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Rectal issues
Well if you've opened this thread you either have them too, have nothing better to do, or maybe you're just curious. Amidst all the sadness on here lately and the sisters with serious issues i am hesitant to post this comparatively trivial complaint. But being as I am in bed on my iPad with a painful hemmoroid I have…
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Ischmetic stroke
Hi, I am on Palbociclib 125mg and Exemestane since last 5 years. I have mets in the bones which are under control. I also have X-Geva once in three months and have monthly shots of goserilin. I recently had Ischmetic stroke. All the cardiac diagnosis like echo, Holter test was ok. Also brain and neck angiography is also…
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Recent diagnosis
TNBC stage 4 Ductal metastatic 6.9 cm tumor in right armpit breast tissue, 3 cm on right breast, clavicle, possibly groin left side. Palliative taxol chemo & immunotherapy since the large one in my armpit is protruding out & would grow outside of my skin. 6 mo-1.5 yrs is what they gave me. Diagnosed 6/2024. Just finished…
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Not responding to Verzenio after some months: anyone switch to Kisquali? Help please
Hi all My tumor markers dropped for the first few months on Verzenio/Fulvestrant, and now are climbing again. Scans didn't show progress last month but I'm terrified. Did anyone have better response switching to Kisquali and if so, what was it and how were the side effects compared to Verzenio? Verzenio and I are getting…
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Has Anyone Had TEMPUS Blood Testing Done?
I’ve been stable on Xeloda since 2020. Recent ct/bone scans show a couple enlarged paratracheal (neck area) lymph nodes (everything else appears stable). Today I had a PET scan ordered by my onc to further investigate what might be going on. When I was at the onc last week, I also had blood drawn for TEMPUS xF testing. Has…
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Liver mets: resection, ablation, SBRT, Y-90, anything else?
I'm interested in who has had local treatment for liver mets and what was your experience and outcome. I've been talking about this with my onc, and he seems a little hesitant. I have my regular appt. for a 2-mth MRI of brain and followup with rad onc. I plan to ask him about the possibilities. I think that some of the…
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Our treatment histories
Hello, So far, I've been a silent member only, so this is my first post. I have been following many discussions regularly, and found this forum an incredibly helpful and encouraging place. I was wondering if we could have a thread to collect our treatment histories? Which drugs we've been on, how long we've been on each,…
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Tamoxifen and breast tenderness
I finished chemo (12 cycles) May 30th. IDC, Mets to liver, ER and HER2 positive. Still on herceptin and perjeta. I’ve been on tamoxifen for 3 weeks and I’ve had breast tenderness since I started. It comes and goes. Anyone else?
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Vegetarian Diet Offers Physical, Mental Benefits for Women With Metastatic Breast Cancer
Vegetarian Diet Offers Physical, Mental Benefits for Women With Metastatic Breast Cancer Jul 24, 2024 If you have metastatic breast cancer, a whole-food, plant-based diet may help you think and feel better. Read more…
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Which Type of Radiation Is Best for Painful Spots of Cancer in Spine?
Which Type of Radiation Is Best for Painful Spots of Cancer in Spine? Jul 11, 2024 Stereotactic body radiation seems best for easing pain caused by spots of metastatic cancer in the spine. Read more…
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Exercise Boosts Sexual Health in Women With Metastatic Breast Cancer
Exercise Boosts Sexual Health in Women With Metastatic Breast Cancer Jul 9, 2024 If you have metastatic disease and want better sex, exercise can help. Read more…
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Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu seems better than chemotherapy for metastatic breast cancers with even the lowest detectable levels of HER2. Read more…
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Brain Mets Sisters
Starting this for a friend. Edited to explain that the friend was imbell who was feeling overwhelmed by wbr. She helped us all by starting this. Shes in peace now. See you in the clouds, imbell.
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Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)
I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?
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Progression question
I have severe scanxiety right now…had scans yesterday (nuclear bone and CT). Previous insurance wouldn't pay for a PET, but since I have changed insurances recently I am going to pursue that again for the next scan. I'm told by my MO that I will have to have scans every three months. My fear, of course, is that these scans…
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Truqap experience
stage 4 Mets to lung, liver, bones and lymph On the sixth week of truqap, handling it pretty well. Some diarrhea that is unpredictable so I always have Imodium on hand. Sometimes I get nauseous and my taste is off. My concern is for the blood sugar levels. Trying to keep my diet during the four days which is no sugars but…
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Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu offers better survival than chemotherapy for pre-treated, metastatic, HER2-low or -ultralow breast cancer. Read more…
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Faslodex
Just wondering if anyone has experienced this. I have been on faslodex (and Ibrance) for 3 and a half years. I am so fortunate that his combo is still working and don't want to change it. I have always had a couple of side effect days after shots but bearable. Though recently my side effects seem worse. Anyone experience…
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Trodelvy Now Approved for Hormone Receptor-Positive MBC
Trodelvy Approved for Metastatic, Hormone Receptor-Positive Breast Cancer Feb 3, 2023 Trodelvy is now approved to treat metastatic, hormone receptor-positive breast cancer, rather than only triple-negative disease. Read more...
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Triple Negative Stage IV
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)
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Thread for Stage IV Oligometastatic Folks
Hi, Wanted to start a separate thread for stage 4 oligometastatic folks. I was diagnosed in January and my metastatic disease consists of lymph nodes -axillary, mammary, supraclavicular, and cervical (extending into my neck - that's the one that made me stage 4). After 3 months on Ibrance/Letrozole, many of the lymph nodes…
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Fracture in pelvis
I have Stage IV MBC with bone Mets to my pelvis. I have been suffering with R leg, hip, inner thigh, and abdominal pain for 3 months. Nothing showed on MRI or x-ray in Feb. I had a CT yesterday and it shows a incompletely healed R pubic Fx. I’m waiting for an appt with Ortho. Anyone out there have any advice. Rhonda
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right pubic parasymphyseal fracture
I have Stage IV MBC with bone Mets to my pelvis. I have been suffering with R leg, hip, inner thigh, and abdominal pain for 3 months. Nothing showed on MRI or x-ray in Feb. I had a CT yesterday and it shows a incompletely healed R pubic Fx. I’m waiting for an appt with Ortho. Anyone out there have any advice. Rhonda
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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…
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MBC and working
Hello sisters I’m new here and just diagnosed stageIV. Has anyone with this stage and still working?? I am a RN and single mother and I have to take care of my 11 years old daughter😭😭
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Tumor Marker Increases Within Normal Range
Has anyone had experience with tumor markers increasing within the normal range? Since completing chemo/rads/mx after stage IV diagnosis (one unconfirmed met to the sacrum) I had been staying in the 13-14 range on the CA 15-3. I just had it increase to 19.6. I know that's a "normal" range, but it is still concerning to me.…
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And now for something unusual and a bit scary
Other than living with stage IV for 12 years, my bc life is something I keep low key, even on bco. However after 12 years on an AI (I’ve tried them all) the cumulative side effects have worn me down.None of my se’s were truly debilitating and I managed to cope but I have been struggling with chronic low level pain that…
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I’m losing hope….
I just found out what I thought was stage 2/3 idc breast cancer with 1 positive node, has spread to my liver and I am now stage 4 de novo. I am only 39 years old. I have 4 young kids. There’s at least 6 spots in my liver. I haven’t even gotten a chance to start treatment and now I have no chance of fighting this???!?!…
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Big Lump on Butt from Faslodex Shot
Has anyone had a big lump from the shot. It has been several weeks since I have had the shot. There is a big Lump and it looks brusied.
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Verzenio/Letrozole to Xeloda?
Curious whether anyone else has had Xeloda as second line monotherapy after the Verzenio/Letrozole combo? 18 months on that but suddenly many more bone mets/lesions grown bigger so switch has been recommended by onc.