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Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
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New Protocols
I am a 10 year survivor of breast cancer (stage 1a, ER/PR+, HER2+). Now my 75 year old sister has been diagnosed with stage 1a, ER+,HER2- breast cancer. She Iives in a distant state, so I cannot go with her to all of her doctor's appointments. She saw her oncologist today for the first time and was told she is most likely…
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Finishing AC and starting T
I just finished my last infusion of AC and in two weeks will start Taxol. My doctor originally told me 1 infusion of Taxol per week for 12 weeks but during our last appointment he recommended I do 8 weeks of Taxol with an infusion every 2 weeks so a more dose-dense treatment. He recommended that because I tolerated the AC…
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Lymph node removed but pathology says no evidence of lymphatic tissue found!
Has anybody had masectomy with sentinel lymph node removed but pathology says no lymphatic tissue found? I’m seeing breast surgeon tomorrow and oncologist next week. Will I need another procedure? I’m not sure I’m comfortable not having lymph node tested as this is my second time having breast cancer!
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Waiting for FISH results
it’s been 2 weeks since my biopsy. Stills waiting on FISH results. I was really hoping to have them by tomorrow when I see my oncologist. How long did your results take? Last time my FISH results came back very quickly.
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Long term benefits vs awful short term sacrifices
Hello all Lumpectomy Oct 21, post op meeting with surgeon, she said"pathology looks good, got the tumor, nothing in the lymph nodes, treatment remains radiation A week later, met with the MO who blindsided me with my high oncotype score(31), and recommended chemo. The idea of going through LBC/risk of infection, hair loss,…
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Just dignosed
Hi my name is Deanna and I am 48 I recently went to the ER for a lump that is really hurting. So I got an biopsy and a CT scan done , and went a couple of weeks ago to the surgical oncologist for the results. He went over the results with me and my family explaining different tests like the Hormone receptors and said that…
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2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
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Deciding on what type of reconstruction
I will be having a double mastectomy with immediate reconstruction on Nov 6 on Long Island,ny. My surgeon’s will be Dr Hodyl and Dr ott young. I have a new primary cancer on my right breast. Idc hr+her- (same as last time 10 years ago) I previously had lumpectomy and radiation and tamoxifen. My oncotype score was 10. I…
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Well here I am again…
After 10 years, here I am again. I meet with my oncologist and surgeon soon. Still waiting on HER Fish results. Will be going for an MRI soon. I figure I’m facing mastectomy as I had lumpectomy/radiation the first go round. It’s in same breast.
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Large Lumpectomy vs Unilateral Mastectomy
Hello everyone, I am a 50-year-old woman recently diagnosed with stage 1A, grade 1, HER2-negative, hormone-positive breast cancer in my left breast. I had invasive ductal carcinoma confirmed in two locations. My genetic testing was negative for all cancer syndromes, and a sentinel lymph node biopsy showed no cancer.…
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Possible round 2 with cancer and scared
10 years ago I had idc stage 1 grade 2 in my right breast. Hormone receptor positive her- brca 1/2 negative Had lumpectomy, 25 rounds radiation and 5 boosts. 5 years of tamoxifen. Hysterectomy and oopherectomy in 2020 after issues with ovarian cysts and heavy bleeding. Had more genetic testing and nothing showed. Could not…
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Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
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Dealing with Lymphedema w/o surgery?
Hi community. I'm posting since I haven't found a similar case yet. I opted out on surgery and chemo (too late), and it's been a good run for 7 years. The LE came on slowly to rt arm, dr diagnosed. Now its in both feet, then the left breast just swelled in size. No real noticeable discoloration. Has anyone else had LE…
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Help! Scanxiety & stress over watching my sister in pain.
My sister has MBC, stage IV, mets to the lungs & bones. Originally diagnosed Stage 2-A, IDC, underwent radical right breast mastectomy in 2020. In 2022, metastasis to the bones & lungs. Her 2nd line of treatments, Capecitabine & Lapatinib, poisoned her system resulting in stomach issues (diarrhea, gastritis, etc. She has…
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To chemo or not to chemo
I am premenopausal (43) diagnosed 12/30/2024. IDC 2.5 cm, HR+ (both highly ER+ and PR+), HER2-, Grade 3, oncotype 26, LN 1+. I had lumpectomy in Feb where they found a 3.5 cm DCIS tumor as well. I had to have a re-excision 2 weeks later because the margins weren't clear. I am looking for any testimonials of women who are…
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Breast implants
I just turned 43 and was diagnosed with invasive ductal carcinoma grade 3 & high grade ductal carcinoma in situ. Im planning on a bilateral masectomy. Im meeting with my surgeon on Tuesday. Im having a hard time deciding on if I want to get implants or not. My question is how did you decide on reconstructive surgery or…
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Are you dealing with infections or bandaging during palliative care??
Hi everyone. I'm starting this topic because I haven't found a similar one to help answer questions and offer me advice. I know I'm a rare case managing my own palliative care, in Asia, while under the care of a great doctor who's using both eastern and western medical traditions. I'm on hormone therapy (Tamoxifen then…
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It feels like my whole life is crashing down
All my life I have tried to leave healthy , avoid junk food , exercise even if I do not enjoy it, do everything to support my immune system and all that shebang. I watched my mom die from breast cancer at the age of 40 and now here I am. Late October , I felt a dull ache in my right best that woke me up in the middle of…
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New Here. What to Expect w/ Paclitaxel + Trastuzumab?
Hello, all. I just joined this forum and am looking for some support. I'm a post-menopausal woman who was diagnosed with ES+/PR+/HER2 + invasive ductal carcinoma this summer. I had a lumpectomy on October 31. Clearly I got the trick not the treat… bah! Anyway, I am fortunate to have had very good outcomes from the surgery:…
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What should be my next step?
My biopsy confirms that I have Invasive Mammary Carcinoma in my right breast, which is hormone receptor-positive (HR+), HER2-negative, and a high Ki-67 proliferation rate of over 80%. Can someone tell me more about that Ki-67 number? Is it normal? Also the doctor initially said it was only one centimeter but the report…
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Chemotherapy, Benefits vs. Risks
I am new here and seeking feedback on my treatment plan, specifically regarding chemotherapy. I have been informed that, given my tumor size of 5 mm, chemotherapy is an option but is often not recommended. The doctor explained that there is limited research on the benefits of chemotherapy for such a small stage I tumor,…
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Need help thinking through AI with ovarian suppression
My MO would like me to start an AI and ovarian suppression/removal. I am 42. Onc score was 31 for IDC with lobular component. No nodes. I understand that I do have a risk of recurrence but I also value an active lifestyle. I had no question mentally regarding the mastectomy and chemo. I do not feel peaceful about the…
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Pissed off.
I was recently diagnosed with invasive ductal carcinoma. I've decided if this can come back, I want a double mastectomy. My mother in law asks me what does your husband think of that? My response, he is supporting me in whatever I decided to do. Then she says, Remember we're all going through this. I want to say NO YOUR…
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Newly diagnosed stage IV
I am newly diagnosed. I am also a year into a systemic sclerosis/scleroderma diagnosis. Looking to connect. I am angry and in denial after the past five years of fighting diseases to now be diagnosed with this.
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IDC and Mental Health
Hello, I've been recently Dx with IDC Grade 2, ER+, PR+, HER2+ as well as DCIS on left breast and also managing Major Depression Disorder, Generalized Anxiety Disorder, and PTSD. I've had my crying episodes and everyone I have talked with says to have a positive attitude. In my experience having a positive attitude is…
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Newly Diagnosed... Scared and Sad
Hello all newly diagnosed. Ductal Carcinoma 2 cm Pos Hrz, 4 cm Neg Hrz. Cancer cells in one lymph node. I am awaiting my Onocology appt. this Thursday. I have such a hard time sleeping, not lots of support since I am a single woman and family…no. So it is very treatable which is good but the thought of getting a masectomy…
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Does insurance cover nipple tattooing?
I'm about 7 months post surgery for my reconstruction (triple negative, grade 3, high Ki67 IDC breast cancer) and I'm extremely pleased with the reconstruction thus far, but I'm looking at getting the 3D nipple tattooing done. Does anyone know if insurance has to cover this part of the reconstruction process? I've sent…
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Recurrence and Now Down the Rabbit Hole
I was dx in 2011 with IDC ER+PR+Her2-. It was in the left breast around 1.2cm. I had a lumpectomy, chemo (TCx4) and rads. I couldn't tolerate Tamoxifen so I took Aspirin each day as the theory back then was it could keep inflammation down and possibly ER+ away. So here I am 13 years later and my mammo showed I now have 2…
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Scar Care
Hi! I'm curious about the best ways people have found to care for their incision scars. I'm three weeks out from my lumpectomy and sentinel node biopsy. My physical therapist suggested Vitamin E or coconut oil and gentle self-massage. I did a quick/limited search online and found several studies that determined that…