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Chemoport questions
Hi all, Tomorrow I have port placement. I'm pretty anxious, and I have some specific questions if anyone can help? First - how soon after the surgery can you shower/wash hair? I assume you aren't allowed to get the incisions wet for some time. Not that that really matters I soon wont have any hair. But I'm keeping it as…
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Wigs and Warm Weather: Five Tips for Staying Cool and Comfortable
Share your thoughts and tips below!
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Need some comforting...
Hi all, I've been experiencing a slow but steady increase in Staging since April 19. Started out as small, easily treated etc., but since then tests, surgery, waiting and more tests, each coming back with worse and worse news (many of you are probably familiar with this story). Tomorrow is the end of the road and I go for…
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Round 2
Going tomorrow July 17 for the 2nd of 4 rounds of TC. Hoping for better results than the first. Had horrible mouth sores and burns throughout my mouth. Will be lowering the dosage and adding Neulasta. Had to shave my head and that was more painful mentally than anything so far. I feel like a big neon sign over me saying I…
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Suicidal ideation - oncologist called the police.
I had a bad pathology report 10 days ago and today met with the oncologist. She said only what I thought she would say - more waiting, to do scans to look for distant metastases, followed by chemotherapy (unless there are mets. already). Tumour is large (6.8cm) with one +ve node and invasion posteriorly into muscle. Stage…
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pain after port placement
Im starting chemo next week, and last wednesday "the port" was placed on the left side of my chest. Since it was placed, Ive been having some fairly bothersome left shoulder and neck pain (almost all the way from the port thru my upper back, and from the neck to the shuolder.) The placement site also hurts, mostly when I…
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Ear pressure on TCHP
Hi everyone! I’m a lurker on this group and am so thankful for all of the help I’ve gotten as I go through treatment. Did anyone have ear pressure issues on chemo? I’ve had what feels like clogged ears for the past month nonstop and it’s driving me nuts. 🤣😩 I can still hear fine, nothing sounds muffled, it’s just pressure…
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Peripheral Neuropathy More Severe With Taxol Versus Taxotere
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Diclofenac Gel Helps Prevent Hand-Foot Syndrome Caused by Xeloda
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What Chemo/Treatments are you taking?
Hello everyone! I just got my chemo treatment info and wanted to see what everyone’s treatments are (I know every one is different) but I am curious… my Dr said 3 months of weekly Taxol and 12 months of perjeta and herceptin. Just wanted to know how normal this is?? I haven’t had surgery yet and am going to do double…
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Just started TC chemo, 1 of 4 for Invasive TNBC Stage 1 grade 3
Monday was my first treatment, felt good for a few days then on Thursday it me. Nausea, flu like symptons and then diarrhea. Starting to feel better toda6, but have little or no energy. I go Monday for f/u with my Oncologist hopefully she has some tips to relieve side effects. I find it hard to stay hydrated though. Any…
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Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
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Pregnant with cancer- what to expect chemo
Hi All, I am currently recovering from my mastectomy while 26 weeks pregnant. I received my diagnosis while 12 weeks pregnant. My doctors are planning to start me on TC chemo a few weeks after giving birth (they are inducing me a month early). I am worried about how chemo side effects will impact this very special new time…
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Starting Chemo December 2020
There's noplace like an infusion center for the holidays! Am I the first to start December? If not, someone please direct me, I'm new. Starting chemo Dec. 3 because Thanksgiving, otherwise would've been in the November club nobody wanted to ever join. Determined to remain calm and positive. I'm 48, stage 1.9 (I made that…
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Going forward
I got my oc number Wednesday and it was 28. My dr was expecting higher but still too high for me😕. Going in for my port Monday and starting TC on Thursday. I do not really want to do this, but I do not have an option. I am 50 with stage 2A left breast. Just not feel the whole thing. Really disappointed.
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NEW Oncotype Dx Roll Call Thread
Welcome to the "New Oncotype DX Roll Call"! moodyk13 started this thread when she was looking for some help with her oncotype score and discovered that many people want advice or info regarding this test that so many of our oncologists use to help us make treatment decisions. She very generously built it to what it is now…
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Stubble Head
Strange question. I had my head shaved 2 weeks after my first TC-H chemo when my hair started falling out in clumps. I’ve had 2 more treatments since and my hair “stubble” is still just like it was after clipping. Stubbly, prickly, pulling my scarves all over my head. Is this normal? Will this stubble eventually fall out…
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Severe depression after finishing treatment
I finished 6 months of chemo and had double mastectomy with reconstruction almost 4 months ago(very end of February) for TNBC. I had pCr… Since then I deal with adrenal insufficiency caused by Keytruda/Pembrolizumab and went few times at the ER for low Na levels. But in the aftermath, the most horrific is the depression…
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2 years out from chemo - neuropathy worse?
I am 2 years out from chemo and have had mild neuropathy in my hands and feet since day one. Always there, but not bad enough to want to do anything aout it. The last few months my feet and hands have been hurting a lot more. Constantly. Sometimes they feel as if they're on fire. I've been taking tylenol which sometimes…
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“Last” chemo feelings
Hello everyone who has finished chemo! It’s my last chemo in a few weeks. I know I should be happy after five months of it but I’m having a hard time thinking/believing it’s the “end” of this particular treatment (my surgery is in July) - I feel I have a bullseye on my back, it’s going to get me again (various “bad”…
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Port insertion and removal
I had breast cancer and when they put my port in I had taken 2 pills for anxiety because I have a diagnosis of severe anxiety and they wouldn’t agree to put me to sleep I didn’t tell them and when they gave me the medicine to make me groggy I was lucky enough to pass out. Now I have to get my port removed and again they…
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Claritin or Zyrtec for bone pain?
Starting chemo tomorrow and wondering which one you recommend for bone pain? I’ve read from some that they recommend regular Claritin but the nurse mentioned Zyrtec was the drug used in the study. She didn’t discredit Claritin however thoughts?
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Any Adriamycin and Cytoxan peeps?
can anyone share how your chemo experience was or is on Adriamycin and Cytoxan? I start May 17th. Thank you!
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Port Placement
Hi all, I was hoping to hear other peoples’ experiences on having their port put in. I recently had mine put in and it was not a great experience for me. I knew I’d be in a “twilight” state, but I was told I wouldn’t feel or remember anything. However, I felt quiet a bit and was feeling a little panicked during the…
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Minimal response to neoadjuvant chemo. Hope needed
Hi All, this is my first post. I'm hoping for a little support I have just had pathology results following neoadjuvant chemo and have had minimum response. 7 nodes still positive and tumor still large. Im absolutely devestated. I have 2 small children and im struggling to see a light at the end of all this, I'm heartbroken…
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Periods after Chemotherapy
Hello, want to know if/when your periods restarted after chemotherapy. I completed my chemotherapy on March 15 and my periods haven't started yet. I am receiving radiation therapy currently.
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Is this chemo brain?
hi all, I was diagnosed with TNBC with positive nodes April 25, 2022. I have finished 10 rounds of taxol/carbo, 7 rounds of keytruda, lumpectomy, 4 rounds of ac and 20 rounds of radiation. My last chemo was January 28th and radiation was march 23. I’m looking for a little reassurance for what I’m feeling. I’ve told my onc…
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AC Done, Terrified of T!
I finished my last round of AC (adriamycin/cyclophosphamide) and I’m scheduled for my first round of paclitaxel this week… and I’m terrified. I have a huge fear of allergic reactions and I keep seeing people post about how they had reactions to Taxol and couldn’t breathe. I’m also scared of neuropathy (I’m an artist, I…
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Response to Chemo Before Surgery Varies by Race
Response to Chemotherapy Before Breast Cancer Surgery Varies by Race Apr 3, 2023 A tumor's genetics — which varies by race — affects how a breast cancer responds to neoadjuvant chemotherapy and may contribute to differences in outcomes between Black and white women. Read more...
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Starting chemo September 2022?
Hi I just started chemo this past Friday and was looking for a group to talk through things with. This is unfortunately my second go around but I’m doing a different chemo regimen and it’s kicking my butt so far. Just thought we could all rant, vent and encourage each other.