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Amy one take Turmeric
Friend is taking it and also getting Misletoe shots said it was containing her cancer. Last yea no hope for her but now she is contained
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Vertigo? Brain mets? Afraid to know
About 10 days ago, I experienced some crazy vertigo. It happened when I was working out. I bent over to do a burpee and the whole floor kind of went sideways on me. Then I felt like I could feel my whole sinuses move around during push ups. I thought maybe I was having sinus issues so I called in to Tel-a-doc and got…
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Anyone doing Opdivo?
After now failing Havalen going to try Opdivo. Not a lot of info on it being used for breast cancer. Any other BC sisters using this line of treatment?
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Float tank....is it safe during treatment?
Has anyone been to a float tank while in treatment? I am on H & P, Faslodex and Xgeva. Would love to give it a try. Definitely plan to ask my MO in February.
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A fix for those awful leg cramps.
This post might make me sound like the crackpot of the year, but I think I have stumbled on a fix for those wretched nighttime leg cramps that plague some of us. Since starting herceptin/perjeta/navelbine over a year ago, I have been awakened repeatedly, sometimes several times a night, by "charley horse" type cramps in…
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Sharp pain under left breast
I have mets in my right lower lung lobe and had fluid buildup. They placed a Pleurex catheter and I've been draining since July and it has gone from a liter a day to 150ml every 2 days. 2 days ago I started having a sharp pain under my left breast, this is also my mastectomy side and I have an implant but haven't had any…
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Question about the shingles vaccine
Have any of you gotten a shingles vaccination? I have always been extremely anti adult flu vaccinations, believing they're a crapshoot at best. But someone I know (who does not have mbc) now has a severe case of the shingles, and she is urging everyone to get the shingles vaccine. I'm going to email my onc about this, but…
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Has anyone had problems with Afinitor and their liver?
Had my blood work done after completing my first month of Afinitor and my ALT was up to 126. So they are taking me off it for a week and rechecking to see if my liver recovers. Has anyone else had this problem on Afinitor and did your liver get back to normal after a break? Mouth sores, horrid rash, Blood pressure problems…
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"Hail Mary" miracles
So I'm sitting here in the hospital, wondering how I went from some shortness of breath to possibly the End of the Road. It really wasn't so bad before, but now I can't breathe and they act like it's no big deal. I am literally struggling for breath, but they say the oxygen level in my blood is too high, so it is okay that…
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What if Tamoxifen didnt work?
Once I finished radiation , I was put onto Tamoxifen . At that stage I was given the all clear and clean. I hadn't been on Tamoxifen for 2 months when I found out that the cancer had spread to my bones and lungs. My oncologist thinks that the Tamoxifen didn't work , hence the spread. I have two cycles of chemo left and…
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Time for hospice and Im really scared
Yesterday my palliative onc told me he was going to recommend me for hospice as he believes I have less than 6 months left. My medical onc had told me the same thing last week so this was a second opinion. I told him I would get on the researching and find the one I wanted to be referred to. Then today I started getting…
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Calcium with Magnesium, a reminder
hi ladies, As bone metsters, many of us are on calcium supplements, and many on multivitamins containing both calcium & magnesium. Having had used such a combo for a while last year, I learned today from a group of German MDs that it's a no no! That they should be consumed 12 hours apart. Calcium in the morning & magnesium…
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WOO HOO! Now a 12 year survivor of Stage 4 breast cancer!!!!
Original liver mets, remission for 6 years. 2 1/2 years ago I had recurrence to nodes behind my sternum, but Gemzar is doing a good job on those. Yay me. I should edit this-the Gemzar quit working and now I am on Kadcyla....
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infrared sauna for bone pain, neuropathy, etc.
hi all, just wanted to say that if you have never tried infrared sauna, you shoulddo so asap! it is very beneficial for bone pain, neuropathy, detoxing the body, lymph channels and skin. Word of caution-you must stay hydrated while in the sauna or your lymphedema prone areas will start to hurt so stay hydrated and you will…
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I now have multiple brain mets. So scared! Please help!
My dearest ladies, just found out yesterday that this nasty friggin beast has managed to make into my brain which what I always feared and prayed I would never have to deal with. This comes after learning Halaven failed and I have significant progression in liver and bones, have been battling C Diff and recently a horrible…
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SSDI is being terminated....
WTH!!!! My letter came yesterday and this is what it said: It was previously determined that you had breast cancer and then a recurrence of breast cancer. The evidence shows an improvement in your conditions with no evidence of cancer recurrence. Although you now have some residual left shoulder problems, these do not…
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Stage IV members ONLY hospice discussion
Earlier, we agreed that we could talk hospice in HERE as opposed to shifting such discussions to the other forum (end 0f life...?) The concept is still sadly, connected to saying goodbye for us and our sisters. If the word upsets anyone, please block the topic. :-) I wanted to explore what Ive been told and hear your…
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Allergic reactions to stings after chemo?
Just wondering if anyone has had this problem. I have been on chemo off and on for 5 years. In that period Ive made 5 trips to the emergency room with severe reactions to insect bites. These being so severe I carry an epi-pin around with me. Ive gone into anaphylactic shock once. Allergists want you off all meds for 10…
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Funeral on Saturday and asked to wear pink....
My husbands aunt died on Sunday from IBC. Learned on Facebook today that in honor of her and breast cancer awareness month if we have anything pink to wear it. How do I do this??? I hate pink and all it stands for this month but LOVED, LOVED, LOVED this woman. She fought so hard these last 4 years and I will miss her…
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Great Scans but Enlarged Spleen
I had my PET Scan yesterday and continue to be NED!! Woo hoo. I have beenon TDM1 since Nov 2010 and NED since Nov 2011. My PET scan said that I have an enlarged Spleen. My doctor didnt say much about it but now that I am home and googling it... I am alittle worried. Anyone have a enlarged spleen? What causes it? How do I…