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Need guidance please chemo/ cold cap- was donated to me
Hi Breast can stage 2A her2Positive. I had one chemo treatment April 1 didn’t have cold cap- Next treatment April 22 - Some one just donated the cold cap to me. How do I go about using it. Does the hospital have the machine ? Do they charge just to use the machine it self? Any one know how this works. Do I call my chemo…
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AC-T Latest advice?
hi all, Am starting AC-T and wanted to know if there is any up to date advice or tips to consider? I have heard cold cap isn’t good with it but will use it anyway. Anyone used Paxman with AC-T? Welcome any tips to keep me sane!
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Starting Chemo August 2023
Hey All, If you're starting this month, please let's join together here! 🤗
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Realistic looking custom wigs
Bout to start treatment in the coming months. Hunting for a good, high quality, realistic looking wig. Found a couple promising ones (ie wigs by tiffani and high definition hair). Seems the one closest to what I am looking for is High Definition Hair (highdefinitionhair.com). They seem to be custom made wigs (custom…
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Any diabetics who did icing for their hands and feet?
Dear All. My Mom is diabetic and thinking of freezing hands and feet during chemo to prevent neuropathy. How does that work for diabetics? Has anyone done it? I don't want to cause more harm. Thank you, BB
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Moved: Starting my Fifth Year of Metastatic Breast Cancer, taking Taxol and Sleeping A LOT!
This discussion has been moved.
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Gloves & Socks for Icing Hands & Feet During Chemo
Hi Everyone - I just finished my chemotherapy and used gloves and socks with blue ice inserts to ice my hands and feet during the chemo to prevent neuropathy. Since I am finished with them now, I'd love to be able to pass them on to someone who could use them. I have quite a supply - 2 sets of gloves with an extra set of…
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Let’s Talk About Taxol
I am in my dose dense AC era right now and looking ahead to starting Taxol. My oncologist has given me the choice of 12 weekly Taxol or 4 dose dense Taxol every other week. I’m so wanting to get this over with. Has anyone has experience with dose dense Taxol x 4? My understanding is treatment outcomes are basically the…
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Starting chemo February 2020
I searched and didn’t find a thread so I guess I am the 1st one lol. I am starting chemo on 2/6. DDAC every two weeks, 4 times w/ Neulasta. Then Taxol weekly for 12 weeks. Who else is starting?
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Taxol & Herceptin experiences to share?
Hi! I met with my oncologist yesterday to discuss my upcoming chemo regimen. I'm 52. I have (had) IDC stage 1a in my left breast- triple positive. I had a single MX on 2/9/23 with reconstruction (expander). In late March I'll begin 12 weeks of weekly Taxol and Herceptin. After the 12 weeks, I'll continue the Herceptin…
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Navelbine chemo
Just started oral Navelbine for lung mets (Was on Xeloda for a year some lung progression in October 23) Not much recent info here on this therapy but seems to be working for me 120 mg once per week for 8 weeks reduced CA15 from 84 to 40 Now on 140 mg No major side effects Ct scan and Bone scan in 3 weeks Bright in Hope
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Starting Chemo September 2023?
A place for the September sisters to gather and support each other! For inspiration and what to expect, see August 2023's thread.
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Starting Chemo January 2024? Gather here for support!
If you're scheduled to begin chemotherapy this month, join and share here for support. Please share your diagnosis, planned chemo regimen and start date, so we can all support you as you navigate treatment — we're all here for you!
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Low Vitamin D Levels Up Risk of Chemotherapy-Induced Neuropathy
Low Vitamin D Levels Up Risk of Chemotherapy-Induced Neuropathy Jan 11, 2024 Low vitamin D levels increase the risk of neuropathy from chemotherapy. Read more…
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Chemo Starting September 2018
Good morning! I was very happy to see these threads/groups for folks starting chemo each month and decided to start one for September. I am starting 4 rounds of Taxotere/Cytoxan (Docetaxel/Cyclophosphamide) - who names these things? - or “TC" on 8/29 in Boston.
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Pengiun Cold Capped and have lost 50% of my hair 20 days post first TC
Does it keep coming out? With each chemo session (my 2nd one is tomorrow) will I just lose the other 50%? It's so disheartening. I was prepared to lose some hair…. but I wasn't expecting to lose so much it early on. Right now the bald spots are at the nape of my neck so it is covered by the rest of my hair. But if I keep…
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Between the Devil ( the red one) and the deep blue sea
I honestly did not know what forum to post under since I am all over the place and on so many threads and wanted all of you to know what is going on with me now. I am Stage lV, but unlike some do not consider that anything special or feel intruded upon when someone who is not Stage lV, posts on a Stage lV forum. The way I…
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1st chemo & Fulphila injection.
Hello, I’m taking care of my mom so I’m wondering if someone can guide… she is patient of breast cancer reoccurrence. Hertue positive. And chemo is TC (every 3 weeks) she had first chemo & there were no side effects for first few days. & she got her fulfhila injection 2 days after her chemo. & same night, she’s going thru…
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My first TC experience was not bad
I know everyone is different, and that each cycle can "hit" differently, but I just wanted to share my experience with my first round for anyone who is about to embark on a TC regimen like mine to maybe provide hope. I don't want to minimize anyone's bad experience, but also want others to know that not every cycle is…
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Neuropathy treatment at home
Hello, I’m taking care of my mom so I’m wondering if someone can guide… she is patient of breast cancer reoccurrence. Hertue positive. And chemo is TC (every 3 weeks) she is wearing cold gloves & socks during the chemo treatment. But I was wondering is it helpful to wear them at home everyday or every other day before her…
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Starting Chemo December 2023? Gather here for support!
Join and share here to get and give support if you're scheduled to begin chemotherapy this month. Please share your diagnosis, planned chemo regimen and start date, so we can all support you as you navigate treatment — we're all here for you!
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Chemotherapy Before Surgery May Mean Lymph Node Radiation Not Needed
Chemotherapy Before Surgery May Mean Lymph Node Radiation Not Needed Dec 5, 2023 If chemotherapy before surgery destroys cancer in the lymph nodes, radiation to the nodal area may not be needed. Read more…
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Paxman Scalp Cooling Patient Assistance Programs
Paxman Scalp Cooling Patient Assistance Programs Dec 6, 2023 Richard Paxman explains how his company helps people pay for scalp cooling during chemotherapy. Scalp cooling can help people keep some or quite a lot of their hair when receiving a chemotherapy regime that can cause hair loss. At the 2023 San Antonio Breast…
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What You Need to Know About Lymph Node Radiation After Neoadjuvant Chemotherapy
What You Need to Know About Lymph Node Radiation After Neoadjuvant Chemotherapy Dec 6, 2023 Dr. Marisa Weiss explains the results of the practice-changing study showing that node-positive breast cancer that becomes node-negative after chemotherapy likely doesn’t need nodal radiation. Breast cancers that are lymph…
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Courage to Stay Positive Through Chemo and Surgery Decisions
I’m off to round 4 of Tchp tomorrow. I’m feeling overwhelmed and anxious about the long day ahead. Needing a bit of encouragement this morning. Also meeting with surgeon on Thursday to decide between single mastectomy plus lumpectomy or double mastectomies. I have two kinds of cancer one in each breast. The past five…
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Starting Chemotherapy in February 2023
Hi, folks I see these topics don't always get started for recent months, but I'll give it a shot. Started Taxol + Herceptin + Perjeta yesterday, Feb 6. The Perjeta was a last-minute surprise, but there's some anomalous blip in my liver and dear MO is not taking any chances. I was in the hospital ALL DAY, 9 to 5. They gave…
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Starting Chemo November 2023?
A place for the November chemo sisters to gather and support each other! Please share your start date, regimen, side effects, and tips for others here. For inspiration and what to expect, see the Starting Chemo Sept 2023 thread. Good luck with your treatment — we're all here to support you!
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Embracing the bald
I'd like to talk about being bald. I am on my second round of hair loss due to chemo (AC+T in 2018 and Halaven currently), and I'm really, really close to tossing my fears and my headcovers in favor of comfort and acceptance. Between episodes, I kept a pixie that suited me, so the second bout wasn't nearly as dramatic. So…
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Horrible time on Taxol
Note - most people find Taxol much easier than AC. I seem to be an exception so if you're hoping Taxol will be better it most likely will be - stop reading now! But I'm struggling. Feeling awful. Sinuses, mouth constantly dry so that I can't sleep. Everything tastes terrible. I have a constant bad taste in my mouth which…
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Night sweats - any practical tips on how to manage?
Hi all, I've just started the Taxol phase of AC-T chemo and am suffering night sweats, sometimes three times a night. I went into menopause 20 years ago following my first episode of breast cancer, so I've been post-menopausal for a long time. No night sweats at all then. I'm not on any anti-hormone Rx - just the Taxol.…