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Wait and worry
hi everyone, I was diagnosed on July 24, I got the call on my first day of vacation in Maine, I have IDC triple negative grade 2 size 1.2 x .09 x 1 Drew blood for genetic testing Surgery is scheduled for August 15 so I have time to go to Dana-Farber for a second opinion, my appointment is Tuesday, August 8 I’m finding it…
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Anyone else with a very high oncotype score?
My oncotype score was 75 and we opted for chemo. It brought the distant recurrence rate from 85% to %38% (on paper) I completed 4 biweekly A/C and just completed 3 of 12 weekly taxol today. I then will have 6 weeks of daily radiation I’ve noticed lately that the recurrence rate is on my mind a lot. Has anyone else else had…
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Recurrence 12 years later ?
my mother was diagnosed in 2011 @age 79 IDC stage 1 -grade 2/3 - HER2 negative- ER PR positive See underwent partial mastectomy, refused radiation and chemo , started Arimidex but stopped after 2 years . A lump was found last month , she just went through a double biopsy What are the chance her biopsy coming out positive…
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Just diagnosed, 45 years old, had lumpectomy Stage 1b grade 2 oncotype score of 23
I received my results from my lumpectomy and received the score of 23. The surgeon is talking chemotherapy. I haven't met with radiation oncology or hematology oncology yet have those appointments coming up. I am just wondering is there any one out there who has the same score and what they had to go through?
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recurrences
Has anybody with 1 positive lymph node for micrometatasis had a recurrence? With or without chemo? I am trying to decide whether chemo is worth it for me. My oncotype is 26
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Completely exhausted after first radiation treatment
Hello, Writing because I'm so surprised at how my body is reacting after my first rads session. Slept 12 straight hours then can't seem to stay awake today from yesterday's treatment. I've been taking protien powder, protien bars, lots of lentils, beans, everything. Even tried to work out since I saw it recommended here.…
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Diagnosed yesterday - Intermediate Ductal Carcinoma
Hi everyone, I'm Jayne. I would like to say it's so nice to meet you all, but this is a forum I never expected to find myself. I'm 52, relatively healthy with an absolutely amazing husband and was loving life, running our own business, kids left home, travelling, living the dream to be honest. Seven weeks ago I had my…
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has anyone with oncotype dx 26 or higher refuse chemo?
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Is seven weeks too long to wait for radiation after lumpectomy?
I had my surgery on May 4th and can't even get in to see a radiologist until June 9th. The front office said radiation would usually start two weeks after this visit. I'm concerned as everything I've read said ideally radiation should start 4-6 weeks for older people (I'm 60) to prevent reoccurance. Has anyone else had to…
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Pathology Results
I saw my surgeon this morning, two weeks post lumpectomy and SLNB. Here are the results: 24mm IDC and DCIS (larger than previously imaged on MRI and mammogram) Margins are clear Lymph nodes are negative Grade 3 I don’t know if I need chemo yet, that will depend on mammaprint and oncotype results I hate that I know all…
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Swelling post lumpectomy surgery
Has anyone had swelling in the area of their lumpectomy? It’s not where the SLNB was (it’s not under my arm) but above where the lumpectomy scar is. It’s like I can hear water in there. I know some swelling is to be expected but should the area be elevated and filled with liquid? Also, any suggestions on what I can do to…
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Surgery done…
This is my first post in this group as I know I have IDC. I had my lumpectomy and SLNB yesterday. I was at hospital early as they put a wire in, they injected the lymph nodes with nuclear something, had a gamma scan, had an MRI and ultrasound. I was supposed to have the IDC and another suspicious area removed (that was…
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Has anyone just done Endocrine Therapy(No Radiation)?
Brand new to this. I’m 65 years old and was Dx with IDC in April 2023. It was found on a my yearly Mammo/Ultrasound. Had a lumpectomy on May 5th. Stage 1, Negative Lymph Nodes, Estrogen and Progesterone strongly positive, HER2 negative, Proliferation 5%. I met with the Medical Oncologist a few days ago and am meeting the…
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Is Oncotype test always ordered? Are there are genetic tests I could request in addition?
Had a lumpectomy 10 days ago and SBN. Stage 1, grade 1, no lymph no involvement 90/98 EST/PR. My surgeon has made no mention of the Oncotype score and when I called the lab for my biopsy results, they said I would need to ask my surgeon to submit for genetic tests. Is this normally how it's done? Also, are there any…
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second lumpectomy
I opted for a second lumpectomy on the advice of my surgeon instead of a mastectomy. Has anyone done the same and did you have a reoccurence of cancer?
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IDC with lobular features
Hi, What does it mean to have IDC with lobular features? I was looking back at my pathology from a few years ago and saw that listed there. None of the doctors have mentioned with the lobular features part meant. Does it mean it was found in the ducts and lobules? Thanks in Advance
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No sentinel node were found during sentinel node biopsy
Hi, i have a few questions and i wonder if anybody had the same experience. 1. I recently had my Mastectomy done and the doctor performed a sentinel node biopsy for me. However strange enough after the surgery he says that he couldn't find the sentinel node and histopathology report came back with 2 axillary lymph nodes…
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Drinking Alcohol after Breast Cancer
Hi Everyone, I have been on this website a lot since my diagnosis (September 2022), and this is my first post, so please forgive me if this topic is on here somewhere - but I just couldn't find it. What are you thoughts about drinking alcohol after breast cancer? I am petrified of recurrence, even though I am at low risk.…
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grade 1, Oncotype 35
My cousin has a grade 1 IDC, 1.7cm, ER/PR+ (ER is 90% I believe), HER2- but Oncotype is 35. I got her text at 3 am and was shocked. For grade 1 tumors less than 1cm, 97% had low Oncotypes. Granted hers is slightly larger. She is 70, already in ill health with IgA immune deficiency (she has been getting IVG) with frequent…
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What will an MRI tell me that I don't already know?
I was recently diagnosed with IDC grade 1 100% ER and PR + HER2 -, I'm currently waiting on genetic testing results and going for an MRI in a couple of days. My question(s) is what is the purpose of the MRI? Is this standard procedure? Will it possibly show something more than they have already seen? I'm just ready to get…
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How much did your breast change/shrink after rads?
It's been recommended to me to have a lumpectomy with rads however through research I've discovered that obviously the lumpectomy removes volume, but that radiation can significantly shrink or damage the breast. I'm already a B cup and asymmetrical and the mass is in my smaller breast. I'm VERY concerned that the outcome…
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ZEST trial
Is anybody participating in ZEST trial? Thank you
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I’m Having Iron Infusion——Share your experience please!!!!!
Hi Friends: I know lots of you have had iron infusions. I'm having one this week. I'm a little nervous because there are side effects. What have you all experienced? Was iron infusion a great thing for you? Did it improve your energy levels post infusion? I'm low in iron and pulls weren't really working well enough. So…
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Metastasized?
I had a lumpectomy a few weeks ago and start chemo in a few weeks. My oncologist ordered a few scans in between. I had a CT scan today and I saw my results online before the nurse called. It showed a few lesions (2-3 mm) on my lung and kidney. I was freaking out a bit and assumed I was going to have to have more scans…
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Nipple Reconstruction or 3D Tattoo only?
Looking for advice following a successful bilateral mx implant. Very happy with results. Next I have to decide if I want to get a nipple reconstruction or should I just go with a 3D tattoo instead. My surgeon said that a reconstruction means that the nipple is always erect and while it will flatten over time I should…
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Estrogen Positive, Progesterone Negative, Her2 Negative
I am going to see an oncologist tomorrow. Does anyone else ER+ and PR-? It is my understanding that taxomxifin is not as effective due to being PR- and an Aromatase Inhibiter is more effective. My Oncotype DX score is 26. I wonder if I should have chemo. From what I have read it does not seem like it would be that helpful.
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Bone metastasis or osteoporosis - very anxious waiting
I was diagnosed with stage 1a, grade 3, er+, pr-, her2- BC in August 2020. 1 of 4 nodes with a micromet, others clean. Had a double masectomy and 4 rounds of DD AC and 4 rounds of DD taxol. I have been on arimidex ever since. As someone on the taller and thinner side I have always had back issues. Now I have a fractured…
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Clear margins, but cancer in lymph node
A little over a week ago, I had a lumpectomy and sentinel node biopsy. My surgeon just called me yesterday with the results. I was happy to hear that I have clear margins, but then she said there was a 2.5 mm metastatic carcinoma found in one of my 3 lymph nodes that were biopsied. How happy should I be that my margins are…
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Is this considered triple negative?
I just my follow up with my surgeon. Margins are clear, the 6 lymph nodes she took out had 0 cancer. The estrogen was low positive, just 3% and the progesterone and HER2 were negative. It is stage 1, grade 2. I will have radiation for sure and she's thinking no chemo but that will be up to the oncologist. I will get a call…
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Breast Cancer Index Test
Breast Cancer Index Test I was looking for stats to compare when waiting for my results and couldn't find much so I am starting this for others to post who are willing to share. My stats: Age: 41 at dx Stage 2 Grade 2 ER/PR+ (99%) Oncotype 9 Node-Positive: (1 macromet) BCI results: NO benefit from extended endocrine…