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Male Breast cancer
I have just joined this group, I have recently been dignosed with Metastatic Breast cancer, I am a male, do we have any Males in this group
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Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor
Those with HR+, HER2- MBC may find this interesting! The Phase 3 SONIA study of 1,050 patients with HR+, HER2- MBC evaluated progression free survival (PFS) and overall survival (OS) from the initiation of first line treatment through failure of second line treatment. It compared two groups of patients. One group took the…
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Under 45 with MBC Zoom Meetup: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Please remember to favorite/bookmark this thread for notifications of new posts If you haven't joined the group yet and just found this thread, feel free to join our virtual meet-up! Young (45 and under) with metastatic…
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Hylecta
Is anyone receiving Hylecta only? I was dx October 2011 with MBC. Was on Herceptin and Perjeta until August 2015. Then Herceptin only until 2019 when we switched to Hylecta. Hylecta was easy breezy. Until 2022 when we found some pesky small lung mets. Wondering if Hylecta was not a wise choice for someone with MBC. Thank…
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ESR1 mutation treatment options and new SERD/SERM research
Hello everyone, I was asked to start a thread about the ESR1 mutation that many ER+ survivors find in their genomic testing. I have the specific mutation of ESR1-Y537S. Which can make me not respond as well to AIs and even Faslodex shots according to my reading. This resistance to estrogen blocking therapies is something I…
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No one cares about this
I've become increasingly aware of the myths surrounding breast cancer, perpetuated by the media, and fed to the media usually by women that are only about 6-12 months out of treatment, declaring that they are 'cancer free'. We know that breast cancer is not this simple and easy - you can never know if you are cancer free -…
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New to The Group/Help
Hello everyone. I'm not sure if I posted here on this profile as I was locked out for while. After over 11 years of NED, I now have met to the bones, and ?????? Not sure where else yet. The pain began several months ago in a rib on my right side. X rayed, nothing. Pain went away. About a week after that pain subsided, I…
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Stage 4. Feeling ready to throw in the towel
hi everyone, Im feeling very defeated. I have been through several of the pill options and have started iv chemo (navelbine). I have been on iv chemo for 3 cycles and my tumor marker continues to climb. Now at 1210. Im so sick and tired of the fatigue, the headaches, the nausea, the anxiety etc etc etc. Im thinking of just…
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Headed to high school reunion
In a few weeks I will be attending my 50th high school reunion. Haven't been to one since 10th. The class was large , but I have a small group of BFFs . My hair has grown back from chemo, but it's still very short and curly /frizzy, instead of straight. It's also totally silver where before the last round of chemo it still…
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Hello Im new here.
Hi my name is Pam. Good morning. I'm just looking for support and advise or knowledge concerning my treatment. I was diagnosed in May of 2021 with metastatic breast cancer. I had breast cancer in2014 and had a right mastectomy and 12 rounds of chemo 5 years of anastrozole. Then this diagnosis. My oncologist started me on…
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Triple Negative Bone Mets, and ???
Hello everyone, I posted not long ago when it was discovered after 12 years of NED of have mets in the bones. I'm having a really hard time navigating this new forum, so I apologize in advance if I'm not posting in the right place. Never had issues "before." I'm sure I'll figure it out eventually lol. So of course I don't…
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De Novo newbie trying to not panic
Hi all. In Feb of this year I was diagnosed with IDC, hr +(over 95%) HER2 -. Large multifocal tumor in my right breast and one lymph biopsied positive as well. The tumor and lymph node were concerning enough to the surgeon I was sent to first that she ordered a pet CT which lit up in my breast, that one lymph node, and a…
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Joining the “Club”
Hello all, looks as though I’ll be joining the group as all indications are a recurrence of my BC after over 10 years of NED. I’ve been having “traveling” bone pain for several months now, and even though all the Dr’s knew of my BC history, no one until I visited my Oncologist recommended a CT. My Oncologist phoned a few…
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Side Effects From Long Term Treatment of Herceptin & Perjeta
Hi there, just wondering has anyone else developed Tinnitus and/or a collapsed vocal chord? I have been on treatment for 8 full years going into my ninth year.
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Mom joined the Stage IV now 💔
hi beautiful ladies My mom got recurrence last June, PET scan showed tiny nodule over the lunge due to age and other health issues the doctors did not do lung biopsy and decided to put her on letrozole and do another PET scan after 6 months to see the response so no staging since June Last week she did another PET scan and…
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Need some advise
My wife was diagnosed with stage 4 terminal breast cancer. 2 years ago. Versinio helped the spreading. Has stopped working and starting pigway. Can anyone give me an idea when symptoms will start if she is going to get them. I know this is a random question and been dealing with this a while. Small family not around and…
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Paying for drugs while on medicare
I am retired, age 75, single and on Medicare part D for drug coverage. The copays for Ckd4/6 like Verzinio and Ibrance are between $5,000- $7500 monthly which no one can afford. How do people on Medicare part D for drugs get help with paying for these drugs? I am reading conflicting info as relates to people on Medicare.…
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United Healthcare Employee Health Insurance
The company I work for is in the process of most likely being purchased by another company that has United Healthcare for their health insurance coverage. With my current employer I am on Blue Cross Blue Shield Gold and have been happy with that coverage so far. I was wondering if anyone had any knowledge of any problems…
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Can breast cancer stage 4 de novo defeated ?
Hello! I am from Romania and I received the diagnosis of breast cancer in September 2021 (in both breasts / stage 4 de novo with metastases in the axillary nodes / invasive ductal carcinoma / luminal B/ ER+ PR+ / HER2- / the genetic test is OK and I did not present genes mutant / I did chemotherapy, then radical masectomy…
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Any long-haulers living with bone mets?
Long story short: managed to get rid of my brain met. No mets in the rest of my organs. Scans showed bone mets shrinking. I read people with stage 4 BC with mets lived longer than those with mets on the organs, but could not find a difference in the asinine 5-year survival rate. Can anyone with bone mets here can confirm…
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Tukysa + Standard Care Improves Survival for HER2+ Brain Mets
Tukysa Plus Standard Care Improves Survival in People With HER2-Positive Brain Mets Feb 27, 2023 Tukysa plus the standard of care improved survival in people diagnosed with metastatic, HER2-positive breast cancer that had spread to the brain. Read more...
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Off Topic - A Family Matter
My stepson is in his 40s, married with a couple kids; one’s a teenager, one’s a tween. They live about three hours away from us. SS has been a part of my life since the late 1980s when he was a tween and I married his dad. He’s undergoing tests for some form of blood cancer. It doesn’t sound good. When Dh and I visited…
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Have not found the right doctor
I am on my 5th oncologist. He is an asshole (medical gaslighting). Good thing he left to practice at another facility. I am hoping the one to replace him won't gaslight me or would at least give a fuck about my wishes. To those who found the right one, how many oncologists did it took to find the right doctor?
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Positive specially for newly diagnosed
I am 3 years 8 months from my CT which diagnosed me with widespread pulmonary and chest metastasis. I had chemo , targeted therapy, chemo again then for 1 year I have been on no systemic treatment but had 2 brain surgeries , 1 SRS and this month diagnosis of some new brain lesions. I have been working all the time ( part…
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About metastases
Hello ! I am from Romania and I received the diagnosis of breast cancer in September 2021 (in both breasts / stage 4 with metastases in the axillary nodes / invasive ductal carcinoma / luminal B/ ER+ PR+ / HER2- / the genetic test is OK and did not show any mutated genes / I did chemotherapy, then radical masectomy of both…
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Numb Chin Syndrome - feeling terrified
Hi everyone, I hope this is OK, I am posting this on behalf of a dear friend with MBC, Maria. Shes sitting next to me as I type this but is feeling too overwhelmed to do this herself and asked me to post. Maria is 53 years old and was diagnosed stage IV in 2015. She currently has mets to her liver and bones (mainly bones…
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Another paid survey
Hi, everyone! This time they are looking for people who are ER+, Her2- who have been on hormone therapy but are no longer and are on second line or more. The list you've been on and are no longer includes Ibrance, Verzenio, Kisqali, and the following list. Please private message me if you're interested. If you have already…
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My New Treatments: Piqray and Orserdu
Today is Day Six on the former, Day Two on the latter. Wish me luck! Tina
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Piqray
hi, I would like to hear from people who are stage 4 and are taking piqray. I'm supposed to start this medication on Monday. It seems to have a lot of side effects. I guess all the treatments do. However, I would like to hear from people taking this. Thank you Melissa