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Cognition issues
Hello First post, from UK. Stage IV with bone mets, diagnosed 2022, after first multifocal diagnosis in 2018, mastectomy and DIEP. Stable so far with abemaciclib, denosumab and letrozole. Just started on Serena6 trial. I've been so impressed by the ballsiness of this forum and the amount of knowledge and critical thinking.…
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Lymphangitic Carcinomatosis - Can anyone relate?
I was just diagnosed on Friday (7/7/23) with suspected lymphangitic spread (lymphangitic carcinomatosis?) to the lungs after being stable with bone only mets for 3.5 years. I'm a little devastated after meeting with my MO. I'm just wondering if there is anyone else out there living with this? At this point I have more…
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How Many Are We?
The purpose of this thread is to count the number of people lurking or posting on this forum and gather some basic info. We are trying to get a sense of who is out there and add everyone to the collective cyber hug that is this MBC forum. This is not a thread for discussions. The only thing you need to put in the body of…
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All About Doxil
As I haven't seen a specific page related to just Doxil treatment, I thought I'd start one because that is likely my next treatment progression and I've seen little discussion of it here. So, who has been on Doxil? What were the SEs? How did it affect you after the treatment, i.e. how long were you not feeling well or…
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Skin mets
Hi all! I posted this on the Her2 thread but haven't got any responses yet, so I'll try it here. I just got diagnosed with skin mets. Woohoo! I'm Finding out its pretty uncommon. Tumor markers a few months ago were fine, as was all other blood work. Talked with MO about getting very close to that 5 year, take a breath,…
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A Sweet and Precious Time
I just wanted you to know that your tender messages have lifted my heart! I never anticipated such an outpouring of love from people across the world. To realize that numerous lives have been touched by my work brings me inexpressible joy. Thank you so very much for taking the time to reach out, as each and every note is…
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Is there anyone here on Margenza?
I have a friend who is about to start Margenza with the chemo Gemcitabine. She would like to know what she might expect with side effects and how this has worked for you. This is for mets to the liver. Thanks
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Morphine, Bone Pain, and Bone Loss in Metastatic Breast Cancer
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New kid on the block
Hi everyone. I just found out yesterday that breast cancer has returned after being on AI for 5 yrs and has metastasized to my liver. New treatment plan is Ribociclib and Fulvestrant. ☹️
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Bone Mets active again after 12 years
Hi all! Second treatment has now failed after 6 years (first lasted 6 years also) Ibrance/Faslodex/Zometa has done me right for quite awhile. Time to move on to the next option. Sad/scared/pissed/all of the rest of the emotions. Still planning on kicking it’s butt, but hate to have to restart.
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Travera
I may be overly optimistic, but I feel like I cannot share info about Travera enough. Travera testing can help to predict which cancer drugs are likely or unlikely to work for you. HOW AMAZING IS THIS? You might not have to go through the side effects, waiting, anxiety, etc. to wonder if a particular drug is going to work…
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How About A Stage 4 Gallows Humor Thread?
There used to be a gallows humor thread many years ago on this web site. I can't find it. There are many times I still rely on gallows humor in order to cope with my situation. I think my family appreciates it too. I have forgotten so many good zingers during all this time, but I'll start with some tee shirts I bought over…
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New to Piqray
I just started Piqray, 300 mg, 14 days ago. I am a type 2 diabetic. I have been able to manage my blood glucose without insulin. However, this piqray has done a number on my blood glucose. My endocrinologist started me on insulin, and started me at bedtime and before each meal. I go back to the endocrinologist and my…
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Male Breast cancer
I have just joined this group, I have recently been dignosed with Metastatic Breast cancer, I am a male, do we have any Males in this group
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Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor
Those with HR+, HER2- MBC may find this interesting! The Phase 3 SONIA study of 1,050 patients with HR+, HER2- MBC evaluated progression free survival (PFS) and overall survival (OS) from the initiation of first line treatment through failure of second line treatment. It compared two groups of patients. One group took the…
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Under 45 with MBC Zoom Meetup: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Please remember to favorite/bookmark this thread for notifications of new posts If you haven't joined the group yet and just found this thread, feel free to join our virtual meet-up! Young (45 and under) with metastatic…
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Hylecta
Is anyone receiving Hylecta only? I was dx October 2011 with MBC. Was on Herceptin and Perjeta until August 2015. Then Herceptin only until 2019 when we switched to Hylecta. Hylecta was easy breezy. Until 2022 when we found some pesky small lung mets. Wondering if Hylecta was not a wise choice for someone with MBC. Thank…
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ESR1 mutation treatment options and new SERD/SERM research
Hello everyone, I was asked to start a thread about the ESR1 mutation that many ER+ survivors find in their genomic testing. I have the specific mutation of ESR1-Y537S. Which can make me not respond as well to AIs and even Faslodex shots according to my reading. This resistance to estrogen blocking therapies is something I…
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No one cares about this
I've become increasingly aware of the myths surrounding breast cancer, perpetuated by the media, and fed to the media usually by women that are only about 6-12 months out of treatment, declaring that they are 'cancer free'. We know that breast cancer is not this simple and easy - you can never know if you are cancer free -…
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New to The Group/Help
Hello everyone. I'm not sure if I posted here on this profile as I was locked out for while. After over 11 years of NED, I now have met to the bones, and ?????? Not sure where else yet. The pain began several months ago in a rib on my right side. X rayed, nothing. Pain went away. About a week after that pain subsided, I…
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Stage 4. Feeling ready to throw in the towel
hi everyone, Im feeling very defeated. I have been through several of the pill options and have started iv chemo (navelbine). I have been on iv chemo for 3 cycles and my tumor marker continues to climb. Now at 1210. Im so sick and tired of the fatigue, the headaches, the nausea, the anxiety etc etc etc. Im thinking of just…
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Headed to high school reunion
In a few weeks I will be attending my 50th high school reunion. Haven't been to one since 10th. The class was large , but I have a small group of BFFs . My hair has grown back from chemo, but it's still very short and curly /frizzy, instead of straight. It's also totally silver where before the last round of chemo it still…
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Hello Im new here.
Hi my name is Pam. Good morning. I'm just looking for support and advise or knowledge concerning my treatment. I was diagnosed in May of 2021 with metastatic breast cancer. I had breast cancer in2014 and had a right mastectomy and 12 rounds of chemo 5 years of anastrozole. Then this diagnosis. My oncologist started me on…
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Triple Negative Bone Mets, and ???
Hello everyone, I posted not long ago when it was discovered after 12 years of NED of have mets in the bones. I'm having a really hard time navigating this new forum, so I apologize in advance if I'm not posting in the right place. Never had issues "before." I'm sure I'll figure it out eventually lol. So of course I don't…
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De Novo newbie trying to not panic
Hi all. In Feb of this year I was diagnosed with IDC, hr +(over 95%) HER2 -. Large multifocal tumor in my right breast and one lymph biopsied positive as well. The tumor and lymph node were concerning enough to the surgeon I was sent to first that she ordered a pet CT which lit up in my breast, that one lymph node, and a…
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Joining the “Club”
Hello all, looks as though I’ll be joining the group as all indications are a recurrence of my BC after over 10 years of NED. I’ve been having “traveling” bone pain for several months now, and even though all the Dr’s knew of my BC history, no one until I visited my Oncologist recommended a CT. My Oncologist phoned a few…
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Side Effects From Long Term Treatment of Herceptin & Perjeta
Hi there, just wondering has anyone else developed Tinnitus and/or a collapsed vocal chord? I have been on treatment for 8 full years going into my ninth year.
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Mom joined the Stage IV now 💔
hi beautiful ladies My mom got recurrence last June, PET scan showed tiny nodule over the lunge due to age and other health issues the doctors did not do lung biopsy and decided to put her on letrozole and do another PET scan after 6 months to see the response so no staging since June Last week she did another PET scan and…
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Need some advise
My wife was diagnosed with stage 4 terminal breast cancer. 2 years ago. Versinio helped the spreading. Has stopped working and starting pigway. Can anyone give me an idea when symptoms will start if she is going to get them. I know this is a random question and been dealing with this a while. Small family not around and…
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…