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Stage IV/Metastatic Breast Cancer, Open to All To Contribute

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to d…
Xeloda (capecitabine)
377 views
6 comments
1 points
Started by amel_83
Most recent by amel_83
Jan 9, 2024
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Introducing myself from Nairobi, Kenya
See first comment below for Rosebessie's story and welcome her to the community! This discussion was created from comments split from another thread.
Femara (letrozole)
Ibrance (palbociclib)
Liver metastasis
530 views
25 comments
0 point
Started by System
Most recent by Rosebessie
Dec 30, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Not dx with stage IV but feel it's coming
In short, I had a CT scan in August that showed a partially blocked ureter, a slight swollen kidney, bladder wall thickening, slight ascites, and my ovaries were hidden because of bowels but looked su…
Invasive Lobular Carcinoma (ILC)
1397 views
24 comments
1 points
Started by claireinaz
Most recent by claireinaz
Dec 24, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Increasing CA 27-29 markers
Hi everyone, I am sure this has been asked before but I am concerned and not sure what to do. My CA-27-29 markers have been slowly increasing over the past few months. They were at 14, then went to 21…
451 views
2 comments
0 point
Started by keris113
Most recent by nnguyen
Dec 13, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
A cure happened for a hormone positive Her2 negative stage 4 patient in a trial!
I can't believe this isn't all over the news. I know it's early and few more years are going to pass before we hear about more of these but we finally had a cure for a hormone positive stage 4 patient…
1056 views
13 comments
3 points
Started by kaynotrealname
Most recent by olma61
Dec 9, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Everolimus
Has anyone been on everolimus? Doctor might switch to this from verzenio.
166 views
1 comments
0 point
Started by justme1964
Most recent by seeq
Dec 1, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Treating Faslodex-related acne
The newest insult to injury, my face looks like a sullen 16 year old. Has anyone dealt with acne following your Faslodex injection?
Faslodex (fulvestrant)
148 views
5 comments
0 point
Started by arg2353
Most recent by moderators
Nov 30, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Can lumpectomy scar break open?
I had DCIS in 2013 and had lumpectomy and 30 rads. In 2001 dx stage 4mets to liver. 2 years treatment and liver Mets have shrunk but my breast has changed and Pet showed active increase in that breast…
92 views
0 point
Started by ohionana1605
Nov 21, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Ibrance or Kisquali? Can you share your experience
I am on Ibrance and had an allergic reaction. My Onc says if I want to go on something stronger with more impact I should consider Kisquali. I am wondering if anyone has experience with both or either…
341 views
4 comments
0 point
Started by ddil
Most recent by landafflady
Nov 20, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Anyone NOT get nausea with Enhertu?
I am ready for my fifth treatment of Enhertu. My onc does a half hour anti nausea IV drip before Enhertu. My body's reaction is severe constipation. So for the 4th treatment I requested a different an…
Enhertu (fam-trastuzumab-deruxtecan-nxki)
553 views
3 comments
0 point
Started by woodlands
Most recent by moderators
Nov 8, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Tested for Illegal Drugs
At our last office visit my MO gave me a print out of the previous week's labs. I didn't notice until I got home, but in addition to the usual labs, they tested my blood for cocaine, methamphetamine, …
416 views
5 comments
0 point
Started by ninetwelve
Most recent by ninetwelve
Oct 30, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Experience with Verzenio???
Hello, I am new here, I was recently diagnosed with Stage 4 breast cancer. all at once, no previous diagnosis, it was missed in previous mammograms. IN some ways i am so lucky because i didn't have to…
Verzenio (abemaciclib)
1334 views
15 comments
2 points
Started by wondering33756
Most recent by seeq
Oct 30, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Weight gain on treatment
I am currently on letrozole, zoladex, and verzinio with stage 4 bone mets with a hip replacement, kyphoplasty and spinal injury. It is hard to be active because of pain but I try to work out 3 days a …
Femara (letrozole)
Verzenio (abemaciclib)
Zometa (zoledronic acid)
416 views
3 comments
1 points
Started by lmdws
Most recent by mozuke1
Oct 26, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Increase In Tumor Markers but Pet/Scans show stable
The doctor just called and said that since my markers have increased they want another scan in 3 months instead of 6 months. She told me that it was just a precaution since the scan has been stable an…
860 views
4 comments
2 points
Started by justme1964
Most recent by justme1964
Oct 25, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Trust your gut re: Pneumonitis
All, This is a warning to all of you who are having symptoms of pneumonitis. In the past two years, I have had severe adverse reactions to Ibrance and Piqray. The Piqray episode sent me to the ER and …
Lung problems
635 views
14 comments
0 point
Started by tina2
Most recent by moderators
Oct 23, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Ibrance for early-stage breast cancer?
To be clear, I am not stage 4. I am currently on Tamoxifen and Verzenio after a stage 2b diagnosis, surgery, chemo, and radiation. A recent CT scan indicated 15-20 lung nodules, largest 1.5cm, that we…
196 views
2 comments
0 point
Started by nns121317
Most recent by annadou
Oct 18, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Physician left
I received a call from my oncology department yesterday that my oncologist has left for medical reasons and won't be returning. I will be seeing a PA on Thursday. He is the only oncologist at the faci…
182 views
5 comments
0 point
Started by brutersmom
Most recent by brutersmom
Oct 15, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Should I use Whole body bone scan or MRI to detect bone irregularities or bone Cancer?
Hi everyone, Should I use whole body bone scan or MRI of both Lumber Spine and pelvis to detect bone irregularities or bone cancer? Please comment on pros and cons. Thank you.
525 views
11 comments
0 point
Started by new2bc
Most recent by HoldingOn52
Oct 1, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
FGFR1 amplification
Hi everyone, I have been looking at the results of my Foundation One testing and saw that I had the FGFR 1 amplification. I did some research into this and saw that it can cause resistance to endocrin…
105 views
2 comments
0 point
Started by keris113
Most recent by keris113
Sep 16, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Liver surgery
Hi everybody Did anybody with liver met did surgery? If yes, in what cases is suggested and when not? Please tell md about your case!
Liver metastasis
173 views
2 comments
0 point
Started by amel_83
Most recent by amel_83
Sep 10, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Third time unlucky Stage 4
I had my first diagnosis and treatment for breast cancer in 1994 when I was living in the US. I had a lumpectomy, chemo and radiation. I was cured! and we never looked back. In 2017 my mammogram showe…
735 views
8 comments
3 points
Started by marcybeth
Most recent by ohionana1605
Sep 6, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Really Scared--Bilateral Pleural Effusions
I am coming on year 3 since my diagnosis, and I have been feeling pressure and discomfort (primarily at night) on the ribs under my breast--yes, cancer side. It has been a few weeks. I had an X-Ray do…
558 views
4 comments
1 points
Started by startnew12212
Most recent by recoveringbelle
Jul 27, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
MRI results
Hi, I recently had an MRI for back pain. Results are as attached, but they’re now recommending a Nuclear Bone whole body scan to see if the new lesion is MBC that’s spread or something else. I will ha…
313 views
2 comments
0 point
Started by kringle12
Most recent by kringle12
Jul 22, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Bone Pain from Mets or AI?
I am recovering from my third breast cancer dx and have been getting numbness and pain in my ribs, legs and hips. It gets worse at night when I lay down. During the day it doesn't bother me too much o…
873 views
13 comments
0 point
Started by mavericksmom
Most recent by mavericksmom
Jun 10, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
ASCITES
Hello all. I am actually writing on behalf of my best friend. She has metastatics breast cancer, Im sure hers is lobular. She has been living with it for 10 years. 5 years ago it spread to her periton…
387 views
1 comments
0 point
Started by neeni
Most recent by cookie54
May 9, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Two options left - what does this mean?
Hi all, Posting on behalf of a dear dear friend of mine who is living with MBC. She was first diagnosed in 2015 with mets to liver and bone - she is also now one of the unlucky 1% to have a singular m…
374 views
2 comments
0 point
Started by mariabrosa75
Most recent by nopink2019
Mar 12, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Any experience with Palliative Care?
My MO added a recommendation for Palliative Care in my chart after our last visit. I'm unclear on what it covers and how it might benefit me or my family. I have done some reading and watched a few vi…
158 views
4 comments
0 point
Started by pnw
Most recent by spookiesmom
Feb 28, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Can I get pregnant after a stage 4 bone mets diagnosis?
We only have 1 beautiful little girl and I was pregnant with #2 and lost it during my cancer journey. That baby is greatly missed and we would love to have another baby of our own to love. I am 36 and…
230 views
3 comments
0 point
Started by lmdws
Most recent by mavericksmom
Feb 17, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
Backlash Coming Against Instant Disclosure of Health Records
In Politico today, there's an article about doctors lobbying the HHS against immediate release of test results & other electronic data in patient portals, as has been required for more than a year now…
466 views
69 comments
0 point
Started by olma61
Most recent by emac877
Feb 11, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute
FDA Approves Orserdu for ER+ MBC (oral SERD)
FDA Approves Orserdu for Metastatic, Estrogen Receptor-Positive Breast Cancer Jan 27, 2023 The FDA has approved Orserdu, a new oral medicine to treat metastatic, estrogen receptor-positive, HER2-negat…
121 views
0 point
Started by moderators
Feb 1, 2023
Stage IV/Metastatic Breast Cancer, Open to All To Contribute

Stage IV/Metastatic Breast Cancer, Open to All To Contribute

Stage IV/Metastatic Breast Cancer, Open to All To Contribute

Delaying Xeloda

Introducing myself from Nairobi, Kenya

Not dx with stage IV but feel it's coming

Increasing CA 27-29 markers

A cure happened for a hormone positive Her2 negative stage 4 patient in a trial!

Everolimus

Treating Faslodex-related acne

Can lumpectomy scar break open?

Ibrance or Kisquali? Can you share your experience

Anyone NOT get nausea with Enhertu?

Tested for Illegal Drugs

Experience with Verzenio???

Weight gain on treatment

Increase In Tumor Markers but Pet/Scans show stable

Trust your gut re: Pneumonitis

Ibrance for early-stage breast cancer?

Physician left

Should I use Whole body bone scan or MRI to detect bone irregularities or bone Cancer?

FGFR1 amplification

Liver surgery

Third time unlucky Stage 4

Really Scared--Bilateral Pleural Effusions

MRI results

Bone Pain from Mets or AI?

ASCITES

Two options left - what does this mean?

Any experience with Palliative Care?

Can I get pregnant after a stage 4 bone mets diagnosis?

Backlash Coming Against Instant Disclosure of Health Records

FDA Approves Orserdu for ER+ MBC (oral SERD)

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Stage IV/Metastatic Breast Cancer, Open to All To Contribute

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