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ILC (Lobular) “Unusual” Mets Sites
I have compiled a list of BCO threads, journal articles, and other resources that I hope may help those with "weird ILC mets" to find information. BCO members, please add any resources you have found about weird ILC mets. ILC sometimes spreads to "the gastrointestinal tract, genitourinary tract, peritoneum,…
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Pregnant while metastatic?
Hello. This is probably not a common topic but I wasn't sure where else to vent/ask. Has anyone gotten pregnant while on MBC treatment? I recently took a home preg test not expecting anything, but it's showing an extremely faint positive so I'm panicking & going to see my ob-gyn to check it out. I've only met one lady with…
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Xeloda and drinking some cocktails during a vacation
My MBC friends on Zoom have convinced me to travel while I am feeling great! We will be enjoying a cruise during which I will be on my second week of Xeloda. I want to have a few cocktails during the vacation the week I am on Xeloda and the following week I am off Xeloda. I don't usually have side effects from Xeloda…
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Mets to lymph node in portahepatic area
Hello…In 2013 I was diagnosed with breast cancer ILC stage 2B with 3 lymph nodes involved. I did ATC 8 rounds and 5 years of AI. No radiation Yesterday I received the biopsy news that a lymph node in the portahepatic area (near the liver) is malignant. I had no symptoms but this was found from a CT scan back in April from…
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Everolimus before capecitabine?
It seems Verzenios (abemaciclib) and fulvestrant has stopped working for me and my consultant has offered Capecitabine as the next treatment option. I haven't had chemotherapy before so this scares me a bit especially when I read the side effects! I haven't had everolimus and exemestane so was wondering if anyone has tried…
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FML - ready to throw in the towel
I feel burned out by the bi-weekly infusions, fatigue and stress from this fucking disease. I get anxiety and cry at every needle prod. Being on medically induced menopause changed my personality. I am so depressed that I can no longer be reliable to go to my appointments on time. I am losing the desire to work out. Last…
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Mentally tired
I totally get this f’ing diagnosis comes with all sorts of side effects. I can deal with the physical ones (what’s another pill or two? 🙄), but how do you deal with the mental aspect of it? The stress of stage iv is no joke. Looking to see if anyone finds relief from something I haven’t tried yet. The last couple of weeks…
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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…
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Oligiometastatic Definition
I am having difficulty finding the actual definition of Oligiometastatic. Can lymph nodes be involved? I was stage 4 Her2 positive with 2 spots in my liver and some chest node involvement. My understanding is it meets the criteria if it is 1-5 organs so, any further clarification would be much appreciated. Thank you to my…
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ER-, PR-, Her2+ Stage IV
Anyone else out there
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Bilateral Cataracts & P. Vitreal Separation
hi: Do you think mysituation Med related or metastatic cancer progression? I have stage 4 Mets x5 years on I/F therapy & Bilateral "RAPIDLY ADVANCING" Cataracts & posterior Vitreal separation (<1 mo. Apart) Rapidly advanced cataracts from grade 2-9 in ~ 6 mos. while taking Ibrance/Femara (I/F) combo for past 5 years with…
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Need Encouragement
This is my first time posting on here but wanted some encouragement. ❤️ I was diagnosed in Jan. 2022 with stage 4 her2 positive to liver. I recently have completed my chemo THP and my scans are all clear other than 2 small spots still decreasing in my liver.( which my dr. believes is scar tissue) My breast mass was quite…
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Weekly Taxol for Stage 4
I was wondering if there were any other Stage 4s doing weekly taxol. I know there is a group in the chemo forum, but most of them are doing for the 12 week cycle as part of primary treatment. According to my onc, I'll be doing weekly taxol until something changes, if you know what I mean . . . . Jennifer Edited 5/11/14: I…
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Am I the only one with super high tumor markers?
Hello. At the start of treatment in 2021, my tumor markers were in the 300 range. After each treatment failed. ( Ibrance then Piqray) my markers rose even higher. I just started Verzenio due to progression on Piqray. My Ca15-3 is 4900 and my Ca 27-19 is at 3576. I’d be more specific about treatments, but I am just too…
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Hysterectomy revealed additional mets in ovaries
Long time lurker here - can't tell you guys how much I appreciate following along on this journey. Bone mets were found in 2021, so I was on Verzino until I could no longer tolerate it, and then Ibrance since January 2022. I went in last week for a hysterectomy in order to stop taking the awful shots in my stomach to…
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15 years since diagnosis (de novo, oligometastatic)!
Sharing some news here. I responded to treatment with a complete remission and have been NED since 2008 although there is a spot they are monitoring on my left lung as first seen on my last scan (October 2021). I am still off the cancer meds and the spot hasn't grown so I'll continue to call myself NED. Of course, stable…
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12 years mbc
on July 19, I celebrated making it to 12 years. I was diagnosed with 2 liver mets, er-, her2+. I have been Ned for over 11 years and off all meds for over 7 years. When I was first diagnosed in 2010, I remembered reading that 2-3 % of stage 4 patients are “ cured” - ie- they get to Ned and remain there the rest of their…
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AIs being used by bodybuilders...
I was scanning the net reading about side effects on Aromisin and came across a whole lot of info on AIs being used by bodybuilders especially just prior to comepetition. It robs their body of estrogen so they can build mass. I found it ironic that for the last two years I have been working out so hard 4 times a week and…
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Lupron shot vs. oophorectomy
Hi all, I've been getting a Lupron shot every four weeks to suppress ovarian function so that I can be on Ibrance and Letrozole. Isn't medically induced menopause so much fun?? My MO said that it was my choice whether I wanted to continue to get this shot every four weeks forever, or to have my ovaries removed. I'm not…
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Info Sought: Exceptional responders and Outliers
As some may know, I am an individual member of the Metastatic Breast Cancer Alliance (MBCA) and have elected to be part of their Research Subcommittee. I've offered to look into a fascinating subject that I believe has been under-studied: namely, Exceptional Responders and Outliers. For purposes of this study: Exceptional…
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FDA Approves Enhertu for Unresectable or Metastatic HER2-Low BC
FDA Approves Enhertu for Unresectable or Metastatic HER2-Low Breast Cancer Aug 5, 2022 On Aug. 5, 2022, the U.S. Food and Drug Administration approved Enhertu to treat unresectable or metastatic HER2-low breast cancer. Read more...
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Olivia Newton John passes away at 73 (thread open to all)
I am not into the world of celebrity but I do notice when bc is the cause. May she Rest In Peace . https://www.nytimes.com/2022/08/08/arts/olivia-newton-john-dead.html
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Navigating Navelbine
I am starting this thread for the discussion of all things Navelbine. It's for those currently on it, those who have been on it, or will start it soon. I hope it will be a source of information, a guide to help with side effects, and a place to rant, vent, cry, scream, or cheer! I had my first treatment this morning. It…
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Wanted: Veteran Members of the Fanny Pack to Share Experiences
All, I'm eager to discuss the side effects of long-term IM injections with others who have been on Fulvestrant/Faslodex treatment for many years. Do you have increasing pain, discomfort and mobility issues? Have you suspected the cause to be repeated injections themselves rather than inept administration? Have you changed…
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Mets to lungs with pleural effusion.
Hi, I'm still here but haven't been on in awhile due to life situations. My lung Mets disappeared from PET/CT scans for 3 years but now 3 are back with one doubling in last 9 months to 2.1cm along with new pleural effusion. Scan says it's small and Onc feels like PE is caused by inflammation from large node that is leaking…
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Where are you now?
I'm MBC, but diagnosis is all screwed up. 😠 Where has everyone gone? I mean this...have you found another community forum to get info from others in same diagnosis/treatment. There is nothing much here anymore except complaints or funnies, lost the good advice and experiences.
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Male with MBC
I would like to introduce myself to this forum. I am a 67-year-old male was diagnosed with metastatic breast cancer in early 2020. oh I am being treated with tamoxifen and Ibrance I had two courses of radiation in 2020 on my spine. My cancer is under control at this point
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Abraxane
I was wondering about your experience on Abraxane I might be starting in a week or two and would love to hear any feedback. Please hugs to all.
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Bone mets diagnosed while pregnant
Hello all, I was diagnosed with BC in 2016, at 34. I am 40 now and 3,5 months pregnant with my first child. I ve had a severe back pain and also my CA 15-3 was slightly elevated. MRI of thoraic spine found a lesion in my sternum. This is all I know for now. I also know that if I want to stay pregnant, I can not have the…
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Mets lymph node., lung cancer, scan-nodal uptake.
Feb. 2022 Mets to a lymph node located one inch above my right breast mastectomy site in the chest wall. Treating with tamoxifen only. Dx'd with stage 1 lung cancer 4/2021. Treated with 5 SBRT radiations. 6/13/22 My recent pet scan there are multiple new sites of nodal uptake and increasing hypermetabolism in the left lung…