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After BC Treatment, Personalized Survivorship Care Needed
After Breast Cancer Treatment, Personalized Survivorship Care Needed May 18, 2021 Survivorship care plans need to be personalized to meet breast cancer survivors' differing needs. Read more...
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Follow-Up Care Should Be Based on Cx Characteristics
Breast Cancer Follow-Up Care Should Be Personalized Based on Cancer Characteristics Mar 14, 2023 Considering information on stage and receptor status can help doctors personalize breast cancer follow-up care. Read more...
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Who else is a Genealogy Nut??
I have been doing my family history for a few years now and I KNOW I am not the only one on here that dabbles in genealogy. Lets share our stories, our research queries and maybe along the way we can help each other with research. Or maybe we'll find out we are related!! My family roots go from Nebraska back to Scotland,…
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Nipple Tattoo?
Has anyone done this? Did it last? Was it worth it? I’m thinking about this after listening to this TED Talk. I’m “flat” with nipple grafts. I have a few areas where the cells didn’t survive so it’s a bit splotchy and uneven (but I’m so glad I chose to have nipples!
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Research
Count Me In has joined hands with Stand Up to Cancer. They are requesting data from people who have been treated for cancer. They remove identifying information and make the data available to researchers. Hopefully, this will speed up efforts to understand and treat cancer. Currently, the data is in virtual silos with a…
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Possible Link Between Inflammation and Cognitive Problems
Possible Link Between Inflammation, Cognitive Problems in Older Breast Cancer Survivors Sep 30, 2022 Chronic inflammation seems related to thinking and memory problems in women age 60 and older who received breast cancer treatment. Read more...
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No Hair 5 Months Post Chemo
I finished chemo on March 30th, and my hair is still really, really thin. I don't see any signs that my missing follicles are waking up. Did anybody else have really slow hair regrowth? I need a glimmer of hope here! Thanks! Mary
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Scans after Treatment
I finished my chemo and radiation in August 2019. I had one CT scan in January 2020 to check on a lung nodule that turned out to be fine but that is it. I just wanted to know if everyone else gets scans every year. I know having a CT would expose me to more radiation, but I don't know why they wouldn't do an MRI once a…
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Finding an Oncologist you like?
I am 6 years from my diagnosis. I had to change doctors due to my husband change of job. Anyway, today I saw a new Oncologist it has been over 2 years since I had been to an Oncologist. This one was terrible...she made me feel like I am just a statistic. She did tell me I am Cancer Free she is the 1st Oncologist to tell me…
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Shoulder dysfunction after treatment
Hello all, I finished my last radiation treatment on April 27 and promptly dislocated my right shoulder (the side where I had my mastectomy and radiation) in the hospital parking lot when a car backed up and tapped my hip (seriously didn't hit hard enough to justify the word hit). At first I seemed to be recovering well,…
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TIME TO CIRCLE THE WAGONS GIRLS
This has been a rough few days... It is time for us to hook up our horses and circle our wagons around some of our dear sisters who need us the most right now. Robin, Rhymee, Mena, Denise, Marsha, Katz & Sarah, Gwenn, Pennylane, Dianne, Shelliks and all who need some love and care from the sisterhood. I will take the first…
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Experiences with oncology PT?
I met with my new MO last week and after listing all of the miseries that I’m experiencing from Letrozole, he suggested I try oncology PT. I completely forgot about it until his notes popped up on my patient portal this morning. I’m game as long as my insurance covers it, but I’m not sure what to expect. His notes…
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Dealing with extreme fatigue after completing active treatment
I am now about 6 months out from completing active treatment (surgery, chemo, radiation), and now just continuing with Zoladex (goserelin) injections for the next 5-10 years for medically induced menopause. I was hoping that by now I would start to notice some improvement in energy level, but it anything I find it is…
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body/mind/soul/spirit talk - no religion please
hello! I am starting this thread in hopes of not offending any person or group. This thread is to have a safe space to discuss the ideas of our soul and what is spirit. What does spiritually mean. What happens to us when we die? What is happening to our cells as we are alive? This thread welcomes scientific discourse and…
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Is anyone else not "thriving" .....or am I just doing it wrong?
Hello ladies! Anyone else having a hard time moving past cancer? It's been just over 3 years since treatments were finished, but I still feel like I'm in a never ending circle of tests, pains, illnesses, fears...the list goes on. I understand that we have to find our way through this new normal, but I apparently forgot to…
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Marriage crisis after metastatic diagnosis
Hi all wonderful women in here, I was wondering if going through marriage crisis is common among breast cancer patients. If so - how do you deal with it? I was diagnosed first time in 2012 at age 45. At that time I had three children under age 10 and a good job and career in the financial industry. I went through surgery,…
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Is it the flu? Or a recurrence of my Cancer?
With all the measures in place to protect us from Covid, I've managed to avoid getting a cold or flu as well over the past few years. But when I really do feel sick on occasion (i.e. sicker than the mild nausea, muscle aches and headaches I get on Tamoxifen) I get so anxious. I'm almost five years post diagnosis, but the…
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Is delaying mammogram for a few weeks a bad idea?
Hello all, I am planning a dream trip with my family in July. I have a mammogram appointment May 24. I feel like I want to delay the mammogram until after the trip. My reasoning is : I am a 10 year survivor. If something is found and suspicious on May 24th, I know myself, and I won't be able to let it go or forget about…
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Not quite a horder - decluttering
Okay friends, I'm updating this info. I love the picture though so I'm leaving that!! I continue to look at a very unorganized house. My friend Zogo had an idea about a thread for decluttering and I thought why not get one started. Feel free to share decluttering or organizational ideas or hold yourself accountable to us.…
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Screening Mammography Rates Drop in Breast Cancer Survivors
Screening Mammography Rates Drop in Breast Cancer Survivors Apr 28, 2022 Rates of screening mammograms among women who've received breast cancer treatment have declined since 2009, especially among women ages 40 to 49. Read more...
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10+ years Cancer Free but.....
Hi - I was diagnosed in 2010 with a Stage 1 IDC, no lymph node involvement, so had lumpectomy and brachytherapy and took Tamoxifen for 10 years. Long story but two weeks ago I went to see my gastro doctor thinking I might have diverticulitis (I'm 61 and it runs in my family). He did a contrast CT scan of my abdomen and…
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When you're all done.........but still undone by cancer
I'm just wondering if anyone else feels like me. I was diagnosed in 2018, had the DMX, followed by chemo, and then monoclonal antibodies, finishing up in September, 2019. I'm still on letrozole and trying to get my feet on the ground after pretty much shutting my career down while I was in treatment. During 2019 I was…
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PTSD and Cancer. - I'm Angry
I blindly followed my GYN doctor's advice and had a hysterectomy I probably didn't need or could have put off, as I didn't have major issues. Afterwards I was put on estrogen. Within seven months I was diagnosed with breast cancer that had spread to the lymph nodes - estrogen positive. After the diagnosis I retreated to my…
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It needs to be okay to die.
In the vastness of this forum and everything written I am sure this has been covered, but I don't have the patience to search, so I'm just going to write. It's about dying. It's about how you're walking through the garden of life then you step on a rake and it flies up into your face, just like in the cartoons we watched…
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Delayed mastectomy on "good side" (15 yrs) covered by ins?
I had a single mastectomy/recon after a stage 3 diagnosis in 2005. Now I am weary of mammos and worry, and would like to remove the other breast and have an implant. Does anyone know if this will be covered by insurance under current law? I know I could have had it done without question 16 years ago, but now? Thanks,…
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Where Are The "Oldbies"?
As you can see from my profile, I was dx'd. in '02. "Sunshine" was one of the first posters to ease my fears. Sadly, she is gone now, as is Tinkerbell, Sprite, and FighterLu, whom I have chatted with many times over the years. Is anyone out there that was dx'd. when I was? I remember Tracie, Marci Beth, Yvonne Jones,…
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Bonfire of the Goddesses
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How often do you check in with oncologist?
For those of you who are over 5 years beyond Breast cancer treatment, how often do you check in with your physicians? What kind of scanning or tests are you offered? I was Stage II in 2011, and had mastectomy, chemo, radiation, and then Arimidex for 3 years. Meanwhile my oncologist retired from Sloan Kettering and I have…
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Nipple pain
I had a lumpectomy for Stage 2 breast cancer in Sept. 2012. I sometimes get sensation in the affected breast or itching at the scar site. But a week ago, I started getting pain internally in the nipple on that breast. There is no redness, but it's quite tender. I probably would't think anything about it if it wasn't the…
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Fertility after BC
Hi! I was diagnosed with hormone positive BC. I had a surgery and now I have to continue with radiation and hormone therapy. I was advised to do egg freezing before I start treatments but I am concern since I have to take hormones. Any knowledge, experiences you would like to share?