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Should I do Chemotherapy?
I was diagnosed with stage 1A estrogen positive, HER2 negative breast cancer. The lump was small and was removed with clear margins and clear lymph nodes. I am planning to do estrogen therapy and radiation. Now they want me to do chemotherapy based on my Oncotype DX score which is 32. I had genetic testing which showed no…
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tubular carcinoma
Anyone out there also diagnosed with tubular carcinoma? I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis. If you have tubular carcinoma, I am wondering about your treatment. I had lumpectomy, radiation, and tamoxifen. I am curious to know if all of this treatment is necessary…
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PTSD and cancer
https://www.breastcancer.org/community/podcasts/ptsd-20181220 I have read this transcript and it was simply amazing. I have developed PTSD type symptoms during cancer treatment and on top of other mental health issues. I have a psychiatrist to handle my physical symptoms but I'm finding it hard to find a therapist that I…
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I’m losing hope….
I just found out what I thought was stage 2/3 idc breast cancer with 1 positive node, has spread to my liver and I am now stage 4 de novo. I am only 39 years old. I have 4 young kids. There’s at least 6 spots in my liver. I haven’t even gotten a chance to start treatment and now I have no chance of fighting this???!?!…
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Big Lump on Butt from Faslodex Shot
Has anyone had a big lump from the shot. It has been several weeks since I have had the shot. There is a big Lump and it looks brusied.
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Upcoming DIEP Flap
I was initially diagnosed with a small DCIS. The plan was a lumpectomy with radiation therapy. Genetic testing, BRCA2+ gene mutation, strong family history, and the size of the DCIS measuring 65mm - the plan changed! A BMX with immediate DIEP Flap was the plan. Still a 'Stage 0'. The Plastic Surgeon changed the plan to a…
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New page for info on men and breast cancer
A new page with accurate and succinct information on male breast cancer.
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Eligard
I have had a reoccurrence and I’m now being treated with Eligard and was on an aromatase inhibitor. I have been getting really bad joint pain, and have stopped the inhibitor about three weeks ago, but I’m still experiencing quite a bit of joint pain. I am just wondering if anyone else has experienced joint pain from…
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Biopsy or not
Supposed to schedule one. But worried about it making it spread. They are concerned it could be cancerous. But my lymph nodes look fine. Why not just take it out then send it off for testing? Also my breasts are also very dense. Should I look for a doc to just take it out? Or is that too risky wait? The doc I visited just…
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Need to reinstate my life insurance - any hope?
The reasons don't matter, but I missed making my annual premium payment on my life insurance policy - taken out in 2014, 4 years after my first dx. My policy is now lapsed. I had a recurrence in 2021 and I am terrified the company won't reinstate my policy, and that I will be uninsurable. Has anyone else dealt with…
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Cannabis Basics
I have been using cannabis for the past few years. My main goal in using this is pain relief, de-stressor and for sleep. I have read some stories of using cannabis to cure cancer, but there is simply not enough data for me topursue it's use for that purpose. Let me start by saying that I live in a legal state, both medical…
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TNBC reoccurrence in treatment (Xeloda & Proton Therapy)
Hi 😊I am dealing with my 2nd reoccurrence of TNBC and currently in treatment. Starting my 4th week of Xeloda M-F (1000mg twice a day) also doing Proton Therapy. Have 20 more treatments. My oncologist said I will continue with the Xeloda after my Proton Therapy is completed. Has anyone gone thru the same treatment as me?…
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Mildly enlarged axillary lymph nodes cortical thickening 4mm
I recently had my first screening mammogram in Feb and was called back due to an assymetry for diagnostic and possible ultrasound and couldn't get back in until May. During the second one, some lymph nodes were found. I've been asked to come back in 3 months and 6 months. I've been going down the rabbit hole and panicking.…
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Verzenio/Letrozole to Xeloda?
Curious whether anyone else has had Xeloda as second line monotherapy after the Verzenio/Letrozole combo? 18 months on that but suddenly many more bone mets/lesions grown bigger so switch has been recommended by onc.
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Grape Seed Extract
the more i look into this supplement the more i'm impressed. i found this abstract: http://www.cbcrp.org/research/PageGrant.asp?grant_id=281 it looks like it acts as an AI. i know that there are some women on this site who take this supplement. my question is this: do you also take DIM? my understanding is that DIM acts to…
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Kadcyla for residual disease after neo adjuvant chemo
Hi All, Starting a new Kadcyla thread as there wasn't one before. I will be starting Kadcyla soon as there was residual disease from surgery pathology report. Kadcyla for 14 cycles is what is recommended. Any of you who have already been on Kadcyla please share how it is going for you.
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Where was your fat grafted from?
I'm having fat grafting done next week. I had fat grafting done about a year ago, and they used my upper abdomen and flanks as donor sites. Since then I've had a DIEP, so that took care of my lower abdomen. Where else can they take fat from on this next surgery? I'm thinking maybe my back (love handle-ish area) and inner…
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Newly Diagnosed
Hi All, I'm 56 and newly diagnosed with breast cancer. It still feels weird to say "I have breast cancer". I have appointments next week with a surgeon and Oncologist. I'm doing my research trying to understand the information. I'm trying to mentally get prepared for the road ahead. The hardest part for me so far, is…
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Breast cancer survival
This breast cancer journey is so difficult to endure physically and psychologically. The one thing that helps me to feel better is to hear success stories of people who have survived long term. There is a " success stories" thread on here ( that I read frequently) but it is from over 10+ years ago. Let's share more recent…
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ABC Game
Hi ladies it's easy and fun someone starts a topic and then we go down the alphabet the person who has Z then starts a new topic and we start all over again. Let's have some fun here girls! Ok here goes the Topic is Body Parts A is for Arm
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Implant infection after 10 months
Hello all. I am currently in the hospital after having emergency surgery on my left breast. I am 10 months post-reconstruction. Everything was going fine, then my breast that had the cancer turns bright red, hot and swollen. My doctor replaced my implant with a new one and cleaned everything well. We are waiting to see if…
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Tamoxifen withdrawal symptoms
I`m 38 years old and I have been on Tamoxifen for 5 years.Now has been a week without it and I`m not feeling too good.Does anyone know about withdrawal symptoms?
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Mondor’s & Cording
I was diagnosed with DCIS February 2023 and had a lumpectomy last April and a re-excision in June followed by 21 sessions of radiation. I had a weird rope like cord stretch under my breast into the side of my stomach I noticed February 2024. My breast surgeon put me on a high dose of advil for a week and it did nothing. I…
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Onctoype 16- premenopausal…
what did you do when you were premenopausal and in what the doctor calls the “gray area” (16-25) for chemo and given the option? I’m not sure what to do because I had some things that worried me on my path report and the radiologist oncologist mentioned it as being “more advanced”. I had one of four nodes positive with…
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Fareston (toremifene) for MBC post-menopause
Are there any Stage IV ER++ ladies here on toremifene as hormonal therapy? I have an MO appt next week and am going to ask about switching from Arimidex. My reasons for wanting to switch - I think I am developing carpal tunnel in my left hand, which can be a side effect of anastrozole. My pinky on that hand is now…
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Tamoxifen
Is there anyone here that is currently taking Tamoxifen and is experiencing suicidal bad thoughts? I am on the verge of wanting to stop it all together. Taking an additional anti depression pill is causing even more severe side effects. One pill covering another, when the main issue is Tamoxifen. Anyone reading this, if…
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Beginning Targeted Therapy? Start here.
Please start a new post/discussion for a targeted therapy that you'd like to discuss, if you don't see it here already, so others can join in with their experiences. Note: If you are Stage IV (metastatic), there are many threads addressing these medications for Stage IV patients in the Stage IV forum you may find helpful.…
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quick MRI Biopsy Results are already in MyChart, but I'm not looking...
Hello- I had an MRI guided biopsy today for a BIRADS-4 designated 5mm non-mass enhancement (focal with washout kinetics) that was found on a baseline MRI two weeks ago (dense breasts, multiple u/s biopsies and high risk assessment score got me approved for the MRI); the procedure itself went fine. Lengthier than the…
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calling all t1A (> 1 mm but < 6 mm) sisters who are HER2+
I decided to start this thread to help others who may end up in this "grey" area and are struggling to make a decision about chemo/Herceptin or not. Current national guidelines do not recommend treatment for our stage. Treatment is only considered for 6 mm and up HER2+ sisters. HOWEVER, some docs do still treat t1A…
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What do you wish you had known when you (or your loved one) were first diagnosed?
Share words of wisdom, unique tips, self-care, and coping advice for our newbies here! It will make a difference for all those joining us this year. Thank you!