Recent Discussions

Hi all, I’ve completed 12 infusions of Enhertu + Perjeta for stage IV HER2-positive breast cancer. My last scan, and Signatera were negative and my tumor markers are in the normal range so I’m currently considered NEAD (no evidence of active disease). Due to side effects like ongoing weight loss and loss of appetite, I’m…

How do you distinguish if the heartburn (or other symptoms) you are experiencing is from stress or diet related instead of treatment medication related? I am taking the lower dose of kisqali. Started with 400mg (1 cycle), and finished the second cycle last week taking 200mg. On my second day of the off week I started…

mother 94 , advanced Alzheimer probably stage 6 , her breast tumor has started ulcerating , 2 weeks ago first liquid now blood, she is living in a memory care center , wondering how this will evolve , prognosis etc. Does it mean metastasis? Evidently no medical intervention is wanted to prolong her life , except palliative…

As the seasons start to shift, March feels like a good time to talk about balance. Not the polished version — the lived one. Treatment and living, appointments and dinners, showing up for others when your energy is already gone. The quiet, ongoing negotiation between being a patient and being a person. Balance isn’t a…

We know caregiving brings both love and exhaustion, courage and worry. What part of the caregiving experience has been the hardest for you to navigate?

Hi everyone. Looks like I'll be moving on from Ibrance. A PET scan on 3/18 will confirm this but it looks to be the case. My question is that if Ibrance failed for you, what drug or drugs were next and where was your progression? Thanks.

If surgery is on your calendar this February—lumpectomy or mastectomy—you’ve found your people. This thread is your meetup spot: a place to show up exactly as you are, whether you’re feeling steady, scared, curious, or all of the above. We’re here to swap questions, share nerves, trade tips, and offer the kind of support…

Hello everyone My sister's diagnosis and brief summary of her recovery are available in my signature. It's been 39 days since her surgery on January 30, 2026, and she's still recovering. Her plastic surgeon said, "We discussed it in the tumor board and decided to perform the first surgery and remove all remaining tissue.…

After 12 infusions on Enhertu and Perjeta for Stage IV, HER2 positive breast cancer, my Signatera test came back negative and my scans are clear so I'm now considered NEAD. I still have to continue treatment to prevent a recurrence but want to decrease the dose of Enhertu from 4.4 mg to 3.2 mg. Wondering if anyone on this…

my margins weren’t clear so I have to have another lumpectomy. Anyone else experienced this. I have dcis with a small 4 mm invasive cancer. The invasive cancer had clear margins the dcis had one focal margin

I had to suddenly stop taking HRT after 25 years. Then had a double mastectomy late in Sept 2025 followed by radiotherapy. Since stopping HRT and surgery I have very bad joint pain everywhere. I am 76 years old. I am concerned Tamoxifen will make the joint pain worse. My oncologist prescribed 20mg but I have not started…

Scheduled to have bilateral mastectomy next month. I am very much undecided if I want to have reconstructive surgery or not and go flat. If I go flat, I am afraid I might get depressed as my body will be very different. With plastic surgery, I’ve read of women having so much pain and needing to do more procedures…

I’m newly diagnosed and had consults with 2 different doctors. My tumor is small (6.5/7mm depending on which report used). Both recommended the same treatment- lumpectomy with radiation and then likely chemo. They mentioned that I could choose mastectomy instead and then there wouldn’t be radiation, but that there was…

I finished my radiation treatments a little over a month ago. Due to the size of my tumor I decided against radiation since it seemed as if the costs would out way the benefits. My surgeon, Onc, and Rad Onc, all said that they didn't think my chances of reoccurrences would be significantly better with a mastectomy instead…

hello..... has anyone had a lumpectomy...and wish they had a mastectomy instead? i have surgery soon....and nervous about that decision. thanks

Hello, I am horrified to be here. :-( I am 58 and just diagnosed while on vacation visiting friends in Europe (I lived here in the past) and always had normal mammograms and still did them here because it was easy. It was found on a routine mammogram and what I know so far from core biopsies (MRI next); Left 9x8mm - IDC…

Hi Ladies, It is time to add a four letter word game. I received an email of a forwarded scrabble game. The game started with a four letter word and kept changing by one letter. I like playing here much better. Get your 4 letter words ready. First word: Word

Leave five letters and the next person will make a sentence out of it. Like ILRWS becomes I love running with scissors. Or Ill Llamas rarely welcome snacks. Next up is WCLFE

It is basically a word association game. I will post the first word, the next person posts what that word reminds them of and so on. First word 'Snow'

Since the original word ladder has some technical difficulties, Sharon50 has asked that I start it up again. (Could it be a ploy to get around a six-letter word from scarabs? ) Here's a new old game, ladies I will try to guide you if it gets off track 1. Start with a 3 letter word. 2. The next person adds a letter to make…

Foods to buy in grocery store . I will start with one word and you continue with last letter in word I give... pomogranete

Hi All, This game is a bit of trivia, may take a little thinking on our part but hey, we are good. Here is how it goes. Songs category 50's-80's. You name the song then you the next person names the band, then you list a song the next person names the band etc . One entry per turn as usual . Thanks for playing have a great…

I play this quite often on a soap opera discussion board I am a member of. It is a cool game imo. I will start with the name of a song. The next poster has to use at least 1 word out of my song name to post theirs and so on and so on. I can see clearly now

Hi all, I am right now having tremendous scanxiety about two scans I had on Tuesday. One was a nuclear bone scan, the other was a CT scan. They were supposed to reveal progress (or progression) after 3 months of Fulvestrant and 300 mg of daily Verzenio. I never had a bone scan before. The stupid technician came in after it…

Diagnosed in July 2025 with Invasive DCIS Stage 1 Grade 0 - 8 mm. Lumpectomy and 3 weeks radiation. No cancer. Oncologist wants me to take Anastrozole for 5 Years. Side effects are keeping me from not taking the drug. Can anyone share experience with this drug?

I have seen many people getting Gemzar with Carboplatnin but not Gemzar alone. My Onc thinks there is not difference in OS (overall survival) just more toxicities. I saw that on one study they had the same OS but I get different information from reading other articles. How long were you on Gemzar and how successful was it?…

Hi Everyone, Glad to be here. I am 59 yr old diagnosed recently. Stage 1 ER/PR +, HER- tumor is .8 cm. No evidence of spread to nodes based on ultrasound and MRI. Lumpectomy to be scheduled for 5 days from today with sentinel node biopsy. Surgeon is saying that I can skip the sentinel node biopsy safely based on SOUND…

Do you have a physical or cognitive disability? Have you had any type of breast cancer screening? Breastcancer.org is working on an article about breast cancer screening for people with disabilities. We’re interested in hearing from people with any type of disability about their screening experiences. It doesn’t matter if…

The hardest part of caregiving for me was the constant vigilance and helplessness. Loving someone so deeply while watching their body fail, knowing you can’t fix it, changes you in ways that are hard to explain unless you’ve lived it. With Stage IV disease, I felt like I had to stay alert at all times — listening to…