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Stage 4 - MBC long term survivor (3+ years)
Hi, I was recently diagnosed with stage 4 MBC. A friend of my friend has been living with MBC since 2012 (she’s been on clinical trial since 2012). This kind of story gives us hope, I would love to hear from anybody that’s been living with MBC for 3+ years. Please share your story with us
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Paid survey in New York City - please see post for info
Hi! For those who don't know me, my name is Kris or KBL on the forum. I've posted before about surveys I've done with RC Horowitz. They are a research company who performs surveys. Right now they are looking for Hispanic and African American breast cancer patients who either live in New York or New Jersey and who could…
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Lines of Endocrine Therapy
I am very interested in the details of endocrine treatment experienced by other members with an ER+/HER2- diagnosis like mine but have been frustrated by trying to make sense of the info that appears beneath an individual's post. I am particularly interested in the chronological order of each type of treatment and whether…
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New zoom meetup Tuesdays, 5:30 PM PT (8:30 PM ET)
NEW recurring zoom meetup for people with metastatic breast cancer Tuesdays, 5:30 PM PT (8:30 PM ET) Register Here and looking forward to seeing you.
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TAXOL- Ive been on for 10 months, has anyone been on longer?
Hi, My doc thinks since I am stable, and I should leave Taxol (2 weeks on one week off) and go on something else when I stop being stable (probably Enhertu) since Neuropathy will only get worse on Taxol. I'm afraid to go off of Taxol since it has put me into "stable". Markers are going up slightly, every 3 weeks. How long…
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Bouncing from hope to despair. Ugh
Is it normal to have really hopeful days and the very next to just feel despair? I would love to hear those amazing stories that are out there with long life and stage 4. I am Her2 positive Mets to liver and.chest nodes. My anxiety could be up because this month is my first pet scan since completing thp in July. So, once…
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Pleurx pain
hi I just had a Pleurx installed yesterday and I have pain outside the tube pain. Next to the tube, my rib and insides are hurting. It’s like I have something in there. It really hurts. Is thisnnormal
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Tumor markers - how long to see a change?
Hi all, there have been a lot of posts about tumor markers but I didn't see anything specific to my question. I've been on IV chemo for six weeks (four weeks of chemo, two off) and just had tumor markers drawn because I'm having pain in my rib cage where I have a met or two. Unfortunately I never got baseline tumor…
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Prolonged healing from a wrist fracture.
I fell off my bike five weeks ago; what was diagnosed as a simple wrist fracture has turned into constant pain and swelling. Anyone here has any experience with the side effects of Ibrance or Letrozole and healing complications from a fracture?
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De novo questions
De novo Her2 + ladies, 1. How long were you on Herceptin and perjeta before ( if) you had progression? 2. If no progression, how long have you been Ned or stable? 3. Who all has gone off treatment? I know there’s a HUGE Denovo thread, but I get lost in there. Thank you sisters. I am grateful for the support.
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Leaky eyes anyone ?
still have eyes leaky . Feel sick all the time because of this . Help
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Intramedullary metastatic disease?
Hi, I need some support. I was just diagnosed in October and I thought I had all the mets - brain/bones/liver/lungs. Then I was diagnosed with leptomeningeal disease one month ago. (Did whole brain radiation and am now on Xeloda/Tuksya for that.) And now, I just got MRI results that say this: "New 3 mm nodule of…
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Working full time to keep health insurance
I am having trouble continuing to work full time and wonder if anyone else is dealing with the same issue. How do you deal with needing to continue to work, being basically stuck in a job because you have to keep the health insurance? Have you found a way to quit working without being financially destroyed? Disability…
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Aquaintance celebrates 25 years since advanced cancer diagnosis!
Hi everyone. I just have to shout it out because it gives me such hope. She is such a gracious, generous and caring person.
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Podcast: Verzenio Improves Overall Survival in HR+ HER2- Adv BC
Verzenio Improves Overall Survival in Hormone Receptor-Positive, HER2-Negative, Advanced Stage Breast Cancer Sep 28, 2022 Dr. Matthew Goetz explains the latest results from the MONARCH 3 study on Verzenio. At the European Society for Medical Oncology Congress 2022, Dr. Matthew Goetz presented interim overall survival…
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Podcast: Trodelvy Offers Benefits for HR+ Breast Cancer
Trodelvy Offers Benefits for Hormone Receptor-Positive Breast Cancer Sep 22, 2022 Dr. Hope Rugo discusses the latest results from the TROPiCS-02 trial showing Trodelvy improves overall survival compared to chemotherapy in metastatic, hormone receptor-positive, HER2-negative breast cancer. At the European Society for…
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leptomeningeal carcinomatosis
Hello, I found out last night at 10pm that I have leptomeningeal carcinomatosis. I have been in the hospital since Friday (it's Tuesday). I may go home today or tomorrow or who knows. I have to start WBR today. And I will be switching chemos from Gemzar to Abraxane and Carboplatin. My MO said that if the WBR doesn't work,…
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New liver progression - looking for advice/suggestions
Hi all -- I am looking for some current advice / suggestions regarding options because I have some new progression. (Note: tried searching the different threads but new format continues to make that difficult, and lots of posts are pretty old.) I'm HR+ / HER2- (+1) based on initial MBC liver biopsy 3 years ago. I've been…
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Do metastatic patients never fully get rid of the cancer?
Hi all, I am a metastatic breast cancer patient, after 12 years remission from ER+, PR+, HER2+ my cancer came back as ER-, PR-, HER2+. It is a mass in my chest, in the lymph nodes of my right armpit and a tumour on my pancreas. However both my breasts are clear. I've been receiving Paclitaxel, Pertuzumab and Trastuzumab on…
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Zoladex injection- increased bruising anyone?
I’ve been on zoladex shots for a number of years. Last month, I had a rather large and painful bruise afterwards. I chalked it up to the new MA but still reported it to my MO. Today when I went back, he tried twice to get me to come back with him and I wouldn’t. I held out for the other MA who has given me countless…
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Mets to bone only
Hi, I am stage 4 and have mets to bone only. I aspirated on an almond and was hospitalized for 5 days. I went in to have my regular labs and to have my med list reconciled since the hospital had made some changes. I asked for a raised toilet seat and a walker. The palliative care nurse then says "are you thinking about…
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Questions regarding status change and mutations
I’m so new to this and my mind is still in overdrive. Everyday I come up with a new concern and worry. Recently, it is how common is it for Her2 positive to switch to her2 negative? Also, how do we know when we should get tested for things like oik3 mutations? I don’t even know what these things mean 🤦♀️ Did I mention I’m…
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ILC (Lobular) “Unusual” Mets Sites
I have compiled a list of BCO threads, journal articles, and other resources that I hope may help those with "weird ILC mets" to find information. BCO members, please add any resources you have found about weird ILC mets. ILC sometimes spreads to "the gastrointestinal tract, genitourinary tract, peritoneum,…
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Pregnant while metastatic?
Hello. This is probably not a common topic but I wasn't sure where else to vent/ask. Has anyone gotten pregnant while on MBC treatment? I recently took a home preg test not expecting anything, but it's showing an extremely faint positive so I'm panicking & going to see my ob-gyn to check it out. I've only met one lady with…
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Xeloda and drinking some cocktails during a vacation
My MBC friends on Zoom have convinced me to travel while I am feeling great! We will be enjoying a cruise during which I will be on my second week of Xeloda. I want to have a few cocktails during the vacation the week I am on Xeloda and the following week I am off Xeloda. I don't usually have side effects from Xeloda…
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Mets to lymph node in portahepatic area
Hello…In 2013 I was diagnosed with breast cancer ILC stage 2B with 3 lymph nodes involved. I did ATC 8 rounds and 5 years of AI. No radiation Yesterday I received the biopsy news that a lymph node in the portahepatic area (near the liver) is malignant. I had no symptoms but this was found from a CT scan back in April from…
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Everolimus before capecitabine?
It seems Verzenios (abemaciclib) and fulvestrant has stopped working for me and my consultant has offered Capecitabine as the next treatment option. I haven't had chemotherapy before so this scares me a bit especially when I read the side effects! I haven't had everolimus and exemestane so was wondering if anyone has tried…
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FML - ready to throw in the towel
I feel burned out by the bi-weekly infusions, fatigue and stress from this fucking disease. I get anxiety and cry at every needle prod. Being on medically induced menopause changed my personality. I am so depressed that I can no longer be reliable to go to my appointments on time. I am losing the desire to work out. Last…
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Mentally tired
I totally get this f’ing diagnosis comes with all sorts of side effects. I can deal with the physical ones (what’s another pill or two? 🙄), but how do you deal with the mental aspect of it? The stress of stage iv is no joke. Looking to see if anyone finds relief from something I haven’t tried yet. The last couple of weeks…
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Oligiometastatic Definition
I am having difficulty finding the actual definition of Oligiometastatic. Can lymph nodes be involved? I was stage 4 Her2 positive with 2 spots in my liver and some chest node involvement. My understanding is it meets the criteria if it is 1-5 organs so, any further clarification would be much appreciated. Thank you to my…