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I’m Having Iron Infusion——Share your experience please!!!!!
Hi Friends: I know lots of you have had iron infusions. I'm having one this week. I'm a little nervous because there are side effects. What have you all experienced? Was iron infusion a great thing for you? Did it improve your energy levels post infusion? I'm low in iron and pulls weren't really working well enough. So…
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Metastasized?
I had a lumpectomy a few weeks ago and start chemo in a few weeks. My oncologist ordered a few scans in between. I had a CT scan today and I saw my results online before the nurse called. It showed a few lesions (2-3 mm) on my lung and kidney. I was freaking out a bit and assumed I was going to have to have more scans…
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Nipple Reconstruction or 3D Tattoo only?
Looking for advice following a successful bilateral mx implant. Very happy with results. Next I have to decide if I want to get a nipple reconstruction or should I just go with a 3D tattoo instead. My surgeon said that a reconstruction means that the nipple is always erect and while it will flatten over time I should…
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Estrogen Positive, Progesterone Negative, Her2 Negative
I am going to see an oncologist tomorrow. Does anyone else ER+ and PR-? It is my understanding that taxomxifin is not as effective due to being PR- and an Aromatase Inhibiter is more effective. My Oncotype DX score is 26. I wonder if I should have chemo. From what I have read it does not seem like it would be that helpful.
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Bone metastasis or osteoporosis - very anxious waiting
I was diagnosed with stage 1a, grade 3, er+, pr-, her2- BC in August 2020. 1 of 4 nodes with a micromet, others clean. Had a double masectomy and 4 rounds of DD AC and 4 rounds of DD taxol. I have been on arimidex ever since. As someone on the taller and thinner side I have always had back issues. Now I have a fractured…
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Clear margins, but cancer in lymph node
A little over a week ago, I had a lumpectomy and sentinel node biopsy. My surgeon just called me yesterday with the results. I was happy to hear that I have clear margins, but then she said there was a 2.5 mm metastatic carcinoma found in one of my 3 lymph nodes that were biopsied. How happy should I be that my margins are…
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Is this considered triple negative?
I just my follow up with my surgeon. Margins are clear, the 6 lymph nodes she took out had 0 cancer. The estrogen was low positive, just 3% and the progesterone and HER2 were negative. It is stage 1, grade 2. I will have radiation for sure and she's thinking no chemo but that will be up to the oncologist. I will get a call…
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Breast Cancer Index Test
Breast Cancer Index Test I was looking for stats to compare when waiting for my results and couldn't find much so I am starting this for others to post who are willing to share. My stats: Age: 41 at dx Stage 2 Grade 2 ER/PR+ (99%) Oncotype 9 Node-Positive: (1 macromet) BCI results: NO benefit from extended endocrine…
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SMX without reconstruction Pathoogy Report
I follow up with Breast Surgeon tomorrow so will get answers,but was wondering if any of you can tell me if I am reading this as it showed Her2 positive as well ad are doing FISH test to confirm. My biopsy showed ER PR strongly positive like the pathology but Her2 neg, and a little difference in Stage, but curious about…
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Please help me with biopsy results
I'm waiting to get my first meeting with surgeon and MO at Dana Farber next week, but am trying to understand my biopsy results better (I found out I had cancer on Friday, I'm still in a depressive/anxious daze): Mass was: 11mm x 9mm x 5mm IDC, ER+ (93.94% strong), PR+ (95.27%) strong, HER-2 negative (1+ negative) KI-67:…
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Oncotype score and feeling bad
My onctotype score came back yesterday and was a 23. I am pre-menopausal and under 50 with a grade 3 tumor so was feeling okay about it until I was reading and realized most people score less and don't need chemo. I will be having taxotere and cytoxan for four cycles three weeks apart. But even with chemo and hormone…
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Hope Bells Replace Traditional “Ringing the Bell” at UL in Ky
I am so happy to see this change at one of the hospitals in my state! None of us are ever guaranteed to be “finished" with breast cancer, butthose with recurrent or metastatic cancer often have to watch the bell being rung over and over again by patients who are finished with their current chemo or radiation. I love the…
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had a second biopsy done few months after the first...
hello everyone. I just got a 2nd biopsy done and it showed scattered atypical ductal hyperplasia...in the anterior portion of the breast. i have an 9mm tumor in the same breast too...which they found in the first biopsy. So now they have to take more tissue out, if doing a lumpectomy. Is a lumpectomy still ok to do? I'm…
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Regrets about not being better health advocate
I wasn't sure where to post this, but I wanted to put this out there in case anyone is in a similar situation. So, last summer I was concerned about breast changes and I looked at the letter from my previous mammo and noticed that they mentioned dense breast tissue and said that I "might benefit from supplementary…
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Bruise/blemish
hi there, I have developed 2 lumps over time since my double diep flap operation in April last year. Fine needle biopsies came back as fat necrosis. They grow and maybe change shape (not sure). Now recently I see it looks bruised under the one lump, Quite a large bruise. Just want to know if anyone else has dealt with…
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22 Year DCIS Survivor-Just diagnosed with IDC
Well, here I go for round 2 after being a DCIS survivor for 22 years. Found out I have Invasive Ductal Carcinoma Grade 2, ER 3+, Pr 3+, HER 2 neg, Ki67 is 20%, P63 negative, Ecad positive in the same breast I had DCIS. My mom was dxd at 72 with Stage 4 and passed a year and a half later. Already got a call from surgeon and…
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22 Year DCIS Survivor-Just diagnosed with IDC
Well, here I go for round 2 after being a DCIS survivor for 22 years. Found out I have Invasive Ductal Carcinoma Grade 2, ER 3+, Pr 3+, HER 2 neg, Ki67 is 20%, P63 negative, Ecad positive Already got a call from surgeon and go next week
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Newly diagnosed ER/PR -seeking buddies
Hello I posted last week in waiting for results. Results are in and I have stage IA IDC ER- PR- HER2 pending FISH. My Ki67 was 93%. Aggressive but caught very early. More tests this week before the official treatment plan. Any comments thoughts welcome. Feels a bit lonely in the world though I know that’s not true.
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Significance of specific IDC histology features
Hi, all! I am between surgeries (April 6 and May 3) and probably have to much “restricted activity" time on my hands 🙃…I am hoping someone may be able to help me with understanding the significance of “Cribriform features" in IDC. I have been trying to find some information that is not about pure “Invasive Cribriform…
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Canada IDC and me ( or what's left of my mental health)
Thank you So MUCH for being here. I come here for hours and read all of the most courageous posts -it's very helpful and may be the only glue holding my sanity together. My brain is like a giant bag of pop rocks. LOL I've known about the Lump since...January,-it was palpable. :-( (RIGHT THERE) It was Feb before I could get…
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Just got IDC diagnosis - Triple Positive and SNB up next
Hi all! I've been reading through these boards since my biopsy on 2/25 and an original DCIS diagnosis on 3/3. I just wanted to say I've been so thankful to have found this community! I've been able to get so many questions answered even when I couldn't post due to some of the tech glitches. I found out today pathology on…
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Help understanding new pathology
I have an appointment with a new oncologist at the end of the month. They must be working up my case because I just had a new pathology report post to mychart. I think they re-examined my slides. Everything's the same as the original surgical pathology except for the term "lobular involvement." Here's what it says exactly:…
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Iron Infusion—have you had one?
Hello Friends: I had a phone appt with my MO today. We talked about my blood work. My iron deficiency panel is just not changing much. My ferritin hasn’t gone above 27. It’s 16 now. She said it should be around 100.My body isn't absorbing iron so she is ordering a iron infusion. Have any of you had iron infusions? Are…
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Recently Diagnosed
Hi All! I was recently diagnosed with IDC cribform Stage 2 and I have undergone lumpectomy surgery and a SND. I'm currently healing. I am overwhelmed with all the decisions that are being place before me. I'm still awaiting the results of my Onxcotype test before I enter into the next phase of treatment. I'm' 49 soon to be…
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neoadjuvant chemotherapy for IDC ER+/PR+, HER2- and 19 oncotype
I have a 4cm tumor up against my skin. I will need a mastectomy but I have differing opinions from two excellent teams on the next steps for treatment. Opinion 1: Complete neoadjuvant chemotherapy to improve the margins and get it off my skin. Opinion 2: Move forward with surgery first and remove the skin. The team…
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IBC after IDC
I am 52, and definitely not lactating! I suddenly developed symptoms of mastitis with a fever a few days ago. The symptoms have mostly improved on their own and the fever subsided after about 36 hours, but I went to the doctor today because, with my history of breast cancer, I wanted to get checked out. She thinks it is…
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Removing the “ good breast “ pros va cons
hi. So newly diagnosed with a party of tumors in my left breast. So that bad guy is coming off. Being offered to do the second one as well but on one hand seems sort of drastic. Any advice on making this decision
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Newly diagnosed & frustrated
so, I’m new here. Hi. I’m 37, I was diagnosed on January 26th by reading my own pathology report, the lab emailed me the results before the Dr called. I was diagnosed with IDC, ER+/PR+ both at 100% HER2- and grade 3 on the left side. I met with a surgical oncologist within the same hospital system, but is technically An…
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AC-T versus TC Adjuvant Chemotherapy
Starting this conversation to hear peoples thoughts on TC v AC-T as adjuvant therapy for ER/PR+ HER2-. Stage 2B. grade 2. 2.3cm tumour and micromets in the 1 sentinel node removed (surprise). Have very good health history prior (as in no health issues), no cardiovascular issues, age 43 pre-menopausal. Met with oncologist…