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Dcis er/pr+ her 2- radiation fatigue
Hi I am 66 yrs was diagnosed last October 2023, lumpectomy in Dec then Sentinel node surgery in Feb 24. Did 20 radiation treatments finished apr 2. I am having crazy fatigue thought it might ease off but seems to be getting worse. I have to rest by 3pm everyday. Would like to hear how others are dealing with fatigue.
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Joint replacement and Ribociclib
I had a total reverse L shoulder replacement 5/9/24. I stopped the Ribociclib a month before surgery to have adequate counts. Im interested to know if there are women out there who have undergone joint replacement while on Ribociclib and when they resumed their dose cycle. My oncologist wants to resume in 3 weeks. I am on…
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A New Expressive Writing Community for Breast Cancer Survivors
Hi! I hope this is the appropriate thread to present this project. (I did check with Breast Cancer .Org for permission before jumping in like this.) I am Ren - a poet, playwright, and teaching artist (PhD), who finished active treatment for stage 2B breast cancer in January. I lost my best friend to cancer the same month I…
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10 years after BC diagnosis, I have mets in lung which are BC
Hi All My oncologist called this morning to confirm that the node in my lung is indeed breast cancer, it took them a few days to figure out but they knew it wasn't lung cancer. I'm so shocked. I had stage I, HER2+ breast cancer diagnosed 10 years ago and had a lumpectomy, lymph node removal (which was clear for cancer),…
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Chemo types help
I am so confused!!!! I met with my oncologist who suggested neoadjuvant chemo. AC and then Taxol before surgery. BUT because of my cancer type she said I’m eligible for a mammoprint study. HR+, HER2-, ki-77%, 4.7cm tumor, grade 2, 1 lymph node positive. They said I could be eligible for immotherapy if I do the study so I…
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Another confused newbie...
I am feeling very alone in all of this. I went from a perfectly normal mammo, to a cyst that just needed to be drained to a highly suspicious BI-RADS Category 0 to a highly suspicious 4C diagnostic ultrasound and Abnormal lymph nodes in 3 months' time. My doctor said she cannot tell me what the diagnostic mammo &…
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Increase of Tumor Markers Within Normal Range
Has anyone had experience with tumor markers increasing within the normal range? Since completing treatment I had been staying in the 13-14 range on the CA 15-3 since completing treatment. I just had it increase to 19.6. I know that's a "normal" range, but it is still concerning to me. Thank you all - what a great…
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What? I have cancer?
Let me say, first…save all drafts before leaving this page. I had quite a novella written, and well…here I am again, starting over! 🤣. I was diagnosed in January of this year with lobular breast cancer…ME…that disease that happens to other people! I was lucky that it was found EXTREMELY early. Treatment included a breast…
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Been on Letrozole almost 4 years IDC
I will not list all the SE I had during my last 4 years on the 2 ALS I tried but it was not good. I took a 41/2 week break still had some major foot pain, sores not healed up in nose and very itchy scalp any how I am now cutting my Letrozole pill in half and taking it every other dayIF my SE come back in full I am done. I…
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Lynparza Approved To Treat High-Risk, Early-Stage, HER2-, BRCA+
Lynparza Approved To Treat High-Risk, Early-Stage, HER2-Negative Breast Cancer With BRCA Mutation Mar 13, 2022 The FDA approved Lynparza to treat early-stage, HER2-negative breast cancer with a BRCA1 or BRCA2 mutation and a high risk of recurrence, which also has been previously treated with chemotherapy — either before or…
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Stage1 BC Negative nodes-Clean Margins -Onco 35
I declined Chemo as I have CRPS - not sure if I made the right decision. Still have time do it ?? Had surgery now scheduled for radiation and at today’s visit she want me to start Anastrozole and Kisqali - given all the side effects I’ve been reading about Kisqali it presents very close to Chemo. Would love some input. My…
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Please share stories around Mother's Day! Happy, sad, any reflections!
With Mother's Day celebrated in the U.S. next month, we want to hear your perspectives, memories, and thoughts. Knowing it can be a special time for families and it can be difficult for many enduring breast cancer treatment or grieving loss, we want to acknowledge your feelings and share some stories in further in our…
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Please help interpret results
I recently had a mammogram and ultrasound screening done . Any help deciphering would be greatly appreciated. BILATERAL DIGITAL DIAGNOSTIC MAMMOGRAPHY WITH TOMOGRAPHY AND COMPUTER AIDED DETECTION AND LEFT BREAST ULTRASOUND COMPARISON: None. FINDINGS: Mammography: Digital diagnostic 2-D and 3-D mammography was performed of…
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What’s most important to you for your overall health?
Share your experiences and any thoughts in the topic below ❤️.
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Affording multiple compressions sleeves
Hi all, Curious how many sleeves everyone has at one time. I've been told that you should replace them every 6 months but I can't even imagine doing that with the cost! They say you should have multiple sleeves so when one is being washed, you have another. And then replace them after 6 months? Just curious what everyone's…
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The Finishing Touch
I had DIEP reconstruction over fourteen years ago That ended with the plastic surgeon making a little nipple shape (I think it was called a C-V nipple). Since it's pretty much the same color as the rest of my skin, it only gives the illusion of a nipple through clothing. I did some research into areole tattoos back then,…
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Just diagnosed with IDC ER+ PR+ HER2+
I just was diagnosed with Invasive Ductal Carcinoma ER+ PR+ HER2+ on Dec 23rd, 2023 but still do not have an oncologist. I do not know what is normal for being diagnosed with cancer as I have never had cancer in my life before. I do not know the Stage or Grade of the tumour yet. I am in Canada. When looking up anything…
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Share your stories of online support friends here: From the forums or zoom meetups
Hi All, We'd love to hear about the supportive relationships that have formed at Breastcancer.org. Thank you All for sharing! 💜 Your Mods
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First Mammogram after treatment
I have my first mammogram after treatment on May 13 and I am really nervous. I know that it should be okay, because they got it all with clean margins and no lymph node involvement. But I have test anxiety for sure. Also, I had a seroma develop in the arm pit area and it had to be drained twice and leaked out of the…
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Given my dx, should I adopt a dog?
Okay, bear with. Last year was the sh*ttiest year of my life, bar none. My DH was dx with prostate cancer (now in active tx), I had my own crappy dx (in active tx), and probably the worst hurt was that we had to say goodbye to our own fur girl, Preshy, who had been in our family for 13 years. She was my soul. Got me…
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Tamoxifen and aging
Has anyone noticed an accelerated aging process while being on tamoxifen?
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Itchy rash after lumpectomy
hi there, Looking for advice please BC friends? I had a lumpectomy and SNB 5 weeks ago today. Lumpectomy Incision was all the way around my areola. I had my dressings taken off approx 2.5 weeks after surgery and thereafter developed an itchy rash around the areola. Saw my surgeon who advised it was some kind of skin…
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Not sure what kind of scan I should have for possible bone mets
Hi all, I started having pain in my groin/hip area the end of March, not sure if it was caused from exercising. Anyway, it hurts when I walk in hip/groin area. Wearing a ace band as a brace, and I also take pain meds for truncal lymphedema that also helps with the pain. The pain causes my gait to be off & I walk with a…
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Mammogram
I just got a mammogram and it came back 3.3 cm asymmetry on right breast us follow up advised. Any other women had a dx of breast cancer that started this way.
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Seeking hope/thoughts
Hi all, My mother is now on her third cancer battle. In 1995 she had non Hodgkins lymphoma - she had chemo, radiation and a stem cell transplant In 2018 she was diagnosed with triple negative invasive ductal carcinoma - mastectomy and chemo In November 2023 she began having pain in her sternum. A CT scan & bone scan showed…
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Any regrets surgery brca positive
if you removed your ovaries and uterus because of genetic testing do you have any regrets or are you happy? What was your experience. My daughter is having a very difficult time making this decision. She has decided on extra screening for breast cancer but all doctors are urging her to remove ovaries now. Thank you for…
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Newly Diagnosed/Timing/Doctors
I was diagnosed with IDC yesterday. Not a surprise since the radiologist told me it looked like cancer before the biopsy, but the good news is that it is small. I booked an appointment with someone on my list who had an opening. The most recommended surgeons appear to be unavailable for months, or at least 1.5 months. The…
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Skin tethering and frustration
After receiving the initial diagnosis in Australia, I went back to my home country, with the advice from the breast surgeon in Australia that the lump could be removed by surgery followed by hormone therapy. Unfortunately, after my doctors back home took a look, they said there is something called skin tethering, that the…
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AI or targeted therapy failure?
Hi there, Just wondering how one knows which medication failed if you are taking a targeted therapy and an AI? My sister is on Ibrance and Letrazole and MRI was clear on spine in November and now a 19 mm spot on T2. Her tumour markers have also been slowly rising. Her cancer is lobular, estrogen positive, progesterone…
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Weakness and spasms after DIEP
I had a Diep flap reconstruction in September of 2021. I had ongoing problems with lower abdominal weakness and cramps like large charley horses since recovery. It’s only on one side. I’ve had pt with a group who specializes in breast cancer patients, and pt remotely through MD Anderson. They all focus on building strength…