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Shoulder dysfunction after treatment
Hello all, I finished my last radiation treatment on April 27 and promptly dislocated my right shoulder (the side where I had my mastectomy and radiation) in the hospital parking lot when a car backed up and tapped my hip (seriously didn't hit hard enough to justify the word hit). At first I seemed to be recovering well,…
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Verzenio to KISQALI
After my original diagnosis and chemotherapy surgery radiation I did a clinical trial for verzenio for people who were not stage 4 I was on verzenio from December 2021 to October 2023 March 2025 I went to metastatic breast cancer I saw my doctor yesterday and she’s thinking that cancer may have come back when I was on…
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Non Mass Enhancement
Who here has had a Non-Mass Enhancement show up on MRI but not correspond on Mammo or Ultrasound? Did you still have it biopsied? What did it end up being? I'm waiting on an MRI biopsy which my breast surgeon is recommending for the peace of mind vs. waiting and repeating the MRI in 6 months, and now I can't get in for…
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Anastrozole ???
My experience was??? My mental state went to apathetic. I had NO emotional feelng. One night I felt like I was dead with no brain activity. SCARY. I stopped it early as I was low recurrence risk. I feel even at high risk, it's not worth it.
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US Biopsy Complete, Made to Delay Skin Biopsy
I’m 37, had a mammogram & ultrasound earlier this month due to changes in my right breast not responding to dermatological treatment (persistent itching, raised bump/rash, discharge). The 2 findings were Birads 4 (no letter): a small mass in the upper outer quadrant (10:00, U.S. biopsy), and the other a skin-related lump…
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Anastrozole (Arimidex) vs. Fulvestrant (Faslodex)
Hi All - Does anyone know why an oncologist would treat with an AI like anastrozole rather than fulvestrant? I'm currently on anastrozole and ribociclib (Kisqali). For my initial diagnosis of Stage 1A IDC (HR+, HER2-), I had lumpectomy, radiation and started anastrozole. 6 years later (this past January), mets in my lung…
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Nipple Reconstruction or 3D Tattoo only?
Looking for advice following a successful bilateral mx implant. Very happy with results. Next I have to decide if I want to get a nipple reconstruction or should I just go with a 3D tattoo instead. My surgeon said that a reconstruction means that the nipple is always erect and while it will flatten over time I should…
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Joint pain
Has anyone on Anastrozole had knee joint pain in the middle of the night? I have severe knee pain but only between 2-4am every night. Very odd since I have no joint pain any other time of the day.
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Tips and tricks on addressing Side Effects
Hi, All As I am going through my treatment of mBC ILC I, like many others, have Side Effects that I’m trying to overcome to be on the treatment and lead my life as normal as possible. So I decided to post some tips that worked for me. When my recurrence was discovered during endoscopy I had small lesion in my stomach…
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Breast Implant issues
Hello. I’m 55 and on January 31st of this year I was diagnosed with Grade 1/Stage 1 invasive ductal carcinoma. I had a bilateral mastectomy on March 12th with expanders put in. Thankfully, my lymph nodes were clear and my ONCO test came back at a low risk for recurrence so I don’t have to do chemo or radiation. I had to…
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Gastrointestinal symptoms after finishing 10 years of Tamoxifen
After 10 years of Tamoxifen it was time to stop taking it. Just a couple of weeks after I stopped I got gastrointestinal issues. I am wondering if it is because I stopped the Tamoxifen. I have bloating, constipation/diarrohea, feeling a need to do but not doing, going often to the toilet. I had several tests and am waiting…
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SSDI review with metastatic breast cancer - lose benefits?
I just got a packet of mail from my state disability determination services office, saying that they are reviewing my disability status. I was diagnosed with unnumberable bone-only mets in Feb 2020. I was on Kiquali/letrozole for about 4 years, and now I've sped through Orserdu, piqray, and now, Truqap just in this year.…
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Doxil
stage 4 triple neg breast cancer Starting doxil soon. Telll me everything !💕 Thank you
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Preparing for reconstruction - weighing options re: fat grafting
Hello community~ I had a bilateral mastectomy in October 2024 and am preparing for the second phase surgery, removal of the awful tissue expanders and placement of the final implants. The plastic surgeon usually recommends fat grafting, and did initially until we discussed how painful and difficult the mastectomy was for…
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Guardant 360 testing
I didn't see a top for the Guardant testing so I thought I'd start one. Does anyone know what it means when the first Guardant test showed a PIK3CA mutation, and then ten months later, it doesn't show that? I might need to change my treatment if I no longer have this mutation!
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Watched 2 years and now possible dcis plus invasive?
I had a bout of 1/8" dcis five years ago that was mid grade. Had lumpectomy good margins, but no rads as surgeon said it was too small and if it came back they could not radiate again. Ok, so fast forward 3 years, got another bout of tiny 1/8" dcis same area. Pathology was still dcis but higher grade. Surgeon wanted me on…
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Capivasertib in Hormone Receptor–Positive Advanced Breast Cancer
Hello, I looked at this paper published in "The New England Journal of Medicine on 31.05.2023 with regards to Capivasertib. https://www.nejm.org/doi/10.1056/NEJMoa2214131 1. In general Capivasertib is AKT inhibitor for patients with AKT pathway–altered (PIK3CA, AKT1, or PTEN) tumors. It's given with Fulverstrant. 2. The…
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Second diagnosis
in 2019 treated for breast cancer chemotherapy surgery radiation Monday tested positive in lymph node and possibly lungs but too small to biopsy Assuming I would fight it it sounds like no surgery or radiation Verzenio and when I said so maybe year she said maybe less Did garden 360 and petscan tomorrow I was attempting to…
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Third time…now Stage 4 with bone mets
Based on testing with CT, bone scan, MRI’s, it’s confirmed I have bone mets to hip (several areas), pelvis (five spots) and a rib or two thrown in for good measure. I’m thankful nothing showed up in vital organs. I’m not surprised as I was diagnosed with ILC Stage 2B 13 years ago. I’ve been having positive Signatera…
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Surgeon put titanium clips during breast cancer surgery against my wishes
Surgeon put titanium clips in my breast during breast cancer surgery against my wishes. I expressly told the surgeons nurse during pre-op that I did NOT want the clips placed in my breast. I understand why and what for but declined. How to handle this wrong doing. My body my choice.
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Long-term survival of DCIS patients without radiation or hormone therapy
I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS
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Are mammograms effective?
I have read that there are studies showing the rate of cancer is no better for those who get regular mammograms when compared with those who haven't had them. Also, mammograms have been linked to causing cancers. I plan to thoroughly research this and, if true, I may ask my healthcare team for an ultrasound instead. What…
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Waiting on the results of the oncotype test
Hi there, I wanted to see if anyone out there has had the oncotype testing? I know everyone’s story (diagnosis, treatment, etc) is different. But I’m curious about the following if you’ve had the oncotype test: How long did it take for results to come back? If it was in the range of 16-25, were you offered to be part of…
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Anyone in So Ca area?
I'm in the Santa Clarita Valley. Anyone else here, or neighboring areas or valleys?
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AET omission in ER-LOW early stage breast cancer
I'm being asked to consider aromatase inhibitor therapy even though my ER receptor level is low. Relatively new research indicates a significantly worse overall survival when AET is omitted. (Grace Mei Yee Chong et. al. And Mayo Clinic).What have others heard about this? I was HER2+, went through chemo and Phesgo,…
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Nodes confusion before or after surgery?
Confused here. I was told that if you went in for Lumpectomy (dcis) but final surgical pathology shows some invasive then you go back for surgery to examine nodes. But, then someone told me, they evaluate the biopsy before surgery to see if you need nodes evaluated during lumpectomy all at one time. (Which makes sense and…
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Not responding to treatment
Hello. I am new to this group and was curious if anyone else has had a similar experience with their breast cancer fight. For full back story, I was first diagnosed with DCIS back in May of 2020. I opted for double mastectomy because they said it was the best chance of never having to deal with it again. My margins were…
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PET-CT scans after node recurrence (and while on Verzenio)?
Hi everyone. Looking for some advice from all you wise, brave folks. I had IDC 18 years ago; ER+, PR+, HER2 neg/double mastectomy/chemo/tamox/negative sentinel nodes. A year ago was diagnosed with an aggressive axillary node recurrence; surgery to remove 8 nodes, 4 pos, 4 neg. Went on letrozole, had radiation, now 9 months…
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Blood Thinners and Invasive Breast Carcinoma ER/PR+ HER2-
Good morning, last week I was diagnosed with Invasive Breast Carcinoma ER/PR+ HER2-; most likely stage one, depending what they find in the surgery. I am 42 with two young children. I have a history of blood clots and pulmonary embolisms and have a stent in my iliac vien. I am on an anti-coagulant for life. I don't know…
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Chemo curls?
who else has hair coming in EXTREMELY curly?! I’m wondering if it’s here to stay or just “chemo curls” and will subside. My dad has extremely curly hair so wasn’t sure what was happening! My hair used to be dirty blond and slightly wavy now it’s almost BLACK with LOTS of curls. Who else?!