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Important Links about DCIS
For helpful information, check out Breastcancer.org's DCIS section. There is also advice and personal experiences from other community members here on the discussion boards, including: A layperson's guide to DCIS Hope this helps! The Mods
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decisions to be made--DCIS suspicious for microinvasion
Hi everyone, This is my first time posting. I have a DCIS (grade 3 ER+ PR+) diagnosis and am kind of stuck between having a mastectomy or trying cryoablation first. In order to make that decision, I am trying to figure out how to make sense of my likelihood of being upstaged at surgery. One sticking point is microinvasion.…
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DCIS
has anyone refused taking hormones after surgery and radiation with dcis nuclear grade 3
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DCIS Grade 2. Anyone told to skip hormone blockers?
I was diagnosed with a wide span of DCIS, Grade 2. I had a lumpectomy and reconstruction on my right breast and a reduction on my left, clear margins, no invasive detected. My oncologist recommends I do radiation but no hormone therapy. He feels it is not needed and will not change my long-term outcome. I am wondering if…
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Letrozole Side effects-- throaty
Have been taking letrozole for about 4 months after DCIS (w/clear margins), and preventative radiation treatment. Seem to be free of noticeable side effects except it appears to cause a cough and a 'drippy' feeling in the back of my throat. I confirmed this by going off it for 2 weeks, when these symptoms disappeared. Has…
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DCIS stage 0 grade 3 ER + Lumpectomy and Radiation, clean lymph nodes
The Dr. gave me the choice lumpectomy or mastectomy. As she said it was caught early and still inside the duct I picked lumpectomy. Surgery went well, no complications, clean margins, clean lymph nodes etc. Did Radiation and because of the grade AI drugs - Oncologist said 50% chance it will come back. She originally told…
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Returning to exercise
Hi I had DCIS surgery to remove crystallised area about size of stock cube. Am resting and started the physio. I am keen to get back to walking and lower body strengthening. Any advice about when it would be safe to do so. Thanks very much. I am so grateful to be in this group
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Aromasin
Hello Ladies, My Onc ordered Aromasin today after being in Arimidex for several months. My finger joints were swelling and painful, as is my knee and pelvis when I walk. I am still on Zoladex and had a Reclast infusion recently for signs of osteopenia. I’m afraid the Aromasin will be the same, hoping for some advise on…
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2 surgeries later...
Was diagnosed with DCIS in September 2023. Was told it was high chance of spreading but was DCIS so not to worry as caught it early enough just to whip it out. Thats where it all started to go downhill. Went in a week before surgery to have a magseed placed to mark the target, the radiographer seemed to be having some…
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Can DCIS become "cancer" in 5 months?
Thank you very much for this space. I am informed about DCIS, but have a question which I cannot find an answer to anywhere on the internet. After searching for a week, I am now thinking it may not have an answer. Past and current situation My wife, age 46, was diagnosed with stage zero DCIS 12 months ago. She received a…
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Verzenio
Taking verzenio ..having brutal side effects
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DCIS, non invasive, Grade II
Hi all, I am interested in some feedback on treatments that others have had with my diagnosis, and how you're doing? I have been diagnosed with ER+/PR+ noninvasive (Stage 0) Grade II DCIS. I have been given an array of treatment recs, but honestly leaning towards B mastectomy. Any others that have chosen this route? This…
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Lumpectomy Surgery with SCOUT
First time posting and have had months of waiting for diagnosis due to long wait times for scheduling mammograms, ultrasound and finally a biopsy on May 6th. I have DCIS grade 3 and found out today that genetic testing for 70 mutations was negative. I have lumpectomy planned for August 7 and will have SCOUT procedure…
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Arimidex
My oncologist changed my Tamoxifen to Arimidex along work the Zoladex injections. Has anyone had this same regimen? Any thing I should worry about with the Arimidex?
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Ductal Carcinoma and Mastectomy
Hi all I’ve been diagnosed with Ductal Carcinoma. Met with the surgeon yesterday and he would like to do a mastectomy on one side with lymph node removal. The CT scan has shown enlarged lymph nodes but he thinks that could be because there are obvious signs of inflammation on my breast. I feel removing the lymph is a bit…
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diagnosed with DCIS - advice welcome
Hi Everyone, First time posting here. Great forum with lots of information and support, and I’m hoping to garner some after finding out today via a pathology report that I have DCIS. I had a lumpectomy back in 2016 for a papilloma that turned out to be benign, and just this past month, experienced an excruciatingly sharp,…
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Long term side effects of radiation theraphy
for my sister doctor suggested her for 33 sessions of radiation theraphy after mastectomy I just want to long term side effects of radiation and how soon we can go for radiation theraphy after mastectomy kindly share your experience
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Tamoxifen 5mg side effects
Hi I tried this drug by the 6th day I could not function I ended up in the doctors because of the pain in my head and my vision I can't even describe the way my brain felt the depression the muscle cramps The Hot Flashes this isn't worth it to me I will not take any of this poison they say helps because it does so much…
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vaginal estrogen cream and letrozole
i am 60 yo (post menopause) and i had R mastectomy 4 weeks ago due to dcis stage 0 and grade 2. i will start letrozole soon and i had vagina atrophy already and using vaginal estrace a pea size (tiny amount) twice a week and my oncologist is ok for me to continue to use it but i read that estrace will increase the chance…
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Anastrozole for DCIS and colon cancer?
Hello, I am newly diagnosed with DCIS. Stage 0, Grade 2 and hormone positive. I am about to start my radiation journey soon and with the advise of my breast surgeon, see a medical oncologist after radiation to talk about hormone blockers. I am not a candidate for tamoxifen so it would most likely be Anastrozole (or…
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Aromatase Hormone inhibitor “5 year pill” side effects?
Has anyone used these? what were your experiences as far as side effects? cardio-muscular-bone damage?
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Exemestane suspend to get pregnant
Are there any younger women, premenepausal that are taking exemestane with an ovary suppressant, that have halted treatment to try for a baby, then returned to the drug after?
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DCIS newly diagnosed
Hi All, I was diagnosed last week with DCIS grade 3 ER- in my left breast. My breast surgeon and I agreed that a mastectomy was necessary because I have two areas of DCIS across my lower breast. I have to get genetic testing and an MRI next week to see if anything is missed in the right breast and would warrant a DMX. I…
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DCIS Diagnosed Outside Regular Screening Increases Invasive Disease Risk by 400%
DCIS Diagnosed Outside Regular Screening Increases Invasive Disease Risk by 400% Mar 7, 2024 If DCIS is found before regular mammograms start or in between regular screening, it more than quadruples the risk of invasive breast cancer. Read more…
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Anyone Watching & Waiting tiny DCIS?
Curious if there are women whose doctors suggested watching a small piece of dcis instead of lumpectomy? And if so, how long did you wait it out? This is my second bout of dcis, the first, I did have a lumpectomy. No radiation. I was supposed to take Tamox—Didn't, for a variety of reasons. Fast forward a few years, new…
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Discussion on taxol and taxotere
hi All, My sister is undergoing for chemo for DCIS Er and Pr positive, nonow she is on taxol drug but she become so weak and few side effects are effecting her life style so now doctor suggested to take taxetre from next chemo cycle can some one suggest which is better and less side effects and she is 37 years old
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Dcis -mastectomy or Lumpectomy/rad
I am 42 yrs old and was diagnosed with dcis grade 2 in my right breast in April. I had a follow up breast mri which showed other suspicious areas that should biopsied with mri. I have the mri biopsy scheduled but I feel like skipping it and just having a mastectomy instead. My MD adviced of the research regarding outcomes…
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DCIS
I had a biopsy for calcification that turn out to be Atypical ductal hyperplasia, they advised excision. I had lumpectomy in my left breast. Yesterday I saw the surgeon and the result was DCIS with one clear margin 3 mm and another margin 0.5 mm. They may do re excision and or radiotherapy. I am scared of whole thing…
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Update on my sister - endocrine therapy alone seems to have cured her DCIS
My sister was diagnosed with DCIS, grade 2, 100% ER+ about a year and a half ago. They originally recommended a mastectomy, which my sister was strongly opposed to doing. She connected with some women online who chose no treatment for DCIS except for endocrine therapy and decided to give it a try. As an IDC survivor, I…
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DCIS diagnosis
Hello, I went for right breast stereotactic biopsy on 1/30, and received DCIS grade 3 pos er/pgr diagnosis on 2/1. While dealing with this I still have 3 biopsies scheduled for Wednesday 2/7 (they couldn’t do them all in one day), two in the right and one in left. Does this mean they will come back bad too??? I can’t…
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Shrinkage of lump with IDC
my mother 92 had a IDC recurence after 12 years , they won’t operate this time , she started hormone therapy 3 months ago, and her tumor shrank . I have 3 question is : -Doe’s it mean the cancer can no longer spread ? Also ,she gave us the measurements her doctor gave her by phone , but since she has Alzheimer not sure she…