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Who else has been diagnosed with BC multiple times?
I am not sure how many of us there are, but for anyone who reads this, to me it feels like HAVING IT AGAIN, FOR THE FIRST TIME! What I mean is, that I had IDC in 2003 treated with two lumpectomies, removal of 24 lymph nodes, chemo and radiation. In December of 2018 I had ILC, in the same breast, treated with mastectomy…
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Dx’d 8/2022
Hi all, I'm newly diagnosed with left breast IDC at 48 y/o. Initially, DCIS from a biopsy but after lumpectomy, final pathology showed 6 mm IDC, Grade 1. ER/PR + HER -. My surgeon requested oncotype to find out if I will benefit with chemo. I had my first appointment with my MO yesterday and found out that the pathologist…
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Apparently I Am "Just Diagnosed." :(
Hello everyone. Here I am, terrified and confused like most of you were when you got "The News No One Wants To Hear." I had what appeared to be a light pink bruise on my right breast the week before Christmas and wasn't concerned. Watched it for a week or so to see if it would go away and decided to Google. Bad idea, but…
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Recommended Oncologists/Teams in DC area? Hopkins?
Hi, I'm currently reeling from my surprise diagnosis at age 42 after my first mammogram, and I'm looking for recommendations for doctors, and advice on figuring out who to see, what to do, etc. 1. I have a tentative diagnosis for a rare papillary pre-cancer (papilloma with atypical ductal hyperplasia or DCIS, can't rule…
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Newly Diagnosed
I was diagnosed with Invasive Lobular carcinoma. Meet with surgeon and came out feeling so confident. Had a MRI and they found a 0.6cm mass suggestive of an intramammary lymph node. Now I'm scared to death because of the words lymph node. I realize not everyone is the same, but has this happened to anyone else and what was…
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IDC, Grade 3, maybe metaplastic?
Hello there! I'm still in diagnostic process (MRI done yesterday, PET/CT tomorrow), but what I do know is that I have 6 tumours in my left breast, they are quite big (that wasn't written on my report), I am ER-, PR- and HER2 +. Grade 3, score 8. I will do 6 rounds of chemo with antibody treatment, then surgery. What is…
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Arm pain 1+ week after vacuum core biopsy?
I tried to find the answer to this but haven't -- I've been getting some arm pain in the upper and lower portion of the arm next to the breast that had a vacuum-assisted core biopsy last week --- the incision is in the side of the breast next to the armpit. Could the radiologist (not a breast specialist) have hit a nerve…
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positive lymph nodes with extra capsular extensions?
Hello. Anyone have positive lymph nodes with extra capsular extensions? What treatment options are there? I read something about aggressive treatment, what does that mean?
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Dental work pre-treatment? Uterine polyps and Tamoxifen?
I'm 45, premenopausal AFAIK (more on this later). My biopsy came back as IDC, ER+, PR+, HER2- for a 1cm mass on Friday. Feeling massively overwhelmed, anxious, scared, angry, and just so many emotions, but trying to keep it together so I can plan better. I have appointments with a surgeon and MO at Dana Farber in 2 weeks,…
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Newly diagnosed
I just came back from my appointment. Not all tests are back, waiting on one but I have Invasive Mammary Carcinoma, she said right now it's stage 1, but until the last test comes in, we won't know for sure. She was talking about ER and PR I think and one still has not come in. One was low positive, then negative and the…
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Dx'd 7/1/2022
6mm x 3mm x 2mm suspicious nodule detected under my dense breast tissue, by extremely thorough ultrasound technician. My first response: "Thank you!" I'd rather know now than discover it 5 or 10 years from now. Biopsy 6/29/2022: as pleasant as could be! The nicest team! Results 7/1/2022: invasive ductal and lobular…
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Question about pathology results versus biopsy results
I am newly diagnosed with breast cancer and my pathology report after surgery was a little different from my biopsy report and I want to understand what that means. My surgeon says it doesn't affect any treatment decisions since essentially the pathology confirmed the biopsy results and the chemo decision is still waiting…
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Post mastectomy and feeling alone
hello, I am 7 weeks post-op bilateral mastectomy and feeling alone. I have gained weight and having a hard time with the pain from the tissue expanders. I am so disfigured and over my normal weight that I won’t go out in public. I am finding myself in a dark place and having trouble getting through the day. Did anyone else…
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Newly diagnosed IDC
My story starts in March, just before I turned 50. I had a biopsy for microcalcifications. They found an intradermal papilloma, and I was referred to a breast surgeon. I saw the surgeon mid-May, and because of a couple of lumps she felt on physical exam, she wanted an ultrasound of the left breast to make sure she knew…
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New "Support Person" for my cousin
New here, but not new to the cancer thing. I lost my mom about 15 yrs ago to this horrid disease. Anyway, I am not the one diagnosed but trying to help my young cousin, 35 y/o, whom I used to babysit... who has now been diagnosed. She is healty otherwise. I am not familiar with the terminology even though I'm an RN or how…
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DCIS with additional areas of non-mass enhancements
Hi Everyone, I was diagnosed with intermediate grade DCIS in my left breast (at 12 o'clock) 2 weeks ago. Last week I had an MRI and the following areas were noted as needing additional biopsies: Left - non-mass enhancement of 2.6 cm in lower outer quadrant. Linear with fast uptake then persistent kinetics. Left - non-mass…
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New diagnosis IDC stage IV + lymph node
I just got diagnosed with IDC stage 4 right breast and right armpit lymph node. They haven't biopsed the left breast yet but they want to asap! My question is isn't more important to see if the cancer has spread anywhere else in my body before the slightly suspicious left breast?? Its been really hard getting STRAIGHT…
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2nd cancer - melanoma
I can't believe I am back to the beginning again. After surviving the last year of IDC dx, surgery, chemo, rads + hormonal blockers...I just had a skin biopsy come back as melanoma. Not sure where to post, I thought maybe there was somewhere for secondary type cancers. I am wondering if there is a link somehow? I am always…
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New here
Hi all, just got the call no one wants— I have lobular breast cancer. I don’t know anything further than that. Thanks, Cynthia
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Invasive Ductal Carcinoma
I was diagnosed in March. I am 53 years old with no history in the family. I am Pro+/Est+/HER2-. The mass is close to my nipple (@1:00/2.5 cm deep). It is 11mm in size. I'm having a tough time deciding between Lumpectomy/Radiation or Mastectomy. Also not sure about reconstruction or flat. There's so many decisions to be…
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Newish diagnosed excisional biopsy
I have been recently diagnosed IDC along with incidental finding of DCIS per surgical pathology report from 4/8/22. I am looking for current recommended guidelines on surgical margins parameters. I am finding different numbers for idc and dcis. And I am receiving conflicting opinions from surgeon, MO, and RO thus far. Not…
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Diagnosed Today - IDC
Had biopsies on both breasts on Monday afternoon, and met with my doctor today for results. On the right, “Invasive well-differentiated ductal carcinoma,” and on the left, “Invasive moderately differentiated ductal carcinoma.” I’m hanging on to the good parts - grade 1 on the right, grade 2 on the left, and ER+/PR+/HER2-.…
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Crying, scared, blind-sided 50 year old.
3 weeks ago I was healthy. I had recent blood work that showed all my numbers were excellent. And then one morning I woke up with pain in my left breast. I thought I slept on it wrong somehow and waited until the following day to check it. That's when I found a lump. It was going into the weekend but I managed to get an…
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When it rains…
So last week I had my breast MRI. That was Tuesday. On Saturday I felt a faint bruised area on my right upper arm. Thought I’d bumped into something. On Sunday, the painful area had spread. Yesterday (Monday) it hurt enough I called the nurse practitioner who said to apply warm compresses and take Tylenol or Advil. During…
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Invasive Lobular Breast Cancer & CHEK2 gene mutation
Hi, I am Gloria 55 and I have been diagnosed with Invasive Lobular Cancer -22mm. Estrogen Positive, HER-negative, one lymph node taken out and showed negative. According to Oncologist I was borderline to be considered Chemotherapy. Prosigna test was done and showed "medium" risk of reoccurrence. It was left for me to…
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Second Opinions & Genetic Testing
Hi all, This is my second post, but I'll give a brief summary of my diagnosis. Diagnosed 1/24/22. I've received a biopsy and PET scan. I have a 4 cm lump in my left breast and a lump (I believe 2 cm but can't remember) under my arm in my lymph node. The PET scan has revealed that there is no distant cancer that they can…
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Just diagnosed. Surgeon choices?
Hi, I'm SarahMaude. I'm still a little shocked to be here. No one under the age in my family tree has had any cancer before age 70. I'm feeling a little of everything. On Tuesday this week when they told me my ultrasound following my mammogram had cancer indications that led to ordering an ultrasound guided biopsy the same…
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Just diagnosed - back/shoulder pain!
Hi all, I was diagnosed multifocal IDC on 3/3 with lymph node involvement. Ever since my diagnosis I have had persistent back/shoulder pain, nothing crazy or unbearable, but I am constantly thinking about it. I had a CT and bone scan and both came back clean but I can’t help thinking what if they missed something? It has…
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Diagnosed with second primary, treatment decisions
hi everyone, I've been reading through your stories and I appreciate all that you share! I had IDC 12 years ago, did lumpectomy, chemo, radiation and 10 years of tamoxifen. Recently there were changes in my other breast that lead to a biopsy showing DCIS. I'm overwhelmed with the information. After meeting with the breast…
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Had a surgeon... lost a surgeon
I was recently diagnosed with early stage breast cancer. I am part of a high risk breast cancer program as my sister and father both had breast cancer. I get a yearly mammogram and MRI as a result of being in this program. My sister died at 61 from breast cancer that spread to her bones and my dad had breast cancer in his…