Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC.
Join our Zoom Meetups for MBC!
Anyone with MBC, register here:
Younger With MBC, register here:
Great tips, practical advice and support on the following discussion board threads:
Threads by mets location/type of diagnosis
- Brain Mets Sisters
- Bone Mets Thread
- Mets to Lung Thread
- How are people with Liver Mets doing?
- Liver mets: resection, ablation, SBRT, Y-90, anything else?
- Skin Mets Thread
- Lobular Sucks!
- Stage IV Oligometastatic
- Stage IV De Novo thread
- Triple Negative Stage IV thread
- Stage IV NED Crew
Threads based on medications
- All About Xeloda
- Ibrance (Palbociclib)
- Ribociclib/Kisqali with Letrozole - Any one on this combo?
- Faslodex Girls
- Elacestrant (Orserdu)
- Abemaciclib Verzenio
- Gemzar
- All about Doxil
- Weekly Taxol for Stage IV
- Enhertu Thread
- Piqray Users
- Halaven Thread
- Afinitor/Aromasin Thread
- Truqap Thread
- Lynparza/Olaparib anyone? thread
- Abraxane for Stage IV thread
Threads based on types of treatment
Threads based on population
Conversational threads by topic
- Stage V MBC Fitness
- Life does not end with a stage IV diagnosis (really!)
- Tips for fighting back the dark clouds
- Tips for Newbies Just Diagnosed with MBC
- MBC and Your Job
Other resources
- Powerful MBC Video by Holley Rothell Kitchen
- Request your FREE MBC Guide
- EMBRACE MBC free forum series
Also, these links from the main Breastcancer.org site might be helpful:
- Metastatic Breast Cancer section, including info on planning your treatment, living with metastatic disease, getting support and much, much more.
- Expanded Access and Right to Try: Alternative Paths to Experimental Treatments for Metastatic Breast Cancer
- Living With Metastatic Breast Cancer
- Podcast: The Losses We Feel After a Metastatic Breast Cancer Diagnosis
- Podcast: Talking to Children About Metastatic Breast Cancer
- Podcast: Living With Metastatic Breast Cancer
- Podcast: Managing the Emotions of Metastatic Breast Cancer
- Podcast: Marie Arsenault, Metastatic Patient, Talks About the Need for a Cure, Not Awareness
- Sexuality and MBC
- FDA Expands Use of Faslodex for Breast Cancer
- MBC: 20 Terms You Should Know
- Breaking Research News about Metastatic Breast Cancer
And check out the Metastatic Breast Cancer Trial Search: Metastatic Trial Search
- Doxil (doxorubicin)
- Enhertu (fam-trastuzumab-deruxtecan-nxki)
- Faslodex (fulvestrant)
- Gemzar (gemcitabine)
- Ibrance (palbociclib)
- Kisqali (ribociclib)
- Lynparza (olaparib)
- Orserdu (elacestrant)
- Piqray (alpelisib)
- Taxol (paclitaxel)
- Verzenio (abemaciclib)
- Xeloda (capecitabine)
- Metastatic Breast Cancer (MBC or Stage IV)
- Bone metastasis
- Brain metastasis
- Liver metastasis
- Other metastasis
- Skin metastasis
- Truqap (capivasertib)
Comments
-
bump
0 -
Im new to this forum so im not sure im in the right place. Here is a bit about my journey. 2019 rx with bc in the left breast, chemo with doxi for 5months, then masectomy. 11 months later 2021, a reoccurance happened, same area, more surgery. I was put on a chemo drug afterwards that made me swell up like a balloon so that stopped and i was put on the chemo pill for a year. 4 months later 2023 my dr ordered a PET CT scan and found a lesion in my left lung. Biopsy done and rx with metatastic bc in the left lung. Ive had 6 rounds of Halaven and he stopped the treatment and decided targeted radiation instead. Lesion is 1.7mm, only 1. Radiation starts Monday. This is so new to me. I didnt even know what metatastic bc was for a few weeks after i was rx. Btw, my cancer is triple negative. Does anyone here have any idea what is next for me or my survival timeline?
0 -
Dear @Grandma05+1 - We are truly sorry for your recent diagnosis and wanted to warmly welcome you to our community. We hope you find this to be a supportive place!
It is fine that you've posted here, but we would suggest you start your own new conversation introducing yourself and sharing your story, treatment, and questions in this same category (Stage IV/Metastatic Breast Cancer ONLY) or jump in directly into the Mets to Lung Thread to meet others with a similar diagnosis.
Also, you might want to check out this thread: Helpful links about Triple-Negative Breast Cancer
And, in case you didn't know, we hold free weekly virtual meet-ups with other BCO members where you can ask questions and share experiences. Our metastatic groups meet on Mondays, Tuesdays, and Wednesdays. In case you might be interested, here is our webpage, where you can register for them:
Monday meetup registration
Tuesday meetup registration
Wednesday meetup registration
Hope this helps! Stay connected and keep us posted, as we're sure you'll find plenty of support and understanding here.Sincerely,
The Mods
0
