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Oligometastatic Prognosis
On another forum, somebody posted this abstract, and I want to share it with you all - with comments. Since I am being treated as a true oligometastatic patient, this topic interests me. I think it is becoming more and more accepted as a real possibility, that a very small subset of women with mets can live long lives. It…
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Cancer in cerebral spinal fluid. My saga.
Hello all, I wrote an informational post some days ago as I found nothing on this board about bc cancer spread to cerebral spinal fluid. This is now a personal thread. I am hanging in there with the following. I am 12 years survivor. First 7 disease free. Then since 2003 on bone (extensive) and liver (few down to…
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Coronavirus
Is anyone else starting to worry about this especially because of our comprised immune systems?
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Laryngitis...anyone?
Anyone have laryngitis along with Taxotere or any of the Taxanes? I have had it for three and a half weeks.....it's getting very old! I am now off the weekly Taxotere and on to every 3 week Abraxane. Any thoughts? Thanks! ~Barb
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anyone have vaginal rash/itching from chemotherapy?
Especially those of you who are on Avastin and/or Temodar? This is a new development for my daughter and am trying to see if it's coming from the meds. Thanks and my best to all of you. Joyce
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Abraxane
Weird that there hasn't been a thread devoted to Abraxane before this... here goes nothing!
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8 year survivor stage 4!!!!
Fellow Warriors, I haven't posted in a while but just wanted to share that I am celebrating today! It has been 8 years since my Stage 4 diagnosis!! Unbelievable, really, when you look at statistics. I have been on a multitude of treatments, but all have worked for a while....adding up to 8 wonderful years! I have worked…
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Shannon Doherty & The Amount of Misinformation About MBC
In the news today, celebrity actress Shannon Doherty revealed her breast cancer had returned and she is now stage iv. It is sobering news to a lot of people, and I'm sorry she is where we are with this disease. I check out stories on morning news show Facebook pages, and not surprisingly, hers is a trending topic. This…
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Traveling After Stage IV - Questions, Concerns and Conversation
Hello Everyone, Seeing so many inspiring ladies getting out their and kicking butt seeing the world I’m left in an amazed stupid. How do you do it!? Going anywhere after my stage 4 dx has been tricky with infusions, scans, doctor appointments, SE’s, medications and other limitations brought on by this disease. We never…
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Bone Mets to Arm
Has anyone here ever had bone mets to the arm? I've been having a intense pain in my right arm for over 4 months. The pain started in my elbow and now has progressed to the entire lower arm. I don't think that it's lyphmpathic because I only had two nodes removed. Don't have an appointment with the OC until September. Pain…
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Has anyone had pleural effusion?
Has anyone had pleural effusion? I developed it and I have to drain my lung once a week. I have stage 4 inflammatory breast cancer that has metastasized to my bones and my left lung. Just wondering if anyone else has experienced this? I have a tube sticking out of my left side that I'm using to drain.
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Gem/Carb
I'm starting this combo next week. Anyone else? I know of a few who have been posting on other threads. I'll post here with information and how it affects me. I'll be on a 21 day cycle. Day 1, day 8 off on Day 15. Both drugs given each time. The pharmacist told me she doesn't expect hair loss. They do load you up w anti…
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Itching while on Herceptin and Perjeta
Hi! I'm wondering if anyone can help me with this severe itch that I have that I feel is due to the Herceptin and Perjeta that I receive every 3 weeks. I am on Claritin and Benedryl. I have tried creams and steroid creams (which my Dr's allow me to use sparingly) and also oatmeal bath. Sometimes I have to scratch my skin…
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Those with minimal metastases (1-4 mets/oligometastases)...
...can you chime in regarding what treatments you've done, how aggressively your onc has treated the mets, etc? I just received the best news possible since being diagnosed with mets last month. It seems it hasn't spread to other organs and I only have a few small bone mets (no more than 3, and 2 might just be inflammation…
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Numb Chin Syndrome
For months now, I have noticed partial numbing in my chin and lower lip. My doctor jumped all over this at first and ordered a head CT and jaw x-rays, but nothing unusual showed up. Yesterday I did a random internet search and came up with an actual syndrome...numb chin syndrome. And one of the more common causes is…
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Faslodex + Pablociclib(Ibrance) treatment combination -
I know there is a Faslodex thread but thought I would start 'Faslodex +Pablociclib(Ibrance) thread since the Faslodex thread is extremely broad and contains many pages. This way, the people who are taking this combo can respond here as it would be a whole lot easier for people who do not have the time or energy to comb…
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Ixempra-My experience
Ok so I just cannot find a lot of information on Ixempra since it is new and not a lot of women have taken. So I am starting this thread and am going to update it with my response to the treatment so that others can access if they have to go down this path. What got me here: Am Stage 4 and triple positive and was most…
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The "Do not take if...." List...please add...
Hi Ladies... I believe someone mentioned a few weeks ago in the Ibrance thread that we should start a list of things "we should not take" if we are taking Ibrance and some for letrozole or Hormone positive. So I figured I would start this with relation to: Hormone Positive Breast Cance/Ibrance/Letrozole The ones I know…
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Can we talk Sugar/Fresh Fruit and Carbs etc?
Hi ladies. I am so tired of getting conflicting information. Whether it be about medication, exercise or food.. It seriously makes me want to give up even looking for anything that can help improve my health. So I have been trying to cut out carbs (not completely) I am giving my self one cheat day each week for carbs like…
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Do you think MBC will be truly chronic in the next 5 years??
Since my diagnosis few months ago, i spent so much times reseaching to find hope & interested in your opions on this topic. Thanks in advance
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FDA Approves Clinical Testing of CAR T-cell Therapy for MBC
https://breastcancer-news.com/2019/07/26/fda-approves-clinical-testing-minervas-car-t-cell-therapy-metastatic-breast-cancer/
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Leptomeningeal Metastases or Carcinomatous meningitis in Brain
Hi there, I would like to know who has been diagnosed with Leptomeningeal Metastases (also known as Carcinomatous Meningitis) in the brain. What treatments are they receiving and how long since you were diagnosed. I have read through the discussion boards but information is very limited. Thanking you in advance. Mandy
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Another Navelbine Success Story....
I walked into the onc office this morning and my onc was speaking with the receptionist and I said good morning and his words back wre Good News!!! I asked "how good is good news?" and he said it was excellent and better than he expected. Apparently all the nodules that were lighting up last time no longer light up. Those…
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Horrible pain after faslodex injections
I have had my 3 loading doses plus 2 monthly but this past injection was horrible. Not sure if the nurse hit a nerve or what but its day 3 and I cant sleep or hardly walk my legs hurt so bad. Anyone else experience this and what did you do
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Afinitor and Faslodex combo
Hello Lovely Sisters, Both Moissy and I have recently started this combination, I think it's a fairly new combo. I'm hoping to find others who are on it, or going on it, so we can discuss outcomes and side effects. Please join us,
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How high is high for the CA27/29?
I know there is a lot of controversy re tumor markers....some of you don't have the test done, some oncos don't use it as a test because it is not always an accurate diagnostic tool However, in my case, they have ALWAYS been very accurate and when they go up, I have always had either an increase in tumor size or a new…
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Oligometastatic Mets
I am looking for anyone who is oligometastatic, specifically her2+? interested in treatment plans.
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Verzinia $0 copay
Forgive me if this is old news. Just wanted to share that I signed up for Verzineo savings plan. Zero dollars copay first three months, ten dollar copay from then on.
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Her2+ stage IV: What´s ahead?
Hello everybody, Recently diagnosed stage IV/metastatic shortly after finishing treatment. My cancer is either extremely aggressive and/or I´m resistant to Herceptin. I´m single, 56 years old, live alone and have a full time job that I love (worked through treatment), and (still) fit. I would really appreciate if other…
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Unfortunately things are going downhill
Funny how this crap can change so quickly. Up until September, I had one lonely bone met. Since then, it seems to be on the run. I had several new bone mets in September with one liver met. I was switched to Afinitor and Aromasin. For 2 months my markers were dropping and we were all excited. At the end of December I had a…