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Keto? Mediterranean? No sugar? No fat? No processed foods?
I have been reading studies about how diet affects breast cancer growth and have been bouncing between them in my head and daily life. Some studies, such as keto diet, seem to contradict each other, with fierce advocates on all sides.I thought it might be helpful for us to share the type of diet (not for weight loss, but…
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Help needed for Treatment options (if any)..
I am a recent member of the group and was diagnosed with De Novo stage IV, Triple negative with mets in liver and lungs. I was diagnosed in Oct 2020. i belong from Pakistan and my doctors are of the opinion that my cancer has spread too much for them to do anything (chemo,Radiation,Immunotherapy) about it. I am writing…
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Skin mets thread-is there one?
cannot find a way of searching to see if this exists. If this thread exists, can someone please send me a link. thank you! D
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Nasty red itchy rash- skin mets??
I’ve have a bad rash jumping around from back to one arm and another arm. Leaves one place and goes to another. Now I’ve had it to my upper chest and neck. I don’t think it’s a rash anymore. This is so itchy and red and dry. I’m finding it hard to find info on this. Has anyone had this experience and was it skin mets?? D
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side effects: arimidex or ibrance?
good evening and Beltane greetings 💖 tonight's question is: if you are experiencing se's and are taking one or more drugs, how do you establish which one is causing the effects? i've been taking arimidex & ibrance just since dec 2021 and have crashed in the last few weeks - can't get out of bed. unacceptable as i work.…
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Anyone doing this MBC thing alone?
or just me?
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After 9 years ... I have been released from Herceptin!
Hello everyone I have not posted in a while but wanted to give an update. My oncologist who has treated me for the last 9 1/2 years abruptly resigned last month. I decided to get another opinion at the University of Michigan and today met with this oncologist. She is the head of clinical research there and I was very…
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TNBC in supraclavicular lymph nodes *only*??
Hi All, My wife recently got NED from stage 4 TNBC that was in her spine. However, her most recent PET showed 3 lymph nodes on either side of her neck with activity, and a biopsy confirmed cancer. What is baffling us is that there's no sign of cancer elsewhere. How does cancer get into the lymph nodes without a tumour…
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CA 27-29 testing
My CA 27-29 keeps on going up. When I was first diagnosed with bc 3 yrs ago it was 65. Now that I have mets it's 880. My Onco told me not to get hung up on the numbers but how could I not? He said it could be inflammation. I've had very severe gastritis and GERD lately. Could that be it? I feel fine. Going for a PET next…
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Anemia from inflammation
I have mets to my bones. I've got severe anemia from it. My hemoglobin is 7.7. My Dr just gave me my first shot of Aranesp. They won't give a transfusion until my hemoglobin is under 7. Does Aranesp work and when? I can't even get the strength to walk to the bathroom.
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"I Could Get Hit By A Bus" Comments
It still amazes me how people are insensitive when you tell them that your cancer is terminal and cannot be cured. After all these years, I still have acquaintances say to me "We all never know when we will die." "I could get hit by a bus tomorrow". Usually the person goes on their merry way, and I am still left with no…
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Colitis
I've had a lot of diarrhea/stomach pain/cramping/nausea and i thought it was due to Verzenio. It's been getting worse so I had an appointment with a gastroenterologist. He did an endoscopy & colonoscopy and it turns out that it's a flare up of collagenous gastritis and colitis. I have inflammation from one end to the…
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Determining progression
Hello, hope you would response to this question: when does your oncologist decide the cancer has progressed from current regimen? 1- A definitive trend in rising tumour's marker such as Ca27.29 or Ca15-3. Note that there are 7-10 benign causes of a jump in marker, although I haven't read any paper with respect to benign…
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INSANE Itchy skin-rash-I need relief
my rash started on Ibrance. I stopped Ibrance now and thought it would go away but it’s not. It started on my upper back and left arm. Stopped there and when to right arm. Stopped there and now it’s on my neck and upper chest. It’s the worst here. So itchy I look like I had radiation. I need to scratch!! I’ve tried…
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Symptoms of lung Mets
Hello everyone; I have Mets to my spine, which according to my last scan we “resolved”. I’ve had this persistent cough lately,with some pain on my upper back and I’m really fearing the worse. There’s no pain when I breath in and out,but my chest feels weird. I had Covid last year and I felt the same way. I don’t think this…
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In Memorium: Lita57
This is Lita's daughter Mica. It is with both relief and sadness that I must report that yesterday morning Lita went home to be with her Lord and Savior. Her long fought cancer battle finally came to a peaceful end surrounded by family and friends. This site was a source of strength and community for my mother, especially…
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What just happend?
I was diagnosed with Invasive lobular carcinoma that metastasized to the lymph nodes eight months ago. I was scheduled for a bilateral mastectomy with nipple sparing reconstruction placement of expanders same day and follow up surgery placing silicone implants surrounded by fatty tissues from my belly. It was agreed to by…
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Ra-223 Clinical Trial
Is anyone in the Ra-223 (radium) clinical trial for bone mets? If so, what have been your results? Any side effects?
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Diagnosed with bone mets
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Let’s gripe!
It’s been one of those days and I’m in the “this stage iv stuff sucks” frame of mind. I’m tired of all of the bloodwork; I’m tired of the monthly Zoladex shots; I’m tired of the constant fatigue; I’m tired of living in 6-month segments in between scans; I’m sick and tired of worrying that while I feel good now, when is it…
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Anyone with Rib mets get pain in back - What do you do?
Hi, I have bone mets and noticed recently the right side in the back and front hurt - like it gets fatigues and then hurts, if I rest with a heating pad its better, but hurts if I am doing things. Does anyone experience and how do you manage it? It can be limiting.
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Swollen glands - Ibrance -Letrozole
hi It's my week off of Ibrance can't turn my head, swallow without pain my jaw also hurts.99.7 temp , chills. Is this a side effect? Anyone have this?
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How many are Stage Iv Lobular?
I'm just checking to see how many are Stage IV Lobular? How long and how are you doing? It's a bit different than ductal.it seems Lobular is harder to find on scans. I’m new so looking to get any advice and tips. TIA
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Poll - How old were you when dx with BC
I am just curious to find out how old all of you were when first being dx'ed with BC (I don't need to know the year, I hate math so I wouldn't try to figure out how old you are now anyway). It just bothers me that they are still promoting waiting until you are 40 to get a mammo. I was 29 when I was first dx with BC, 34…
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De Novo Oligometastic- What treatments have you chosen?
Hi all! I hope there is not already a forum for this. If there is, I couldn't find it! I am newly diagnosed (June 2021) and oligometastic- 1 met on my L4. I also have 3 positive nodes. I am currently on Faslodex and Kisqali. ER+/PR+ HER-. I had my ovaries removed a month ago. I am trying to research the choices of staying…
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Radiation for stage 4 very painful
On the eve of being 10 years cancer free after Stage 2 lobular I am now joining you in the fight of my life. I am on Ibrance and letrozole and started radiation on my back and hip this week. There are innumerous tumors in my spine with the biggest around L2-L4. When I got home yesterday after radiation I thought I would…
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Poll on Mets/Just curious?
I am just curious on how many members have mets? And to what location on the body? Thanks in advance for participating. Rebecca
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Quitting work in my 40's?
Hello all, apologies in advance for such a long post, I was diagnosed stage III back in 2014 at age 34, and had a contralateral axillary recurrence in 2017. That recurrence was considered stage IV since it was on the opposite side as my original cancer (and genetic testing showed that it was almost definitely the same…
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Abraxane (chemotherapy)
I couldn’t find a thread that pertains just to Abraxane, so I started this one. I am on Abraxane since September 2021 (after a horrible 3 months on Piqray that didn’t work). I seem to mostly be tolerating it well, however with bouts of dizziness, constant clogged ears, occasional eye flashes and of course fatigue. Just…
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CT Aid In Dying Bill - Whats Your Take?
I am starting this thread without much research because I just learned that Connecticut is dealing with an Aid In Dying bill. I also just went on the DeathWithDignity.org website and signed a petition to help get the bill through. Right now, I'm not six months away from the end, or am I? Having Stage 4 Denovo since 2008, I…