Recent Discussions
Discussion List
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New Year 2026: A Gentler Kind of Intention. What's yours?
You don't need to set big, lofty resolutions in the New Year that can set you up to fail, causing disappointment. Some of the most powerful and attainable intentions we hear from this community sound more like this: “I’m learning to protect my energy.” “I’m saying what I need out loud, even when it’s uncomfortable.” “I’m…
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Double Mastectomy without reconstruction
Hi, I was diagnosed in July 2025 with TNBC. Stage 2a. I have gone through my 12 cycles of taxol/ carbo/ keytruda. My AC/ keytruda was stopped it landed me in hospital during Thanksgiving. I am scheduled to have a double mastectomy without reconstruction on 12/30/2025, I am a little nervous and trying not to be depressed.…
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HRT with ADH
I was diagnosed with ADH 11 years ago. Recently I have been going through perimenopause and have been having hot flashes along with other symptoms. Has anyone been put on HRT and had issues with it causing any issues with your breast health?
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tamoxifen side effects--25 years post menopausal
hi there! diagnosed in august with idc, lumpectomy and mammaoplasty (bilateral breast reduction), finished 5 fraction whole breast radiaiton on Dec 5, just started tamoxifen yesterday, 20 mg . didn't really expect side effects this soon, but… felt just generally weird both yesterday and today; sneezed a lot this morning…
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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Métastases cérébrales (brain metastasis)
Bonjour, J’ai eu Phesgo pendant 8 mois pour une métastase au foie. Réponse complète métabolique. J’ai fait une crise d’épilepsie début janvier 2026 et on a découvert des petites métastases cérébrales. À venir Stéréotaxie et Enhertu … je recherche des témoignages, j’étais en pleine forme , prise de sang ok …. J’ai besoin de…
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Just had my lumpectomy today
I think it went well. Some initial pain that is manageable with Tylenol and advil. Looking forward to recovery and next steps!
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help! vagifem no longer working :(
Forced medical menopause at age 31 (first with Lupron, then ovary removal due to cancer/BRCA1). In the beginning, using vagifem 2x/week worked amazingly. No pain or dryness. Over time, I had to go to 3x/week (highest safe frequency), and add all kinds of things the other nights: coconut oil, vit e, Replens, Revaree, KY…
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GOLDILOCKS MASTECTOMY (aka SWIM reconstruction)
anyone has experience with Goldlocks mastectomy? Please share your experience Thanks
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6 Letter Word Game
This is the same as the 5 letter word game, but this one's 6 letters. Change just one letter from the previous word and make a new word: record
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How can they tell the difference between osteonecrosis of the jaw & osteoradionecrosis?
I am in the early stages with a periodontist about puss in my gums. I have not had any dental issues before and get my teeth cleaned twice a year. The periodontist thinks I have osteonecrosis of the jaw from using XGEVA and have caught it early. I saw him in December and will go back in a few days for my second…
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Er+ Pr- her2- survivors?
hi. I’m really reaching out to see if there are any long term survivors of this type of bc. Online Google searches have me pretty scared. I’m 42. My oncotyoe was 21. Node negstive with stage 2A.
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Annual MRI Results - Extramammary findings?
Hello Everyone, I just turned 40 and alternate MRI and Mammogram/Ultrasound every 6 months due to family history. So far, they have been benign. This one says benign, but mentions "tiny bilateral pleural effusion". When I asked Dr. Google (I know…) about it, I saw both that this can be an indicator of really bad things,…
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fatigue
how do you deal with the fatigue and no appetite
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DCIS Stage 0 High Grade HR+
Hello to all you brave women!! I just joined this site and am making my first post. I am hoping for guidance and advice and what anyone else has done as I am feeling anxiety and some stress about what to do. I am 55 years old and was diagnosed in June at 54 years. (I just had a birthday in Oct) As in my title I was…
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Who's starting Radiation in November 2025? Let's gather here to share!
Are you scheduled to start radiation soon? Let's make a space where we can encourage each other who are traveling radiation road together — share experiences, get tips, ask questions and get answers from those who've "been there." We encourage you to share your diagnosis, any previous treatment you've had, and your…
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Post-tamoxifen and Lupron - Removing ovaries with hysterectomy or not? ER+/PR+/HER2-
I was diagnosed in 2020/age 40 with ER+, PR+, HER2- breast cancer. Unilateral mastectomy; no chemo/radiation; I finished my 5 years of Tamoxifen in September... and felt fine on it. When I stopped, I felt like I was on a crazy hormone rush with breast pain in my remaining side, which was scary. Then, I started having…
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Feeling ignored
hi, I’m 42 Recently had a mammogram as I have found a new lump. I have been told it’s a cyst and that is normal ‘for me’ however, this isn’t normal for me. This is new. No biopsy was taken and just told to continue checking and come back if anything changes. I’ve been doing lots of research and there appears to be so many…
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Anyone from Nothern Virginia
I am looking for swim reconstructions or Goldilocks . I am not finding any plastic surgeon . Can someone recommend it? Thanks
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Verzenio What has worked for you diarrhea
Hi Starting Verzenio today. Dr is starting me on 50mg 2x per day, to ease me into it. Do you have a regime that has worked for you in combatting diarrhea? I am going on vacation with my kids and I don't know how I'm going to manage it other than trying Imodium. TIA
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Tamoxifen side effects
Hi, I am a 69 year old diagnosed with Stage1 HER 2 + ductal carcinoma 4 years ago. Ive been taking Tamoxifen for 3 years post lumpectomy for removal of a lump less than 1 cm. Lymph node testing was negative. I completed Radiation, but no chemo was recommended. Genetic testing negative and no family history. I have…
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cording (axillary web syndrome)
Good morning! I’m 4 weeks post op from lumpectomy with SLNB. About a week ago I noticed worsening range of motion in my arm and a “cord” in my armpit on the surgery side. The lymphedema RN confirmed its Axillary Web Syndrome (cording). Man is this painful and frustrating! I can feel the tightness thru my forearm. I have a…
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Early stage lymphedema???
I’m starting PT after lumpectomy and radiation. I had cording, breast swelling and some pitting in my skin BEFORE radiation, and all of that has continued with increased nerve compression. I’m sure there is fibrosis occurring as well. I have no swelling in my arm yet. My PT has advised I wear a compression bra daily and…
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Possibly second diagnosis
I haven't been on this page for quite a few years now. I had to walk away for a while for my mental health from all things breast cancer and pink. I am 14 years out from my 1st diagnosis of stage IIB ILC. I recently had some swelling and discomfort in the axillary area of the affected side (I am post bilateral mastectomy).…
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What to do with old Flexi-Touch equipment?
Several years back, I was prescribed a Flexi-Touch pump. The garments I wore had velcro closures and I used the pump daily until the seams on the garments started getting holes in them probably from being pumped up daily for several years and they eventually wore out. I understand that now they have zippers instead of…
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Doxil pain
Hello. On my first round of doxil. Did anyone have a lot of upper and lower back pain?
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Seroma
Hello! I had a lumpectomy 2 weeks ago. My tumor was in the left breast at the 8 O’Clock position. I am having increased pain and some redness. I have a hard lump above my incision that continues to below my incision to my abdomen. This lump is painful and tender. I do not have any fever but this lump is concerning and I…
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21 years, am still here
I just had my 21st Anniversary and 4th Anniversary of Stage 4. Am still around. Have almost lost count of Faslodex and Ibrance. It is @ 52 cycles. So stay strong, there is hope
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Another biopsy after 2 years clear......
My wife was operated on for stage 0 DTIS and received radiotherapy at the end of 2023. She thought with today being the last day of the year, she would go and see the results of her latest followup checkup, which for work reasons, she has no way to get to the hospital until today. She just called me and said the doctor is…
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Podcast: Top Research From SABCS 2025
Top Research From SABCS 2025 December 12, 2025 The 2025 San Antonio Breast Cancer Symposium featured four days filled with new research findings, poster presentations, and educational sessions. Marisa Weiss, MD, founder and chief medical officer of Breastcancer.org, offers her take on the top results. Listen to the episode…
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Popular Tags
- Research News 116
- Mastectomy 111
- Podcast 97
- Metastatic Breast Cancer (MBC or Stage IV) 95
- Invasive Ductal Carcinoma (IDC) 86
- Lumpectomy 78
- tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox) 69
- Anxiety 68
- Triple-Negative Breast Cancer 63
- Ductal Carcinoma In Situ (DCIS) 58
- Lumpectomy vs. mastectomy 57
- ER-positive 53
- Breast implants 49
- Femara (letrozole) 45
- Taxol (paclitaxel) 42
- AIs (Aromatase Inhibitors) 42
- AC: Adriamycin and Cytoxan 41
- Arimidex (anastrozole) 41
- Dense breasts 41
- AC+T (Taxol): Adriamycin and Cytoxan plus Taxol 40
- Abdominal Pain 36
- Recurrent Breast Cancer 36
- Kisqali (ribociclib) 36
- Hormone receptor-positive HER2-negative 36
- Verzenio (abemaciclib) 36