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Resources for MBC/Stage IV Caregivers
We hope you find the following links helpful! MBC Partners Zoom Meetup; Tuesdays, Bi-weekly, 4pm ET. Register here. Learn: Caring for Someone With Breast Cancer Podcast: Caregiving for Someone With Metastatic Breast Cancer Podcast: Support Services for Caregivers Podcast: Caring for Men Who Are Cancer Caregivers Podcast:…
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Dana Farber 2022-2023 EMBRACE MBC Virtual Forum Series
Hi all! We wanted to share with you a helpful series of five free online virtual forums about promising areas of research and treatment in metastatic breast cancer hosted by Dana Farber's 2022-2023 EMBRACE MBC program. You can access the recordings here: * Welcome Session | 2022-2023 EMBRACE MBC Virtual Forum Series *…
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The Weight of Constant Vigilance in Caregiving
The hardest part of caregiving for me was the constant vigilance and helplessness. Loving someone so deeply while watching their body fail, knowing you can’t fix it, changes you in ways that are hard to explain unless you’ve lived it. With Stage IV disease, I felt like I had to stay alert at all times — listening to…
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Find a person who would understand what I am going through.
I’m in my mid-40s and caring for my wife, who has stage 4 breast cancer. The cancer has spread to bones, then, after a few years of treatments, to the liver…, and they are now trying to enroll her in clinical trials. She’s relatively young, so I’m hoping she qualifies—but overall, it just gives you a bit of extra time. We…
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Wife is starting Xeloda soon
Hi all, My wife was diagnosed with mBC in 2023. She has been through 4-ish lines of treatment, the latest Enhertu. She has felt great with no side effects but it has stopped working after a year. This is next and I’m terrified of the side effects and what living with them will be like for us and our relationship. Can…
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Extreme tumor markers (CEA, CA 15-3)
Hi Everone, I'm Peter; this is my first post in this forum. However, I used to read it a lot. I'm here to understand my wife's situation; maybe some of you have experienced similar things to what we did a couple of days ago. Long story short, my wife was diagnosed with hormone-positive breast cancer in October 2020; she…
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What to expect from Kisqali (side effects)?
Hi, I'm a caregiver to my mom, who was diagnosed de novo with metastatic breast cancer just last month in August 2024. She has metastases to the bones, liver, and lungs, and she's scheduled for a brain MRI next week. She's started on Letrozole, which was paused while she's been undergoing palliative radiation therapy to…
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Help! Scanxiety & stress over watching my sister in pain.
My sister has MBC, stage IV, mets to the lungs & bones. Originally diagnosed Stage 2-A, IDC, underwent radical right breast mastectomy in 2020. In 2022, metastasis to the bones & lungs. Her 2nd line of treatments, Capecitabine & Lapatinib, poisoned her system resulting in stomach issues (diarrhea, gastritis, etc. She has…
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Just an Update....its been a quiet few weeks....
Hello all. We have had impressive results since we started treatment in late January. Nadia has noticed a significant reduction in the size of the tumor in her breast. We should get a scan in the coming weeks, and hopefully (God willing) NED is found in her liver. She is feeling good and has had very mild symptoms from her…
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Triple Negative Breast cancer with brain metastasis
My wife was on Trodelvy and showed no progression in the body and brain during the last scans. But her latest MRI is showing new brain Mets though she’s asymptomatic and the doctor is wondering if they should stop Trodelvy. Has anyone had this situation with your loved ones and has Trodelvy pumped straight to the brain via…