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What do bone mets feel like?
Ladies- I really need your help here . I'm driving myself crazy by my aches and pains that I'm having this fall. I'm walking around in pain and not sharing this with my family since I don't want to drive them crazy too. Lately my mid back is bothering me at times( I have had this issue prior to diagnosis), left hip (my…
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Ibrance side effects after 5 months
I am 87 years old and diagnosed with Stage 4 breast cancer in breast lymph nodes and lymph nodes in lungs. I am very active still Drive, cut my grass with riding tractor, run errands, attend church, etc. started treatment 5 months ago of IBRANCE + Letrozole. Did very well on meds with tumors shrinking and not in lymph…
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Vernizio
I just ended Ibrance after an almost 2 year good run. After I went NED for 6 months, I just had 2 scans and they found progression to the neck. I'm going on Vernizio. Anyone else on this?
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Letrozole-False positive drug test?
i just took a drug test for an employer and it is being sent for further testing. I have not smoked any mmj for weeks and when I looked up letrozole, it is a type of steroid. I am wondering if anyone knows if this will cause a false positive???
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SEX - Very Raw Post
Sex. Why does it have to be so complicated? After 13 years of marriage plus 7 more years of dating, one would think we would have it down. But add cancer, chemotherapy and a hysterectomy to the equation and we are fucked. Did I mention I am only 39? When I first met my husband we had sex all the time. It was great for both…
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Who has CA27.29 Values returned to normal? What happened after?
I happened to read this: "Tumour marker values return to normal may indicate cure despite radiographic evidence of persistent disease.(2) In this circumstance, the residual tumour is often non-viable." ( https://patient.info/doctor/tumour-markers#ref-2) This statement is not referring to CA 27.29 in particular, nor about…
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STAVE IV METASTATIC BREAST CANCER LONG SURVIVORS
Just diagnosed with bone mets. Soooo scared. Is there any long met survivors around?
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Ixempra (Ixabepilone)
This is a very hard chemo ifusion every 3 weeks. I am on infusion #4 at the end I will post what I have gone through Today I had Ixempra infusion #4. I'm on full dose once every 3 weeks. I do have a lot of bone pain the only thing that helped is fentynal patches 50mg nauseous quite regularly only thing that helps is zofran…
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Quote of the day...☺️
Worrying doesn't take away tomorrow's troubles...it takes away today's peace.. Dr. Wayne W. Dyer
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Amy one take Turmeric
Friend is taking it and also getting Misletoe shots said it was containing her cancer. Last yea no hope for her but now she is contained
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Vertigo? Brain mets? Afraid to know
About 10 days ago, I experienced some crazy vertigo. It happened when I was working out. I bent over to do a burpee and the whole floor kind of went sideways on me. Then I felt like I could feel my whole sinuses move around during push ups. I thought maybe I was having sinus issues so I called in to Tel-a-doc and got…
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Anyone doing Opdivo?
After now failing Havalen going to try Opdivo. Not a lot of info on it being used for breast cancer. Any other BC sisters using this line of treatment?
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Float tank....is it safe during treatment?
Has anyone been to a float tank while in treatment? I am on H & P, Faslodex and Xgeva. Would love to give it a try. Definitely plan to ask my MO in February.
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A fix for those awful leg cramps.
This post might make me sound like the crackpot of the year, but I think I have stumbled on a fix for those wretched nighttime leg cramps that plague some of us. Since starting herceptin/perjeta/navelbine over a year ago, I have been awakened repeatedly, sometimes several times a night, by "charley horse" type cramps in…
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Sharp pain under left breast
I have mets in my right lower lung lobe and had fluid buildup. They placed a Pleurex catheter and I've been draining since July and it has gone from a liter a day to 150ml every 2 days. 2 days ago I started having a sharp pain under my left breast, this is also my mastectomy side and I have an implant but haven't had any…
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Question about the shingles vaccine
Have any of you gotten a shingles vaccination? I have always been extremely anti adult flu vaccinations, believing they're a crapshoot at best. But someone I know (who does not have mbc) now has a severe case of the shingles, and she is urging everyone to get the shingles vaccine. I'm going to email my onc about this, but…
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Has anyone had problems with Afinitor and their liver?
Had my blood work done after completing my first month of Afinitor and my ALT was up to 126. So they are taking me off it for a week and rechecking to see if my liver recovers. Has anyone else had this problem on Afinitor and did your liver get back to normal after a break? Mouth sores, horrid rash, Blood pressure problems…
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"Hail Mary" miracles
So I'm sitting here in the hospital, wondering how I went from some shortness of breath to possibly the End of the Road. It really wasn't so bad before, but now I can't breathe and they act like it's no big deal. I am literally struggling for breath, but they say the oxygen level in my blood is too high, so it is okay that…
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What if Tamoxifen didnt work?
Once I finished radiation , I was put onto Tamoxifen . At that stage I was given the all clear and clean. I hadn't been on Tamoxifen for 2 months when I found out that the cancer had spread to my bones and lungs. My oncologist thinks that the Tamoxifen didn't work , hence the spread. I have two cycles of chemo left and…
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Time for hospice and Im really scared
Yesterday my palliative onc told me he was going to recommend me for hospice as he believes I have less than 6 months left. My medical onc had told me the same thing last week so this was a second opinion. I told him I would get on the researching and find the one I wanted to be referred to. Then today I started getting…
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Calcium with Magnesium, a reminder
hi ladies, As bone metsters, many of us are on calcium supplements, and many on multivitamins containing both calcium & magnesium. Having had used such a combo for a while last year, I learned today from a group of German MDs that it's a no no! That they should be consumed 12 hours apart. Calcium in the morning & magnesium…
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WOO HOO! Now a 12 year survivor of Stage 4 breast cancer!!!!
Original liver mets, remission for 6 years. 2 1/2 years ago I had recurrence to nodes behind my sternum, but Gemzar is doing a good job on those. Yay me. I should edit this-the Gemzar quit working and now I am on Kadcyla....
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infrared sauna for bone pain, neuropathy, etc.
hi all, just wanted to say that if you have never tried infrared sauna, you shoulddo so asap! it is very beneficial for bone pain, neuropathy, detoxing the body, lymph channels and skin. Word of caution-you must stay hydrated while in the sauna or your lymphedema prone areas will start to hurt so stay hydrated and you will…
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I now have multiple brain mets. So scared! Please help!
My dearest ladies, just found out yesterday that this nasty friggin beast has managed to make into my brain which what I always feared and prayed I would never have to deal with. This comes after learning Halaven failed and I have significant progression in liver and bones, have been battling C Diff and recently a horrible…
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SSDI is being terminated....
WTH!!!! My letter came yesterday and this is what it said: It was previously determined that you had breast cancer and then a recurrence of breast cancer. The evidence shows an improvement in your conditions with no evidence of cancer recurrence. Although you now have some residual left shoulder problems, these do not…
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Stage IV members ONLY hospice discussion
Earlier, we agreed that we could talk hospice in HERE as opposed to shifting such discussions to the other forum (end 0f life...?) The concept is still sadly, connected to saying goodbye for us and our sisters. If the word upsets anyone, please block the topic. :-) I wanted to explore what Ive been told and hear your…
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Allergic reactions to stings after chemo?
Just wondering if anyone has had this problem. I have been on chemo off and on for 5 years. In that period Ive made 5 trips to the emergency room with severe reactions to insect bites. These being so severe I carry an epi-pin around with me. Ive gone into anaphylactic shock once. Allergists want you off all meds for 10…
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Funeral on Saturday and asked to wear pink....
My husbands aunt died on Sunday from IBC. Learned on Facebook today that in honor of her and breast cancer awareness month if we have anything pink to wear it. How do I do this??? I hate pink and all it stands for this month but LOVED, LOVED, LOVED this woman. She fought so hard these last 4 years and I will miss her…
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Great Scans but Enlarged Spleen
I had my PET Scan yesterday and continue to be NED!! Woo hoo. I have beenon TDM1 since Nov 2010 and NED since Nov 2011. My PET scan said that I have an enlarged Spleen. My doctor didnt say much about it but now that I am home and googling it... I am alittle worried. Anyone have a enlarged spleen? What causes it? How do I…