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Hormonal Therapy - Before, During, and After

This is a safe place to share your experiences of others considering or on hormonal treatment.

 

Discussion List

• Hormone therapy, osteoporosis, and cholesterol

  my oncologist is prescribing hormone therapy (AI). I’m kind of opposed for 2 reasons. One of the reasons is that it can weaken bones, and I am already opteopenic. The second is that it can impact chol…

  306 views

  4 comments

  0 point

  Started by arose17

  Most recent by muska

  Jan 30, 2024

  Hormonal Therapy - Before, During, and After
• Lipedema after tamoxifen

  I was on Tamoxifen for 5 years. I noticed horrible cellulite on my legs weeks after starting, it forgot somewhat better after a year or so. ibe been off tamo for almost a year, and the cellulite and f…

  405 views

  1 comments

  0 point

  Started by livinginparadise

  Most recent by exbrnxgrl

  Jan 22, 2024

  Hormonal Therapy - Before, During, and After
• Am I imagining it??? Switching Tamoxifen generic & SEs

  Hi everyone - I have been on Tamoxifen for 2 years and have tried a few of the generics. Teva was the one that really gave me very few side effects, and as many of you know, it is now discontinued. Fr…

  2179 views

  31 comments

  0 point

  Started by sg751

  Most recent by awillman

  Jan 21, 2024

  Hormonal Therapy - Before, During, and After
• Switching AI's - side effects

  53yo, chemically induced menopause (monthly Zolodex shots); 1st diagnosis 1A 2010 on Tamoxifen for 5 years; 2nd diagnosis 1A other breast 2020 - 3 years on Arimidex (with Zolodex to put into meno), ju…

  111 views

  1 comments

  1 points

  Started by michelea

  Most recent by moderators

  Jan 18, 2024

  Hormonal Therapy - Before, During, and After
• 1 year Scan after almost year on letrozole

  There may have been a better place to post this. I have my 1 year Dx mammogram scan next Monday. I had Dx scan of the R breast at 6 months and this one will be both breasts. I am feeling anxious on an…

  126 views

  2 comments

  0 point

  Started by concernedaboutresults

  Most recent by purplecat

  Jan 10, 2024

  Hormonal Therapy - Before, During, and After
• Quit AI drugs - how long to wait before osteo arthritis interventions like PRP?

  I was on AI drugs 15 months (Letrozole 11 months, transition 1 month, Anastrozole 3 months). I was unable to tolerate the joint pain and now take Tamoxifen 20 mg (1 month). My knee osteo arthritis adv…

  467 views

  10 comments

  2 points

  Started by olympicmtgirl

  Most recent by olympicmtgirl

  Jan 10, 2024

  Hormonal Therapy - Before, During, and After
• Did Fosamax/alendronate slow/stop your bone loss

  At the decision making point of whether to continue Aromatase Inhibitor. Just began alendronate a few months ago. Next DEXA due in July. Did Fosamax/alendronate pump the brakes on your bone loss while…

  Osteoporosis (bone loss)

  AIs (Aromatase Inhibitors)

  186 views

  5 comments

  0 point

  Started by simonerc

  Most recent by simonerc

  Dec 23, 2023

  Hormonal Therapy - Before, During, and After
• Breast Cancer Index

  I am near the 5-year mark of my endocrine therapy. I am meeting with my MO next month. She ordered the Breast Cancer Index test; the result is that I am not likely to benefit from extended endocrine t…

  Femara (letrozole)

  Lupron (leuprolide)

  Hormone receptor-positive HER2-negative

  220 views

  0 point

  Started by savinggrace

  Dec 22, 2023

  Hormonal Therapy - Before, During, and After
• Oophorectomy & hysterectomy experiences

  Hello! I'm due to have a hysterectomy and oophorectomy due to the damage 7 years on Tamoxifen has done. I'm 48 so not quite hit menopause yet although the Tamoxifen has given some sort of menopause. M…

  tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox)

  328 views

  5 comments

  0 point

  Started by ali.hoo

  Most recent by italianchef

  Dec 14, 2023

  Hormonal Therapy - Before, During, and After
• Tamoxifen - encouragment to keep going?

  I know there are a lot of posts around tamoxifen. I've been on it for a year and I feel like I should feel lucky because I don't have a lot of the long list of side effects. However, I do have severe …

  tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox)

  354 views

  4 comments

  0 point

  Started by lady2022

  Most recent by lady2022

  Dec 13, 2023

  Hormonal Therapy - Before, During, and After
• ART Doesn’t Increase Hormone Receptor-Positive Breast Cancer Recurrence Risk

  ART Doesn’t Increase Hormone Receptor-Positive Breast Cancer Recurrence Risk Dec 7, 2023 Dr. Hatem Azim explains his new analysis of data from the POSITIVE trial. At the 2023 San Antonio Breast Cancer…

  Fertility issues

  ER-positive

  PR-positive

  102 views

  0 point

  Started by moderators

  Dec 7, 2023

  Hormonal Therapy - Before, During, and After
• Lupron plus AI

  I gave chosen to go the aggressive route of monthly lupron shots plus an AI rather than tamoxifen. I was 38 at diagnosis and 39 now. I have just read that it is possible to have incomplete ovarian sup…

  1554 views

  56 comments

  0 point

  Started by KathyL624

  Most recent by moderators

  Dec 7, 2023

  Hormonal Therapy - Before, During, and After
• Eagle Pharmacy for the brand name Arimidex

  Does anyone know if Eagle Pharmacy online is a reputable pharmacy for brand name hormonal medications? I'm going to give the treatment one more try with the brand name Arimidex and not the generic ana…

  Arimidex (anastrozole)

  104 views

  6 comments

  0 point

  Started by pinkrules

  Most recent by pinkrules

  Dec 3, 2023

  Hormonal Therapy - Before, During, and After
• Tamoxifen

  I was told I would need to take this after surgery for 5 years. I took it on two separate days (2 pills) and refused to take this medication, at the advice of my breast surgeon. I have to take a stati…

  314 views

  4 comments

  1 points

  Started by tcalvert1221

  Most recent by moderators

  Nov 29, 2023

  Hormonal Therapy - Before, During, and After
• Obesity Ups Recurrence Risk in Women Treated With Aromatase Inhibitors

  Obesity Ups Recurrence Risk in Women Treated With Aromatase Inhibitors Nov 24, 2023 The risk of breast cancer recurrence is higher in women with obesity treated with an aromatase inhibitor. Read more…

  Arimidex (anastrozole)

  Aromasin (exemestane)

  Femara (letrozole)

  268 views

  0 point

  Started by moderators

  Nov 29, 2023

  Hormonal Therapy - Before, During, and After
• Vaginal Estrogen Safe for Women With Breast Cancer

  Vaginal Estrogen Safe for Women With Breast Cancer Nov 21, 2023 Women with breast cancer can safely use vaginal estrogen to treat certain menopausal symptoms. Read more…

  Loss of libido

  Vaginal dryness

  Research News

  190 views

  0 point

  Started by moderators

  Nov 29, 2023

  Hormonal Therapy - Before, During, and After
• Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen

  Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen Nov 21, 2023 Ovarian suppression plus tamoxifen lowers recurrence risk. Read more…

  tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox)

  Zoladex (goserelin)

  Research News

  162 views

  0 point

  Started by moderators

  Nov 29, 2023

  Hormonal Therapy - Before, During, and After
• arimidex and carpal tunnel

  My wrists are SO jacked up! Arimidex has caused such pain w Carpal Tunnel... both hands are completely numb alternating with shooting pains. Has anyone else experienced this? And if you have, what tre…

  52 views

  5 comments

  0 point

  Started by clemmieluv

  Most recent by cynd724

  Nov 27, 2023

  Hormonal Therapy - Before, During, and After
• Endo thickening and heavy bleeding 2 years after Tamoxifen

  I'm 56. Had bilat mast, chemo in 2011, then tamoxifen for 10 yrs ending 11/2021. Hadn't had a period since chemo at age 43. Had routine screening pelvic/tva in Feb. not because of symptoms, but mom di…

  tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox)

  Bleeding and bruising problems

  Endometrial cancer

  245 views

  5 comments

  0 point

  Started by dbmusic

  Most recent by rnjen

  Nov 25, 2023

  Hormonal Therapy - Before, During, and After
• 

  Faslodex experience?

  I have been on faslodex for 2.5 months now and I still have some increase in a pleural effusion that I have had for over a year now. It has been small and stable up until august so they switched me fr…

  Faslodex (fulvestrant)

  322 views

  10 comments

  1 points

  Started by zipmonk

  Most recent by sunshine99

  Nov 16, 2023

  Hormonal Therapy - Before, During, and After
• My insurance company wants me to switch aromatase inhibitors! Why!

  I've been on exemestane for almost 4 years, tolerating it remarkably well. Just got a letter from my insurance company. Starting in January, exemestane is "non-preferred" and will cost me more. The in…

  AIs (Aromatase Inhibitors)

  255 views

  3 comments

  0 point

  Started by raili

  Most recent by raili

  Nov 8, 2023

  Hormonal Therapy - Before, During, and After
• 

  Thanks, Tamoxifen? - and an anticlimactic milestone

  3 years ago I had my first bone density test. The results came back showing mild osteopenia. Yesterday I had my second scan, and the results came back this morning with about 5% improvement, putting m…

  145 views

  0 point

  Started by purplecat

  Nov 7, 2023

  Hormonal Therapy - Before, During, and After
• Tamoxifen

  Hello, I have been on Tamoxifen for 5 years and my oncologist indicated after testing that I should stop taking it and no further benefit would I receive to continue. For those of you who stopped taki…

  394 views

  1 comments

  0 point

  Started by teaneck

  Most recent by moderators

  Nov 7, 2023

  Hormonal Therapy - Before, During, and After
• What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery?

  What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery? August 25, 2023 Lowering medicine prices seems to be one of the best ways to help women stick to their hormonal therapy treatm…

  Arimidex (anastrozole)

  Aromasin (exemestane)

  Femara (letrozole)

  445 views

  4 comments

  0 point

  Started by moderators

  Most recent by brutersmom

  Oct 25, 2023

  Hormonal Therapy - Before, During, and After
• Scared thick uterus lining

  Hi everyone! Went in today for a vaginal US which shows very thick uterine lining. No polyps or fibroids. My last two periods have been very heavy and painful and last longer than usual. The Dr said t…

  2516 views

  32 comments

  0 point

  Started by livinginparadise

  Most recent by moderators

  Oct 16, 2023

  Hormonal Therapy - Before, During, and After
• Tamoxifen and reoccurence

  I just had my bilateral mastectomy and will be starting tamoxifen soon. I’m so worried about weight gain. Is this common? Has anyone had the cancer return and if so, in what way?

  282 views

  3 comments

  1 points

  Started by random_wmercado8507

  Most recent by needs.a.nap

  Oct 7, 2023

  Hormonal Therapy - Before, During, and After
• Considering quitting Tam after two years

  Does anyone have a general idea of how much protection you get from completing two years?

  155 views

  1 comments

  0 point

  Started by waves2stars

  Most recent by laughinggull

  Oct 4, 2023

  Hormonal Therapy - Before, During, and After
• Side Effects and Options

  Please give opinions. I had a lumpectomy in March 2023, had radiation treatments and began taking Anastrozole May 2nd. Within the last 2 months my right ring finger has been locking and my right index…

  692 views

  12 comments

  0 point

  Started by retirement2023

  Most recent by katg

  Oct 4, 2023

  Hormonal Therapy - Before, During, and After
• Anyone ER+ 1-10% weakly positive, PR- , HER2+?

  Hello, Anyone is ER+ 1-10% weakly positive, PR-, HER2+ ? Do you take anti-hormone pills for ER+ 1-10% weakly positive ? thank you Applejj

  ER-positive

  HER2-positive

  PR-negative

  320 views

  5 comments

  0 point

  Started by Applejj

  Most recent by ekatarina123

  Oct 2, 2023

  Hormonal Therapy - Before, During, and After
• Tamoxifen Users

  Hello, Have any of you experienced polyps in your colon or precancer/cancer in the colon related to tamoxifen use??

  tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox)

  204 views

  0 point

  Started by ab45

  Sep 27, 2023

  Hormonal Therapy - Before, During, and After