My Husband, My Life, My Love, My Family, My Cancer

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  • tanya_djamila
    tanya_djamila Member Posts: 1,542

    Good afternoon all

    Great results Mae I hope tomorrow’s will be more stable than today’s!

    Chicagoan thanks for letting us know. Happy to hear about stable scans always.

    Simone I hope you’re finished and home. Scan day is always long.

    Runor that sounds like one of those gym workouts working on a farm.
    Booboo I never knew you lived on a farm. Of course it looks like hard back breaking work for sure, never ending but also looks joyful. Definitely the sleep must be heavenly after those daily chores.
    Runor you must be strong and driven. Who chops the wood?

    Candy sorry to hear about your friend on a ventilator. That’s what keeps me masked up and isolated majority of the time. Really just staying distanced. I love going for a ride and getting out when the coast is clear.

    Mel is xgeva like the faslodex shots? It must feel rewarding to share those masks. I get compliments all the time when I wear mine.

    Mara did you go back for the cookies?

    Today I turned 63. I’m grateful for all of this time. I went out got my MM and then visited my dads grave. Birthday coupon $25. Nice surprise. Had a nice dinner. And ate 5 chocolate chip cookies 🍪!

    Tanya

  • Minnie31
    Minnie31 Member Posts: 494

    Happy birthday Tanya! My hubbys 64th too. Hope you have a lovely day xx

    Good to hear good results Mae and hope the rest are good too.

    Keep sewing Micmel, wonderful lady xx

    Thinking of you all through bloods, scans etc. This is so fast moving I can't keep up, but check in as often as I can. Take care everyone x

  • Rosie24
    Rosie24 Member Posts: 1,026

    Happy birthday Tanya! It sounds like you’ve had a nice day already. 😊

    Mae, Yay for stable scans, hope you hear that again tomorrow.

    Hi to Everyone

  • candy-678
    candy-678 Member Posts: 4,176

    Happy Birthday, Tanya.


  • simone60
    simone60 Member Posts: 952

    Hi, just got home. Good news I'm still NEAD!

    Mea, great news on you scan!

    Ok ladies, let's keep the good news rolling!

  • simone60
    simone60 Member Posts: 952

    Happy Birthday Tanya! I hope you're enjoying your day!

  • chicagoan
    chicagoan Member Posts: 1,085

    Happy Birthday, Tanya-you are just 3 months ahead of me age-wise. Sounds like you are having a great day! Wishing you many happy returns.

  • karenfizedbo15
    karenfizedbo15 Member Posts: 719

    Hi All, hope everyone is doing OK? Tanya did I pick up you had some surgery? Mae the trailer seems sorted now so go for it and Mel has the trauma of a sick old pet dog .... dreading that one myself. I PM’d Moomla as also worried about her, so we’ll see if she drops in.

  • illimae
    illimae Member Posts: 5,745

    Stables, Nead, Birthdays, happy everything everyone, yay! 🎉

  • micmel
    micmel Member Posts: 10,060

    Happy Birthday Tanya!!

  • micmel
    micmel Member Posts: 10,060

    congratulations Simone!!!!!!

  • micmel
    micmel Member Posts: 10,060
    Today was a pain in the rear end. My port acted up and wouldn’t give enough blood return. It was there but not fully enough. I began to become a pin cushion to see if they could just get it from my hand and get it over with. Five sticks later. No such luck. So I had to have a catflow Cleanse. They administer it and check the blood after every 30 mins to see if it’s worked. Meanwhile she was still trying my hand. She mana to get it from my hand just at the same time the catflow worked. We had such a hard time getting blood. We all forgot the xgeva shot. So I have to back tomorrow again. Goodness me I suck outloud. Can’t remember jack shit. Good thing it isn’t far.

    Everything we go through. It’s a wonder we aren’t bonkers yet.
  • micmel
    micmel Member Posts: 10,060

    Minnie~Hi sweetheart, always so good to see one of my OG checking in. It makes me smile when I see that little cuties Picture pop up I think of you often and hop you're all doing good there with the second wave reoccurring. Is that true? Never know either with media. Thanks for checking in. Love seeing you Thanks for the sewing mention. Sweet woman

  • micmel
    micmel Member Posts: 10,060

    Karen~ everyday we look at each other and wonder, is this the day we call. my dd wants to be present like it's a funeral or something. I just want to get it over with and try not to cry too much. She loves the dog also. I just want to do it and not make a big deal about it It's not like you get a paid sick day at work. We are weakkkkkkk!!!

  • micmel
    micmel Member Posts: 10,060

    Mae~congratulations 🎊😃🥰🌹🎉🎂🍾🎊🎈 atta girl

  • micmel
    micmel Member Posts: 10,060

    Simone ~ congrats for you as wellll. All this good news let’s keep rolling. 🎉🍾🎈🎊🌹

  • mara51506
    mara51506 Member Posts: 6,563

    Happy Birthday to Tanya!!!!! So glad to hear the good reports for Simone and Mae as well that is great.

    Tanya, I did go out with DB, SIL and my nephew. We got Dairy Queen Blizzards and ate them at a park. Went grocery shopping after and I did remember to grab some oatmeal cookies which was good.

    Mel I am sorry you had so much trouble with the port and blood taking and that you have to go back tomorrow. Hugs my friend.

    I have my infusion tomorrow but not til afternoon.

    I am trying to get color transfer out of my hankerchiefs, my fault for not taking white hankies out of my pants. Washed them in bleach first and soaked a bit. Rinsed out the washer and will soak them with lots of oxiclean to remove the dye until they are white. I am also disappointed. I bought what was supposed to be a mini washing machine. Runs by USB according to the video. It was a scam site and they only sent me a folding washing bowl. Not very big and no agitator. bit disappointed in this development. I will use the bowl for other things. Not worth it to return.

  • Bliss58
    Bliss58 Member Posts: 938

    Cheers to good scan results for stable or NEAD!

    Happy Birthday, Tanya. Sounds like you enjoyed your day. Chocolate chip cookies, yum!

    Mel, sorry you had such trouble today with your port and too many sticks to your hand. Ouch! I've had to have my port unclogged a couple times, but my center always waited to use it which took some time, but is preferred by me.

    Hi and hugs to all.

  • runor
    runor Member Posts: 1,615

    Mel, I am surprised you don't have PTSD from all that jabbing. I am needle phobic and that would have given me nightmares. In fact, nightmares for sure just reading about it.
    Mae, hooray, that is good news.

    Tanya, Happy Birthday and thank you for asking about splitting wood, a topic I can blabber on about endlessly. Hub falls the trees, limbs, bucks to length, splits by hand, dry piles then later moves into the basement for winter heating. I clean up all the limbs, burn brush piles when permitted (sometimes open burns are banned due to weather) help stack wood in basement. I split most of the kindling and re-split each piece of firewood before I heave it in the furnace. Hub splits the wood into big hunks, too big for me to muscle into the furnace. So every morning wearing my slippers and housecoat I go down to the furnace room, wrestle a hunk of wood out of the pile, set it on the chopping block and after examining the wood, choose my axe. We have 8 axes here. All of them with different heads and handle shapes and lengths and all do a different job. Two of them are designated for chopping the heads off chickens but I like them for kindling because they are VERY sharp, reasonable weight, short handled and better for maneuverability. For splitting the actual firewood I favour a 4 pound maul on a medium length, straight handle. For initial splitting of the wood Hub uses a very sharp axe that is lighter than the maul but on a longer, curved handle. If this has not put you to sleep take a hot cup of milk and read it again, you will drop off from boredom immediately. 

    We don't actually live on a farm. We live on a stupid piece of sttep bedrock where we attempt farming like activities, mostly we fail.

  • booboo1
    booboo1 Member Posts: 1,196

    Tanya,

    Happy birthday my friend. I hope it was great.


  • booboo1
    booboo1 Member Posts: 1,196

    Mel,

    Hand sticks are the worst! I hate when they have to stick us there. My port is lazy sometimes too, and for me we discovered we can get blood if I’m sitting straight up and then cough. I know that sounds weird, but that’s what I did and sure enough the blood started flowing.

    Mae,

    I’m so happy to hear the good news. God is answering my prayers like He often does. Hoping the rest of the news is just as good.

    Simone,

    Congrats to you as well.

    Waving hello to Bliss, Minnie, Karen, Tanya, Mel, Mae, Simone, Runor, Mara, Candy, Chicago, Rosie and anyone else who I forgot. Whew! Mel, your living room must be gigantic!



  • goldensrbest
    goldensrbest Member Posts: 737

    Good morning all! Lots of good news on this board today, except for Mel’s port issue. Do the nurses shoot a bit of saline just under the IV site? When I got my xgeva shot a couple weeks ago, they sent me to the infusion center for the shot. Of course they needed to check a couple labs first, and being the infusion center, they can only get blood by starting an IV. I was not happy as I have horrible veins but the nurses there (it took 4 of them to try) all attempted the IV start by injecting a small amount of saline just under the skin. Acts as an anesthetic and makes the IV jab almost painless, even in the hand! They told me not to let anyone start an IV without saline first

    I’m on my way in a bit for a test nerve block for my back. Have had them b4 but since I’m with a new pain management doc, need to go thru standard procedure to be considered for nerve ablation procedure. Can’t wait to hopefully get ablation done. This back pain affects my QOL more than MBC but I hate both buggers!

  • candy-678
    candy-678 Member Posts: 4,176

    Simone- Woohoo on the good scans!!!!! I just PM'd you and now read of your good results.

    Mel- Sorry you had such issues with your Port. And to forget the Xgeva !!!! My Port rarely gives blood. We move me one way, then the other. Cough. Deep breathe and blow out. Nothing. But I have pretty good arm veins still in the one arm (mastectomy so use only 1 arm for blood draws). And the nurse says it flushes smoothly, just doesn't give blood.

    Yesterday I took down my living room and bedroom curtains and tossed them in the washer and dryer. Hanging up the bedroom curtains, I noticed a few pulled areas and they seem to have shrunk a little. Then noticed the label--Dry Clean Only. Oh well, I am not fancy, so I am ok with how they turned out. And they are clean and free of dust and cat hair.

    Today not much going on. Look around the house for things to do. I am a neat freak, so my house is pretty clean and organized anyway. Kind of bored.

    Mara- The DQ Blizzards sounds good. But with Covid in our area, and now reports of Hepatitis (don't remember if A, B, or C) in a local restaurant, I do not feel too comfortable eating out-- even drive thru.

    Moth- Getting scan results today?

    Goldens- Pocket duty for nerve block test today.


  • simone60
    simone60 Member Posts: 952

    Good morning everyone!

    Mel, I hope you didn't get a big bruise from all that poking.

    Mara, DQ Blizzard sounds good.

    Goldens, gold luck on your nerve block test today. I hope it works out for you.

  • micmel
    micmel Member Posts: 10,060

    imageAs we’ve all had before.

  • BevJen
    BevJen Member Posts: 2,341

    Mel,

    Oh, man, that looks awful. I, too, hate when they head for my hands or even my wrists. I think those are the most painful areas to stick. I don't have a port, and I only use my R arm, so sometimes it's rough.

  • micmel
    micmel Member Posts: 10,060

    I have no veins!!!! It’s so annoying, port goes down and I’m in trouble. Xgeva today. So ick. What we all go through. Grrrr

  • moth
    moth Member Posts: 3,293
    I had excellent news from my CT - all lesions continuing to shrink. Radiology report said "significant response to treatment" yippee !
  • simone60
    simone60 Member Posts: 952

    great news moth!

  • Rosie24
    Rosie24 Member Posts: 1,026

    Congrats, Moth!! That’s great news to receive!