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Anyone who on ibrance & xgeva had infected wisdom teeth extraction?
I appreciate all your inputs on this. I currently have infection in my wisdom teeth & the oral surgeon recommended to remove to avoid further complications even though my pain is not that bad. The pain is on & off, but it not bad at all even without any pain med, so I rather not having extraction, but afraid further…
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Trodelvy vs Eribulin SDX 7320
Hi, I'm Vita.My mom is Stage 4 Triple Negative breast cancer, now metastasis to liver. We have to choose this week which chemo... does anyone have any experience with these 2 listed above? Any info will be appreciated...
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Her2 2+ Fish test
Hello ladies. I have a question. My mother is almost 76 years old and she has breast cancer with bone metastases almost everywhere, at least this is what the pet ct showed. Her biopsy says Er+ 95%+++ 5%+ Pr+ 60%+++ 10%+ Her2 +2 Her tumor is only 8mm. I read that her2 +2 is "equivocal". This means that the HER2 status needs…
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Access to oncology articles and MD only forums.
Hello, To the moderator, MD associated witht this site, or anyone else who has access to the below two articles: Synergistic Effect of Cell Kinetics-Directed Chemo-Endocrine Therapy on Experimental Mammary Tumors https://link.springer.com/chapter/10.1007/978-1-4613-2049-4_37 The web site "theMednet.org" is accessible to…
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Blood Count -Liver High
Hi All Have been all good last 5 years but recent blood count showed liver emsymes out . ALP 230 jumped from 60 6 mths ago and LDH also raised above 200. No elevation to Cancer Markers both low and well within range , however had pain in right shoulder for 2 mths. Wondering if anyone has had similar high liver levels and…
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Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to delay Xeloda for 10 days! I don't feel that bad enough to take antibiotics and delay capecitabina... I'm so afraid of…
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Introducing myself from Nairobi, Kenya
See first comment below for Rosebessie's story and welcome her to the community! This discussion was created from comments split from another thread.
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Not dx with stage IV but feel it's coming
In short, I had a CT scan in August that showed a partially blocked ureter, a slight swollen kidney, bladder wall thickening, slight ascites, and my ovaries were hidden because of bowels but looked suspicious. The CT was to rule out a bump I felt in my upper adoment that my MO thought was nothing. It was nothing. But like…
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Increasing CA 27-29 markers
Hi everyone, I am sure this has been asked before but I am concerned and not sure what to do. My CA-27-29 markers have been slowly increasing over the past few months. They were at 14, then went to 21, then to 29. I know they are still in the normal range but they are going up. I had asked my MO about this and were not…
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A cure happened for a hormone positive Her2 negative stage 4 patient in a trial!
I can't believe this isn't all over the news. I know it's early and few more years are going to pass before we hear about more of these but we finally had a cure for a hormone positive stage 4 patient in a trial. It occurred in the Elaine -1 trial!!
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Everolimus
Has anyone been on everolimus? Doctor might switch to this from verzenio.
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Treating Faslodex-related acne
The newest insult to injury, my face looks like a sullen 16 year old. Has anyone dealt with acne following your Faslodex injection?
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Can lumpectomy scar break open?
I had DCIS in 2013 and had lumpectomy and 30 rads. In 2001 dx stage 4mets to liver. 2 years treatment and liver Mets have shrunk but my breast has changed and Pet showed active increase in that breast nodule and the scar has stretched almost into nipple. Is there a chance it can “bust” open? I see surgeon next week but I…
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Ibrance or Kisquali? Can you share your experience
I am on Ibrance and had an allergic reaction. My Onc says if I want to go on something stronger with more impact I should consider Kisquali. I am wondering if anyone has experience with both or either? Seems Kisquali has a longer span of time it works, but maybe greater side effects? He said once I switch I can not go back…
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Anyone NOT get nausea with Enhertu?
I am ready for my fifth treatment of Enhertu. My onc does a half hour anti nausea IV drip before Enhertu. My body's reaction is severe constipation. So for the 4th treatment I requested a different anti-nausea medicine. Guess what my side effect was? Severe diarrhea. Before I go back to the first anti nausea iv drip, is…
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Tested for Illegal Drugs
At our last office visit my MO gave me a print out of the previous week's labs. I didn't notice until I got home, but in addition to the usual labs, they tested my blood for cocaine, methamphetamine, fentanyl and others, mostly schedule II drugs. Could this be something to do with Medicare regulations?
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Experience with Verzenio???
Hello, I am new here, I was recently diagnosed with Stage 4 breast cancer. all at once, no previous diagnosis, it was missed in previous mammograms. IN some ways i am so lucky because i didn't have to go through the mastectomy (it would have limited my ability to do my job for months, i would have lost my job for sure) or…
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Weight gain on treatment
I am currently on letrozole, zoladex, and verzinio with stage 4 bone mets with a hip replacement, kyphoplasty and spinal injury. It is hard to be active because of pain but I try to work out 3 days a week...I have gained 20 lbs in 6 months and am only eating 1500 calories a day. Looking for advice- I am 5"2 and never been…
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Increase In Tumor Markers but Pet/Scans show stable
The doctor just called and said that since my markers have increased they want another scan in 3 months instead of 6 months. She told me that it was just a precaution since the scan has been stable and the markers increased, they just wanted to triple-check that the meds are working. Diagnosis in 11/22, two recent scans…
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Trust your gut re: Pneumonitis
All, This is a warning to all of you who are having symptoms of pneumonitis. In the past two years, I have had severe adverse reactions to Ibrance and Piqray. The Piqray episode sent me to the ER and the hospital for five days. This was in late March. My oncologist (former) gave me this drug when I had progression on…
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Ibrance for early-stage breast cancer?
To be clear, I am not stage 4. I am currently on Tamoxifen and Verzenio after a stage 2b diagnosis, surgery, chemo, and radiation. A recent CT scan indicated 15-20 lung nodules, largest 1.5cm, that were "suspicious for metastasis" per radiologist. Oncologist is concerned with the risks of trying to biopsy, so I will have a…
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Physician left
I received a call from my oncology department yesterday that my oncologist has left for medical reasons and won't be returning. I will be seeing a PA on Thursday. He is the only oncologist at the facility that sees breast cancer patients that I trust. One I had issues with back in 2015. The other one I learned when…
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Should I use Whole body bone scan or MRI to detect bone irregularities or bone Cancer?
Hi everyone, Should I use whole body bone scan or MRI of both Lumber Spine and pelvis to detect bone irregularities or bone cancer? Please comment on pros and cons. Thank you.
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FGFR1 amplification
Hi everyone, I have been looking at the results of my Foundation One testing and saw that I had the FGFR 1 amplification. I did some research into this and saw that it can cause resistance to endocrine therapy and cdk inhibitors. I am currently on Kisqali and Anastrazole (for about 4 cycles). I was wondering if anyone else…
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Liver surgery
Hi everybody Did anybody with liver met did surgery? If yes, in what cases is suggested and when not? Please tell md about your case!
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Third time unlucky Stage 4
I had my first diagnosis and treatment for breast cancer in 1994 when I was living in the US. I had a lumpectomy, chemo and radiation. I was cured! and we never looked back. In 2017 my mammogram showed a reoccurrence in the same sight. By this time I had moved permanently to the UK. I had been widowed and still grieving…
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Really Scared--Bilateral Pleural Effusions
I am coming on year 3 since my diagnosis, and I have been feeling pressure and discomfort (primarily at night) on the ribs under my breast--yes, cancer side. It has been a few weeks. I had an X-Ray done and it showed bilateral pleural effusions. Of course, I googled it and now I am freaked out. Is this a clear sign that…
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MRI results
Hi, I recently had an MRI for back pain. Results are as attached, but they’re now recommending a Nuclear Bone whole body scan to see if the new lesion is MBC that’s spread or something else. I will have that soon. In the mean time, I’m not sure if I should be concerned or not 🤔 please let me know if this isn’t the right…
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ASCITES
Hello all. I am actually writing on behalf of my best friend. She has metastatics breast cancer, Im sure hers is lobular. She has been living with it for 10 years. 5 years ago it spread to her peritoneal lining. Estrogen blockers & a chemo type pill kept it at bay, but it has become resistant to them. She has had one type…
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Two options left - what does this mean?
Hi all, Posting on behalf of a dear dear friend of mine who is living with MBC. She was first diagnosed in 2015 with mets to liver and bone - she is also now one of the unlucky 1% to have a singular met in her mandible. It looks like she will need radiation (which she is terrified to have near her face) and to change her…