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Resources for MBC/Stage IV Caregivers
We hope you find the following links helpful! MBC Caregivers Zoom Meetup; Tuesdays, Bi-weekly, 4pm ET. Register here. Learn: Caring for Someone With Breast Cancer Podcast: Caregiving for Someone With Metastatic Breast Cancer Podcast: Support Services for Caregivers Podcast: Caring for Men Who Are Cancer Caregivers Podcast:…
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Dana Farber 2022-2023 EMBRACE MBC Virtual Forum Series
Hi all! We wanted to share with you a helpful series of five free online virtual forums about promising areas of research and treatment in metastatic breast cancer hosted by Dana Farber's 2022-2023 EMBRACE MBC program. You can access the recordings here: * Welcome Session | 2022-2023 EMBRACE MBC Virtual Forum Series *…
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Triple Negative Breast cancer with brain metastasis
My wife was on Trodelvy and showed no progression in the body and brain during the last scans. But her latest MRI is showing new brain Mets though she’s asymptomatic and the doctor is wondering if they should stop Trodelvy. Has anyone had this situation with your loved ones and has Trodelvy pumped straight to the brain via…
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MBC to the bones
Hello 🙂 My mother today was diagnosed with MBC to her spine and hips. I read on the web that life expectancy is 19 to 25 months. Is that true? Sounds so little. I read some of your stories and I see that many of you have already live much longer. My mother soon will be 76. I love her so much, and she is so though and…
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What to expect from Kisqali (side effects)?
Hi, I'm a caregiver to my mom, who was diagnosed de novo with metastatic breast cancer just last month in August 2024. She has metastases to the bones, liver, and lungs, and she's scheduled for a brain MRI next week. She's started on Letrozole, which was paused while she's been undergoing palliative radiation therapy to…
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Sacituzumab Govitecan (Trodelvy)
My wife was diagnosed with Stage IV metastatic breast cancer in 2022 and was on remission for a year, before her cancer relapsed in 2023. She had brain Mets and had her full brain radiated and was taking Capecitabine before the brain Mets came back in July 2024. She started her 1st chemotherapy in Aug 2024, but her WBC…
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Living far from daughter with stage IV
my daughter was diagnosed stage IV de novo over 5 years ago and has been doing well and living an almost normal life I’ve been going to almost all of her appointments and scans We live about an hour from one another at the moment and she hardly comes to see me but she’s see her about twice a month I’d like to move to…
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In search of support after my mom's recent MBC diagnosis.
Hello everyone, Part of this is going to be me venting but also I have some questions if anyone is able to answer them. My mom was diagnosed with breast cancer for a 3rd time at the end of May, this time triple negative metastatic at the age of 57. She experienced a large pleural effusion in one of her lungs and the fluid…
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Stage IV - mets to liver and bones need advice
Hi all, Does anyone have experience with ascites/fluid build up caused by liver mets? To give a bit of context, my mum had breast cancer around two years ago and underwent chemo, lumpectomy, and radiotherapy and given the all clear. Over the past couple of weeks her abdomen has been swelling up and it was noticed she was…
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Husbands/Partners of Stage IV Breast Cancer
I'm not entirely sure how to start; I don't post, I don't do Facebook and I have no idea how to go about this. My wife just went through her 2nd round of chemo for her2+ stage 4 breast cancer that also shows in her liver. She's 34. She's as diagnosed maybe 8 weeks ago Question is: where is the forum for the husbands? I…
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You Helped
Aloha I want to share how this site and this forum helped me through my late wife's final months. Ellen died July 11, 2020 at age 66 after surviving breast cancer for 25 years; she was first diagnosed with stage 2 in 1995. After two remissions, she was diagnosed with stage 4 in late 2016. The last months were devastating.…
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Extreme tumor markers (CEA, CA 15-3)
Hi Everone, I'm Peter; this is my first post in this forum. However, I used to read it a lot. I'm here to understand my wife's situation; maybe some of you have experienced similar things to what we did a couple of days ago. Long story short, my wife was diagnosed with hormone-positive breast cancer in October 2020; she…
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Support
My daughter has stage IV breast cancer she was diagnosed De Novo and has been doing well for years I live 22 miles away which takes 46 minutes in normal traffic and over an hour with more traffic Between my autoimmune disease and neck issues and my 2 dogs that need medication for the car ride I find it stressful to make…
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Mom caring for 20 yr old daughter .....
I spend my days and nights researching trying to find a way to save my 20 yr old daughter, she was only 2 months out of treatment when she found out she is now stage iv. Mets to brain skull spine breast lymph . Any moms with young daughters here? Triple Negative
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Wife diagnosed Stage IV de novo:
This thread was started as a response to member KBL's question in another forum about those diagnosed with stage iv ILC de novo. But that forum is for stage iv patients only so I could not post there. I am contributing on behalf of my wife who isn't really keen yet in participating in support groups. As her caregiver I…
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Questions about surgery for brain mets (to be followed by rads)
My sister already had stage IV lung cancer for the past 5 years (mets was only to pleura) - she was getting scans every 4 months and at the most recent one, it was found that the 2 of the 3 pleural lesions had grown and she completed 15 rads sessions last Monday. Then she had a brain MRI and they found mets to the brain.…
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Extensive liver mets - 9th line of treatment, any hope?
Hi everyone, my mum was diagnosed in April 2019 with Stage 4 breast cancer (de novo) with widespread mets to spine, liver and lungs. At the time she was only given 3 weeks to live however by some miracle she learnt to walk again ( after tumours broke her spine) and has been fighting this disease ever since. She was well in…
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My Biggest Fear Came True - Help
Hi Everyone, I'm so grateful that this community exists and that there are people who understand what I'm going through. My mom was diagnosed with breast cancer in 1995 and has been battling it ever since. She has had stage IV since 2009. She has had multiple rounds of chemo and been on many many drugs for ER/PR + but has…
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mixed feelings
I don't know how to start this topic I am still waiting to see the surgeon Thursday and I can't tell you how the waiting time feels like... every single cell in my body is literally aching, I just go to bed and sleep to run away from the current moment.. I have been posting randomly under several sections in this forum to…
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Please share your experience, we care for mum and are lost
My mother had a total mastectomy and 43 lymph nodes removed in 2008. In 2018 Mets were found in liver, spinal column, and lungs. Bother times she underwent chemo and radiation. She has non-alcoholic cirrhosis and delicate kidneys Yesterday she had an ultrasound and x-ray. Her liver and epiplón are covered in Mets. She was…
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My wife diagnosed stage 4 in Feb
First of all thank you for all your support. My wife is 41 and she was diagnosed Stage IV. She is on Femara+Ibrance+ zoladex met to liver. Her recent PETscan showed good improvement over the first. Recently she has been experiencing tumor hardening and clamping on alternate days. On the calm days the tumor areas seems to…
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Radiation Alternatives to Brain Mets?
Hello Ladies and Gentlemen, I've been lurking on this forum and many others on this website and you all have been an inspiration to me and have provided a wealth of knowledge. For background, my mother was diagnosed with stage 2B breast cancer last year around January/February. She went through of the chemotherapy, had her…
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Mother in law stage 4 husband in denial
hello So my mother in law has triple negative breast cancer that is metastatic. It is in her lung and brain now. She just had surgery to remove a tumor from her brain. My husband seems to think everything is going to be fine because she had the tumor removed. He has always been in denial ever since she was diagnosed with…
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Liver issues or mets - TCM
Throwing this out there for anyone with liver Mets or liver issues. There is a Chinese medicine called pian tze huang, used mostly for liver cancer, liver issues and inflammation in general. My grand aunt with liver issues is on it and it has kept her liver tumor markers at bay You might want to look it up
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Lumps in Armpit Area
Can someone tell me if you have any information on a 2 lumps under my armpit after 12 years after initially being diagnosed with Stage II Breast Cancer? I had 12 lymphnodes removed in 2009. My dermatoligist said they are not cysts. Ultrasound done and they are doing a biopsy on Thursday. I can't seem to find any…
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MBC Caregiver Zoom Meetups Place to Keep Chatting
This is a safe space for our MBC Caregiver Zoom Meetup conversations to continue. This meeting takes place on the 1st and 3rd Tuesday of every month at 4pm ET. To register, click here: https://breastcancer-org.zoom.us/meeting/register/...
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An Advanced Breast Cancer Prognosis
Caryn is a regular poster on Breastcancer.org. Diagnosed with ER+/PR+, HER2- IDC in August 2011, she had a bilateral mastectomy, radiation to bones, and is taking Aromasin as a hormone suppressant. Read an interview with her here https://advancedbreastcancer.net/living/prognosis-statistics
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Can you go in remission more than once
My mom has been dx with breast cancer in 2002. After surgery, radiotherapy, chemo and tamoxifen she was in remission. In 2015 she was dx stage IV mets to the bones. Has been on letrozole until this summer and her cancer seemed to be dormant with the letrozole until then. It has woken up this summer (this is the way the dr…
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Share Your Caregiving Story
November is Caregiver Awareness Month and we thought it'd be a great time to thank the members of our Community (and our lives!) for the help they provide while assisting their loved ones in navigating a breast cancer diagnosis. Please share with us your story! We'd love to share it on our site, on the Member Stories:…
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Looking for help/ alternative treatment
This is Shirley a 58 yrs female diagnosed of advanced breast cancer since September 2020 in Liberia. Diagnosis was confirmed in Ghana as HER-2 positive and started on Herceptin and paclitaxel. She had 3 courses of the Herceptin but stopped due the cost , now she's back in Liberia and only on paclitaxel... no bet