-
2013 Survivors!!!
I was going to create this thread under the "Recovery, Renewal & Hope" thread, but then I decided that the IDC forum is our "home". We started this journey here as the "2012 Sisters" and grew, and grew, and grew. Although truly sad to see how many of us there are, each new member of our little family has been given the…
-
Did you spend the night in hospital after bilateral mastectomy
Did you spend the night in the hospital after your bilateral mastectomy? My surgeon said he would probably send me home, but it seems like an extensive surgery, so I'm wondering what others did. I am having reconstruction at a later time, not the same time as mastectomy. I am having a skin-sparring mastectomy with…
-
Hysterectomy Question
I am new here. I was diagnosed on 10/2023, IDC HR/PR+ HER2-. Stage 1A. Had Lumpectomy, Accelerated Partial Breast Radiation and on Tamoxifen. Due to some other issues I have, my doctors have decided I need a hysterectomy. Since my cancer is hormone positive, they said I might as well go ahead and get my ovaries out as…
-
DCIS lead to IDC, receptor status question
hey all, I had my bilateral mastectomy on 2/1/24 with expanders placed. End up being invasive, so have to go back in this Tuesday for lymph node removal. They did not get the receptor status on the 1st, so currently waiting for that feedback from provider. My question I have and just don't understand is, if on Tuesday…
-
Micromets in sentinel lymph node
Hi, I was wondering if anyone has had similar situation. I am 49 and premenopausal with HR+ HER2 - IDC with micromet found in 1 sentinel lymph node removed . The MO refused to do Oncotype due to RX ponder study and is recommending chemo. Anyone with similar situation who decided to be treated per oncotype score and ovarian…
-
Torn
I wanted to delete my question but couldn't figure out how so I will just say I hope everyone has a nice day today!
-
Just got Pathology report, Invasive Ductal Carcinoma, looking for others with similar diagnosis
Hello friends, I just found out earlier today via a Pathology report that my biopsy came back as Invasive Ductal Carcinoma. My tumour is approx 4cm wide, and it seems like I also have abnormal axillary lymph node. These are my results and I am trying to understand them before I go in and speak with the Surgeon on Friday:…
-
Multivitamin
i am breast cancer survivor for 2 yrs (++- IDCS). Can i take Multivitamin after the treatment. My doctor said i can take multivitamin. Can you recommend which brand is good for the patient like me? Thanks -XT
-
aromatase inhibitor/hormone therapy?
I had a lympectomy 2 weeks ago, the findings were that it was not in my lymph nodes, her 2 negative, 4 mm, stage 1A, I am 69, my cancer is considered a lazy cancer with a low risk of recurrance and is not aggressive. My oncologist said I dont need to have hormone therapy, but with therapy it would give me more reassurance…
-
Single, living alone, no family or friends nearby. What's a girl to do?
Stage 1/Grade 1 IDC. I had decided DMX (no family history but why take the risk) but with all the info I've been reading, I'm wondering if lumpectomy is a better decision or should I just say goodbye to the girls, get reconstruction and go from there? My BFF is coming to town for the surgery next month and will stay for a…
-
Gray zones for everything
Hi, I have a case that’s full of gray areas. I’m 51, pre menopausal, extensive LVi, multi focal, bi lateral, high ki67 of 54% but low oncotype of 18. I am considered technically node free but had some isolated tumor cells in node found in breast. None in sentinel nodes. my situation makes all the doctors I’ve talked to…
-
I'm thinking about discontinuing all doctor visits.
I'm three years out, had stage 1, grade 2, lymph node negative, Oncotype 7 IDC with DCIS. I had a mastectomy and proceeded to go through a year of hell on hormonal meds until I stopped those. The doctors told me that until I reach year 5, I need to see my breast surgeon ever 6 months, my oncologist every 6 months, and my…
-
BRCA2 mutation, IDC and lumpectomy and sentinel node
I found out that I had IDC and then through genetic testing, found out I have the BRCA2 mutation. After research and multiple discussions with surgeon and oncologist, I have decided to have lumpectomy and sentinel node biopsy at this time. Now waiting for pathology report and will do every 6 month surveillance. Have others…
-
Parathyroid disease and breast cancer
I keep on seeing posts that people have had these dual diagnoses; sometimes the parathyroid disease pre-dated the bc and sometimes the other way round. I am becoming convinced that the two are causally related, so am interested to see just how many of you have been affected. Many of us are getting osteoporotic and blaming…
-
Hormone Blocking Therapy
Hi all, Is there any alternatives to taking hormone blockers for 5 years? I plan to discuss this with my oncologist during our next appointment but want to gather some feedback, either way. I've never been compliant with medications and prefer not taking them. Any suggestions?
-
Tubular IDC?
Most of the discussion about the tubular sub category here are not recent. It’s a rare type occurring in 1-2% of breast cancers. My surgical pathology came back and I have a Grade 1, Stage 1 0.7 cm Tubular cancer. Wonder if anyone else here has/had the same? Wondering about current treatment protocols.
-
Introduction—Has it been hard to tell people?
Hi, I am newly diagnosed with IDC grade one. My doctors so far are optimistic about treatment and prognosis. My lumpectomy is scheduled for next week. I am nervous about the pathology report. I actually met with my surgeon on my 68th birthday. Happy birthday to me! Aside from my family, I’ve only told one other friend, so…
-
Getting overwhelmed by all the information -- lumpectomy in 2 days
Hi everyone, I'm so glad I found this site — just reading some of the posts has been helpful. I received my post-biopsy diagnosis through my online health portal (not a nice surprise first thing on a Saturday morning), so it's been a rollercoaster of emotions. My diagnosis was invasive ductal carcinoma, low grade, hormone…
-
Struggling to accept HT for Stage 1 with low likelihood of recurrence
Hello, I'm 57 and was recently diagnosed and treated for Stage 1a, had a lumpectomy, and my lymph nodes are negative. Official diagnosis: grade I, Right breast IDC, cT1bN0, pT1aN0M0, ER+/PR+/Her2, Stage IA They removed a .4 mm tumor and I need to move forward with treatment. While I can accept the need of targeted…
-
Tumor Invasion to Pectoral Muscle?
My tumor was in a very strange location- practically IN the cleavage- I mean, looking at the MRI it's right on top of the sternum (coming from the right breast) and was anchored there like a barnacle. MRI showed pectoral muscle and skin invasion (as I had a huge indent at the edge of my sternum as a symptom, then…
-
Lumpectomy vs Bilateral mastectomy
In July I was diagnosed with intermediate ductal carcinoma stage 1b grade 2. Genetic testing came back negative. There is no lymph vascular involvement as of yet. Maternal aunt had left breast cancer and ovarian cancer at age 52 then right breast cancer at 58, paternal aunt had right breast cancer at 54 and again at 59,…
-
HER2 Status
Hi, First, thanks for reading my post! I had a mastectomy in May 30th. I received the surgical pathology report on Tuesday and ER and PoR results (both are positive) on Thursday last week. But I have not received HER2 and Ki 67. How long did it take you to get those results? Thank you! J.
-
Wait and worry
hi everyone, I was diagnosed on July 24, I got the call on my first day of vacation in Maine, I have IDC triple negative grade 2 size 1.2 x .09 x 1 Drew blood for genetic testing Surgery is scheduled for August 15 so I have time to go to Dana-Farber for a second opinion, my appointment is Tuesday, August 8 I’m finding it…
-
Anyone else with a very high oncotype score?
My oncotype score was 75 and we opted for chemo. It brought the distant recurrence rate from 85% to %38% (on paper) I completed 4 biweekly A/C and just completed 3 of 12 weekly taxol today. I then will have 6 weeks of daily radiation I’ve noticed lately that the recurrence rate is on my mind a lot. Has anyone else else had…
-
Recurrence 12 years later ?
my mother was diagnosed in 2011 @age 79 IDC stage 1 -grade 2/3 - HER2 negative- ER PR positive See underwent partial mastectomy, refused radiation and chemo , started Arimidex but stopped after 2 years . A lump was found last month , she just went through a double biopsy What are the chance her biopsy coming out positive…
-
Just diagnosed, 45 years old, had lumpectomy Stage 1b grade 2 oncotype score of 23
I received my results from my lumpectomy and received the score of 23. The surgeon is talking chemotherapy. I haven't met with radiation oncology or hematology oncology yet have those appointments coming up. I am just wondering is there any one out there who has the same score and what they had to go through?
-
recurrences
Has anybody with 1 positive lymph node for micrometatasis had a recurrence? With or without chemo? I am trying to decide whether chemo is worth it for me. My oncotype is 26
-
Completely exhausted after first radiation treatment
Hello, Writing because I'm so surprised at how my body is reacting after my first rads session. Slept 12 straight hours then can't seem to stay awake today from yesterday's treatment. I've been taking protien powder, protien bars, lots of lentils, beans, everything. Even tried to work out since I saw it recommended here.…
-
Diagnosed yesterday - Intermediate Ductal Carcinoma
Hi everyone, I'm Jayne. I would like to say it's so nice to meet you all, but this is a forum I never expected to find myself. I'm 52, relatively healthy with an absolutely amazing husband and was loving life, running our own business, kids left home, travelling, living the dream to be honest. Seven weeks ago I had my…
-
Is seven weeks too long to wait for radiation after lumpectomy?
I had my surgery on May 4th and can't even get in to see a radiologist until June 9th. The front office said radiation would usually start two weeks after this visit. I'm concerned as everything I've read said ideally radiation should start 4-6 weeks for older people (I'm 60) to prevent reoccurance. Has anyone else had to…