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Thyroid Cancer
I wasn’t sure where to post I could just use support. I finished treatment in October 2015. IDC, lumpectomy, chemo, rads. Actually the last couple years I’ve really felt my body heal from everything I went through. I was in a good space mentally and physically. The last few months though I’ve been having trouble…
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After menopause…
post hormone + breast cancer, and post menopausal - along with the weight gain and joint pain and all the wonderful things that go along with a hormone depleted body —- how do you cope? I’m so sick of the weight (I’ve tried everything) and exercise Is challenging because joint and muscle pain along with fatigue. Is it…
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Hair loss 3.5 years later
so I finished chemo 3.5 years ago, my hair grew back and was never as thick as it was pre chemo but that was actually a gift from chemo (it was waaay too thick before) I was very happy with my chemo curls and all of a sudden it began thinning several months ago. In talking with two individuals who went through chemo at the…
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Period after chemopause
I went through AC-T chemo 7 years ago at 40 which put me into chemopause. I have been taking aromatase inhibitors since then. I am now 47 and am having my first period. Did anyone else have this happen? I have a call into my oncologist and ob-gyn. Just wondering if it has happened to anyone else.
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Weight Loss--Wegovy or Alternatives?
Hello everyone. I finished Kadcyla back in April and have been on Anastrozole for almost a year. (By the way I'm triple positive and probably need to update my profile since I haven't posted in a while). Anyway, after chemo, 4 surgeries (including removing my ovaries), targeted treatment, and all the trauma over the past…
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Finish Line Scanxiety
I have an appointment with my MO on 25 September. I have to get blood work done several weeks ahead of time to make sure all the results are in for the appointment, so I’m planning to do that on 1 September. This should be my final 6 month check up and if my blood work looks good, it will mean 3 years in remission, which…
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The Future of Remote Learning and Online Tutoring
Exploring the Future of Remote Learning and Online Tutoring In recent years, the landscape of education has been rapidly evolving, with a significant shift towards remote learning and online tutoring. The COVID-19 pandemic accelerated this trend, but even before that, digital platforms were already reshaping the way…
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TSA Advice? Bilateral Mastectomy
I am looking for advice about getting through TSA screening without extra embarrassment. I had a bilateral mastectomy, no reconstruction, all healed now. I am comfortable with this new body in everyday situations and also at my community swimming pool where I work out without prostheses. But I am terrified of TSA. During…
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Question about Nuclear Whole Body Bone Scan
I had a nuclear whole body bone scan this week and I had taken a disk and report with me from my previous scan which was done at another hospital in 2018. I was told they loaded that information on their computer. When I got the report, it said "comparison: None." I am wondering if those scans are like Dexa Scans which…
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Pain almost a year after lymph node removal
I had a lumpectomy and three lymph nodes removed last August. I went to PT off and on for a seroma, cording and the onset of lymphedema. The cording is a lot better than it was. But I’m having more pain/tenderness in the back of my arm and underarm again. I stretch every day and try to drink a lot of water. Just wondering…
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BC humor
Last night my nine-year-old son referred to DCIS as "Duckitis" and it's a good thing I was lying down because otherwise I would have fallen off the bed I laughed so hard.
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Immunotherapy for hormone positive, HER2- breast cancer
I like to keep up with medical trials and research for breast cancer and was wondering if anyone knew anything about using keytruda for hormone positive, HER2- tumors. It seems there are some trials going on right now with it but I can't get an inkling on how it's going. Any news that anyone knows about? Just wondering if…
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CT scan before mammogram
Hi everyone. Just wondering due to high calcium i had a ct of neck chest abdomen and pelvis 3 months ago. All fine calcium normal now. Question is can I feel alittle less tense about my mammo tommoro as my chest was fine a few months ago? I am 6 months out from my last kadcyla.
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TUMOR MARKERS
Hi, wondering. If mammo is okay but markers slightly high what is the protocol?
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Research News: Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk BC
Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk Breast Cancer May 26, 2023 Following cancer prevention lifestyle recommendations before, during, and after being diagnosed with high-risk breast cancer cuts the risk of recurrence and death. Read more…
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Recovery and Exercise Stamina Issues
Wow, I still am having a hard time maneuvering around the forums since the .org blew them up. I have no idea if I'm posting in the right place, but here goes.. I'm seventeen months past my treatment plan, and doing pretty well. But I don't seem to be able to build up exercise stamina. As in, I'm now doing a lot of…
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For 5 or more years Survivors: Did you make any lifestyle changes?
Looking to learn what do survivors do to avoid recurrence? Any lifestyle changes you made? Like not eating sugar, followed any specific diet or did any changes that you think helped avoid recurrence? Thank you!
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20 Years Cancer Free - A message of hope
Hi there I hope this message is allowed. 20 years ago I was diagnosed with breast cancer. I had ducal carcinoma with one infected lymph node. I had four rounds of chemotherapy - followed by mastectomies and another four rounds of chemotherapy. Treatment was tough. I was a young mom with two little ones at home that needed…
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Increase in CA 27-29
Hi there, I am a little bit more of a year out of treatment but in the last check up the level increased from 19 to 26 which really scared me. I got the results after the Dr visit, I messaged him but did not hear back. Your thoughts? Have somebody experienced something like that before? Thank you!
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Thin Slices of Joy
I finished active treatment less than a month ago, and wow, you just don't bounce right back up. Before all this started I have had sciatica for a couple of years, and it worsened during treatment. In trying to recover from both, I've been feeling frustrated. Now, I'm tired of the pain, fatigue, and frustration. Oh, and…
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After BC Treatment, Personalized Survivorship Care Needed
After Breast Cancer Treatment, Personalized Survivorship Care Needed May 18, 2021 Survivorship care plans need to be personalized to meet breast cancer survivors' differing needs. Read more...
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Follow-Up Care Should Be Based on Cx Characteristics
Breast Cancer Follow-Up Care Should Be Personalized Based on Cancer Characteristics Mar 14, 2023 Considering information on stage and receptor status can help doctors personalize breast cancer follow-up care. Read more...
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Nipple Tattoo?
Has anyone done this? Did it last? Was it worth it? I’m thinking about this after listening to this TED Talk. I’m “flat” with nipple grafts. I have a few areas where the cells didn’t survive so it’s a bit splotchy and uneven (but I’m so glad I chose to have nipples!
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Research
Count Me In has joined hands with Stand Up to Cancer. They are requesting data from people who have been treated for cancer. They remove identifying information and make the data available to researchers. Hopefully, this will speed up efforts to understand and treat cancer. Currently, the data is in virtual silos with a…
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Possible Link Between Inflammation and Cognitive Problems
Possible Link Between Inflammation, Cognitive Problems in Older Breast Cancer Survivors Sep 30, 2022 Chronic inflammation seems related to thinking and memory problems in women age 60 and older who received breast cancer treatment. Read more...
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No Hair 5 Months Post Chemo
I finished chemo on March 30th, and my hair is still really, really thin. I don't see any signs that my missing follicles are waking up. Did anybody else have really slow hair regrowth? I need a glimmer of hope here! Thanks! Mary
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Scans after Treatment
I finished my chemo and radiation in August 2019. I had one CT scan in January 2020 to check on a lung nodule that turned out to be fine but that is it. I just wanted to know if everyone else gets scans every year. I know having a CT would expose me to more radiation, but I don't know why they wouldn't do an MRI once a…
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Finding an Oncologist you like?
I am 6 years from my diagnosis. I had to change doctors due to my husband change of job. Anyway, today I saw a new Oncologist it has been over 2 years since I had been to an Oncologist. This one was terrible...she made me feel like I am just a statistic. She did tell me I am Cancer Free she is the 1st Oncologist to tell me…
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Shoulder dysfunction after treatment
Hello all, I finished my last radiation treatment on April 27 and promptly dislocated my right shoulder (the side where I had my mastectomy and radiation) in the hospital parking lot when a car backed up and tapped my hip (seriously didn't hit hard enough to justify the word hit). At first I seemed to be recovering well,…
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TIME TO CIRCLE THE WAGONS GIRLS
This has been a rough few days... It is time for us to hook up our horses and circle our wagons around some of our dear sisters who need us the most right now. Robin, Rhymee, Mena, Denise, Marsha, Katz & Sarah, Gwenn, Pennylane, Dianne, Shelliks and all who need some love and care from the sisterhood. I will take the first…