This is a safe place to share your experiences of others considering or on hormonal treatment.
taken Tamoxifen my left side neck and shoulder pain and stiff and painful. Any one else have the problem
I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware…
Side effects?? Need advice!
Hi- It's been awhile since I've been on here. I was diagnosed in May 2014 with ILC. I had surgery, followed with radiation, and then a prescription for Anastrozole. I've had the usual side effects of insomnia and aches and pains, but have just been watching the calendar knowing that my 5 years will be coming up next year…
I swore I would manage this but recently figured out that all these health problems are actually side effects from tamoxifen. it started out manageable. horrific nausea but weed fixed that. hot flashes were annoying but occasional and did not last long. then i started getting severe stomach pains that confined me to bed…
My question is why i am on my period, if i had my injection on March 5? I was diagnosed on February 2023 and soon after i started zoladex. Since than it happened 2 times to have my period, only once it was my fault i forgot about one injection. Now it happened again but i had my injection. Next month its 6 months since i…
I have been taking Lupron and AI for nearly 5 years. I started at 49 and next month will be 55. My side effects have been really bad and I honestly can’t take it anymore. I have noticed that my symptoms depend on days of month in my Lupron cycle. I have a few good days before the shot and a few good days after, but then…
Hi, I have been taking letrozole for 1.5 years and have decided to stop. I had stage 1 invasive ductal carcinoma. Treatment involved partial mastectomy, 20 treatments of radiation and letrozole 10 mg daily for 5 years. The hot flashes, insomnia and fatigue is really affecting my quality of life. I’m curious how many of you…
I've been on letrozole almost a month and, while I can pretty much deal with the hot flashes, as a primary caregiver I'm very concerned about the joint pain preventing me from assisting my mom. I've already experienced pain in my right elbow and shoulder (the C side) when helping her get to her feet; feels like the joint's…
I had to suddenly stop taking HRT after 25 years. Then had a double mastectomy late in Sept 2025 followed by radiotherapy. Since stopping HRT and surgery I have very bad joint pain everywhere. I am 76 years old. I am concerned Tamoxifen will make the joint pain worse. My oncologist prescribed 20mg but I have not started…
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