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Paying for drugs while on medicare
I am retired, age 75, single and on Medicare part D for drug coverage. The copays for Ckd4/6 like Verzinio and Ibrance are between $5,000- $7500 monthly which no one can afford. How do people on Medicare part D for drugs get help with paying for these drugs? I am reading conflicting info as relates to people on Medicare.…
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United Healthcare Employee Health Insurance
The company I work for is in the process of most likely being purchased by another company that has United Healthcare for their health insurance coverage. With my current employer I am on Blue Cross Blue Shield Gold and have been happy with that coverage so far. I was wondering if anyone had any knowledge of any problems…
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Can breast cancer stage 4 de novo defeated ?
Hello! I am from Romania and I received the diagnosis of breast cancer in September 2021 (in both breasts / stage 4 de novo with metastases in the axillary nodes / invasive ductal carcinoma / luminal B/ ER+ PR+ / HER2- / the genetic test is OK and I did not present genes mutant / I did chemotherapy, then radical masectomy…
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Any long-haulers living with bone mets?
Long story short: managed to get rid of my brain met. No mets in the rest of my organs. Scans showed bone mets shrinking. I read people with stage 4 BC with mets lived longer than those with mets on the organs, but could not find a difference in the asinine 5-year survival rate. Can anyone with bone mets here can confirm…
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Tukysa + Standard Care Improves Survival for HER2+ Brain Mets
Tukysa Plus Standard Care Improves Survival in People With HER2-Positive Brain Mets Feb 27, 2023 Tukysa plus the standard of care improved survival in people diagnosed with metastatic, HER2-positive breast cancer that had spread to the brain. Read more...
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Off Topic - A Family Matter
My stepson is in his 40s, married with a couple kids; one’s a teenager, one’s a tween. They live about three hours away from us. SS has been a part of my life since the late 1980s when he was a tween and I married his dad. He’s undergoing tests for some form of blood cancer. It doesn’t sound good. When Dh and I visited…
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Have not found the right doctor
I am on my 5th oncologist. He is an asshole (medical gaslighting). Good thing he left to practice at another facility. I am hoping the one to replace him won't gaslight me or would at least give a fuck about my wishes. To those who found the right one, how many oncologists did it took to find the right doctor?
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Positive specially for newly diagnosed
I am 3 years 8 months from my CT which diagnosed me with widespread pulmonary and chest metastasis. I had chemo , targeted therapy, chemo again then for 1 year I have been on no systemic treatment but had 2 brain surgeries , 1 SRS and this month diagnosis of some new brain lesions. I have been working all the time ( part…
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About metastases
Hello ! I am from Romania and I received the diagnosis of breast cancer in September 2021 (in both breasts / stage 4 with metastases in the axillary nodes / invasive ductal carcinoma / luminal B/ ER+ PR+ / HER2- / the genetic test is OK and did not show any mutated genes / I did chemotherapy, then radical masectomy of both…
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Numb Chin Syndrome - feeling terrified
Hi everyone, I hope this is OK, I am posting this on behalf of a dear friend with MBC, Maria. Shes sitting next to me as I type this but is feeling too overwhelmed to do this herself and asked me to post. Maria is 53 years old and was diagnosed stage IV in 2015. She currently has mets to her liver and bones (mainly bones…
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Another paid survey
Hi, everyone! This time they are looking for people who are ER+, Her2- who have been on hormone therapy but are no longer and are on second line or more. The list you've been on and are no longer includes Ibrance, Verzenio, Kisqali, and the following list. Please private message me if you're interested. If you have already…
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My New Treatments: Piqray and Orserdu
Today is Day Six on the former, Day Two on the latter. Wish me luck! Tina
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Piqray
hi, I would like to hear from people who are stage 4 and are taking piqray. I'm supposed to start this medication on Monday. It seems to have a lot of side effects. I guess all the treatments do. However, I would like to hear from people taking this. Thank you Melissa
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Diet changes?
has anyone had success with reducing their bone mets or remission by changing their diet? I don't do refined sugar but it diesntseem to be enough.
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Progression and New Treatments
All, My most recent scans in early January indicated that my lung mets had enlarged considerably. I have stopped Faslodex after my nearly 12-year run and will beginPiqray together with another treatment which is still being worked out. I start the Piqray tomorrow. Any tips? There's not a lot of info on the thread here, but…
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Just started Verzinio bone mets
I just started verzinio yesterday at 50mg. I have lots of allergies to meds so we started at the lowest dose as a precaution. I am also taking letrozole, and zoladex with zometa infusions monthly. Any advice,cautions,things I should expect,things to avoid or do? I'm Nervous about the side effects.
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Join us: Younger with MBC Zoom Meetup
Hi all! Join us for a Zoom meetup for those who are Younger with MBC discussing the unique experiences that a stage IV diagnosis brings at a younger age. We'd love if you could join us on Thursdays bi-weekly at 1pm ET. Register in advance for this meeting: After registering, you will receive a confirmation email containing…
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Extensuve bone mets at 36 with a 2 year old toddler...
I am 36 years old with a 2 and a half year old, i was diagnosed with cancer at 34 and was 12 weeks pregnant with our 2nd child. The 1st biopsy the doctors did aborted my baby (7the miscarriage). I had been living with a lump in my breast for 4 years and during pregnancy that the doctors told me was a cyst. My mother passed…
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Another day, another lump
I am so fucking sick of this shit. Is this part of the disease to find another lump on a different breast. I have been taking Ibrance, Anastrozole and Zometa for this disease. I've changed my diet since I have been diagnosed 3 years ago along with supplementation prescribed by doctors. I exercise and managed to build more…
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Young Adults with MBC Zoom Thread: Place to keep chatting
This is a space held for our Young With MBC Zoom Meetup members to catch up in between meetups. To join the weekly virtual support group, Thursdays at 1pm EST, please register here. This thread has been discontinued and moved to:
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FDA Approves Orserdu for ER+ MBC (oral SERD)
FDA Approves Orserdu for Metastatic, Estrogen Receptor-Positive Breast Cancer Jan 27, 2023 The FDA has approved Orserdu, a new oral medicine to treat metastatic, estrogen receptor-positive, HER2-negative breast cancer with an ESR1 mutation. Read more....
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Newly Diagnosed
I’ve recently been diagnosed with Stage IV and am a nervous wreck. I’m still in the process of getting scans and a biopsy to determine the extent of it. I can’t seem to cope with the anxiety. How have people here dealt with the anxiety? I’m not sure how to reach some level of acceptance so as to carry on and do what I need…
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Information on GATA 3+ Cancer
Hello Friends, Thank you for accepting me in the group. I am ER+, HER2+ and GATA3 +. I was recently diagnosed (December 12, 2022) with Stage 4 Breast cancer with metastasis to Bones, lymph nodes and spleen. My chemotherapy regimen includes Trastuzumab(once every 3 weeks), Paclitaxel (every week) and Zoledronic acid (every…
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Metastatic or Terminal
Some posters have pondered what to call it. Many posters to this forum have wondered about this. When I tell people that I have Stage 4 Metastatic Breast Cancer, I get a whole range of reactions. Many do not know what Stage 4 means - to them, either you have cancer or you don't. Metastatic (it's all Greek to me) is usually…
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Has anyone been on Herceptin more than 15 years (or less)?
On and off this forum, I notice that many of you have been on Herceptin for a long time, When I was first diagnosed denovo, I started out with Herceptin, so it's been 15 years for me on the same drug. I receive it now every three weeks, and I've taken arimedex/anastrazole every day all that time, too. At the tine, I was…
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Kisqali Exemestane Xgeva Lupron
I am starting this regiment tomorrow and am hoping there are others out there that are currently on this same protocol or have been and can offer advice and knowledge of side effects, etc. pretty nervous about tomorrow, keeping a positive outlook and want to do anything and everything I can do to manage side effects and…
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Kisqali Exemestane
Hello, Anyone on a Kisqali and exemestane combo? I'm just finishing my first cycle--after 8 rounds of paclitaxel was getting to be too much for me, my onco and I decided to try this oral chemo. Noticing my hair thinning, which is extra upsetting as I cold-capped with the paclitaxel expressly because I did not want to lose…
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MBC Approved Treatments, Dealing with Side Effects, and More
Are you facing a treatment change and questioning what drug may be next on the list? Dealing with treatment-related side effects? Or wondering about cutting-edge research? If you answered Yes to any of these and want science-based information at your fingertips, read my book, "The Insider's Guide to Metastatic Breast…
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A break from BCO
Dear Friends, I'd like to start by wishing you all a happy, merry everything as we approach the holidays! BCO has been a wonderful place for me over the years and I truly appreciate the support and input I have received. Some of you may be aware of the fact that over the course of 11+ years I have been the recipient of…
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Digestive side effects from Verzenio
Hi there. I was initially diagnosed with Stage 3a HR+, Her2- breast cancer at the age of 39 (2004). Treatment included a mastectomy with 23 lymphnodes removed (1 positive one), typical AC/T chemo regimen, radiaction, and Tamoxifen for 5 years. I was in remission. Fifteen years later, almost to the day, I started to have…