounding me here on this thread. I look to you all when my days are bad and I really hope you will all look me....... for the same support. I adore you Mae. So happy to see you here. Happy to know you're doing ok. I care very deeply. Keep in touch!
Hope everyone is doing ok. Somedays are better than others....but this group we have here is always at our best.
~M~
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Ilimae, that sounds like a good plan! Glad to hear there is healing going on. Now zap those little buggers away!
Micmel, totally agree about the manners of the younger generation. My boys were raised with manners and morals but so many younger people weren't. The kids play in the street and won't even move out of the way when you are trying to drive down the street! But if I hit one it's my fault! My son is a preschool teacher and says the kids are unruly...many have behavior therapists at 3-4 years old! And the parents think it's funny that the kid rules the house! Not in my house!! My boys knew better! Hop you feel better better this week, I also had a bad week. Extreme fatigue and terrible pain in my neck.. I think too much iPad time. Using heat and bio freeze
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Keetmom~how amazing that you had a birthday party for your 70 year old father. I didn't mean to over look that because that is a very important milestone. You're a lovely daughter. I know what it is like to always have to be the one who reassures everyone else that you're really doing ok. Explanation after explanation! Center stage, ears all perked up. I hope you had great time. You're so hard working and kind. Lucky family you have.
Sending big hugs your way!
~M~
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Lynnwood~I just don't know what's going on! The school work is harder but the behavior is worse, and doesn't seem to be getting better. They don't care about common decency, or respect at all. If when I was young and I was spoken to by an adult. Ignoring that question and not responding the polite way, would end up making my ass hurt!! They need to get with it ! I hope you're doing well. This weather has been extremely warm and I am sick of sweating. I cannot even believe that its October 9 already. I feel If i am honest, I have no desire for Christmas or thanksgiving! I just have no energy. To worry about shopping or decorating. I just don't have anymore to give in that area. Every year that I go through, what I need and want to do changes. I just can't help it. ~M~ I hope your neck feels better. We have so many aches and pains. How do we even keep track of them all. ?
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Illamae- Im glad that you found the brain lesions when tiny. What else will you be taking after the zapping to keep everything at bay?
I read an article that said that when the cancer first comes it sends little messengers to other parts of your body and says make a nice home for me because I am coming there too! Like little scouts looking for future homes- preparing the soil- and we need meds to work on ways to prevent that.
Micmel- I feel sorry for parents of small kids now- there are so many more distractions, screen time fights etc. When my kids were small, they had no phones till high school. The Mac was in a common space in our house and when they asked for games I just said they didn't make them for Macs (and got away with that for years) My kids are not good computer gamers- but, they did thank me later for not buying them gameboys etc. What's a parent to do nowadays though??
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NKB~ I would tend to be a believer of that article. I know I was healthy and fit, no cancer in family history. And then WHAM! Excuse me miss we think we see something here and oh, we have to check that there. Since that day I feel like those monsters are always trying to get a leg up on our battle and medicine! One month there was nothing in my bones, after the umphfteenth scan, would you lookie here! After 9 abraxane rough treatments, it stillgrew there anyway. Even through that strong chemo, still allowed them new to Grow. If the cells were able to flourish in that harsh environment, what environmental environment does prevent it?
You're also 100% correct in what you said about what the kids are subjected to daily between cable, (which we didn't have until I was well into being a teenager 1983 ish maybe.). Any piece of information is at their fingertips. I would guess more than half of the younger teens don't need to have the birds and the bees talk with their parents anymore, because they already know what we learned years later. My first time was at age 17, now a days I bet it's more like 13 or even 12. Scares me to be a parent as it is, throw in cancer and I don't know, how ladies do it with really young ones. Melts my soul. Shout out to Keetmom, who is one of those exceptional mothers.
Hugs to all ~M~
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Nkb, nothing new after the gamma knife, I continue on the H & P and Tamoxifen. I will have brain MRI's every 2 months and if additional lesions are found on a regular basis, I'm sure we'll re-evaluate the plan moving forward. For now we proceed as if the lesions can be resolved with this treatment and that my targeted and hormonal meds are doing their job to keep the beast at bay.
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