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Given my dx, should I adopt a dog?
Okay, bear with. Last year was the sh*ttiest year of my life, bar none. My DH was dx with prostate cancer (now in active tx), I had my own crappy dx (in active tx), and probably the worst hurt was that we had to say goodbye to our own fur girl, Preshy, who had been in our family for 13 years. She was my soul. Got me…
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Fun Game -- 5 Letters Become a Sentence
Leave five letters and the next person will make a sentence out of it. Like ILRWS becomes I love running with scissors. Or Ill Llamas rarely welcome snacks. Next up is WCLFE
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Panic attack, sadness and breathing exercise
Hi everybody I'm usually happy and try to have my normal life, but sometimes I just feel like I'm going deeper snd deeper in to sadness, or having a strong panic attack . Especially now that I fpund out my cancer is back in my liver, after only an year of Ribociclib. I tough it was supposed to last 5 or 6 year, but not for…
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Has anyone else used black seed oil?
I am just curious if anyone else has been using black seed oil for breast cancer (nigella sativa) and the results they have experienced. I have been taking it for a few months and I am (so far anyways) stable. I am wondering if I stumbled across a hidden gem or am I the last to know about this stuff?!
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Extreme fatigue on Arimidex
Ive been in Arimidex for a year and 3 months. I started out only taking it every other day as I was afraid if side effects. Until 2 months ago when my MO said he "hoped" it would work. Sigh. So I am now taking 5 instead of 4 days a week. Probably no difference in effect. Since on Arimidex, I have had joint pain,…
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Breast lump, firm. Hope!
Last 2 nights my hands found a lump in my left breast. It's large, smooth, but firm and doesn't seem to move. It's doesn't hurt much. Like all the others, I panicked. I am 4 months postpartum, with a history of cystic breast bilateral. I recall to have a 1.5cm cysts on the same side I felt the lump. But I didn't think much…
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Bilateral mastectomy
I had a nipple sparing bilateral mastectomy on 4/1/24. Invasive carcinoma on the left and two spots of DCIS on the right. Lymph nodes were clear. I’m waiting for the Onco results. I am very anxious, and hoping that I won’t need chemo. Recovery has been tough, but I’m only 6 days post op. Pain management has been a…
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Starting year 18
For those who remember me, when I first got here and was out-of-my-mind-afraid, thought I would update. 17 years has gone by…time flies. Cannot believe I'll be starting year 18…lots of other stuff to deal with (myself and DH) but so far, no BC recurrence that I am aware of. I mostly post on the what's for dinner or the…
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The Next Person Game
In this game you make a statement about the next person. The next person answers true or false to that statement. They then make a statement for the next person, and so on. Example: If the person before me stated - The next person owns a dog. I would answer - True - and add my statement - The next person has curly hair.…
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flax seed oil & cottage cheese
Yesterday I read flax seed oil & cottage cheese can cure cancer. Has anyone heard anything about it? There are a lot of testimonies of people whose cancers disappeared after using it. That with a few other remedies would be easier, affordable and I wouldn't have to have surgery. I need to speak with my naturpathic doctor…
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Pain management
Pain is complicated. Everyone is different and levels of pain differ, so our doctors have a difficult job sorting it all out, but I have the impression that female patients are not taken very seriously when we complain about our aches and pains, including not taking ourselves very seriously sometimes. l We are conditioned…
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Middle Aged Memories
Let's see, so far we've reminisced about dittos, drive in theaters, lick-a-stick candy, five-and-dime stores, Donny Osmond, Dark Shadows, what have I missed?
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Anyone with Rotter’s Nodes Metastases??
My surgical consult thinks my recent recurrence involves the Rotter’s Nodes and surrounding pectoral muscles . They are trying to come up with a plan to treat it locally but everyone seems to be scratching their heads about how to approach it. I am now being sent to a thoracic surgeon for a consult. Not instilling a lot of…
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Have a lump with negative mammogram and Ultrasound but MRI shows Non Mass Enhancement
Good afternoon, After noticing a lump about 1.5 inches around in my left breast, I went for a mammogram and ultrasound which showed nothing. Because I have extremely dense breasts and there is a palpable lump, they sent me for an MRI with contrast. It came back with the following results: "Left breast: There is extensive…
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What counts as "active treatment"?
What counts as "active treatment"? I'm honestly asking, since I am in that weird liminal zone between "done with surgeries" (I hope), but "still taking meds."
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Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
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patty
Does anyone have info on Patty? Haven't seen her here for awhile.
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Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis Mar 1, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on embracing what matters after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many changes,…
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Looking to connect with other young ladies with MBC
Hello I’m new here, I’m 33 Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy, radiation. I’m now on verzenio and anastrozole. I fell well so far. On my recent routine blood work my ca 27-29 goes up from 26 to 44 Unfortunately Scans show multifocal bone…
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Lobular Sucks!
Invasive Lobular Cancer (ILC) manifests very differently from the more common Invasive Ductal Cancer (IDC). It is considered an "old lady disease" and I should not be having to deal with it at my age, but here I am. It was difficult to scour the boards for patients like myself in order to learn from the experiences and…
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My Sister/BFF newly diagnosed with breast Cancer
Hello All my name is MsPhil long time member here. Praise God I took had breast cancer now a 30yr Surviver. My BFF/Sister diagnosed last month with DCIS stage 0 we saw oncologist Monday to see surgeon suggest Mastectomy as I took had. Please keep her in prayer as I have always kee All here in Prayer. Thanks
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5mg tamoxifen
Hi New here, just finished 2 surgeries and 15 radiation treatments dcis gr 1-2 Er/pr+ her2 neg. I am 65 Just going to start 5mg tamoxifen next Monday Apr 22. Hesitant when they did the pathology on my sample which was very small I had a slight break in one of the Ducts so that changed me to invasive but it was microscopic…
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Let Down Feeling...Not pregnant! HELP!
Hi. I'm 37 and have been having pain in my left breast as well as a very disturbing "let down feeling" in both breasts. I have nursed three children so I'm very familiar with the feeling. My youngest is 7. I had 2 fairly large cysts drained from my left breast in Oct 2016, and a fibroadenoma removed from the right in Nov…
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My BIRADS 4 experience, please have Faith
I had been having pain in my left breast for almost a year, until I decided to request a mammogram. I’m 39 years old, with no history of BC in my family. March 11th was my mammogram and they wanted to do a ultrasound right then in there too, before I left I was told “we found a mass and it needs to be biopsied” my world…
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Looking for hope
Hi, I am 45 and just recently had my first Mammo. I have very dense breasts which led me directly from mammo to ultrasound. The tech told me at least 5 or 6 times that my right breast was very “angry” and she understood why it was hurting. I have a biopsy scheduled for Thursday (one week after mammo/ut) and of course the…
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Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…
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AI or targeted therapy failure?
Hi there, Just wondering how one knows which medication failed if you are taking a targeted therapy and an AI? My sister is on Ibrance and Letrazole and MRI was clear on spine in November and now a 19 mm spot on T2. Her tumour markers have also been slowly rising. Her cancer is lobular, estrogen positive, progesterone…
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Bone strengthening meds
what is the protocol on prescribing bone strengthening meds for women on aromatase inhibitors to prevent recurrence?
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Life After Treatment: Hair?
Hey all, First I am extremely grateful to be alive. Given the choice to go through chemo and preventative hysterectomy, I would happily do it again without any questions asked about my hair. But at the same time I thought to ask the question, and maybe some of you might have some resources for me that are safe and not…
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Anyone on TRUQAP?
Hi all, it looks like I'm going to be starting TRUQAP soon as an alternative to Piqray. However, it looks like TRUQAP and Piqray both come with some pretty nasty side-effects. I was hoping T would be easier than P. From what I've read, it sounds like Imodium AD may become my newest friend. Yuck! I was hoping for an easier…