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Request a Free MBC Guide about Treatments, SEs, and more..."
If you are newly diagnosed with MBC, facing a treatment change, or contending with difficult side effects, then you may want to look at "The Insider's Guide to Metastatic Breast Cancer," which provides science-based information about approved and emerging therapies, cutting edge research, symptom mitigation, and more. It…
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When do you know it's time to change MO
Hi everyone I am still new at MBC, just found out in October. I went for a 2nd opinion shortly after diagnosis. Her treatment was fairly consistent with my current MO, so I chose to stay with my current dr. Here's the deal, I keep having this nagging gut feeling I need to change. I have never felt a strong connection with…
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Viability of biopsy
after a year and a half first on THP and then just HP I have partial progression- one of the lesions increased a lot in uptake, a few lymph nodes increased in uptake and a couple of new avid nodes popped up. The lesion is 1 cm in the upper lobe of the left lung. Lymph nodes are in the right supraclavicular fossa (4mm),…
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Eye mets.
Hello, anyone with eye mets? Looking for words of encouragement. Eye doctor found lesion on my retina and am scheduled for an orbital MRI to confirm diagnosis. Onco is already pushing proton therapy with radiologist. Has anyone had this resolve on cdk 4/6 inhibitor?Thank you for your time.
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Cryotherapy for Lung Mets?
I have a low volume of lung mets and was stable for approximately 7 years just on Femara. Recently, 4 lung Mets slightly grew, I switched to Fulvestrant and have been stable since June 2020. I would like to have these 4 lung mets or at least the largest one cryotherapy ablated or with laser/heat ablation. Does anyone know…
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De Novo Metastatic
Hello, I’m new to blogging and to breast cancer. I’m overwhelmed by the speed of my diagnosis, even my doctors are shocked. November of last year I learned from biopsy and mammogram that I had Stage 1 A breast cancer. The tumor in the left breast was < 2 cm invasive ductal carcinoma grade 2. I was scheduled for bilateral…
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Mets to lung
Hello ladies. I sadly find myself joining this group within 18 months of initial bc diagnosis. Im 44 years old. I had a wedge resection and lobectomy about a month ago and my oncologist is talking about oral chemo and immunotherapy together to treat this. My borders at surgery were clear thankfully. Gotta say with the…
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When to stop taking Ibrance? Been Taking for Almost 4 years
Hello everyone, Trying to see if there are fellow people in the same boat as my mother. She was diagnosed with Stage IV breast cancer March 2017 (almost 4 years ago) when they found a tumor in her bones (metastasis). Since 2017, she's been taking Ibrance. In the first year, her tumor markers 15-3 and 27-29 fluctuated a lot…
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Metastatic Breast Cancer Trial Search
We are proud to present Metastatic Trial Talk, the first-ever clinical trial search engine designed specifically for people with metastatic breast cancer. Check it out, and please post here to share your experience using the tool! Metastatic Trial Talk was developed by BreastCancerTrials.org in collaboration with…
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Chemotherapy for Stage IV
This thread will be for the discussion of chemotherapy as it relates to Stage IV survivors
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19 years at Stage 4 MBC de novo!
Well, I did it! So far, so (almost) good. Today is the beginning of my 19th year after being diagnosed with Stage 4 MBC de novo. I started out with metastasis to my liver (now clear), then about 11 years ago, I had metastasis to 2 chest nodes (also cleared). Now it seems that I have metastasis to my ribs. I am still…
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My mom: 10 years living with MBC
Dear, ladies, I hope you don't mind me posting here. I just wanted to share with you that my beautiful mom recently reached the milestone of living 10 years with metastatic breast cancer. I can't describe how I feel as I write this because I really don't know. I have dreamed of this moment many times without really…
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Stage IV de novo are still on your first line of treatment?
Hi! I went to my oncologist today for my third round of chemotherapy taxol/herceptin/perjeta. My oncologist explained this is the first line of treatment and said it could be 6 months or 4-5 years before your cancer will return after chemo. I was just wondering how many of you are still on your first line of treatment and…
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Swollen, bloated Abdomen
I was diagnosed with triple negative lobular breast cancer in 2015. I had a skin saving single mastectomy followed by DIEP flap surgery in 2016. All was great until 2019 when I had a local recurrence. I had my nipple removed along with several lymph nodes (two positive for cancer) had radiation and did a course of chemo…
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Adding Sx to Stndrd Tx Linked to Better Survival for Some MBC
Adding Surgery to Standard Treatments Linked to Better Survival for Certain Types of Metastatic Breast Cancer January 5, 2021 Having surgery along with systemic treatments or with systemic treatments and radiation therapy can improve survival for women diagnosed with metastatic hormone-receptor-positive or HER2-positive…
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Writing About MBC
Writing and art is my therapy. Lately I've been thinking about taking things further and writing a book of thoughts, poems, and maybe some lifestyle and nutrition topics. Writing has been such a blessing to me but I would like to be able to share with others as well. Please share what you would be curious to know from…
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Bile duct stricture could be ILC mets
I’m reaching out here to ask for any input about ILC mets to the common bile duct. Because of symptoms suggesting gall stones, (including elevated bilirubin, alp, ast, alkP; pain below sternum, orange urine, and itchy jaundice) I had an ultra sound. A stricture of the common bile duct was seen. I’ll be getting a CT scan…
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Faslodex question
Does it make your urine smell like barnyard stall? This is the second loading shot before I go monthly and the smell is back. Yuck.
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Success after Ibrance/Faslodex Failure
Hi everyone. I’ve been a lurker here, but never posted. Having a bit of a bad day, and looking for a little hope. I was on Ibrance and Letrozole for about 15 months and it was very effective. After scans at the end of January, progression was suspected, but not 100% confirmed. I switched to Ibrance and Faslodex for 3…
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Has anyone refused or stopped Xgeva and Zometa??
I want to stop Zometa. I think the long term side effects can be much worse than the positive effects. I have 2 bone mets (I hope, just had bone scan today) I read from a girl on FB today she broke her neck just rolling over in bed. She has been getting Zometa for 3 years..she said she was told that its like cement and…
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hair loss with ibrance
Hi guys, I was wondering how many people have experienced hair thinning or loss with ibrance? I just started it about 4 weeks ago. My Dr. told me my hair might thin. I noticed a few extra strands coming out initially, but now it's multiple strands multiple times a day. Just wondering if others have had hair loss…
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Tips for fighting the dark clouds
I've started this thread at the urging of fellow Stage IV sisters. I've been fortunate enough to get a lot of really good advice from friends, healers, therapists, etc., on how to fight the dark clouds that come with Stage IV. Not everything will work for everyone and not everything will work all the time. But hopefully…
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Weird rash
Hi Everyone, I have been on Herceptin/Perjeta and Femara for 3.5 years now (chemo and radiation in the beginning ) After, about six months i developed a very itchy rash on my arms and chest. My MO sent me to a dermatologist who prescribed a cortico-steroid cream. Anyway, it hasn't bothered me in a year or so. The past…
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Anyone else feeling completely out of sorts?
I can’t quite put my finger on it.. but between new COVID life, working from home full time, being isolated from friends, worried about a COVID diagnosis on top of everything else, a dear pet who is getting close to the end of their life and upcoming scans, I’m feeling all out of sorts. Nothing about life is “normal” when…
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XGEVA let's talk about the good and the side effects
There is no topics devoted to XGEVA so I decided to start one. First here is the link with all the info. I believe this is one of the best new medications we have for bone mets. http://www.xgeva.com This group will be a place to discuss the good and side effects associated or any experience you wish to discuss about Xgeva.
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Oligometastatic Prognosis
On another forum, somebody posted this abstract, and I want to share it with you all - with comments. Since I am being treated as a true oligometastatic patient, this topic interests me. I think it is becoming more and more accepted as a real possibility, that a very small subset of women with mets can live long lives. It…
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Cancer in cerebral spinal fluid. My saga.
Hello all, I wrote an informational post some days ago as I found nothing on this board about bc cancer spread to cerebral spinal fluid. This is now a personal thread. I am hanging in there with the following. I am 12 years survivor. First 7 disease free. Then since 2003 on bone (extensive) and liver (few down to…
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Coronavirus
Is anyone else starting to worry about this especially because of our comprised immune systems?
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Laryngitis...anyone?
Anyone have laryngitis along with Taxotere or any of the Taxanes? I have had it for three and a half weeks.....it's getting very old! I am now off the weekly Taxotere and on to every 3 week Abraxane. Any thoughts? Thanks! ~Barb
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anyone have vaginal rash/itching from chemotherapy?
Especially those of you who are on Avastin and/or Temodar? This is a new development for my daughter and am trying to see if it's coming from the meds. Thanks and my best to all of you. Joyce