-
Switching from Ibrance to Verzenio - Tips?
Daughter/caregiver here to a mom (70yo) with MBC. I'd love to know if anyone has experience switching from Ibrance directly to Verzenio. Context: My mom has been on Ibrance for 14 months, with an excellent response. She quickly had to reduce her dose to 75mg due to immediate neutropenia, but was able to get a handle on…
-
Metastatic Breast Cancer (Liver met)
Hi, My sister-in-law is currently suffering from metastatic breast cancer with metastasis to her liver. She was first diagnosed in 2019 and the cancer returned in April 2022. Her cancer type is ER+, Her 2- She is currently on palbo however we were told that drugs can develop resistance over time. We need help on how to…
-
Paid survey by phone/computer
Hi! For those who don't know me, my name is Kris or KBL on the forum. I've posted before about surveys I've done with RC Horowitz. They are a research company who performs surveys. Aside from the other post I placed, they're also looking for up to 30 participants to have a phone/computer survey. This one will pay $175. It…
-
Breast lump, precancerous colon polyp...my DNA cant be trusted
Hi everyone, I really appreciate this supportive community that has formed, especially the thoughtfulness that has gone into creating a space where those of us who are undiagnosed can express concerns without taking away from the much-needed support offered in the other forums. I'm 31, and a few months ago my husband…
-
Podcast: Hope After a Triple-Negative Diagnosis
Thought you all might be interested in this podcast from Breastcancer.org: Hope After a Triple-Negative Breast Cancer Diagnosis Hope you find this helpful! -- The Mods
-
talk to Physician who has cancer
Don't really know if this post belong here, whoever moderating this group please move to appropriate section. How does one talk to primary care physician about one's fear of cancer when the Physician herself is in remission? One doesn't want to trigger any worry for her. Thanks, Nguyen (Wife Linda, stage IV)
-
Crazy metastisis with lobular
Hello… I was originally diagnosed with ILC in 2013, stage 2B with three lymph nodes positive. I was ER positive and her2 negative. Had double mastectomy, 8 rounds of ACT and 5 years of AI. Now I have been diagnosed with malignancy in a lymph node in porta hepatic which is where blood vessels feed into the liver and other…
-
Eating alot and losing hair
Omg, I've been eating like a wrestler lately. Craving salt and meat since my 1st chemo. I'm also starting to see strands, not clumps, of my hair starting to fall off. Eek!
-
Bisphosonates - strange side effects
hello Has anyone suffered strange side effects? I've been on Actonel/ Riseondrate for a couple if months. Suddenly I have irregular heart rate and strange back and hip pains (all to be investigated of course). Angie
-
ILC MRI results, answers please
Hello all, Yep, the sneaky ILC. Mine is 1.9 cm mass, lumpectomy scheduled. Sent to get MRI for a "better look". No lymph node involvement but some "subcentimeter" nodes and linear enhancement throughout breast. The rad doc recommended follow up ultrasound of full breast and if no correlates a MR guided biopsy of 1 of 2…
-
Has anyone here developed Pre-Diabetes during Hormone Therapy
I see BCO has an article about this https://www.breastcancer.org/research-news/link-between-hormonal-tx-and-diabetes My story so far - after always having fasting blood sugar in the 80s or even the 70s, my last two readings at the oncologists office, three weeks apart, were over 100. The first time, I had a smoothie not…
-
Bump over TE
Hi everyone. I had a DMX about two months ago and had my final fill last week. Day after the fill I noticed two pimple like bumps (sort of looked like in grown hairs) next to each other and when you touch it it feels hard (almost like plastic). Saw the nurse today and she thinks it's likely the expander but wants an…
-
IBC Anxiety
Hi, I'm new here. This post will be pretty long and I want to thank anyone who takes the time out of their day to read and reply. I'm extremely anxious about my health. Just a few months ago I was 1000% sure I had a blood clot and just days to live. I didn't have a blood clot. I know because I went to the E.R. and then to…
-
Nipple sparing double mastectomy
I had my surgery in 2019. I was very lucky. No chemo or radiation. I was on Tamoxifen until October. Then my Oncologist switched me to another estrogen blocker. Most recently my nipples have become very sore and sensitive? Is this typical? Usually they are numb and uncomfortable. I thought maybe it is a side effect of the…
-
New Pathology Results - Does It Matter?
I had a BMX on 10/8/21 with immediate reconstruction. At the time, my primary tumor was 2.5cm, grade 2, ER+ PR- HER2-. They found a 4mm macromets in a sentinel node, no additional nodes taken. Oncotype was 25 and I was only 42 years old, so I did 4 rounds of AC, 12 rounds of Taxol, and 25 sessions of radiation. I'm now on…
-
Zest trial
Is anybody participating in Zest trial? Thank you
-
ZEST trial
Is anybody participating in ZEST trial? Thank you
-
Phyllodes Tumor…anyone else?
I have a long thread in the not diagnosed forum about my tests and biopsy that led me to this point. I'm having surgery Friday to remove a likely phyllodes tumor. The dr said the pathology couldn't rule out a benign or low grade phyllodes tumor, and then when she checked it, it has grown quite a bit since my biopsy 9 days…
-
August 2022 Surgery...Anyone else out there?!
Starting this thread as I'm sure others are scheduled for surgery in August. I'm scheduled for DIEP on August 25th. Had BMX Sept 2020 with immediate reconstruction with TE's, had my exchange to implants July 2021 and diagnosed with a recurrence a few days later. Did 25 rounds of radiation Sept/Oct 2021, to which my newly…
-
Breast cancer mets to lungs but now called mucinous carcinoma
I am a 62 year old female. DOB 4-13-1960. I was treated in 2012-2013 for Stage IIB Breast Cancer EST and PRO positive cancer. Double Mastectomy DIEP at Westchester Medical Center in NY. Had 6 rounds of chemo, then after two surgeries, had radiation on R breast with an HMRT machine to limit exposure of my lung. Oct 11,…
-
Awaiting Biopsy BI Rads 4B
Hello all, I hate seeing so many people on here, however I'm glad I have found a group where I can express my concerns and maybe alleviate some anxiety. During my first mammo screen in 2016, they found a spot, had the ultrasound the same day and determined to be a cyst (Left breast) aspirated the cyst and everything has…
-
Radiation after Mastectomy
Hi all. I recently had my left breast mastectomy 5 weeks ago. I had a Pathological complete response to treatment so I am very blessed. I am now struggling with the decision to do radiation or not. The radiologist says it is my decision and if I do it it’s like an insurance. I was looking at the side Effects and saw that…
-
Hormone Therapy and Inhibitors
I have recently been diagnosed with a reoccurrence. It has been 14 years of bliss until now. In 2008, I had a mastectomy's and checmo TAC and radiation 28 sessions. I am ER positive 97%, PGR Positive 69%, Her2 Negative, but then the nasty KI-67 which is 30% That's the bad guy. It is inoperable because it is in my arm pit…
-
BlRADS 4A, biopsy pending results
Just had my biopsy done on this complex cyst this morning. It's rated a Bi-rads 4A, so I'm not concerned. I was able to see photos of the area and it doesn't look like a normal black circle. It's more oval, with what looks like walls and other junk just floating around; they are labeling it a multiseptate complex cyst with…
-
New metastatic diagnosis
I just received my path report after 4 months of testing for a suspicious lymph node in portahepatic area near liver Results: porta hepatic lymph node positive for metastatic carcinoma with apocrine features. Tumor cells positive for GATA3 and CK7, negative for PAX8, GCDFP and mammoglobin. Although breast origin is favored…
-
Starting Radiation October 2021
Hello! Wanted to get a thread started for October radiation, I've met with my Radiation Oncologist and I'll be receiving 30 treatments. I also had my simulation this week and have my markers in place. Technically I start September 30, but what's one more day!
-
What to tell new employer?
Hi, I just started a new job. I switched jobs JUST for better health insurance. Unfortunately, I went from mammogram to callback to biopsy, and now I'm due for an excisional biopsy, then the wait for results. I don't know what to say to my employer, it'll be day 5 on the job, and the surgery is scheduled for the whole day,…
-
Stage 4 - MBC long term survivor (3+ years)
Hi, I was recently diagnosed with stage 4 MBC. A friend of my friend has been living with MBC since 2012 (she’s been on clinical trial since 2012). This kind of story gives us hope, I would love to hear from anybody that’s been living with MBC for 3+ years. Please share your story with us
-
Abnormal Blood test worried about recurrence, help interpreting
Had my annual physical with primary care doc which included cbc differential and comprehensive metabolic panel. Im so scared that these number could mean the cancer is back or spread somewhere else and i dont know how to interpret these numbers. Looking for some help while i wait for Dr tp call and go over. I'll just post…
-
recurrence after mastectomy
I was diagnosed with a stage 2 hormone receptor positive tumor in Feburary 2020. I had a right side mastectomy and was supposed to take tamoxifen to prevent cancer in the other breast. I started taking it but stopped because I was afraid of the side effects and that I would have to switch from Fluoxetine to another…