Testing, treatment, side effects, and more.
I am interested to hear from folks who have this specific sub type and compare notes. I was diagnosed 6/2021 with L. Breast Ca Stage 11B, 2 positive nodes. Ki-67 90%. Had neoadjuvant TCHP x 6 July’21, double mastectomy 11/21, (tissue expanders, exchange to implants hopefully November 22) followed by Phesgo every 3 wks…
I was diagnosed Dec 2025 with HER2 triple positive. Stage 1b, grade 3, tumor 2.3mm, invasive ductal carcinoma. Finished 6 rounds chemo- HPTC every 21 days, tumor shrunk by 90%. Chemo was absolute hell for me. Had my first Herceptin 3 weeks after last chemo- tolerated will. I had lumpectomy 11 days ago- dr only removed the…
Bonjour, J’ai eu Phesgo pendant 8 mois pour une métastase au foie. Réponse complète métabolique. J’ai fait une crise d’épilepsie début janvier 2026 et on a découvert des petites métastases cérébrales. À venir Stéréotaxie et Enhertu … je recherche des témoignages, j’étais en pleine forme , prise de sang ok …. J’ai besoin de…
My name is Rachel I am 33 was diagnosed in May 2023 Stage 2. Invasive Ductal Carcinoma. Estrogen positive, progesterone positive, HER2 positive. I went through a needle biopsy, port placement, and a lumpectomy of the right breast. Chemotherapy, radiation therapy, and still receiving immunotherapy. Lupron shot every 3…
Hello from Tokyo. I am currently undergoing treatment for Her2+++(ER+1%) The preoperative regimen is 12 doses of weekly paclitaxel and 4 doses of Phesgo every 3 weeks, and if the tumor does not disappear, EC will be added. I searched on X and found that there was one woman in Osaka,Japan who underwent a clinical trial of…
I was diagnosed with stage 1B triple positive. Just had my BMX three weeks ago. Now about to start chemo. My MO recommended THP chemo regime because it has less side effects and she said it has similar efficacy as TCHP. I know that TCHP has been the gold standard for many years with proven long term record. Just looking…
Hi. Anyone here Multifocal with her2+ only ? Er/pr- ? I was diagnosed with 2 tumors they are about 3 cm each and several satellite lesions around them. Nodes were negative. Started my treatment of TCHP. BUT I’ve heard with my tumors being multifocal and large, I have a higher chance of reoccurrence? Is that correct ? Any…
Hi, This is a quick & easy resource for the people who are going to begin Herceptin and the people already on Herceptin. If you are looking for what others have experienced, this is the place. If you are DONE with chemo (or else the side effects are too tangled), please briefly list your Herceptin side effects and state…
Hello everyone, HER2 positive 37 year old here. Just finished 8 sessions of chemotherapy ( 4 - AC, 4- Taxol , herceptin) ; next step : Surgery I was recently referred to see a cardiologist as my tropoinin levels were high with slight reduction in LVEF. I was wondering of anybody has been through same experience and what to…
Hello - Has anyone had biopsy or surgical pathology testing done after being on HP infusions? Did your IHC staining reduce? If so, did FISH results correlate? As a result, did you have to change treatment? Please let me know. Thank you.
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