Meet others concerned about developing a recurrence or metastases.
10 years ago I had idc stage 1 grade 2 in my right breast. Hormone receptor positive her- brca 1/2 negative Had lumpectomy, 25 rounds radiation and 5 boosts. 5 years of tamoxifen. Hysterectomy and oopherectomy in 2020 after issues with ovarian cysts and heavy bleeding. Had more genetic testing and nothing showed. Could not…
Hi! I was diagnosed with low grade, multifocal IDC and finished treatment about a year ago. I was lucky and didn't need chemo (oncotype # 18), so did lumpectomy and radiation and have been taking tamoxifen. I noticed a lymph node on my neck had been swollen for a few months, so I went back to my doctor and was sent for a…
I am 6 years out from treatment and have been NED. my RO gets a chest ct yearly (I understand this is not standard of care). He goes over the scan with me every year but it goes to our radiology group for the official read. Year 5 he notices what he says is scarring in my right lower lung, in comparison to the previous…
Has anyone had multiple new DCIS primaries rather than recurrences? I had IDC in my left breast (treated with lumpectomy and radiation ) in 2011, DCIS in left breast (treated with left-side mastectomy) in 2021, and today my radiologist found new calcifications in my right breast. I'm having a biopsy on Wednesday. She…
Hello, I has been 13 years since I had mastectomy without reconstruction on one side for dcis grade 3. I had failure to get margins a couple times so made decision for the mastectomy. I have zero regrets for my choices and have barely thought about this in the last 13 years. So, yesterday I was doing exercises in front of…
Nearly 14 years after my initial diagnosis, I'm back at the rodeo. My tumor markers are up, and some pain in my leg that I thought was due to gait issues or sciatica is likely bone pain. I saw my MO today, and she said that the description of the pain is consistent with bone mets. Tomorrow, I will get called about when my…
Hey all, Just wondering how many lymph node positive survivors there are out there and how many years out? Also have many of you experienced recurrence during that time? Or if you haven't what have you changed in terms of lifestyle, diet, exercise etc..
Going through a lengthy incidentally found pulmonary nodule diagnostic journey (8 mm, low avidity on PET, nothing else lit up). It was found on a cardiac CT for high LDL (perfect score, no statin 🤪). Followup CT to prep for biopsy says nodule most likely benign but a few additional micronodules were found, scattered in my…
I am currently 7 years out and have just recently stopped living in constant fear of recurrence. Update to that progress tonight….Recently I have been noticing that if I rest my arm/elbow on some thing, armrest, table, etc. I get pins and needles in my hands. I started checking with Dr Google and down the rabbit hole I…
6 years out from 2b/3a dx— treatment was masectomy with total axillary nodal dissection, chemo, rads and still on arimidex. I recently discovered a hard pea size lump a couple of inches under my collar bone about an inch from my arm pit. My oncology nurse practitioner couldn't find it during our visit and I couldn't find…
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