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Trust your gut re: Pneumonitis
All, This is a warning to all of you who are having symptoms of pneumonitis. In the past two years, I have had severe adverse reactions to Ibrance and Piqray. The Piqray episode sent me to the ER and the hospital for five days. This was in late March. My oncologist (former) gave me this drug when I had progression on…
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Ibrance for early-stage breast cancer?
To be clear, I am not stage 4. I am currently on Tamoxifen and Verzenio after a stage 2b diagnosis, surgery, chemo, and radiation. A recent CT scan indicated 15-20 lung nodules, largest 1.5cm, that were "suspicious for metastasis" per radiologist. Oncologist is concerned with the risks of trying to biopsy, so I will have a…
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Physician left
I received a call from my oncology department yesterday that my oncologist has left for medical reasons and won't be returning. I will be seeing a PA on Thursday. He is the only oncologist at the facility that sees breast cancer patients that I trust. One I had issues with back in 2015. The other one I learned when…
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Should I use Whole body bone scan or MRI to detect bone irregularities or bone Cancer?
Hi everyone, Should I use whole body bone scan or MRI of both Lumber Spine and pelvis to detect bone irregularities or bone cancer? Please comment on pros and cons. Thank you.
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FGFR1 amplification
Hi everyone, I have been looking at the results of my Foundation One testing and saw that I had the FGFR 1 amplification. I did some research into this and saw that it can cause resistance to endocrine therapy and cdk inhibitors. I am currently on Kisqali and Anastrazole (for about 4 cycles). I was wondering if anyone else…
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Liver surgery
Hi everybody Did anybody with liver met did surgery? If yes, in what cases is suggested and when not? Please tell md about your case!
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Third time unlucky Stage 4
I had my first diagnosis and treatment for breast cancer in 1994 when I was living in the US. I had a lumpectomy, chemo and radiation. I was cured! and we never looked back. In 2017 my mammogram showed a reoccurrence in the same sight. By this time I had moved permanently to the UK. I had been widowed and still grieving…
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Really Scared--Bilateral Pleural Effusions
I am coming on year 3 since my diagnosis, and I have been feeling pressure and discomfort (primarily at night) on the ribs under my breast--yes, cancer side. It has been a few weeks. I had an X-Ray done and it showed bilateral pleural effusions. Of course, I googled it and now I am freaked out. Is this a clear sign that…
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MRI results
Hi, I recently had an MRI for back pain. Results are as attached, but they’re now recommending a Nuclear Bone whole body scan to see if the new lesion is MBC that’s spread or something else. I will have that soon. In the mean time, I’m not sure if I should be concerned or not 🤔 please let me know if this isn’t the right…
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Bone Pain from Mets or AI?
I am recovering from my third breast cancer dx and have been getting numbness and pain in my ribs, legs and hips. It gets worse at night when I lay down. During the day it doesn't bother me too much or stop me from going about my normal daily activities. I just had my normal bloodwork which was ordered by my cardiologist.…
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ASCITES
Hello all. I am actually writing on behalf of my best friend. She has metastatics breast cancer, Im sure hers is lobular. She has been living with it for 10 years. 5 years ago it spread to her peritoneal lining. Estrogen blockers & a chemo type pill kept it at bay, but it has become resistant to them. She has had one type…
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Two options left - what does this mean?
Hi all, Posting on behalf of a dear dear friend of mine who is living with MBC. She was first diagnosed in 2015 with mets to liver and bone - she is also now one of the unlucky 1% to have a singular met in her mandible. It looks like she will need radiation (which she is terrified to have near her face) and to change her…
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Any experience with Palliative Care?
My MO added a recommendation for Palliative Care in my chart after our last visit. I'm unclear on what it covers and how it might benefit me or my family. I have done some reading and watched a few videos and I'm not totally impressed; seems very administrative and leaning into the social workers arena of education and…
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Can I get pregnant after a stage 4 bone mets diagnosis?
We only have 1 beautiful little girl and I was pregnant with #2 and lost it during my cancer journey. That baby is greatly missed and we would love to have another baby of our own to love. I am 36 and we have been married 5 years, 3 before diagnosis. I have extensive bone mets. Has anyone ever had,heard of,or know anything…
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Backlash Coming Against Instant Disclosure of Health Records
In Politico today, there's an article about doctors lobbying the HHS against immediate release of test results & other electronic data in patient portals, as has been required for more than a year now. https://www.politico.com/news/2023/01/09/doctors-test-results-patients-00076843 I realize it may be difficult for some…
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FDA Approves Orserdu for ER+ MBC (oral SERD)
FDA Approves Orserdu for Metastatic, Estrogen Receptor-Positive Breast Cancer Jan 27, 2023 The FDA has approved Orserdu, a new oral medicine to treat metastatic, estrogen receptor-positive, HER2-negative breast cancer with an ESR1 mutation. Read more....
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Paid survey
Hi! As many know, I have done surveys for RC Horowitz. They are a great group. They are seeking participants for a 90-minute survey who are on their second line or more who are Her2 negative. They are also seeking triple negative as well. If you’re interested, please private message me. This is for those in the United…
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Is a chest wall recurrence inevitably stage 4?
My MO threw me for a loop yesterday. In May I had a 0.8cm recurrence 10 years after DCIS. Imaging showed no spread and my surgeon got wide excision in the lumpectomy. I finished whole-breast rads a couple of weeks ago, started Lupron in July, and will start letrazole shortly. In yesterday's appointment, I asked what I…
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Switching from Ibrance to Verzenio - Tips?
Daughter/caregiver here to a mom (70yo) with MBC. I'd love to know if anyone has experience switching from Ibrance directly to Verzenio. Context: My mom has been on Ibrance for 14 months, with an excellent response. She quickly had to reduce her dose to 75mg due to immediate neutropenia, but was able to get a handle on…
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Metastatic Breast Cancer (Liver met)
Hi, My sister-in-law is currently suffering from metastatic breast cancer with metastasis to her liver. She was first diagnosed in 2019 and the cancer returned in April 2022. Her cancer type is ER+, Her 2- She is currently on palbo however we were told that drugs can develop resistance over time. We need help on how to…
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talk to Physician who has cancer
Don't really know if this post belong here, whoever moderating this group please move to appropriate section. How does one talk to primary care physician about one's fear of cancer when the Physician herself is in remission? One doesn't want to trigger any worry for her. Thanks, Nguyen (Wife Linda, stage IV)
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Hormone Therapy and Inhibitors
I have recently been diagnosed with a reoccurrence. It has been 14 years of bliss until now. In 2008, I had a mastectomy's and checmo TAC and radiation 28 sessions. I am ER positive 97%, PGR Positive 69%, Her2 Negative, but then the nasty KI-67 which is 30% That's the bad guy. It is inoperable because it is in my arm pit…
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It's been awhile....
Hello - It's been awhile since I've checked in. This forum has changed a lot since then. I can't find the usual discussions I stalked and participated in - so starting a new thread. You may see from my history that I was diagnosed as a Stage IV de novo with lobular at the age of 50 (mets to innumerable bones). That was in…
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Mets to portahepatic (near liver) lymph node
Hello…In 2013 I was diagnosed with breast cancer ILC stage 2B with 3 lymph nodes involved. I did ATC 8 rounds and 5 years of AI. No radiation Yesterday I received the biopsy news that a lymph node in the portahepatic area (near the liver) is malignant. I had no symptoms but this was found from a CT scan back in April from…
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No brain radiation until she can walk. Is this normal?
I apologize before hand if this is the wrong forum. I wasn't quite sure where to put this. My father's girlfriend, who received her initial breast cancer diagnosis shortly before I did, fell ill a few weeks ago and it was subsequently discovered that she has multiple brain mets. She had surgery during which they were able…
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Stage 4 support, MBC and CKD
Hi all, Our family is going through a tough time and I'm looking for some guidance. My sis-in-law is now stage 4 BC with mets to brain and chest nodes. This is her 4th reoccurrence, and first metastatic reoccurrence. She is triple negative and her first diagnosis was 20 years ago when she was 32. My question is, how can I…
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Fasting before chemo
Hi all I cannot find a thread just for this....so I figured I would start one... I will google about Valter Longo USC but I was wondering if anyone can chat about this here.... Santa you mentioned in the ringworm thread that you did this...I was wondering if your chemo was a Taxane Chemo? I will be getting Doxil its a 5FU…
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Scan results
Hi all, My mom isn't too comfortable using the forums so I'll be managing her account. I hope I can post here. She's been on A/A for about 3 months and her tumor markers dropped by about 30%. The bone pain that first tipped her off, is all gone (she even weened off of all the pain meds). However, today she went for her…
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When it is no longer just fatigue and drug side effects
For over seven years I carried on, living with cancer but looking fairly normal to outsiders. There was always fatigue and the side effect du jour, but I lived my life. Then the cancer took a very nasty turn. Suddenly it went to the peritoneum, clogging up my system and through that snatching away without warning most of…
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Hormonal therapy as an alternative to surgery
Hi ladies I am posting on behalf of my Mom She was diagnosed with recurrence a month back and since then we are discussion treatment options based on the findings and labs investigation She is 78 with no co morbidity The oncologist said that they will decide about surgery after the PET scan He said in case they find Mets…