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Stage IV/Metastatic Breast Cancer ONLY

Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

 

Discussion List

• *spoiler alert* Thor: Love and Thunder

  I can’t be the only one here who has a kid that’s obsessed with everything Marvel. In the new Thor movie, Jane Foster has MBC and dies at the end of the movie (after being a bad ass superhero for most…

  32 views

  0 point

  Started by LI77

  Jul 14, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Twists and turns

  The whole experience of stage 4 for me had been filled with twists and turns and just sheer dumb luck. Covid, delayed treatments, health issues. After attempting the oral chemo I was able to do three …

  11 views

  7 comments

  0 point

  Started by bettysgirl

  Most recent by bettysgirl

  Jul 9, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• 11 years since original diagnosis

  It almost escaped my notice but it was almost exactly 11 years ago that I was dx’ed with breast cancer. Although considered stage IIB initially, a bone met was found incidentally a mere six weeks late…

  397 views

  16 comments

  0 point

  Started by exbrnxgrl

  Most recent by screech

  Jul 8, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Concerned about progression

  <sigh>. About 6 weeks ago I noticed a lump on the same side as my original diagnosis. I’m not sure if it’s something new, or scar tissue that I’ve already had a biopsy done to “prove” that it’s not a …

  15 views

  5 comments

  0 point

  Started by finallyoverit

  Most recent by finallyoverit

  Jul 5, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Hair

  I was just on the zoom call and I wanted to ask why most everyone has hair. Lori was only one who mentioned losing hair. Mine was falling out byhandfull so we just shaved it short. Thank

  2471 views

  93 comments

  0 point

  Started by ohionana1605

  Most recent by cowgal

  Jun 30, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Stage IV - Mutation PIK3CA

  Good afternoon. I would like to know which of you have this mutation? When did you find out? What treatment have you been following all this time? And is there anyone who did it? Read about Pikri. The…

  203 views

  12 comments

  0 point

  Started by savaloko

  Most recent by olma61

  Jun 28, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Not mentally well- how to deal with the stress

  This week, while getting one of my infusions, I was in so much pain that I asked the nurse if she knew if euthanasia waa legal in the current state. She responded that it's not and walked away. Ended …

  181 views

  4 comments

  0 point

  Started by lotusnoiramethyst

  Most recent by lotusnoiramethyst

  Jun 27, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Solid Lung Nodules

  Hi Ladies, I hope you are all doing well. It's been a long time since I've posted anything so I hope you forgive my absence. At my catscan in October they found several small 2-3 mm lung nodules. My o…

  417 views

  7 comments

  0 point

  Started by nowaldron

  Most recent by exbrnxgrl

  Jun 26, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• I cant wait until the Oncologist contacts me

  I had a bone scan today because my tumor markers have been increasing and this is what the report says. Do you know what it could mean? Am i understanding it correctly? Has my cancer gone to the bones…

  84 views

  3 comments

  0 point

  Started by scatteredenergy

  Most recent by scatteredenergy

  Jun 21, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Trodelvy Improves Progression-Free Survival for HR+, HER2- MBC

  Trodelvy Slightly Improves Progression-Free Survival for Pre-treated Metastatic Hormone Receptor-Positive, HER2-Negative Breast Cancer June 8, 2022 Trodelvy (chemical name: sacituzumab govitecan-hziy)…

  96 views

  0 point

  Started by moderators

  Jun 11, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Let’s Talk About The Dostarlimab Trial Results Making News

  While only tried on 18 rectal cancer patients and not breast cancer, results were all 18 saw tumors vanish.It’s referred to as immune checkpoint inhibitors. No adverse side effects. They say it could …

  31 views

  13 comments

  0 point

  Started by divinemrsm

  Most recent by BevJen

  Jun 11, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Lobular Oncologists in the Dallas Area

  Hi there, First time posting but been lurking for the past 5 years since my diagnosis. We are moving to the Dallas area (East of Dallas) and looking for an oncologist or a clinic for my lifetime treat…

  1 views

  5 comments

  0 point

  Started by terrynw

  Most recent by fredntan

  Jun 11, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Many Black MBC Patients Never Informed About Clinical Trials

  Many Black Metastatic Breast Cancer Patients Never Informed About Clinical Trials June 8, 2022 Many Black people diagnosed with metastatic breast cancer never find out about clinical trials from their…

  4 views

  0 point

  Started by moderators

  Jun 11, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Feeling offended

  Let me say before I type any more, I am not directing this gripe to anyone in particular. I just need to vent and only my stage iv sisters would understand. My sincere apologies if I offend anyone, th…

  33 views

  10 comments

  0 point

  Started by finallyoverit

  Most recent by nkb

  Jun 8, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Pls some positive stories. There have to be some

  had stage 3 TNBC. Hit me hard w all the treatments. Found spot they were sure was arthritis. Small spot in pelvis area. Told yesterday stage 4. They are 80% sure it’s cancer. I’m focusing on the 20% c…

  2476 views

  55 comments

  0 point

  Started by dlittkemann

  Most recent by exbrnxgrl

  Jun 8, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Enhertu Improves Survival in People With HER2-Low MBC

  A New Standard of Care? Enhertu Improves Survival in People With Metastatic HER2-Low Breast Cancer June 6, 2022 Compared with doctors' choice of chemotherapy, Enhertu (chemical name: fam-trastuzumab-d…

  11 views

  0 point

  Started by moderators

  Jun 8, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• UGH- felt a lump

  During a shower last night, I felt a lump on my “bad” side. Part of me wants to ignore it. I keep feeling it to see if it really feels like a lump, or maybe something different. Yup, in denial.

  63 views

  0 point

  Started by finallyoverit

  Jun 6, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• How quickly do tumor markers drop during treatment?

  I have been on Abraxane since the end of September. My tumor markers dropped but they are dropping slowly. I haven’t seen my MO to ask him since I saw my last marker so I’m asking all you knowledgeabl…

  480 views

  17 comments

  0 point

  Started by JACK5IE

  Most recent by chico

  Jun 1, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Travellers insurance advice

  hi. I know I've seen some of you planning wonderful trips. I've searched but not found any specifics here about traveller's insurance for international travel. If all goes well (and I manage to renew …

  47 views

  2 comments

  0 point

  Started by dancemom

  Most recent by dancemom

  May 31, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• OSTEO NECROSIS due to bone meds?

  I've posted several times in the past using ZOMETA as a subject. I am stage 4, still on chemo and ARIMIDEX every three weeks. Since 2009, I was receiving an infusion of ZOMETA every 12 weeks. I began …

  326 views

  48 comments

  0 point

  Started by amontro

  Most recent by amontro

  May 28, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Xeloda advice

  Hi all, I see there is an active thread on Xeloda but it’s been going for a long time so a lot of the information is buried. I started Xeloda today. I’m on a 7/7/7/7 regimen. Would love advice and/or …

  265 views

  3 comments

  0 point

  Started by LGinNYC

  Most recent by kbl

  May 28, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Receiving chemo despite low ANC ? - experiences urgently needed

  Dear all, 7.5 yrs since MBC diag. Very widespread bone mets & numerous (small) liver. Recently on Abema, worked well for 1yr, but stopped working. ANC (neutro count) is still low here 2.5 weeks since …

  73 views

  3 comments

  0 point

  Started by simhansen

  Most recent by simhansen

  May 26, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• ​Keto? Mediterranean? No sugar? No fat? No processed foods?

  I have been reading studies about how diet affects breast cancer growth and have been bouncing between them in my head and daily life. Some studies, such as keto diet, seem to contradict each other, w…

  139 views

  21 comments

  0 point

  Started by kitkit

  Most recent by divinemrsm

  May 24, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Help needed for Treatment options (if any)..

  I am a recent member of the group and was diagnosed with De Novo stage IV, Triple negative with mets in liver and lungs. I was diagnosed in Oct 2020. i belong from Pakistan and my doctors are of the o…

  103 views

  4 comments

  0 point

  Started by nadeem99

  Most recent by elderberry

  May 18, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Skin mets thread-is there one?

  cannot find a way of searching to see if this exists. If this thread exists, can someone please send me a link. thank you! D

  123 views

  5 comments

  0 point

  Started by dancingdiva

  Most recent by SerenitySTAT

  May 17, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Nasty red itchy rash- skin mets??

  I’ve have a bad rash jumping around from back to one arm and another arm. Leaves one place and goes to another. Now I’ve had it to my upper chest and neck. I don’t think it’s a rash anymore. This is s…

  108 views

  0 point

  Started by dancingdiva

  May 17, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• 

  side effects: arimidex or ibrance?

  good evening and Beltane greetings 💖 tonight's question is: if you are experiencing se's and are taking one or more drugs, how do you establish which one is causing the effects? i've been taking arim…

  12 views

  7 comments

  0 point

  Started by edge_of_no_return

  Most recent by edge_of_no_return

  May 13, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• Anyone doing this MBC thing alone?

  or just me?

  59 views

  26 comments

  0 point

  Started by finallyoverit

  Most recent by sadiesservant

  May 13, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• After 9 years ... I have been released from Herceptin!

  Hello everyone I have not posted in a while but wanted to give an update. My oncologist who has treated me for the last 9 1/2 years abruptly resigned last month. I decided to get another opinion at th…

  288 views

  42 comments

  0 point

  Started by JeninMichigan

  Most recent by olma61

  May 6, 2022

  Stage IV/Metastatic Breast Cancer ONLY
• TNBC in supraclavicular lymph nodes *only*??

  Hi All, My wife recently got NED from stage 4 TNBC that was in her spine. However, her most recent PET showed 3 lymph nodes on either side of her neck with activity, and a biopsy confirmed cancer. Wha…

  48 views

  6 comments

  0 point

  Started by ap3

  Most recent by ap3

  May 3, 2022

  Stage IV/Metastatic Breast Cancer ONLY