Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, <em><a href="https://community.breastcancer.org/en/categories/stage-iv-metastatic-breast-cancer-only">Stage IV/Metastatic Breast Cancer ONLY</a></em>, where topics are open only to those members.
After 12 infusions on Enhertu and Perjeta for Stage IV, HER2 positive breast cancer, my Signatera test came back negative and my scans are clear so I'm now considered NEAD. I still have to continue treatment to prevent a recurrence but want to decrease the dose of Enhertu from 4.4 mg to 3.2 mg. Wondering if anyone on this…
Yay! Today is the start of my 24th year after my dx of Stage 4 MBC de novo. Still hanging in here! Here's my history.....Dx’d in December, 2002. ER+, Pr-, Her2+++ Metaplastic BC. Had A/C & Taxotere. Left side was DCIS and Her2+++, but right side was tubular and Her2-.In 2004 my liver was filled with tumors. I had a liver…
I have completed one cycle and am on week off in 4 days I’m supposed to be back on My blood numbers tanked like worse than in chemotherapy My white blood cell count is 1.8 platelets 130 Will they pull me off medicine? I was in getting my fulvestrant shot not at same clinic as my onocologist so nurses were unable to answer…
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease Jan 6, 2026 When treating breast cancer that’s spread to the cerebrospinal fluid, proton therapy controlled the cancer better than traditional X-ray radiation. Read more…
Adding Tukysa to First Treatments Delays Growth of Metastatic HER2-Positive Breast Cancer Dec 22, 2025 Delaying cancer growth may keep people out of the chemo chair. Read more…
I just got my diagnosis after PET scan and my bc has metastasized to my sacrum, lower spine and ribs. The gave me tamoxifen for cancer and Dilaudid for my intense pain. No chemo, no radiation…just a pill. I had anyone had this? First it’s been 7 years since I had lumpectomy, 5 years off of Arimidex, and this took me by…
Hi everyone, I’m Ralph , and I hope it’s okay that I jump in here. I’ve been reading the forum quietly for a while, but this is my first time actually posting. I was diagnosed with stage IV breast cancer last year it spread to a couple of bones, so things have been a bit up and down ever since. Right now I’m on hormonal…
I am starting Madame X next week and just wanted to reach out to the experts about dietary restrictions. It seems that there are a lot of foods that contain folate so I was wondering if anyone had recommendations of things to definitely avoid, my main concern is Hand and Foot Syndrome as I am an avid Pickleball player and…
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