Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, <em><a href="https://community.breastcancer.org/en/categories/stage-iv-metastatic-breast-cancer-only">Stage IV/Metastatic Breast Cancer ONLY</a></em>, where topics are open only to those members.
Back story - Original ST 3C, now Newly Diag at 10 yr recurrence ST4 w/Metastatic (Bones) after detected by Signatera. After CT, MRI and PET scan collaboratively confirmed, immediately was started on IBRANCE, FULVEST, XGEVA - Like you, I am sad that I am here writing this note but thankful for this community of support.…
Hi folks, its my 1st post here. Felt a bit positive after reading some of the long time mets survivors. I was diagnosed with triple positive (high 90%) in 2020, stage 2. Did the full paclitaxel+herceptin and RT cycle. Have been on tamoxifen for last 5 years. In Jan this year started feeling bone pain and MRI showed…
Six years ago, at age 46, I was diagnosed with Stage 1B mixed mammary carcinoma, ER+/PR+, HER2- in one breast. I had one surgery - double mastectomy plus bilateral salping-oophorectomy direct to reconstruction. I have a strong family history of breast and ovarian cancer. I did not need radiation and my Oncotype score of 18…
Good day! First diagnosed with 2.5 cm invasive ductal, ER PR positive in 2004 at the age of 53. Lumpectomy and brachytherapy. In 2006, I had very small recurrence which was excised followed by chemo, radiation. I took tamoxifen for 5 years and was "dismissed" by my oncologist in 2011. Late 2013, I had redness of nipple in…
I just got a packet of mail from my state disability determination services office, saying that they are reviewing my disability status. I was diagnosed with unnumberable bone-only mets in Feb 2020. I was on Kiquali/letrozole for about 4 years, and now I've sped through Orserdu, piqray, and now, Truqap just in this year.…
I am recovering from my third breast cancer dx and have been getting numbness and pain in my ribs, legs and hips. It gets worse at night when I lay down. During the day it doesn't bother me too much or stop me from going about my normal daily activities. I just had my normal bloodwork which was ordered by my cardiologist.…
As a 22+ year survivor of Stage 4 MBC de novo, I have been on Herceptin for about 21 years. I have not had any problems until about a year ago. During the infusion, I have chills and shaking. Sometimes it helps to request a warm blanket, hot cocoa and turning on the seat heaters. As soon as I leave the chemo center and if…
This sounds kind of crazy but I'm tempted to try it, especially if standard treatments stop working: https://www.dailymail.co.uk/health/article-6965325/Oklahoma-grandfather-claims-drug-DOGS-cured-cancer-tumor-free.html Mods adding this link to a podcast from BCO: Podcast: What My Patients Are Asking: Can Dog Deworming…
Are there any Stage IV ER++ ladies here on toremifene as hormonal therapy? I have an MO appt next week and am going to ask about switching from Arimidex. My reasons for wanting to switch - I think I am developing carpal tunnel in my left hand, which can be a side effect of anastrozole. My pinky on that hand is now…
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