Meet others concerned about developing a recurrence or metastases.
Nearly 14 years after my initial diagnosis, I'm back at the rodeo. My tumor markers are up, and some pain in my leg that I thought was due to gait issues or sciatica is likely bone pain. I saw my MO today, and she said that the description of the pain is consistent with bone mets. Tomorrow, I will get called about when my…
Hey all, Just wondering how many lymph node positive survivors there are out there and how many years out? Also have many of you experienced recurrence during that time? Or if you haven't what have you changed in terms of lifestyle, diet, exercise etc..
Going through a lengthy incidentally found pulmonary nodule diagnostic journey (8 mm, low avidity on PET, nothing else lit up). It was found on a cardiac CT for high LDL (perfect score, no statin 🤪). Followup CT to prep for biopsy says nodule most likely benign but a few additional micronodules were found, scattered in my…
I am currently 7 years out and have just recently stopped living in constant fear of recurrence. Update to that progress tonight….Recently I have been noticing that if I rest my arm/elbow on some thing, armrest, table, etc. I get pins and needles in my hands. I started checking with Dr Google and down the rabbit hole I…
6 years out from 2b/3a dx— treatment was masectomy with total axillary nodal dissection, chemo, rads and still on arimidex. I recently discovered a hard pea size lump a couple of inches under my collar bone about an inch from my arm pit. My oncology nurse practitioner couldn't find it during our visit and I couldn't find…
Hello, I am a close relative of a young woman who was recently operated on for HER2-positive, ER/PR-negative pleomorphic lobular breast cancer, with a Ki67 of 12%. The tumor was large, 93 mm, and 6 out of 11 axillary lymph nodes showed metastases. Blood-based testing has also indicated evidence of spread. The tumor was…
I went into the er for kidney pain, and we did find a stone. But in that scan they found “2 areas expansile mixed lytic sclerotic density in the right anterior 6th and 7th ribs. These are new from 2023. Suspicious for pathologic lesions.” And I’m scared. So scared. I got home from the er Thursday night and called oncology.…
I would like to know if anyone has experienced severe rectal pain and burning and then diagnosed with spinal mets. I had ILC in the left breast and had a mastectomy in January 2023. I had radiation in May and June 2023. There was spread to one node. I was placed on Anastrozole, changed to Exemestane and then finally to…
So I was diagnosed 6 years ago.. it was stage 1 grade 1 IDC no lymph node involvement.. my doctors did not give me an oncotype test.. I had a lumpectomy radiation and an aromatase inhibitor for 5 years.. is there any reason that they don't give that test?.. I wouldn't mind knowing what my recurrence risk is I don't…
if there is anybody out there, who sees this who has or had bone met, and would like to let me know what your symptoms or what it felt like I would really appreciate it. I've been having pain in my groin for several months on and off it feels deeper than the muscle because I can't push on the muscle and feel pain if that…
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