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Bilateral Cataracts & P. Vitreal Separation
hi: Do you think mysituation Med related or metastatic cancer progression? I have stage 4 Mets x5 years on I/F therapy & Bilateral "RAPIDLY ADVANCING" Cataracts & posterior Vitreal separation (<1 mo. Apart) Rapidly advanced cataracts from grade 2-9 in ~ 6 mos. while taking Ibrance/Femara (I/F) combo for past 5 years with…
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Need Encouragement
This is my first time posting on here but wanted some encouragement. ❤️ I was diagnosed in Jan. 2022 with stage 4 her2 positive to liver. I recently have completed my chemo THP and my scans are all clear other than 2 small spots still decreasing in my liver.( which my dr. believes is scar tissue) My breast mass was quite…
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Weekly Taxol for Stage 4
I was wondering if there were any other Stage 4s doing weekly taxol. I know there is a group in the chemo forum, but most of them are doing for the 12 week cycle as part of primary treatment. According to my onc, I'll be doing weekly taxol until something changes, if you know what I mean . . . . Jennifer Edited 5/11/14: I…
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Am I the only one with super high tumor markers?
Hello. At the start of treatment in 2021, my tumor markers were in the 300 range. After each treatment failed. ( Ibrance then Piqray) my markers rose even higher. I just started Verzenio due to progression on Piqray. My Ca15-3 is 4900 and my Ca 27-19 is at 3576. I’d be more specific about treatments, but I am just too…
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Hysterectomy revealed additional mets in ovaries
Long time lurker here - can't tell you guys how much I appreciate following along on this journey. Bone mets were found in 2021, so I was on Verzino until I could no longer tolerate it, and then Ibrance since January 2022. I went in last week for a hysterectomy in order to stop taking the awful shots in my stomach to…
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15 years since diagnosis (de novo, oligometastatic)!
Sharing some news here. I responded to treatment with a complete remission and have been NED since 2008 although there is a spot they are monitoring on my left lung as first seen on my last scan (October 2021). I am still off the cancer meds and the spot hasn't grown so I'll continue to call myself NED. Of course, stable…
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12 years mbc
on July 19, I celebrated making it to 12 years. I was diagnosed with 2 liver mets, er-, her2+. I have been Ned for over 11 years and off all meds for over 7 years. When I was first diagnosed in 2010, I remembered reading that 2-3 % of stage 4 patients are “ cured” - ie- they get to Ned and remain there the rest of their…
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AIs being used by bodybuilders...
I was scanning the net reading about side effects on Aromisin and came across a whole lot of info on AIs being used by bodybuilders especially just prior to comepetition. It robs their body of estrogen so they can build mass. I found it ironic that for the last two years I have been working out so hard 4 times a week and…
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Lupron shot vs. oophorectomy
Hi all, I've been getting a Lupron shot every four weeks to suppress ovarian function so that I can be on Ibrance and Letrozole. Isn't medically induced menopause so much fun?? My MO said that it was my choice whether I wanted to continue to get this shot every four weeks forever, or to have my ovaries removed. I'm not…
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Info Sought: Exceptional responders and Outliers
As some may know, I am an individual member of the Metastatic Breast Cancer Alliance (MBCA) and have elected to be part of their Research Subcommittee. I've offered to look into a fascinating subject that I believe has been under-studied: namely, Exceptional Responders and Outliers. For purposes of this study: Exceptional…
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FDA Approves Enhertu for Unresectable or Metastatic HER2-Low BC
FDA Approves Enhertu for Unresectable or Metastatic HER2-Low Breast Cancer Aug 5, 2022 On Aug. 5, 2022, the U.S. Food and Drug Administration approved Enhertu to treat unresectable or metastatic HER2-low breast cancer. Read more...
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Olivia Newton John passes away at 73 (thread open to all)
I am not into the world of celebrity but I do notice when bc is the cause. May she Rest In Peace . https://www.nytimes.com/2022/08/08/arts/olivia-newton-john-dead.html
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Navigating Navelbine
I am starting this thread for the discussion of all things Navelbine. It's for those currently on it, those who have been on it, or will start it soon. I hope it will be a source of information, a guide to help with side effects, and a place to rant, vent, cry, scream, or cheer! I had my first treatment this morning. It…
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Wanted: Veteran Members of the Fanny Pack to Share Experiences
All, I'm eager to discuss the side effects of long-term IM injections with others who have been on Fulvestrant/Faslodex treatment for many years. Do you have increasing pain, discomfort and mobility issues? Have you suspected the cause to be repeated injections themselves rather than inept administration? Have you changed…
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Mets to lungs with pleural effusion.
Hi, I'm still here but haven't been on in awhile due to life situations. My lung Mets disappeared from PET/CT scans for 3 years but now 3 are back with one doubling in last 9 months to 2.1cm along with new pleural effusion. Scan says it's small and Onc feels like PE is caused by inflammation from large node that is leaking…
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Where are you now?
I'm MBC, but diagnosis is all screwed up. 😠 Where has everyone gone? I mean this...have you found another community forum to get info from others in same diagnosis/treatment. There is nothing much here anymore except complaints or funnies, lost the good advice and experiences.
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Male with MBC
I would like to introduce myself to this forum. I am a 67-year-old male was diagnosed with metastatic breast cancer in early 2020. oh I am being treated with tamoxifen and Ibrance I had two courses of radiation in 2020 on my spine. My cancer is under control at this point
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Abraxane
I was wondering about your experience on Abraxane I might be starting in a week or two and would love to hear any feedback. Please hugs to all.
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Bone mets diagnosed while pregnant
Hello all, I was diagnosed with BC in 2016, at 34. I am 40 now and 3,5 months pregnant with my first child. I ve had a severe back pain and also my CA 15-3 was slightly elevated. MRI of thoraic spine found a lesion in my sternum. This is all I know for now. I also know that if I want to stay pregnant, I can not have the…
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Mets lymph node., lung cancer, scan-nodal uptake.
Feb. 2022 Mets to a lymph node located one inch above my right breast mastectomy site in the chest wall. Treating with tamoxifen only. Dx'd with stage 1 lung cancer 4/2021. Treated with 5 SBRT radiations. 6/13/22 My recent pet scan there are multiple new sites of nodal uptake and increasing hypermetabolism in the left lung…
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20 years of Stage 4 MBC de novo!!!
Yay me! Today is the start of my 20th year of Stage 4 Metastatic Breast Cancer de novo! 20 years of chemo sure has been a challenge. And after 20 years of CT and PET scans, why don't I glow in the dark? Doing my best to hang in here and I sure have been Blessed!
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Feeling Inconsequential
I don't know if any of you feel this way, or if I'm just in a funk, or if I'm just a crazy person, but I'm feeling…inconsequential. I went to law school almost 20 years ago, and people I went to school with and worked with now have important jobs. Think federal appellate judge. And I have...MBC. I hated being a lawyer, and…
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I'm back..
7 Years of clean scans, finally stopped being my first and last thought of every day and here I freaking am. Mets on multiple vertebrae and probably in my right lung as well but not sure about that one yet, waiting on test results. At least my kids are grown this time.. but now I have grandbabies. I'm freaking out.
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10 years and wondering who has taken a break from treatment
hello! I have not been on the boards for a long long time. I had to take a break for my mental health, also because I have done extremely well, and then had to take care of my mother during her ovarian cancer diagnosis through her passing…. So today I met with my oncologist and he said since it has been 10 years since my…
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*spoiler alert* Thor: Love and Thunder
I can’t be the only one here who has a kid that’s obsessed with everything Marvel. In the new Thor movie, Jane Foster has MBC and dies at the end of the movie (after being a bad ass superhero for most of it). I’m on the fence whether or not my son should see the movie. Here’s an interesting article on it:…
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Twists and turns
The whole experience of stage 4 for me had been filled with twists and turns and just sheer dumb luck. Covid, delayed treatments, health issues. After attempting the oral chemo I was able to do three days before I ended up in the floor. I just ended a 12 day hospital stay where they have determined that there is no viable…
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11 years since original diagnosis
It almost escaped my notice but it was almost exactly 11 years ago that I was dx’ed with breast cancer. Although considered stage IIB initially, a bone met was found incidentally a mere six weeks later. The met was radiated and I have had no progression since. Time really does fly. I am incredibly grateful but my most…
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Concerned about progression
<sigh>. About 6 weeks ago I noticed a lump on the same side as my original diagnosis. I’m not sure if it’s something new, or scar tissue that I’ve already had a biopsy done to “prove” that it’s not a concern. I’ve noticed the same breast is shrinking in size (can cancer leave ANYTHING alone?!) so I’m not sure if it’s just…
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Hair
I was just on the zoom call and I wanted to ask why most everyone has hair. Lori was only one who mentioned losing hair. Mine was falling out byhandfull so we just shaved it short. Thank
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Stage IV - Mutation PIK3CA
Good afternoon. I would like to know which of you have this mutation? When did you find out? What treatment have you been following all this time? And is there anyone who did it? Read about Pikri. They have bad effects. Problems with blood sugar and people sit on it for no more than 5-7 months. So, there is no cure for…