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What do you want from your caregiver(s) after being diagnosed?
November is National Family Caregivers Month. We thought it might a good idea to share here what you might want from your caregiver(s) so they know how to best support you through your breast cancer experience. So, what are you looking for from your caregiver(s)? Information, emotional support, help with daily tasks,…
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Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: * Understanding your pathology report * Before Treatment: Planning Ahead for Survivorship * Breaking Research News about Planning Your Breast Cancer Treatment Also, a great thread chock full of advice for those just…
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PREDICT: Updated Breast Cancer "Survival Calculator" Tool
The PREDICT "survival calculator", based in the UK, has updated their algorithm as of Spring 2024 to include additional data inputs such as progesterone receptor status, smoker status, metastases status, plus an option for patients who accept or decline radiation. This tool may be helpful to those that're newly diagnosed…
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What do you wish you had known when you (or your loved one) were first diagnosed?
Share words of wisdom, unique tips, self-care, and coping advice for our newbies here! It will make a difference for all those joining us this year. Thank you!
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Breast Cancer Biomarkers
Breast Cancer Biomarkers Aug 25, 2023 Debu Tripathy, MD, explains what breast cancer biomarkers are and how doctors use them to make treatment decisions. Biomarkers are molecules that help doctors distinguish breast cancer cells from healthy cells. In general, there are three broad categories of breast cancer biomarkers:…
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VIRTUAL MEETUPS for people in treatment for breast cancer!
VIRTUAL MEETUPS for people in treatment for breast cancer! Register here and you'll receive a zoom confirmation with all the information! Tuesdays at 1:00 PM EST and Thursdays at 6:00 PM EST
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Newly diagnosed and in treatment can’t sleep enough yet
There is so much to know and the only one I’m trusting is the oncologist. The tests are factual but there are too many initials and I haven’t memorized what they all mean. There’s a super supportive team at the High Risk Breast Center but I don’t yet fit in. The less professional employees aspire to be in the know but they…
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Scared, has this happened to anyone?
So here's my story. Back in July of 2024 I thought felt a lump in my breast. For about 2 years every month when I started my period I would feel a large lump but it would go away after my perky. When I went to the gynecologist he felt around but didn't feel anything, but he wanted to be sure so he sent me for a mammogram.…
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DCIS removed but... gene mutations... now what and family thinks I should be happy
Diagnosed with DCIS (ER+/PR+) in Sept. Had it removed in Oct. Doc talked abt possible radiation and/or hormones even though I'm one of the "lucky" ones- HA! Now I'm positive for CHEK2 and RAD51C w a family history of ovarian and colon cancer (1 + 1). Waiting to hear back from gyn to screen for ovarian cx and sons need to…
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Ovarian Suppression and AI
Hi! How much more effective is ovarian suppression plus anastrazole compared to just tamoxifen alone in preventing recurrences in premenopausal women?
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changing treatment
I was originally hoping for mastectomy of right breast for stage 2 invasive ductal carcinoma, but dince I am HER2 positive, I now have to have chemo before surgery. Anyone else been down this road? How long was chemo?
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Diagnosed last thursday, now in the waiting game for appointments
Well I got the alert last Thursday that I had a new result in my MyChart and I looked and got the news there at my job. Looks like I have grade 3 IDC, triple negitive hormone test. The NP at my OB/GYN office called and asked where I wanted my referral sent. I gave them a few places and now I wait. Not having much…
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Just Diagnosed- Get Prepared
My breast cancer was diagnosed in Jan 09. My husband was dx'd with lymphoma in April. The following are some things we learned on our journey. I hope they help. Rather than rewrite everything in sequence, because I missed putting the fax in the rewrite of the outline, I'll put it here. I strongly recommend you get a fax…
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Treatment options are stressful
Recently diagnosed with IDC. Early stages and lumpectomy with radiation is an option. Chemo is still up in the air. I have extremely fibrous, lumpy dense breasts and have, along with plastics and breat surgeon considered bilateral mastectomies to reduce the stress and testing every time a new lump forms. I'm here to weigh…
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Scared and Confused
Hi! I'm sorry to keep posting, I'm just so confused and scared about my diagnosis. I spend most of my time googling which is making things worse and it's because my surgeon and RO seem to be on the same page but my oncologist says something different so I don't understand what is going on. I was diagnosed with ER positive…
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Newly Diagnosed... Scared and Sad
Hello all newly diagnosed. Ductal Carcinoma 2 cm Pos Hrz, 4 cm Neg Hrz. Cancer cells in one lymph node. I am awaiting my Onocology appt. this Thursday. I have such a hard time sleeping, not lots of support since I am a single woman and family…no. So it is very treatable which is good but the thought of getting a masectomy…
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How do you cope with the fear?
I'm just wondering how everyone copes with this diagnosis and the uncertainty of it? I am 39 years old with a 2 year old daughter and was diagnosed with stage 2 IDC 7 months ago, and I just can't seem to cope with the fear of not being around for my daughter. My oncotype score says I have a 25 percent chance of distant…
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Super scared and depressed
I have dense breasts and have kept up with annual Mammos. Last month, I had a mammo, diagnostic mammo, ultrasound, and stereotactic biopsy. Results came back as DCIS Grade 2. I just had a breast MRI and it's showing another area in the same breast (no suspicion of malignancy in the right) so they want an MRI-guided biopsy…
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Just diagnosed. Please help with biopsy report
overwhelmed and scared. ==== A. Right breast, R1 at 10:00, 3 cm from nipple, core biopsy Invasive ductal carcinoma (see comments) Focal ductal carcinoma in situ B. Right axilla, rax at 10:00, 10-11 cm from nipple, core biopsy One lymph node, negative for carcinoma (0/1) Value INVASIVE CARCINOMA OF THE BREAST: BIOPSY - All…
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New to brestcancer
Hallo. So here we are breastcancer, never in my wildest dreams did I thought I will be here. I've been diagnosed with stage 2 TNBC. I'm only 31 years old and have 2 small kids (2) and (4). I read a lot about the treatment and they way it effects your body. How do you make it easier for the kids? They don't know anything…
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Please help with biopsy results
Overwhelmed and scared. ====A. Right breast, R1 at 10:00, 3 cm from nipple, core biopsy Invasive ductal carcinoma (see comments) Focal ductal carcinoma in situ B. Right axilla, rax at 10:00, 10-11 cm from nipple, core biopsy One lymph node, negative for carcinoma (0/1) Value INVASIVE CARCINOMA OF THE BREAST: Biopsy…
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Big hard lumps 2 and 4 cm (from ultrasound). Biopsy preliminary result says very invasive high grade
Freaking out. What stage will I be in? I am worried it has spread everywhere! Is there hope? I have not received the complete biopsy, so I don't know the details. My primary doctor just told me last friday that the preliminary result is that it is very aggressive and high grade. I am 40yo with 8 and 6 year olds. Have not…
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Fatigue before treatment
I was diagnosed Aug 1,2024. Finally got surgery date of Nov 6, no other treatments yet but in the meantime I am growing increasingly fatigued by the day. It’s so bad that when I do get a good nights sleep it makes no difference. Has anyone else had intense fatigue before treatment?
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Newly diagnosed IDC Stage 2 Er+(25%), PR-,Her2-
I am newly diagnosed and fall within a grey area with only being 25%ER+. My oncologist at the Cleveland Clinic is still finalizing treatment plan and taking me to tumor board to get more opinions. Currently going to treat me as both tnbc and hr positive with surgery first. Are there any in the group that have had a similar…
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Please help me understand my pathology report-newly diagnosed
Hi all, I was given the diagnosis last Friday (invasive ductal carcinoma - about 1 cm in size) and I meet with a surgeon on Thursday. I just received my full pathology report and I was hoping to get a better understanding of staging to guide my questions during my appointment. Can any of you determine my stage from this…
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Please help Biopsy Report
My biopsy report was just posted to the portal. I know the dr will call later, but please can someone give me an interpretation of these results. Thank you so much. AP results Final SURGICAL PATHOLOGY REPORT Case Number: S-24-24293 ------------------------------------------------------------ SPECIMEN: (A) Breast Core…
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Newly diagnosed, shall I finish my second dose of Shingles vaccine (ShingRx) before surgery?
I was diagnosed with stage 1 IDC (ER+PR+HER2-) last week. I had already taken the first Shingles vaccine a few months back. So, I have three months window to take the second shot. I’ve met with my breast surgeon but not the oncologist yet. My surgery will likely happen in four weeks. My surgeon said I probably don’t need…
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Biopsy done - no results yet
Hello - I had a biopsy left breast on Thursday 4 July - my 65th birthday!! It was just one area on the inner, underside of my left breast. My previous mammo was 2019 with no concerns, then I had a thermograph two years ago and no sign of anything then. I can't even feel anything myself although the radiologist said she…
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Introduction, new here.
Hello everyone I am new to all this and I am scared and been going thru this whole thing with noone
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Newly Diagnosed
hello, I am new to this but know how important support groups are! My name is Sandi, my beautiful daughter Chris was just diagnosed with Triple Positive Breast cancer. She has been caring for her husband of 37 years who was diagnosed with GBM inoperable brain cancer for 3 years. He now needs her for everything as their…
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When you don't fit the studies and your doctors disagree
Hi all. I'm recently diagnosed (March) with regional recurrence in right axillary nodes, 17 years after double mastectomy/chemo/tamoxifen for IDC right side (with negative sentinel node biopsy). Surgery in April removed 4 positive nodes and 4 negative nodes. Cancer is again ER+, PR+, HER2 negative (but this time HER2 low).…
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Biopsy Results
Greetings - just diagnosed today - more testing to come. I had 2 areas biopsied via stereotactic biopsy (right breast). Area of architectural distortion came back benign - with stroll fibrosis, columnar cell change, usual ductal hyperplasia and focal features suggestive of a radial scar. Calcifications came back -…
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I just had THE call
I knew what my doctor was going to tell me. So I was not surprised when she basically confirmed the worst. Cancer took my mom - ovarian. My sister is currently in treatment - fallopian. I ignored my breast lump for a year. My husband made me go have it checked up. I was ordered to have a diagnostic ultrasound and…
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Just Diagnosed and Confused
Hello all, my name is Tetiana and I’m 37 years old. I was diagnosed with breast cancer on April 30th, 2024. The initial biopsy returned as DCIS stage 0 both ER+and PR+ in two spots in my right breast. One spot was grade 2 and the other was grade 3. I met with the breast surgeon that same week and we chose double mastectomy…
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Newly Diagnosed
Hi All, I'm 56 and newly diagnosed with breast cancer. It still feels weird to say "I have breast cancer". I have appointments next week with a surgeon and Oncologist. I'm doing my research trying to understand the information. I'm trying to mentally get prepared for the road ahead. The hardest part for me so far, is…
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Newly Diagnosed/Timing/Doctors
I was diagnosed with IDC yesterday. Not a surprise since the radiologist told me it looked like cancer before the biopsy, but the good news is that it is small. I booked an appointment with someone on my list who had an opening. The most recommended surgeons appear to be unavailable for months, or at least 1.5 months. The…