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Lets do a Sh*t People say to Metastatic BC Patients
Give me your best lines!! I want to make a fun video.
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Skin mets
Hi all! I posted this on the Her2 thread but haven't got any responses yet, so I'll try it here. I just got diagnosed with skin mets. Woohoo! I'm Finding out its pretty uncommon. Tumor markers a few months ago were fine, as was all other blood work. Talked with MO about getting very close to that 5 year, take a breath,…
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A Sweet and Precious Time
I just wanted you to know that your tender messages have lifted my heart! I never anticipated such an outpouring of love from people across the world. To realize that numerous lives have been touched by my work brings me inexpressible joy. Thank you so very much for taking the time to reach out, as each and every note is…
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Is there anyone here on Margenza?
I have a friend who is about to start Margenza with the chemo Gemcitabine. She would like to know what she might expect with side effects and how this has worked for you. This is for mets to the liver. Thanks
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Morphine, Bone Pain, and Bone Loss in Metastatic Breast Cancer
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Stage IV MBC Fitness
Hello! Welcome! We are done with Stage IV, moving on and planning to staying healthy for a long time. We're Stage V (Which is not dead. We're doing fine, ready to live with this beast.) This is the American Cancer Society/NCI consensus on exercise for cancer patients. * 150 minutes/week moderate-intense aerobic exercise or…
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New kid on the block
Hi everyone. I just found out yesterday that breast cancer has returned after being on AI for 5 yrs and has metastasized to my liver. New treatment plan is Ribociclib and Fulvestrant. ☹️
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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Bone Mets active again after 12 years
Hi all! Second treatment has now failed after 6 years (first lasted 6 years also) Ibrance/Faslodex/Zometa has done me right for quite awhile. Time to move on to the next option. Sad/scared/pissed/all of the rest of the emotions. Still planning on kicking it’s butt, but hate to have to restart.
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Travera
I may be overly optimistic, but I feel like I cannot share info about Travera enough. Travera testing can help to predict which cancer drugs are likely or unlikely to work for you. HOW AMAZING IS THIS? You might not have to go through the side effects, waiting, anxiety, etc. to wonder if a particular drug is going to work…
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How About A Stage 4 Gallows Humor Thread?
There used to be a gallows humor thread many years ago on this web site. I can't find it. There are many times I still rely on gallows humor in order to cope with my situation. I think my family appreciates it too. I have forgotten so many good zingers during all this time, but I'll start with some tee shirts I bought over…
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How long with Ibrance?
Hello, I was diagnosed with MBC ER+/HER2- (several metas on bones, nodes, lung and liver!) in December 2019 (at 40 years old) and received Ibrance + Anastrazole + Zoladex+ Xgeva + Orocal as treatment since the diagnosis. It seems to work very well because only the meta on left bone shoulder is still active (at Pet Scan). I…
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New to Piqray
I just started Piqray, 300 mg, 14 days ago. I am a type 2 diabetic. I have been able to manage my blood glucose without insulin. However, this piqray has done a number on my blood glucose. My endocrinologist started me on insulin, and started me at bedtime and before each meal. I go back to the endocrinologist and my…
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Male Breast cancer
I have just joined this group, I have recently been dignosed with Metastatic Breast cancer, I am a male, do we have any Males in this group
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Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor
Those with HR+, HER2- MBC may find this interesting! The Phase 3 SONIA study of 1,050 patients with HR+, HER2- MBC evaluated progression free survival (PFS) and overall survival (OS) from the initiation of first line treatment through failure of second line treatment. It compared two groups of patients. One group took the…
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Under 45 with MBC Zoom Meetup: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Please remember to favorite/bookmark this thread for notifications of new posts If you haven't joined the group yet and just found this thread, feel free to join our virtual meet-up! Young (45 and under) with metastatic…
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Hylecta
Is anyone receiving Hylecta only? I was dx October 2011 with MBC. Was on Herceptin and Perjeta until August 2015. Then Herceptin only until 2019 when we switched to Hylecta. Hylecta was easy breezy. Until 2022 when we found some pesky small lung mets. Wondering if Hylecta was not a wise choice for someone with MBC. Thank…
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Trodelvy Now Approved for Hormone Receptor-Positive MBC
Trodelvy Approved for Metastatic, Hormone Receptor-Positive Breast Cancer Feb 3, 2023 Trodelvy is now approved to treat metastatic, hormone receptor-positive breast cancer, rather than only triple-negative disease. Read more...
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ESR1 mutation treatment options and new SERD/SERM research
Hello everyone, I was asked to start a thread about the ESR1 mutation that many ER+ survivors find in their genomic testing. I have the specific mutation of ESR1-Y537S. Which can make me not respond as well to AIs and even Faslodex shots according to my reading. This resistance to estrogen blocking therapies is something I…
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No one cares about this
I've become increasingly aware of the myths surrounding breast cancer, perpetuated by the media, and fed to the media usually by women that are only about 6-12 months out of treatment, declaring that they are 'cancer free'. We know that breast cancer is not this simple and easy - you can never know if you are cancer free -…
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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New to The Group/Help
Hello everyone. I'm not sure if I posted here on this profile as I was locked out for while. After over 11 years of NED, I now have met to the bones, and ?????? Not sure where else yet. The pain began several months ago in a rib on my right side. X rayed, nothing. Pain went away. About a week after that pain subsided, I…
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Kisqali/ribociclib, Faslodex/fluvestrant & Xgeva combo - Anyone?
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
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Stage 4. Feeling ready to throw in the towel
hi everyone, Im feeling very defeated. I have been through several of the pill options and have started iv chemo (navelbine). I have been on iv chemo for 3 cycles and my tumor marker continues to climb. Now at 1210. Im so sick and tired of the fatigue, the headaches, the nausea, the anxiety etc etc etc. Im thinking of just…
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NEW TO STAGE IV……WHAT ABOUT THESE TREATMENT DRUGS?
BONE METS AFTER 13 YEARS NED SUDDENLY IN TREATMENT AGAIN So in January 2023 My Oncologist sent me for scans following a high CANCER ANTIGEN 27.29 blood test, which I’ve gotten every 6 months with followups with him. Since 2009 until recently my CA 27.29 blood test was always Low ranging from 22 to 26, 27. It’s been like…
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Headed to high school reunion
In a few weeks I will be attending my 50th high school reunion. Haven't been to one since 10th. The class was large , but I have a small group of BFFs . My hair has grown back from chemo, but it's still very short and curly /frizzy, instead of straight. It's also totally silver where before the last round of chemo it still…
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Hello Im new here.
Hi my name is Pam. Good morning. I'm just looking for support and advise or knowledge concerning my treatment. I was diagnosed in May of 2021 with metastatic breast cancer. I had breast cancer in2014 and had a right mastectomy and 12 rounds of chemo 5 years of anastrozole. Then this diagnosis. My oncologist started me on…
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Triple Negative Bone Mets, and ???
Hello everyone, I posted not long ago when it was discovered after 12 years of NED of have mets in the bones. I'm having a really hard time navigating this new forum, so I apologize in advance if I'm not posting in the right place. Never had issues "before." I'm sure I'll figure it out eventually lol. So of course I don't…
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peritoneal carcinomatosis
I am looking for others who have peritoneal carcinomatosis who would like to share their stories and treatments.
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De Novo newbie trying to not panic
Hi all. In Feb of this year I was diagnosed with IDC, hr +(over 95%) HER2 -. Large multifocal tumor in my right breast and one lymph biopsied positive as well. The tumor and lymph node were concerning enough to the surgeon I was sent to first that she ordered a pet CT which lit up in my breast, that one lymph node, and a…