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Where Are The "Oldbies"?

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  • sassy
    sassy Member Posts: 6

    Hi, all

    from another "oldie" who joined in 2002. It is nice to see all the names of our "club" from way back when. I am still doing okay here, too and will be finishing my Arimidex this fall. NED is doing great. Good luck to all. Sassy

  • Pepper_B
    Pepper_B Member Posts: 173

    Just want to drop everyone a note to say that Kristin got her MA in RN.....

    she will be joining her father Bill (Mr. Timberbell) working in the Prison system.

    Here is a big CONGRATS to you Kristin - we are so PROUD of YOU!!!!

    Whoever said," winning isn't everything", never had to fight BREAST CANCER
  • NaughtybyNature
    NaughtybyNature Member Posts: 190

    Bumping!

  • seawolfe
    seawolfe Member Posts: 3

    Heh, nice bump Naughty Wink

     Wow! So many names I remember! So good to see them, and to hear of those who passed Frown. So bittersweet.

     I hit my 5 year mark this year. My onc Dr Link (who I love love love ) is so pleased that I got on the clinical trial for Herceptin, and landed on a Herceptin arm. I am too. And its all thanks to my hubby who found the trial, made the appointment and dragged me in while I was stil at the "lalalalala I dont have breast cancer" stage. 

    I had a DIEP recon, and so glad that I did. Even if I have gained weight and now the "frankenboob" is larger than it should be! Silly silly problems we have, huh?

     Im doing well, except for the return of hot flashes that had me back here to look for advise from the incredible people here.  But that is minor in the scheme of things. I'm still dancing with NED and thats always a blessing Cool

     

  • LJC
    LJC Member Posts: 11
    Hi Carrie . . . .glad to hear everything going well for you.  I too have returned here for advise, my 5 yrs on Arimidex will be coming to an end in February and my onc has mentioned continuing on Arimidex and wanted to get input from those here in similar situation.   Saw onc on Weds and everything is good and NED is still my dance partner.  WHOOHOO!!!! Laughing
  • socallisa
    socallisa Member Posts: 10,184

    Hi everyone..

    Dx'ed in 2000...I finished up with the arimidex over 2 years ago...I think five  years is plenty, at least for me,,my onc agreed...good seeing so many!!!

    SoCal Lisa 

    BTW..our San Diego group has the pleasure of having Shirlann being one of us... 

  • sushanna1
    sushanna1 Member Posts: 61

    Seawolf and LJC--Good to hear from you again.  So glad that you are doing well.  I was always more of a lurker than a poster, but want to report that I had my first normal mammogram in years last month.  First time in 6 years that I don't have to have another one in six months.  First time in 15 years that I didn't have an immediate sonogram.  I couldn't believe it and tried to convince the radiologist that she must be mistaken.  It has been 7 years and except for a bit of chemo brain and thinning hair (thank you femara), life is good.

    Sue

  • seawolfe
    seawolfe Member Posts: 3

    Lois! {{hugs!}} Glad you still have that dance parter!

    OMG I finally had the time to read the whole thread. PepperB is a bonafide crime scientist - my dream job! And HarleyHoney / Stacey is still kicking butt! And Sierra is still writing poetry <3

     Heh shushanna1 - I'm now on the 1 year mammo schedule, and its weird. I kinda miss seeing all the nurses. One time the nurse was so interested my my DIEP recon that we both ended up with our tops off comparing recons, and then the other nurses came in and we were all comparing - it was like a funny reconstruction porno scene Tongue out

  • Sachi
    Sachi Member Posts: 63

    How good to hear from you all!

    Carrie, its good to hear you are doing well. I hope someone can help you with the hot flash thing.

    Lois, my onc is going to keep me on Femara for awhile. When I ask him how long he says maybe forever. I don't have problems with it - so I don't mind.

    I talk to Rosebudd and Leelee sometimes. I've been receiving help from the ladies here about recon advice. I now have surgery scheduled for a DIEP in October ( I have been using a prosthesis) so I'm excited and nervous about that .

    Good to see all the familiar oldbies!

    Barb 

  • kimmytoo
    kimmytoo Member Posts: 4

    oh my gosh!  I just saw (and read this).  Don't know whether to laugh or cry, actually....  Its so good to see who all is still around and doing well, but this board sure is different than it was in '03 & '04.  There's just soooo many categories now, way too much effort required (for my taste...) 

    Just got enotes from Geeta and Nikki (who was running a race today).  Geeta has had some progression in her lungs (Boo -- I think she said it most eloquently -- "Stupid cancer!")

    Been pretty addicted to facebook lately (Myspace is too much effort for me also)  So, who's on there?????  Would love to add you....

     Just passed my 5 year mark, but doesn't really count since I'm still in freaking chemo.  Those people are going to be SOOOO sick of me, because I still don't plan on going anywhere anytime soon.....

    Love you, ladies!

  • LJC
    LJC Member Posts: 11

    Barb and Kimmy - good to hear from you.

    Barb, I think the choice will be mine to stay or quit the Arimidex.  I would actually prefer Femara but my insurance wouldn't cover it - so I had to go with Arimidex.  I should check to see if they are covering the Femara now.  I'm still with prothesis too, would like to do recon, now that things in my life have calmed down I should look into that.  I'm just afraid the surgery will bring my lymphedema back. 

    Kimmy, you're right about the boards being sooo different.  I don't get back here too often.  Don't have a facebook, but do have My Space - check me out there www.myspace.com/charlotteandme

  • Pauline3837
    Pauline3837 Member Posts: 7

    Hi Ladies,

    Good to see all of your posts.   I've completed my five years of everything.  Finished the last of my Arimidex on September 14th and wow, I'm feeling so much better.   Bone pain has dimished to just mild discomfort.   Danced with my three year old grandson and 18month granddaughter for the first time last week.......man that felt good.  Looking forward to the birth of my 3rd grandbaby in April/09.   So much has changed since that aweful day back in 2003.   I appreciate life so much more and all those I love. 

    To all of you fantastic, wonderful and strong women who have crossed my path through this forum, who have picked me up when times were rough and held my hand when I was frightened, I thank you with all my heart.   May you always have love in your life, hope in your heart and peace in your soul.

  • hope_m
    hope_m Member Posts: 24

    Kimmy, you sound great, despite the continuing TX.

    I don't post much anymore, but have a bone scan next Monday to make sure that some hip pain isn't something other than a soft-tissue injury.  (crap.)  Haven't had to chase any cancer ghosts for quite a while. I guess that I was overdue!

    Hope M. 

  • Sierra
    Sierra Member Posts: 180

    Hi Seawolfe and all posting here today

    sooooo good to see all these names

    My goodness, with my chemofog or brain

    I forget them

    lots of hugs out to you

    and special .. Happy Thanksgiving wishes

    to the Canadian sisters.. ours comes up

    soon

    Lets all stay on a good path!

    HUGS..

  • NaughtybyNature
    NaughtybyNature Member Posts: 190

    Hey Kimmy... wondering where have U been?!?!  Glad U are still around and glad to see many "old" faces still "surfing".

  • hope_m
    hope_m Member Posts: 24

    Just have to let everyone know that the radiologist sent word out that he "didn't see anything" on my scan.  I'm waiting for the formal report.  

    Hugs all around,

    Hope M. 

  • NaughtybyNature
    NaughtybyNature Member Posts: 190

    Hey Hope: my radiologist just said the same, no changes from last year but I was recommended to have an MRI of the breasts which I w/ as soon as I can walk straight (...); I guess b/c of my dense and cystic tissue, an MRI w/ give us the complete picture.

    Thumbs up everyone! 

  • hope_m
    hope_m Member Posts: 24

    I had my regular mammogram today and will have to get regular bi-lateral breast MRIs as well.  They can study the blood flow into and out of the breast areas and that gives them an idea of what might be cancer even when nothing really images.  They are good studies, but lead to some fruitless biopsies!

    Hope M. 

  • iodine
    iodine Member Posts: 869

    So good to see you all!!! 

    I never thought I'd live long enough to have my recon implant replaced, but due to rupture of the saline part(silicone is fine), will have a new one put in next Thurs.  Grrrrrr--was worried about LE, but figured I'd had 2 separate recons on that side, so decided to take the chance. 

    Congrats to all with neg testing, films, and still dancing with NED.  He's such a lovely guy!

  • NaughtybyNature
    NaughtybyNature Member Posts: 190

    Bumping.

  • sushanna1
    sushanna1 Member Posts: 61

    Had my first normal mammogram (since 1999) this summer.  Still makes me nervous to talk about it.  I don't want to jinx things.  Diagnosed with IDC and DCIS--comedo in May, June and July 2001 at age 48.  My tumor(s?) was/were multifocal so I don't really know the size.  The pathology reports varied (the first lump [or at least part of it]) was ER/PR - and the second was ER/PR +).  I was told to consider myself ER/PR +.  I've had 4 benign biopsies in the past 7 years so am looking forward to an annual mammo instead of every six months. 

    IDC, DCIS, 1+ node, probably Stage IIb. ER/PR + HER2-.   Excisional biopsy; lumpectomy, sentinel node biopsy ;re-excision and axillary node dissection.  4 AC every three weeks, 11 weekly taxotere.  Radiation.  5 years tamoxifen, now taking femara.

  • iodine
    iodine Member Posts: 869

    Well hello!  sounds like you are bringing a lot of good news to us!  I just love to hear about that first normal mammo, it makes all the other crap worth it!

    Keep up the good vibes and begin to enjoy the neg. mammo.  it'll take a while, I know, but sooner rather than later, you will begin to worry less and less.

    Hugs, and Happy New Year!!!

  • Sachi
    Sachi Member Posts: 63

    I think I'll bump this thread up. I'm so sad about Geeta losing her battle. She was such a kind woman....always asking about others.

    I'd love to hear how the oldbies are doing. I remember so well being a newbie!  Flash said something about playing in the big kids sand box - referring to when we would get to post in the Moving beyond cancer thread.

    Barb

  • LJC
    LJC Member Posts: 11

    I'm still around but not here very much anymore.  In July, my onc finally took me off the arimidex and for the last several years I was having 6 mo ultrasounds & mammos on remaining breast because of a teeny tiny mass (also had mri) that has been decided to be "B9" so I'm now on a yearly mammo.  I'm happy to be off the arimidex, but a little nervous about not see my onc for a whole year but . . .  .it's been 6 1/2 years so I think it's really time to move on with a little more normal life ... one that is not filled with bloodwork, tests and doctors.  She tells me I'm doing amazingly well and eventually I will stop seeing her :) I've become addicted to Facebook now with alot of the "oldbies" as friends.  Hope everyone is doing "amazingly well" too.

  • VickiTN
    VickiTN Member Posts: 16

    I am sad to hear about Geeta, too....I don't come here and post much any more, but, I do check in occasionally and look for familiar names. I'm doing well...and hope everyone is doing great, too! hugs,

    vicki

  • Sierra
    Sierra Member Posts: 180

    A warm hello to all here!

    I used to post a few years ago

    and seems most of those sisters

    have moved on, some are here

    though and nice to see them :)

    Sending out hugs,

    Hi to Iodine and Vickie, Seawolfe and where is that Lady

    Vera.. she used to post funny jokes ?

    I am truly sorry about the loss of so many sisters here

    but many do stay on a good path

    Warm hugs to all

    and to American sisters

    Happy Thanksgiving!

    Hugs, Sierra

  • iodine
    iodine Member Posts: 869

    Good to see ya, Dearie!

  • sprph
    sprph Member Posts: 3

    Hi just checking in, dx 10/03 so going strong!!!  life is sure full of stuff over the years, I so remember "living" on these boards looking up stuff all the time and connecting with people going thru the same.  i have referred far too many friends and people to this board, and they all agree it is awesome support and information

  • Doc
    Doc Member Posts: 2

    Hello from Doc!

    I just had my yearly mammo today and usually get a little nervous of course until the report gets done.  I am finishing my 5th year of oral meds (first Tamoxifen, then Femara).  At my oncologist visit in a couple of weeks we will decide whther to stop or to continue Femara.  Might be scary to me to stop!

    I am doing well and no recurrences.  I miss hanging out on these boards sometimes but have switched to Facebook more, anyone who wants my Facebook info just ask.

  • iodine
    iodine Member Posts: 869

    Love "hearing" from the oldbies!!!