-
I'm back..
7 Years of clean scans, finally stopped being my first and last thought of every day and here I freaking am. Mets on multiple vertebrae and probably in my right lung as well but not sure about that one yet, waiting on test results. At least my kids are grown this time.. but now I have grandbabies. I'm freaking out.
-
10 years and wondering who has taken a break from treatment
hello! I have not been on the boards for a long long time. I had to take a break for my mental health, also because I have done extremely well, and then had to take care of my mother during her ovarian cancer diagnosis through her passing…. So today I met with my oncologist and he said since it has been 10 years since my…
-
*spoiler alert* Thor: Love and Thunder
I can’t be the only one here who has a kid that’s obsessed with everything Marvel. In the new Thor movie, Jane Foster has MBC and dies at the end of the movie (after being a bad ass superhero for most of it). I’m on the fence whether or not my son should see the movie. Here’s an interesting article on it:…
-
Twists and turns
The whole experience of stage 4 for me had been filled with twists and turns and just sheer dumb luck. Covid, delayed treatments, health issues. After attempting the oral chemo I was able to do three days before I ended up in the floor. I just ended a 12 day hospital stay where they have determined that there is no viable…
-
11 years since original diagnosis
It almost escaped my notice but it was almost exactly 11 years ago that I was dx’ed with breast cancer. Although considered stage IIB initially, a bone met was found incidentally a mere six weeks later. The met was radiated and I have had no progression since. Time really does fly. I am incredibly grateful but my most…
-
Concerned about progression
<sigh>. About 6 weeks ago I noticed a lump on the same side as my original diagnosis. I’m not sure if it’s something new, or scar tissue that I’ve already had a biopsy done to “prove” that it’s not a concern. I’ve noticed the same breast is shrinking in size (can cancer leave ANYTHING alone?!) so I’m not sure if it’s just…
-
Hair
I was just on the zoom call and I wanted to ask why most everyone has hair. Lori was only one who mentioned losing hair. Mine was falling out byhandfull so we just shaved it short. Thank
-
Stage IV - Mutation PIK3CA
Good afternoon. I would like to know which of you have this mutation? When did you find out? What treatment have you been following all this time? And is there anyone who did it? Read about Pikri. They have bad effects. Problems with blood sugar and people sit on it for no more than 5-7 months. So, there is no cure for…
-
Not mentally well- how to deal with the stress
This week, while getting one of my infusions, I was in so much pain that I asked the nurse if she knew if euthanasia waa legal in the current state. She responded that it's not and walked away. Ended up having a private conversation with the head nurse. I apologized about my comments because I freaked out that nurse. Got…
-
Solid Lung Nodules
Hi Ladies, I hope you are all doing well. It's been a long time since I've posted anything so I hope you forgive my absence. At my catscan in October they found several small 2-3 mm lung nodules. My oncologist said not to worry as they were most likely nothing. I had my next 6-month scan just last week and they found…
-
I cant wait until the Oncologist contacts me
I had a bone scan today because my tumor markers have been increasing and this is what the report says. Do you know what it could mean? Am i understanding it correctly? Has my cancer gone to the bones? TIA
-
Trodelvy Improves Progression-Free Survival for HR+, HER2- MBC
Trodelvy Slightly Improves Progression-Free Survival for Pre-treated Metastatic Hormone Receptor-Positive, HER2-Negative Breast Cancer June 8, 2022 Trodelvy (chemical name: sacituzumab govitecan-hziy) slightly improved progression-free survival in people diagnosed with metastatic hormone receptor-positive, HER2-negative…
-
Let’s Talk About The Dostarlimab Trial Results Making News
While only tried on 18 rectal cancer patients and not breast cancer, results were all 18 saw tumors vanish.It’s referred to as immune checkpoint inhibitors. No adverse side effects. They say it could signal a paradigm shift in cancer treatment. What might this mean for those of us living with mbc? Would love to hear your…
-
Lobular Oncologists in the Dallas Area
Hi there, First time posting but been lurking for the past 5 years since my diagnosis. We are moving to the Dallas area (East of Dallas) and looking for an oncologist or a clinic for my lifetime treatment. MD Anderson doesn't have any location in Dallas, odd. And they don't have any referral to a cancer center either. And…
-
Many Black MBC Patients Never Informed About Clinical Trials
Many Black Metastatic Breast Cancer Patients Never Informed About Clinical Trials June 8, 2022 Many Black people diagnosed with metastatic breast cancer never find out about clinical trials from their doctors even though most of them are open to participating in one. Read more...
-
Feeling offended
Let me say before I type any more, I am not directing this gripe to anyone in particular. I just need to vent and only my stage iv sisters would understand. My sincere apologies if I offend anyone, that is truly not my intention. I am young (under 50) with a Stage IV diagnosis. I’m grateful that I’m doing well, but I can…
-
Pls some positive stories. There have to be some
had stage 3 TNBC. Hit me hard w all the treatments. Found spot they were sure was arthritis. Small spot in pelvis area. Told yesterday stage 4. They are 80% sure it’s cancer. I’m focusing on the 20% chance it’s not but they need to treat it of course. I have a 5 year old. I have to be here to see him at least grown and…
-
Enhertu Improves Survival in People With HER2-Low MBC
A New Standard of Care? Enhertu Improves Survival in People With Metastatic HER2-Low Breast Cancer June 6, 2022 Compared with doctors' choice of chemotherapy, Enhertu (chemical name: fam-trastuzumab-deruxtecan-nxki) improved both progression-free survival and overall survival in people diagnosed with previously treated…
-
UGH- felt a lump
During a shower last night, I felt a lump on my “bad” side. Part of me wants to ignore it. I keep feeling it to see if it really feels like a lump, or maybe something different. Yup, in denial.
-
How quickly do tumor markers drop during treatment?
I have been on Abraxane since the end of September. My tumor markers dropped but they are dropping slowly. I haven’t seen my MO to ask him since I saw my last marker so I’m asking all you knowledgeable people. This is how much they have been dropping. Is this too slow? This last time they didn’t drop from previous check.…
-
Travellers insurance advice
hi. I know I've seen some of you planning wonderful trips. I've searched but not found any specifics here about traveller's insurance for international travel. If all goes well (and I manage to renew my passport on time! Ugh, pandemic made me neglect so much) we hope to visit family this summer. I will be a few months out…
-
OSTEO NECROSIS due to bone meds?
I've posted several times in the past using ZOMETA as a subject. I am stage 4, still on chemo and ARIMIDEX every three weeks. Since 2009, I was receiving an infusion of ZOMETA every 12 weeks. I began having "problems" in my mouth shortly after. I complained to my ONCOLOGIST and she wanted me to stay on it. Due to the side…
-
Xeloda advice
Hi all, I see there is an active thread on Xeloda but it’s been going for a long time so a lot of the information is buried. I started Xeloda today. I’m on a 7/7/7/7 regimen. Would love advice and/or info that is helpful for a newbie.
-
Receiving chemo despite low ANC ? - experiences urgently needed
Dear all, 7.5 yrs since MBC diag. Very widespread bone mets & numerous (small) liver. Recently on Abema, worked well for 1yr, but stopped working. ANC (neutro count) is still low here 2.5 weeks since stopping (0.8) I need to receive IV chemo, but my neutros in general seem to struggle. Thus I am seeking experiences about…
-
Keto? Mediterranean? No sugar? No fat? No processed foods?
I have been reading studies about how diet affects breast cancer growth and have been bouncing between them in my head and daily life. Some studies, such as keto diet, seem to contradict each other, with fierce advocates on all sides.I thought it might be helpful for us to share the type of diet (not for weight loss, but…
-
Help needed for Treatment options (if any)..
I am a recent member of the group and was diagnosed with De Novo stage IV, Triple negative with mets in liver and lungs. I was diagnosed in Oct 2020. i belong from Pakistan and my doctors are of the opinion that my cancer has spread too much for them to do anything (chemo,Radiation,Immunotherapy) about it. I am writing…
-
Skin mets thread-is there one?
cannot find a way of searching to see if this exists. If this thread exists, can someone please send me a link. thank you! D
-
Nasty red itchy rash- skin mets??
I’ve have a bad rash jumping around from back to one arm and another arm. Leaves one place and goes to another. Now I’ve had it to my upper chest and neck. I don’t think it’s a rash anymore. This is so itchy and red and dry. I’m finding it hard to find info on this. Has anyone had this experience and was it skin mets?? D
-
side effects: arimidex or ibrance?
good evening and Beltane greetings 💖 tonight's question is: if you are experiencing se's and are taking one or more drugs, how do you establish which one is causing the effects? i've been taking arimidex & ibrance just since dec 2021 and have crashed in the last few weeks - can't get out of bed. unacceptable as i work.…
-
Anyone doing this MBC thing alone?
or just me?