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Anyone with Rib mets get pain in back - What do you do?
Hi, I have bone mets and noticed recently the right side in the back and front hurt - like it gets fatigues and then hurts, if I rest with a heating pad its better, but hurts if I am doing things. Does anyone experience and how do you manage it? It can be limiting.
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Swollen glands - Ibrance -Letrozole
hi It's my week off of Ibrance can't turn my head, swallow without pain my jaw also hurts.99.7 temp , chills. Is this a side effect? Anyone have this?
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How many are Stage Iv Lobular?
I'm just checking to see how many are Stage IV Lobular? How long and how are you doing? It's a bit different than ductal.it seems Lobular is harder to find on scans. I’m new so looking to get any advice and tips. TIA
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Poll - How old were you when dx with BC
I am just curious to find out how old all of you were when first being dx'ed with BC (I don't need to know the year, I hate math so I wouldn't try to figure out how old you are now anyway). It just bothers me that they are still promoting waiting until you are 40 to get a mammo. I was 29 when I was first dx with BC, 34…
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De Novo Oligometastic- What treatments have you chosen?
Hi all! I hope there is not already a forum for this. If there is, I couldn't find it! I am newly diagnosed (June 2021) and oligometastic- 1 met on my L4. I also have 3 positive nodes. I am currently on Faslodex and Kisqali. ER+/PR+ HER-. I had my ovaries removed a month ago. I am trying to research the choices of staying…
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Radiation for stage 4 very painful
On the eve of being 10 years cancer free after Stage 2 lobular I am now joining you in the fight of my life. I am on Ibrance and letrozole and started radiation on my back and hip this week. There are innumerous tumors in my spine with the biggest around L2-L4. When I got home yesterday after radiation I thought I would…
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Poll on Mets/Just curious?
I am just curious on how many members have mets? And to what location on the body? Thanks in advance for participating. Rebecca
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Quitting work in my 40's?
Hello all, apologies in advance for such a long post, I was diagnosed stage III back in 2014 at age 34, and had a contralateral axillary recurrence in 2017. That recurrence was considered stage IV since it was on the opposite side as my original cancer (and genetic testing showed that it was almost definitely the same…
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Abraxane (chemotherapy)
I couldn’t find a thread that pertains just to Abraxane, so I started this one. I am on Abraxane since September 2021 (after a horrible 3 months on Piqray that didn’t work). I seem to mostly be tolerating it well, however with bouts of dizziness, constant clogged ears, occasional eye flashes and of course fatigue. Just…
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CT Aid In Dying Bill - Whats Your Take?
I am starting this thread without much research because I just learned that Connecticut is dealing with an Aid In Dying bill. I also just went on the DeathWithDignity.org website and signed a petition to help get the bill through. Right now, I'm not six months away from the end, or am I? Having Stage 4 Denovo since 2008, I…
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Fluctuating Alkaline Phosphatase
My ALP is within normal limits, 105 (40-156), but it fluctuates up and down in the normal range consistently. Last month it was 70 and the month before that it was 100. Is this normal? Every time anything heads in the wrong direction I freak out. You’d think I’d be used to this crap by now. Jackie
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Switching between chemo and hormonals - is this possible?
Hi everyone, would greatly appreciate some advice and thank you for listening and all your expertise. I visit every day, but don’t really post. I’m currently on abraxane, (about to start my 5th cycle)due to go a couple more cycles. I’m wondering if it is possible to be put back on hormonals after this finishes? I have only…
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Both HER2+ and HER2-
Hello everyone! I just received news that I have been taken off my clinical trial that was due to start soon, as the trial lab tested the segment of my tumor as HER2-, whereas my cancer center lab tested it as HER2+. Both labs designated it ER/PR+ still. I am really confused and it's difficult to find information on having…
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Ibrance/Exemestane
I just started Ibrance/Exemestane (only the first month) when is it typical to see results? Is it after 3 months? Thank you, keeping fingers crossed here.
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New De Novo diagnosis
I was just diagnosed yesterday with de novo MBC. The PET scan showed "1. large hypermetabolic left breast mass, consistent with invasive ductal carcinoma. Regional nodal metastatic disease to the left axilla. 2. Numerous lyctic osseous metastases. Many of these are small, but a lesion in the L2 vertebral body show…
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Stage IV MBC with Type 2 Diabetes
I was diagnosed May 21, 2021 with metastatic breast cancer that has spread to my chest. In addition, I have type 2 diabetes. I've noticed that since starting iBrance and Letrozole my blood sugars are running high. I'm curious if anyone else in the same situation has experienced this as well. I'm also in a clinical trial,…
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You've got to see this AGT video, Stage iv Sisters!
When she stood on stage, beautiful and skinny, with uber-short hair, I knew she was one of us. Her original song "It's Ok" is amazing, and so is her voice. Be sure you watch the interview part, too. When someone asked her, 'How are you now?" I wondered how in the world she would answer. She matter-of-factly told them, "I…
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xeloda
OK I've searched for aa topic xeloda and got nothing- pretty sure there is and waiting on that new website!!! So far, doing OK. BUT, getting that first dose in is HARD! I DO NOT awake before 8 am and am not running to get something to eat. So 12 hours apart is not happening. What do people do?
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Blood biopsy - nothing detected ?
hi! Has anyone done the liquid (blood) biopsies through foundation one and had it come back with nothing? My body and bones show NED but 3 wks ago two BrainMets showed up. I was just wondering if that's happened to anyone else? Thanks!
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Tomivosertib trial
Hi all! I was looking for some information about Tomivosertib and there doesn't seem to be any here on BCO, so I will start a new thread, hopefully others will join me. I will be starting a trial of this drug in a few weeks, it is given with Paclitaxol. here is a link to the US trial information Tomivosertib trial
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Lymph nodes and PET
had a PET scan - anybody has any idea why a couple of lymph nodes can light up ( SUV 3-4) while the lessons themselves appear to be inactive/possibly scars?
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Managing risk while being immunocompromised
My oncologist told me that I'm considered immunocompromised, which wasn't surprising. But I asked for clarification and she didn't have much to offer, she only said I was more prone to infection and that it was hard to quantify the risk. So....now what? I'm not sure how to manage this unknown level of risk. I don't have…
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Genomic testing for stage IV
This is a thread for discussing next generation sequencing and molecular profiling of metastatic tumors through tests such as Foundation One, Caris etc. We can talk about the tests themselves as well as what the results mean and how they might affect treatment options.
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Costochondritis, Nerve Pain?
I am currently on Abraxane. For the past couple of months I have a few spots on/near my rib cage that is tender/painful to touch. There are two on my right side and one on my left. It seems to become the most prevalent after my Abraxane treatment. It feels like it’s a movable nerve or something to me. I have felt something…
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High ferritin levels and anemic
I have been anemic (of inflammation not iron) My ferritin levels are off the chart (5100, normal is 200) My Onco wants to get a PET scan asap because he's pretty sure of progression. My question is, when they took my blood work it was 1 week after radiation. Radiation definitely causes inflammation. Can someone give me…
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Requesting work accommodations?
Since my MBC diagnosis, I've been fortunate to be able to work from home (only upside to the pandemic). My employer now wants us to start returning to the office, and I am struggling with some serious fatigue from my meds. I want to talk with my MO about possible work accommodations, as in only working virtually, but I'm…
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Telling people??
Just diagnosed with Mets to spine after being 4 years out from Stage 1. Blindsided and devastated to say the least. Just told my kids tonight (husband and immediate family also know) and it went ok, but wondering about work and other friends. I’ve been lurking for a while and I know you ladies are a wealth of information.…
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Who's on Kadcyla/TDM1?
I've found some older threads about Kadcyla/TDM1, but it's hard to tell who's still on the drug and how they're doing. Can we start a new thread for those of us who are currently on it? I'll be starting Kadcyla Monday after failing PH. PHT worked great until I dropped the Taxotere; then, I had progression when I was just…
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If Ibrance failed for you, what was next in line?
Hi everyone. Looks like I'll be moving on from Ibrance. A PET scan on 3/18 will confirm this but it looks to be the case. My question is that if Ibrance failed for you, what drug or drugs were next and where was your progression? Thanks.
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scanxiety and health portals
So a few issues- this has been a tough week. I feel great - no bone pain, better breathing and normal labs. I saw my ophthalmologist and my right eye mets have improved or resolved- GREAT news. Went for scans on Tuesday and had results sent to me through my patient portal today!!! The portal sent me an email and I looked -…