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Kisqali side effects
Hello.. I am on week 3 of the first cycle of Kisqali. I have had the dosage lowered to 400 due to gastrointestinal side effects. The stomach cramps are terrible. I have tried dycyclamine, mylanta, gas x, pepto, and other over the counter and nothing helps. I also use a low setting heating pad which does help. I do have…
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Telling people the news
I am inclined right now not to tell anyone much. My immediate family knows; my boss knows, and HR knows since I'm using sick time to supplement my contract hours to allow me to got 1/4 time this semester(I teach at a University). I haven't told many beyond that, since I don't have any outward symptoms (though I've lost…
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Monday MBC Zoom thread place to keep chatting
This is a space held for our Monday MBC Zoom Meetup members to catch up in between meetups. To join the weekly virtual support group, Mondays at 2pm ET, please register here.
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Anyone 5+ years with liver mets and ER+ Her2-?
I just have to ask. If you had liver mets at diagnosis of mbc, and you are ER positive and Her2 negative, and have reached five years already, please raise your hand. Most of the 5+ years women I see here on BCO are either Her2+ (the Her2 drugs are quite successful), or they started with, and may still have, only bone…
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Off Topic - Sometimes Life’s Not Fair
My oldest brother’s oldest son (my oldest nephew), passed away today. In his 50s, he was diagnosed out of the blue with stage iv melanoma in October. He’d started chemotherapy/immunotherapy but it was too late. It’s devastating news to our extended family. It all happened so fast; it’s like getting hit with a wrecking ball…
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Treatment/biopsy question - liver mets
Have the answer I need - thank you!
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How long on a CDK 4/6 inhibitor (Ibrance/verzenio/Kisqali)?
I’m sure this info is buried deep in the various stage iv threads, but I’m hoping people will post their experiences and success stories here. I think the median from the initial studies was about 2 years, but obviously there is more real world experience as time passes. Thank you!
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Mothers with school aged children
I know this diagnosis stinks, no matter age or what phase of life you are in. I was hoping we could start a thread for mothers of school aged children. Edited to say: and younger...forgot to include my 3 yr old!
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Metastatic Triple Negative
Hello I am new here, diagnosed Jan 2023, chemo, surgery radiation. CT Scan October 2023, 3 months after completion of chemo showing a liver met (confirmed with liver biopsy) getting PET scan tomorrow. Looking to connect with other mTNB.
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Biopsy back, begin medication tomorrow
Hi all, I found out it is a return of ILC-ER+, and it looks like a spot got into my bladder as well as peritoneum and lung, hence my urinary tract issues I've been dealing with since April. My MO said it is slow growing (grade high 1/low 2) which gives me a bit of hope right now. She also said it isn't moving very fast…
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Weight gain on xeloda
I'm taking xeloda and I read it can make gain a lot of weight, did anybody experienced that? Also I read that hand foot syndrome is relater with better outcome...did somebody lasted long time on xeloda without too many adverse effect? Thank you! I'm so scared and so hope it will work on me!
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The Benefits of Exercise for People Living With Metastatic Disease
The Benefits of Exercise for People Living With Metastatic Disease Dec 8, 2023 Dr. Anne May explains how exercise helps ease metastatic breast cancer side effects. In 2022, the American Society of Clinical Oncology released guidelines on exercise for people being treated for early-stage cancer. But when those guidelines…
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Being in a Metastatic Breast Cancer Clinical Trial
Being in a Metastatic Breast Cancer Clinical Trial Dec 7, 2023 Metastatic breast cancer advocate Dr. Kelly Shanahan shares what it’s like to be part of a clinical trial. Dr. Kelly Shanahan, trained as an OB/GYN, has been living with metastatic breast cancer for 10 years. For many years, she tried to join a clinical trial.…
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Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer
Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer Dec 7, 2023 Adding Tukysa to Kadcyla improved outcomes for metastatic HER2-positive disease. Read more…
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New here, found out 4 days ago MBC
Hi all, I've written long posts on other discussion threads, but I'll keep it short here. I feel like I'll get more responses at this board till I know more about my dx and what other threads I need to check. I was dx 4 days ago with lung/abdomen and probably ureter mets. PET scan revealed. I'm not ready to hear stats…
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Ibrance 100mg and femara
Hi, I have an oligometastatic and I have been taking these medication for 6 months. My blood count white cells were sooo low that my doc decrease the dosis. And I felt much better. Although count doesn’t increase much. I have shots regularly to increase white cells. My energy levels are usually good. Sometimes I get sick…
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Anyone else with just liver mets
is there anyone else on the board with stage IV only in liver? It seems everyone else has liver and….bone,brain,etc. I’m not complaining but at age 77 keep wondering what’s next or if we are missing something. I feel so sad for the young women and feel I’ve had a full life and I know where I’m going when I die. Not in a…
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Diagnosed with MBC!
10 years ago, I was diagnosed with breast cancer. I had a lumpectomy, chemo, a mastectomy, radiation and reconstruction. In April of this year I was diagnosed with MBC. I am on Kisqali. After initial side effects, I have adjusted to the meds and have been asymptomatic. Physically I am doing okay. Emotionally I am a roller…
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Pneumonitis
I have been MIA for a while. Starting this new topic for those DX’d with pneumonitis while MBC. October 2020, my TX was changed to Afinitor and Exemestane. In November, I started to wake up at night feeling like I couldn’t breath. Afraid to lay back down, I would get up and sleep sitting up in my recliner. Due to CoVid,…
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Immerman Angels looking for someone with MBC and peripheral nerve sheath tumor
Hello everyone, Immerman Angels is looking for someone with MBC and peripheral nerve sheath tumor. For anyone interested, please reach out to us via private message or by e-mailing us at community@breastcancer.org.
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Going from Letrozole to Faslodex
I have been on Verzenio and Letrozole since my Stage 4 diagnosis 14 months ago. My Mets are in my left lung pleural lining and a node in my right axillary. I found out this week that my most recent PET/CT scan showed mild progression so my oncologist wants to keep me on the Verzenio but change me from Letrozole…
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Is anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)?
Hello, Is there anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)? Thanks.
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FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers
FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers Nov 17, 2023 Truqap is a new targeted therapy option for metastatic, hormone receptor-positive breast cancer with specific genetic mutations that has stopped responding to other hormonal therapy medicines. Read more… q
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NED Follow-up care
If you are NED. How often do you see your oncologis? How often do you have scans? What meds are you on?
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Husband's anticipatory grief
Big sigh. My dear husband is not coping well with my worsening disease. I've had progression of my lobular MBC, previously in bones and now to peritoneum, omentum, GI tract. I am finally going to have a laparoscopy/biopsy next week and then begin weekly Taxol. My mood is better now that these things are finally scheduled!…
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ER-, PR-, Her2+ Stage IV
Anyone else out there
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Promising New Treatment for Metastatic Breast Cancer
Promising New Treatment for Metastatic Breast Cancer Nov 2, 2023 Dr. Aditya Bardia discusses encouraging results from a study on a new medicine for hormone receptor-positive, HER2-negative breast cancer. At the European Society for Medical Oncology (ESMO) 2023 Congress Aditya Bardia, MD, MPH, presented results from the…
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Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers Nov 1, 2023 The experimental medicine Dato-DXd may be a new treatment option for certain metastatic, hormone receptor-positive breast cancers. Read more…
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Wishes Fulfilled, and a Legacy
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being a recipient of so many…
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Bone Mets and Told I Need Hip Replacement
I am in the ER and being told I need a hip replacement due to the bone mets. The ER is at my local hospital not the cancer center in Pittsburgh I go to. I came here due to hip and leg pain. The ER doc has a call into my oncologist in Pittsburgh. I want to hear what she says. I am very shocked and surprised by this turn of…