Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: <a href="https://breastcancer.vanillacommunities.com/en/categories/caring-for-someone-with-stage-iv-or-mets"><em>Caring for Someone with Stage IV or Mets</em></a>.
Hi All, Been lurking on the stage 4 forum for some time. Now I need help. I live in the UK and attend UCLH where treatment seems to adopt a more cautious approach. Originally on Breast 09 trial but randomised and receive standard of care😢 6 rounds Doxetaxel and H & P. Over 2 years later and progression to Brain Mets. Upper…
After 10 months of bisphosonates I have been been diagnosed with ONJ. 3 weeks of mega antibiotics, everything else except letrozole stopped until this is resolved. A bottle of liquid morphine to add to my collection. (Resisting because it feels too ‘cancery’, if you get my drift.) And more ‘activity’ detected in my bones…
I just have to ask. If you had liver mets at diagnosis of mbc, and you are ER positive and Her2 negative, and have reached five years already, please raise your hand. Most of the 5+ years women I see here on BCO are either Her2+ (the Her2 drugs are quite successful), or they started with, and may still have, only bone…
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)
I have been stage iv since 2017 and you would think at some point scans would be no big deal. They aren’t and I’m not there. My doc was comfy with waiting another 6 months and just scan once a year. I decided that I wanted it. I wanted to go into fall and the holiday season knowing my cancer is under control. I feel like…
Jul 25, 2025 Triage Cancer CEO Joanna Doran answers questions on how people with metastatic disease can best navigate health insurance and disability issues. This podcast is the audio from a special Virtual Support Group meetup featuring guest moderator Joanna Doran. Listen to the podcast to hear Joanna and Community…
Jul 11, 2025 Therapist Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on managing the emotions you feel after being diagnosed with metastatic breast cancer at a young age. This podcast is the audio from a special Virtual Support Group featuring guest moderator Kelly Grosklags. Listen to…
hey everyone. my first post. I am 18 months into treatment with stage 4 in bones. Ive had a couple late starts on treatment due to neutropenia and a gross gastric event shall we call it. anyone else really tired sometimes on this stuff?? I’m lucky fortunate to have stability on this stuff and very grateful for that but it…
I want to mention that my Pet Scan today shows NEAD and am on my 48th Cycle of Pablo+Fulvestrant.. also my 21st year of initial diagnosis and 4th year if mets. So my message is hang in there, medical science has brought a lot of hope .
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
It looks like you're new here. Sign in or register to get started.