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New here, found out 4 days ago MBC
Hi all, I've written long posts on other discussion threads, but I'll keep it short here. I feel like I'll get more responses at this board till I know more about my dx and what other threads I need to check. I was dx 4 days ago with lung/abdomen and probably ureter mets. PET scan revealed. I'm not ready to hear stats…
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Ibrance 100mg and femara
Hi, I have an oligometastatic and I have been taking these medication for 6 months. My blood count white cells were sooo low that my doc decrease the dosis. And I felt much better. Although count doesn’t increase much. I have shots regularly to increase white cells. My energy levels are usually good. Sometimes I get sick…
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Anyone else with just liver mets
is there anyone else on the board with stage IV only in liver? It seems everyone else has liver and….bone,brain,etc. I’m not complaining but at age 77 keep wondering what’s next or if we are missing something. I feel so sad for the young women and feel I’ve had a full life and I know where I’m going when I die. Not in a…
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Diagnosed with MBC!
10 years ago, I was diagnosed with breast cancer. I had a lumpectomy, chemo, a mastectomy, radiation and reconstruction. In April of this year I was diagnosed with MBC. I am on Kisqali. After initial side effects, I have adjusted to the meds and have been asymptomatic. Physically I am doing okay. Emotionally I am a roller…
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Pneumonitis
I have been MIA for a while. Starting this new topic for those DX’d with pneumonitis while MBC. October 2020, my TX was changed to Afinitor and Exemestane. In November, I started to wake up at night feeling like I couldn’t breath. Afraid to lay back down, I would get up and sleep sitting up in my recliner. Due to CoVid,…
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Immerman Angels looking for someone with MBC and peripheral nerve sheath tumor
Hello everyone, Immerman Angels is looking for someone with MBC and peripheral nerve sheath tumor. For anyone interested, please reach out to us via private message or by e-mailing us at community@breastcancer.org.
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Going from Letrozole to Faslodex
I have been on Verzenio and Letrozole since my Stage 4 diagnosis 14 months ago. My Mets are in my left lung pleural lining and a node in my right axillary. I found out this week that my most recent PET/CT scan showed mild progression so my oncologist wants to keep me on the Verzenio but change me from Letrozole…
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Is anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)?
Hello, Is there anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)? Thanks.
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FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers
FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers Nov 17, 2023 Truqap is a new targeted therapy option for metastatic, hormone receptor-positive breast cancer with specific genetic mutations that has stopped responding to other hormonal therapy medicines. Read more… q
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NED Follow-up care
If you are NED. How often do you see your oncologis? How often do you have scans? What meds are you on?
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Promising New Treatment for Metastatic Breast Cancer
Promising New Treatment for Metastatic Breast Cancer Nov 2, 2023 Dr. Aditya Bardia discusses encouraging results from a study on a new medicine for hormone receptor-positive, HER2-negative breast cancer. At the European Society for Medical Oncology (ESMO) 2023 Congress Aditya Bardia, MD, MPH, presented results from the…
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Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers Nov 1, 2023 The experimental medicine Dato-DXd may be a new treatment option for certain metastatic, hormone receptor-positive breast cancers. Read more…
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Wishes Fulfilled, and a Legacy
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being a recipient of so many…
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Bone Mets and Told I Need Hip Replacement
I am in the ER and being told I need a hip replacement due to the bone mets. The ER is at my local hospital not the cancer center in Pittsburgh I go to. I came here due to hip and leg pain. The ER doc has a call into my oncologist in Pittsburgh. I want to hear what she says. I am very shocked and surprised by this turn of…
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NEW TO STAGE IV……WHAT ABOUT THESE TREATMENT DRUGS?
BONE METS AFTER 13 YEARS NED SUDDENLY IN TREATMENT AGAIN So in January 2023 My Oncologist sent me for scans following a high CANCER ANTIGEN 27.29 blood test, which I’ve gotten every 6 months with followups with him. Since 2009 until recently my CA 27.29 blood test was always Low ranging from 22 to 26, 27. It’s been like…
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Lets do a Sh*t People say to Metastatic BC Patients
Give me your best lines!! I want to make a fun video.
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Buckle up ladies, Puketober is upon us
Fall is my favorite season.. but I absolutely hate the pink washing that happens every October. And the anniversary of my 1st diagnosis is never a “fun” day. Ugh...31 days.. we can do this!
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Ibrance
I have been taken Ibrance with AI for over 2 years. I have bone only Mets when I first diagnosed as MBC. Ibrance worked very well in the first year and second and brought my CEA to 1-2 range. Since early this year, my CEA went up to 3, 4, and 5. My CEA lab yesterday is 7 and CA15-3 is 37. My CT/bone scan shows no changes…
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Chemo v. Targeted theraphy
Hello, this month I was diagnosed with MBC, pet scan shows bone met on several locations, 1.7 lungs nodule, and met on my chest lymph nodes. I am ER+(98%), PR-, HER2-. Biopsy on my fibula confirmed as cancer. My Onco recommended Abraxane chemo for 3 months and Zometa every month for 5 months. I saw my 2nd opinion doctor,…
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joint replacement while on Ribociclib
I have bone on bone osteoarthritis in my L shoulder which also is the side of my initial breast surgery and radiation in 2018. Currently I am on Ribociclib and Faslodex for recent mets to liver. My ortho is recommending joint replacement. Has anyone had a joint replaced while on these meds? Thanks,
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Progression after ribociclib (csk4/6i) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
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In Remembrance of Nicolerod
Sadly, our beautiful nicolerod passed away Friday evening, September 22. She’d asked her friend, member beesy_the_other_one, to let us know. I’m just so sad and heartbroken over the news. 💔
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My oncologist and disability opinion
I was originally diagnosed with 2B (++-) in 01/2014, 8 dose dense chemo, and 45 rads treatments. In 11/2021, I was diagnosed with MBC to pleura. They started my on Faslodex in 11/2021 and added Ibrance 9/2022. I’ve had a treatment failure and now have started Xeloda. The oncologist ran a Guardant 360 and the results…
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How to not be a negative person career-relationship wise?
Hello! Is it possible to resist the urge to punch your boss after he asks "but what about your career aspirations?" when you tell him you are not interested in going up the corporate ladder? Is it possible to dig oneself out of a hole: pushing loved ones away knowing you don't have long to live? Not wanting to meet new…
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tooth extraction
hello warriors. i saw the gallow's humour thread - love, love, love! what a great idea. today's question is: do any of you fine persons in our category have any experience with tooth extraction? i gots a molar that gots to come out, and am researching because at this moment in time, i don't trust my onco. i did a quick…
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osteonecrosis of the jaw
I have just found out that I have osteonecrosis of the jaw due to my Zometa infusions. I am currently taking pain killers, antibiotics and oral rinse. I'm having a hard time finding an oral surgeon who will see me. I'm curious about people's experience with this diagnosis, if treatment has been effective, and what…
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Mammograms and Colonoscopies
I'm only six months in on my stage IV diagnosis but I keep forgetting to ask my doctor about my upcoming 60th birthday and the dreaded colonoscopy. He already told me that I don't need to get mammograms but does that hold true for colonoscopies? (Fingers crossed).
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Anxious about mixed scan results
Hi all, ER+ HER2- with mets to lung, liver and bones for 6 years. Been on xeloda for about 4-5 months now and had my first scan, which showed significant improvement in all areas except for two stupid little bone mets. It worked in my lungs, liver, every other bone, aside from these 2 (one spot on hip and one in femur)…
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Bone Pain
I just posted in the wrong group by accident, now I have to explain this all over again, in this group, the right group. My hip/thigh bone and down my leg to my knee is aching. The groin area gets painful and I cannot get up off a chair or go up stairs very well. This started about 2 weeks ago. I just had a Lattimus Dorsal…
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Single or part of a couple? How different is the Stage IV journey?
Pure curiosity. I’m single. It seems as though the majority on here are coupled up but perhaps I’ve misread. Not a pity party, I promise. I just wonder if anyone else is going through this with friends and (adult or younger) children rather than a partner, and how they feel about it?