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Moved to annual oncologist visits today - living life differently after cancer
Heck yes!!!! Celebrate good times. The photo was my first international trip taken this year. More to come. 🤸💕🤸
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Bilateral Mastectomy Club
I would love to hear from others who had both breasts removed. I was refused a bilateral mastectomy in 2019 when I had my left mastectomy because my BS lied to me. I ended up with BC in the right breast in 2022, and had a right mastectomy that fall. I am not thrilled with my current BS but have no intention to look for yet…
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oophorectomy or ovarian suppression after treatment
Hi all, I'm back here after quite a while, with a question. I was diagnosed at 42 so premenopausal and along with all the other fun got put on lupron/letrozole. I had a bad time, major depression, all the hot flashes, etc. Got switched to tamoxifen after a few months and eventually things got better. 3.5 years out I am…
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Medicaid Application/Renewal Survivorship Anxiety
I am a 39-year-old cancer survivor, and due to my BRCA mutation, extensive family history, and the fact that my cancer was triple negative, my oncologist has me under observation for the foreseeable future. I originally lived in Wisconsin, but moved to Texas in early 2019. I was transferred from the Wisconsin Well Woman…
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Not quite a horder - decluttering
Okay friends, I'm updating this info. I love the picture though so I'm leaving that!! I continue to look at a very unorganized house. My friend Zogo had an idea about a thread for decluttering and I thought why not get one started. Feel free to share decluttering or organizational ideas or hold yourself accountable to us.…
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Who else is a Genealogy Nut??
I have been doing my family history for a few years now and I KNOW I am not the only one on here that dabbles in genealogy. Lets share our stories, our research queries and maybe along the way we can help each other with research. Or maybe we'll find out we are related!! My family roots go from Nebraska back to Scotland,…
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Additional ultrasound
So I live in a state that does not automatically do an additional ultrasound when you have dense breasts.. I've asked about getting an ultrasound in addition to my mammogram but they tell me they don't do it.. is there any way to approach my doctors so I can get a supplemental ultrasound?... I would actually even pay for…
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Bra after reconstruction, 5 years out
Hello! I haven't posted on here in ages but wanted to reach out to ask if anyone else if having issues feeling comfortable with their foobs in a bra. I have over the muscle, direct to implant reconstruction and they are pretty small, measure out to a 32c. I have a very lean chest and almost zero body fat on my chest. So…
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Veozah
Has anyone started Veozah to manage AI induced hot flashes? Had my well woman visit today and my GYN recommended it. Thanks!
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Completed 8 years on Letrozole - trying to control hormones/hot flashes/weight gain
It's been nearly 10 years since my diagnosis of Stage 2 Breast Cancer at age 48. After surgery & treatment, I was on letrozole for nearly 8 years. It was a challenge to tolerate it - joint pain, hair loss, exhaustion etc., but I did for almost 8 years hoping the benefits would outweigh the risks. Unfortunately my blood…
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After menopause…
post hormone + breast cancer, and post menopausal - along with the weight gain and joint pain and all the wonderful things that go along with a hormone depleted body —- how do you cope? I’m so sick of the weight (I’ve tried everything) and exercise Is challenging because joint and muscle pain along with fatigue. Is it…
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Hair loss 3.5 years later
so I finished chemo 3.5 years ago, my hair grew back and was never as thick as it was pre chemo but that was actually a gift from chemo (it was waaay too thick before) I was very happy with my chemo curls and all of a sudden it began thinning several months ago. In talking with two individuals who went through chemo at the…
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Period after chemopause
I went through AC-T chemo 7 years ago at 40 which put me into chemopause. I have been taking aromatase inhibitors since then. I am now 47 and am having my first period. Did anyone else have this happen? I have a call into my oncologist and ob-gyn. Just wondering if it has happened to anyone else.
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Weight Loss--Wegovy or Alternatives?
Hello everyone. I finished Kadcyla back in April and have been on Anastrozole for almost a year. (By the way I'm triple positive and probably need to update my profile since I haven't posted in a while). Anyway, after chemo, 4 surgeries (including removing my ovaries), targeted treatment, and all the trauma over the past…
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Finish Line Scanxiety
I have an appointment with my MO on 25 September. I have to get blood work done several weeks ahead of time to make sure all the results are in for the appointment, so I’m planning to do that on 1 September. This should be my final 6 month check up and if my blood work looks good, it will mean 3 years in remission, which…
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The Future of Remote Learning and Online Tutoring
Exploring the Future of Remote Learning and Online Tutoring In recent years, the landscape of education has been rapidly evolving, with a significant shift towards remote learning and online tutoring. The COVID-19 pandemic accelerated this trend, but even before that, digital platforms were already reshaping the way…
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TSA Advice? Bilateral Mastectomy
I am looking for advice about getting through TSA screening without extra embarrassment. I had a bilateral mastectomy, no reconstruction, all healed now. I am comfortable with this new body in everyday situations and also at my community swimming pool where I work out without prostheses. But I am terrified of TSA. During…
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Question about Nuclear Whole Body Bone Scan
I had a nuclear whole body bone scan this week and I had taken a disk and report with me from my previous scan which was done at another hospital in 2018. I was told they loaded that information on their computer. When I got the report, it said "comparison: None." I am wondering if those scans are like Dexa Scans which…
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Pain almost a year after lymph node removal
I had a lumpectomy and three lymph nodes removed last August. I went to PT off and on for a seroma, cording and the onset of lymphedema. The cording is a lot better than it was. But I’m having more pain/tenderness in the back of my arm and underarm again. I stretch every day and try to drink a lot of water. Just wondering…
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BC humor
Last night my nine-year-old son referred to DCIS as "Duckitis" and it's a good thing I was lying down because otherwise I would have fallen off the bed I laughed so hard.
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Immunotherapy for hormone positive, HER2- breast cancer
I like to keep up with medical trials and research for breast cancer and was wondering if anyone knew anything about using keytruda for hormone positive, HER2- tumors. It seems there are some trials going on right now with it but I can't get an inkling on how it's going. Any news that anyone knows about? Just wondering if…
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CT scan before mammogram
Hi everyone. Just wondering due to high calcium i had a ct of neck chest abdomen and pelvis 3 months ago. All fine calcium normal now. Question is can I feel alittle less tense about my mammo tommoro as my chest was fine a few months ago? I am 6 months out from my last kadcyla.
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TUMOR MARKERS
Hi, wondering. If mammo is okay but markers slightly high what is the protocol?
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Research News: Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk BC
Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk Breast Cancer May 26, 2023 Following cancer prevention lifestyle recommendations before, during, and after being diagnosed with high-risk breast cancer cuts the risk of recurrence and death. Read more…
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Recovery and Exercise Stamina Issues
Wow, I still am having a hard time maneuvering around the forums since the .org blew them up. I have no idea if I'm posting in the right place, but here goes.. I'm seventeen months past my treatment plan, and doing pretty well. But I don't seem to be able to build up exercise stamina. As in, I'm now doing a lot of…
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For 5 or more years Survivors: Did you make any lifestyle changes?
Looking to learn what do survivors do to avoid recurrence? Any lifestyle changes you made? Like not eating sugar, followed any specific diet or did any changes that you think helped avoid recurrence? Thank you!
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20 Years Cancer Free - A message of hope
Hi there I hope this message is allowed. 20 years ago I was diagnosed with breast cancer. I had ducal carcinoma with one infected lymph node. I had four rounds of chemotherapy - followed by mastectomies and another four rounds of chemotherapy. Treatment was tough. I was a young mom with two little ones at home that needed…
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Increase in CA 27-29
Hi there, I am a little bit more of a year out of treatment but in the last check up the level increased from 19 to 26 which really scared me. I got the results after the Dr visit, I messaged him but did not hear back. Your thoughts? Have somebody experienced something like that before? Thank you!
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Thin Slices of Joy
I finished active treatment less than a month ago, and wow, you just don't bounce right back up. Before all this started I have had sciatica for a couple of years, and it worsened during treatment. In trying to recover from both, I've been feeling frustrated. Now, I'm tired of the pain, fatigue, and frustration. Oh, and…