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Metastatic Triple Negative
Hello I am new here, diagnosed Jan 2023, chemo, surgery radiation. CT Scan October 2023, 3 months after completion of chemo showing a liver met (confirmed with liver biopsy) getting PET scan tomorrow. Looking to connect with other mTNB.
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Biopsy back, begin medication tomorrow
Hi all, I found out it is a return of ILC-ER+, and it looks like a spot got into my bladder as well as peritoneum and lung, hence my urinary tract issues I've been dealing with since April. My MO said it is slow growing (grade high 1/low 2) which gives me a bit of hope right now. She also said it isn't moving very fast…
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Weight gain on xeloda
I'm taking xeloda and I read it can make gain a lot of weight, did anybody experienced that? Also I read that hand foot syndrome is relater with better outcome...did somebody lasted long time on xeloda without too many adverse effect? Thank you! I'm so scared and so hope it will work on me!
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The Benefits of Exercise for People Living With Metastatic Disease
The Benefits of Exercise for People Living With Metastatic Disease Dec 8, 2023 Dr. Anne May explains how exercise helps ease metastatic breast cancer side effects. In 2022, the American Society of Clinical Oncology released guidelines on exercise for people being treated for early-stage cancer. But when those guidelines…
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Being in a Metastatic Breast Cancer Clinical Trial
Being in a Metastatic Breast Cancer Clinical Trial Dec 7, 2023 Metastatic breast cancer advocate Dr. Kelly Shanahan shares what it’s like to be part of a clinical trial. Dr. Kelly Shanahan, trained as an OB/GYN, has been living with metastatic breast cancer for 10 years. For many years, she tried to join a clinical trial.…
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Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer
Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer Dec 7, 2023 Adding Tukysa to Kadcyla improved outcomes for metastatic HER2-positive disease. Read more…
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New here, found out 4 days ago MBC
Hi all, I've written long posts on other discussion threads, but I'll keep it short here. I feel like I'll get more responses at this board till I know more about my dx and what other threads I need to check. I was dx 4 days ago with lung/abdomen and probably ureter mets. PET scan revealed. I'm not ready to hear stats…
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Ibrance 100mg and femara
Hi, I have an oligometastatic and I have been taking these medication for 6 months. My blood count white cells were sooo low that my doc decrease the dosis. And I felt much better. Although count doesn’t increase much. I have shots regularly to increase white cells. My energy levels are usually good. Sometimes I get sick…
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Anyone else with just liver mets
is there anyone else on the board with stage IV only in liver? It seems everyone else has liver and….bone,brain,etc. I’m not complaining but at age 77 keep wondering what’s next or if we are missing something. I feel so sad for the young women and feel I’ve had a full life and I know where I’m going when I die. Not in a…
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Diagnosed with MBC!
10 years ago, I was diagnosed with breast cancer. I had a lumpectomy, chemo, a mastectomy, radiation and reconstruction. In April of this year I was diagnosed with MBC. I am on Kisqali. After initial side effects, I have adjusted to the meds and have been asymptomatic. Physically I am doing okay. Emotionally I am a roller…
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Pneumonitis
I have been MIA for a while. Starting this new topic for those DX’d with pneumonitis while MBC. October 2020, my TX was changed to Afinitor and Exemestane. In November, I started to wake up at night feeling like I couldn’t breath. Afraid to lay back down, I would get up and sleep sitting up in my recliner. Due to CoVid,…
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Immerman Angels looking for someone with MBC and peripheral nerve sheath tumor
Hello everyone, Immerman Angels is looking for someone with MBC and peripheral nerve sheath tumor. For anyone interested, please reach out to us via private message or by e-mailing us at community@breastcancer.org.
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Going from Letrozole to Faslodex
I have been on Verzenio and Letrozole since my Stage 4 diagnosis 14 months ago. My Mets are in my left lung pleural lining and a node in my right axillary. I found out this week that my most recent PET/CT scan showed mild progression so my oncologist wants to keep me on the Verzenio but change me from Letrozole…
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Is anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)?
Hello, Is there anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)? Thanks.
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FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers
FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers Nov 17, 2023 Truqap is a new targeted therapy option for metastatic, hormone receptor-positive breast cancer with specific genetic mutations that has stopped responding to other hormonal therapy medicines. Read more… q
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NED Follow-up care
If you are NED. How often do you see your oncologis? How often do you have scans? What meds are you on?
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Husband's anticipatory grief
Big sigh. My dear husband is not coping well with my worsening disease. I've had progression of my lobular MBC, previously in bones and now to peritoneum, omentum, GI tract. I am finally going to have a laparoscopy/biopsy next week and then begin weekly Taxol. My mood is better now that these things are finally scheduled!…
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ER-, PR-, Her2+ Stage IV
Anyone else out there
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Promising New Treatment for Metastatic Breast Cancer
Promising New Treatment for Metastatic Breast Cancer Nov 2, 2023 Dr. Aditya Bardia discusses encouraging results from a study on a new medicine for hormone receptor-positive, HER2-negative breast cancer. At the European Society for Medical Oncology (ESMO) 2023 Congress Aditya Bardia, MD, MPH, presented results from the…
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Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers Nov 1, 2023 The experimental medicine Dato-DXd may be a new treatment option for certain metastatic, hormone receptor-positive breast cancers. Read more…
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Wishes Fulfilled, and a Legacy
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being a recipient of so many…
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Bone Mets and Told I Need Hip Replacement
I am in the ER and being told I need a hip replacement due to the bone mets. The ER is at my local hospital not the cancer center in Pittsburgh I go to. I came here due to hip and leg pain. The ER doc has a call into my oncologist in Pittsburgh. I want to hear what she says. I am very shocked and surprised by this turn of…
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NEW TO STAGE IV……WHAT ABOUT THESE TREATMENT DRUGS?
BONE METS AFTER 13 YEARS NED SUDDENLY IN TREATMENT AGAIN So in January 2023 My Oncologist sent me for scans following a high CANCER ANTIGEN 27.29 blood test, which I’ve gotten every 6 months with followups with him. Since 2009 until recently my CA 27.29 blood test was always Low ranging from 22 to 26, 27. It’s been like…
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Lets do a Sh*t People say to Metastatic BC Patients
Give me your best lines!! I want to make a fun video.
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Buckle up ladies, Puketober is upon us
Fall is my favorite season.. but I absolutely hate the pink washing that happens every October. And the anniversary of my 1st diagnosis is never a “fun” day. Ugh...31 days.. we can do this!
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Ibrance
I have been taken Ibrance with AI for over 2 years. I have bone only Mets when I first diagnosed as MBC. Ibrance worked very well in the first year and second and brought my CEA to 1-2 range. Since early this year, my CEA went up to 3, 4, and 5. My CEA lab yesterday is 7 and CA15-3 is 37. My CT/bone scan shows no changes…
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Chemo v. Targeted theraphy
Hello, this month I was diagnosed with MBC, pet scan shows bone met on several locations, 1.7 lungs nodule, and met on my chest lymph nodes. I am ER+(98%), PR-, HER2-. Biopsy on my fibula confirmed as cancer. My Onco recommended Abraxane chemo for 3 months and Zometa every month for 5 months. I saw my 2nd opinion doctor,…
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joint replacement while on Ribociclib
I have bone on bone osteoarthritis in my L shoulder which also is the side of my initial breast surgery and radiation in 2018. Currently I am on Ribociclib and Faslodex for recent mets to liver. My ortho is recommending joint replacement. Has anyone had a joint replaced while on these meds? Thanks,
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Progression after ribociclib (csk4/6i) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
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This sucks - Osteonecrosis of the jaw
After 10 months of bisphosonates I have been been diagnosed with ONJ. 3 weeks of mega antibiotics, everything else except letrozole stopped until this is resolved. A bottle of liquid morphine to add to my collection. (Resisting because it feels too ‘cancery’, if you get my drift.) And more ‘activity’ detected in my bones…