Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: <a href="https://breastcancer.vanillacommunities.com/en/categories/caring-for-someone-with-stage-iv-or-mets"><em>Caring for Someone with Stage IV or Mets</em></a>.
I’m so frustrated… my onc defers to the onc pharmacist, who reviewed my list of supplements that I’d like to take. Most were discouraged because of interference with the meds (anastrazole and Verzenio). I’ve been continuing to try and research - mostly finding conflicting info. Since verzenio can cause your white blood…
I have been reading studies about how diet affects breast cancer growth and have been bouncing between them in my head and daily life. Some studies, such as keto diet, seem to contradict each other, with fierce advocates on all sides.I thought it might be helpful for us to share the type of diet (not for weight loss, but…
I have been recently diagnosed with Stage IV metastatic breast cancer after a year being stage II. I started Kisqali last week and was told I would only have hair thinning. I am loosing chunks of hair. Would love to hear if anyone has experienced this? My oncologist told me none of her patients had to get wigs and only had…
anyone have a PIK3CA E110del mutation? I do. it's rare, like 1 in 4000 Pik3ca mutation is E110del. it kept me out of a clinical trial because I didn't have one of the top 10 mutations. arghghgh. we're going to try Piqray anyways. arghagrhgargharghghhgh. Same thing happened with my ESR1 mutation as well. I guess I'm…
Second bout with breast cancer: I am a 61 Year Old woman diagnosed February 2025 Her 2 Positive 8 cm x 6 cm (large) breast tumor with metastatic skin cancer on ribs (considered stage 4) being treated with Letrozole and Vernizio I was first diagnosed in 2021 with a similar tumor but no metastases at that time. I received…
good morning wondering how many people lost there hair on enhertu ?
Hello Everyone. I am wondering what people who are on Xeloda do when they develop mouth sores? I have been on it for months, but only recently have I started to have trouble with mouth sores. I thought I had burned my mouth on something hot but couldn't recall any incident. The back of my gums and the top of my mouth are…
The Research METAvivor Funds METAvivor President Dr. Kelly Shanahan discusses the research the organization supports. May 16, 2025 By 2030, researchers estimate that about 246,000 people will be living with metastatic breast cancer. METAvivor is the first organization dedicated to raising awareness of, and funding research…
Testing for ESR1 Mutations, Then Switching to Camizestrant Improves Outcomes for Metastatic HR+ HER2- Breast Cancer May 31, 2025 After two years of follow-up, the new treatment improved survival and quality of life. Read more…
New Hormonal Therapy Vepdegestrant Promising for Some Metastatic HR+ Breast Cancers May 30, 2025 The new medicine offered more benefits than Faslodex. Read more…
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