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High Risk for Breast Cancer? Start Here
Helpful information for those who are at high risk for breast cancer: Some suggestions from the main Breastcancer.org site: * The expansive Know Your Risk section is extremely helpful if you have questions about what risk factors are, what you can or can't do about them, and more! * The Genetic Testing section is key for…
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ADH Club
Can we start a thread on ADH (known as atypical ductal hyperplasia)? There may be one already existing, but without a lot of hunting around, it's not easy to locate and may not be recent. I'm 51 and have (had) no risk for BC other than being a female - non smoker, no immediate BC in my family, I'm fit, I exercise, eat…
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How high is "high risk"?
When I have looked online at the forums here and on other websites, I'm frequently seeing people who mention being high risk because they have a lifetime calculated risk somewhere between 20% and 45%. I'm not seeing anyone mentioning a risk higher than that. I have a Tyrer-Cuzick model 73.2% calculated lifetime risk. I…
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Complex ADH with greater chance of surgical upgrade ANYONE?!?!
So my story has been long and drawn out and I just dont know what to think or do. 2 years ago, found a lump. Dx mammo/us determine "mildly irregular anechoic cyst". Lump never leaves. No follow up other than annual well womens visit. 7 months ago, nipple discharge near lump. Go see OBGYN and he blows it off as hormonal and…
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Family History. Doctors not taking me seriously
Hi I'm Dani and I'm new here. I've never posted on a forum before so I guess this really feels like a last resort for me. I've had obsessive thoughts about getting breast cancer ever since I learnt of my alarming family history 5 years ago. I am currently 25 and after being in and out of therapy over this I don't want it…
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ADH LCIS Lumpectomy #2 Now What?
When I was first diagnosed with ADH 2 years ago my surgeon mentioned prophylactic mastectomies and I thought he was very extreme for bringing it up. Now I just finished my second surgical excision for ADH (pathology showed LCIS). I'm starting to wonder what happens next- I can't be having surgery every 2 years! I think my…
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MRI vs US give opposite results. which is more accurate?
39/f here. high lifetime risk @ 35.8%. Also my career is in radiology, so I understand the lingo, but just not such differing results. had breast MRI to supplement a negative annual screening mammo. results were 4mm focus of enhancement WITH washout kinetics. which is highly suggestive of malignancy. 2 weeks later i get…
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So what to do with this information
Hello, my daughter had a mammogram and ultrasound, everything was ok. She is 44 years old. this is the first time she had breast cancer risk determined and it is 22%. Because i had a few years ago breast cancer. We are confused now. Should she every year have 3 tests done: mammo, ultrasound and MRI. It seems too many tests…
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Genetic Testing + Excisional Biopsy
Hi! If any of you have had genetic testing done, how did you get your results? Was it on the phone or in person or maybe via letter or portal? Did the results influence how/where you were given the results? Thanks!
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High Risk Without Gene Mutations
Hi Everyone. New here and looking for some support. I have an incredibly strong history of breast cancer in my maternal line - Great grandmothers at least 3 generations back as well as some of their sisters, Grandmother died age 35, Great Aunt DX in her 60s, Mom in 60s, Aunt in 50s, and now my sister has been diagnosed age…
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ADH and low dose Tamoxifen
I’m 65 years old and have had normal mammograms until this year. I had a lumpectomy last month after a biopsy indicated atypical ductal hyperplasia. Because of this and the fact that my mother, her sister, and her aunt all had breast cancer, I am now considered high risk and my oncologist is recommending low dose Tamoxifen…
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Any regrets surgery brca positive
if you removed your ovaries and uterus because of genetic testing do you have any regrets or are you happy? What was your experience. My daughter is having a very difficult time making this decision. She has decided on extra screening for breast cancer but all doctors are urging her to remove ovaries now. Thank you for…
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Are CT scans safe?
Hi, I have the BRCA2 mutation and will need a CT scan of both knees to have Bilateral Knee Replacements. . I am 69 and have not yet been diagnosed with Cancer . Is it safe to have the CT scan of each knee? The MAKO robotic surgery requires a CT scan preop. Otherwise , I could go somewhere else and undergo the ROSA robotic…
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Ovary Removal, MRI Screening for Breast Cancer Saves Lives in Women With BRCA Mutation
Ovary Removal, MRI Screening for Breast Cancer Saves Lives in Women With BRCA Mutation Mar 18, 2024 Women with a BRCA1 or BRCA2 mutation have a higher-than-average risk of breast and ovarian cancer. Two preventive strategies may reduce the risk of death among women with these mutations. Read more…
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PALB2
I’m only 33 and I tested positive for 4 different mutations. One of them was PALB2. My mother and her mother both had and past away from breast cancer. I fell like my dr. Isn’t very concerned about it being positive, but I am. what are some steps other then annual mammograms that I can take to prevent the cancer from…
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6th biopsy since 2021
I had abnormal mammograms starting in 2020 but at first was just checked every 6 months with ultrasound and mammograms. I first had an ultrasound biopsy and then a stereotactic one for a lump in my right breast. They found a radial sclerosing lesion that required an excisional biopsy. For complicated reasons I had to…
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Risk of diagnosis or recurrence after COVID booster(s)
Just a thought… I was watching today a youtube medical channel (Dr. John Campbell) and saw scientists interviewed coming up with evidence that the Covid boosters were extremely dangerous and the statistics of cancers are off the charts because of the spike protein vac. I myself was diagnosed triple negative 5 months after…
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Long-Term Exposure to Fine-Particle Air Pollution Increases Breast Cancer Risk
Long-Term Exposure to Fine-Particle Air Pollution Increases Breast Cancer Risk Oct 30, 2023 Living and working in places with high levels of a specific type of air pollution increases breast cancer risk. Read more…
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34 & recovering from 3rd lumpectomy in 3 years…so over it!
Hi all, I’ve been around the forums since my first BIRADS 4C biopsy back in 2019 right after I turned 30. Came back as a radial scar with ADH and a few other things. Since then, I’ve had 6-month alternating mammo/US and MRIs because I have extremely dense breasts, and I’ve had 2 more biopsies which have both resulted in…
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Origins of Genetic Mutation
If you are a known carrier of BRCA 1/2 pathogenetic mutation, have you tried to research the origin of your mutation? I have IVS5-11T>G / c.213-11T>G Any advice welcome.
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High Risk - MRI?
Dear All, I have posted 1-2 times before here and find this to be wonderful, caring and supportive community. I am high risk. Tyrer - Cuzick is 23.9 % lifetime (without co-morbidities) and 20.3% (with co-morbidities turned on). Mom had BC at 59. I have had mammos at 35, 38, 40, 41, and about to have my next one at age 42.…
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Questions regarding testing
To make it short. My daughter unfortunately had BC dx in her 20's, and passed away years later. My other 2 daughters, now in their early 30's have been doing Mamos/Sono and 6 months later MRI. We were all checked for mutations but they showed all negative. Including my other daughter. Now my daughters are getting anxious…
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Risk in older women with BRCA1
I found out, at age 66, I have the BRCA1 gene mutation. I'm debating about whether to have the prophylactic mastectomy. Anyone else have this experience? Have you been told what your chance of getting cancer at your age is?
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Tyrer--Cuzick Risk calculator
Hello - on the Tyrer-cuzick risk calculator, does a 10 year risk of 7.3% for breast cancer. And a lifetime risk of 11.2% mean a high risk? Thank you
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Breast Ultrasound Screening Advice Missing Many Women Who Would Benefit
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Worried about my daughter with BRCA1
This discussion was created from comments split from: Worrying about future - need to vent.
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New PA Breast Cancer Testing Bill April 2023
A bill to boost early detection of breast cancer earned unanimous, bipartisan support in the PA house this week and is on the way to the governor's desk! Senate Bill 8 would eliminate out-of-pocket costs associated with BRCA-related genetic testing and counseling, as well as supplemental screening such as breast MRI and…
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Bilateral mastectomies for atypical ductal hyperplasia (ALH)?
Hi, I'm new here & recently diagnosed with two radial sclerosing lesions, one of which the biopsy showed contained atypical ducatal hyperplasia (ALH) in the same breast. The other was benign, but I still have to get both of them surgically removed. My breast surgeon ran 'my numbers' through the database and told me my…
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Obesity May Increase Risk Even More for BRCA+
Obesity May Increase Breast Cancer Risk Even More in Women With BRCA Mutations Mar 22, 2023 Obesity may increase breast cancer risk even more in women with a BRCA mutation, who are already a high-risk group. Read more...
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Breast Cancer Risk Remains High for BRCA+ Women After Age 50
Breast Cancer Risk Remains High for Women With BRCA Mutations After Age 50 Mar 2, 2023 Women with BRCA mutations continue to have a higher risk of breast cancer after age 50. Read more...
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Many Women Don't Think Breast Density Is Important Risk Factor
Many Women Don't Think Breast Density Is Important Risk Factor Jan 25, 2023 Few women understand that having dense breasts increases breast cancer risk more than family history or some other risk factors. Read more...