-
Wife diagnosed Stage IV de novo:
This thread was started as a response to member KBL's question in another forum about those diagnosed with stage iv ILC de novo. But that forum is for stage iv patients only so I could not post there. I am contributing on behalf of my wife who isn't really keen yet in participating in support groups. As her caregiver I…
-
International Invasive Lobular Breast Cancer Symposium September 28-30 Pittsburgh, PA
September 28-30, 2023 Put this on your calendars! World Experts on Lobular Breast Cancer. Advocates welcome.
-
Who has finished HT and do side effects go away?
I am new to this group. I had Stage II breast cancer in 2019. No chemo, just started out on Anastrozole but had terrible insomnia, joint pain and arthritis so I went on Letrozole after 2 years. I was walking 6-9 miles a day for a month just as I started Letrozole, my weight went up and my cholesterol went sky high.…
-
Best doctors for breast cancer in Los Angeles area
I will appreciate if someone can recommend doctors with experience in Triple Negative breast cancer in Los Angeles area.
-
Not sure how I feel
I found a lump a week ago (Feb 16th) in the upper/outer section of the breast. My gut said it is cancer. I told my adultdaughter and husband on Saturday Feb 18th). Saw my PCP on Tuesday (Feb 21st). I went in today (Feb 23rd) for a diagnostic mammogram and then ultrasound. The radiologist said we need to biopsy the lump…
-
Tips and tricks on how to get through chemotherapy
Hi all, i would love to hear all about your tips and tricks on how to get through chemo in terms of hair loss, nutrition, and other side effects. I start next week. TC , 6 cycles. Any help/input will be appreciated. Thank you
-
Pelvic ultrasound question
Hey I just wanted to get someone else’s opinion. I just had a pelvic ultrasound done for some irregular bleeding,pelvic pressure and pain. I am 4 years on tamoxifen. It was done in my GYN’s office and was told the doctor would read it. I asked if it would be sent to a radiologist and they said no. It worries me with my…
-
Scared and just diagnosed
Hi everyone, I was just diagnosed on May 1st....my birthday 🙄 I have Invasive Ductal carcinoma grade 3. What happens at the next appointment? I don't know what stage I am. What happens next? I am trying not to panic as I don't want to freak out my kids....but I'm scared.
-
How to find palliative care in a small town
Q: I’m in a small town in Texas, and there just doesn’t seem to be much out there when I inquire about ongoing palliative care. Is it a big medical facility offering? Is it not well-funded so no one is interested? I’m not talking hospice, I’m talking palliative. So many of us could benefit from the added care for our…
-
Confused about mammogram
Hello, I'm 40 years old and was told I needed a biopsy on my right breast. I did have a breast lift a year and a half ago. My mammogram came back as bi-rads 4b with fine pleomorphic microcalcifications. How often does this come back as cancer?
-
Research News: Guidelines for Individualized Palliative Care for People Diagnosed W/ MBC
Guidelines Help Oncologists Provide Individualized Palliative Care for People Diagnosed With Metastatic Breast Cancer Aug. 2, 2021 General oncologists have received new specific, practical recommendations on how to offer individualized palliative care to people diagnosed with metastatic breast cancer. Read more…
-
Research News:Starting Palliative Care Earlier Benefits Caregivers & People W/Advanced-Stage Disease
Starting Palliative Care Earlier Rather Than Later Benefits Caregivers and People With Advanced-Stage Disease May 25, 2015 Two studies have found that starting palliative care earlier rather than later in people with advanced-stage cancer offered benefits to both patients and their caregivers. Read more…
-
What is hospice care? Info and resources for end of life.
You may feel good for an extended period of time if you decide to stop treating the cancer. But eventually you may need help controlling pain or other symptoms and staying strong. Hospice care offers physical, emotional, and spiritual support at a center or in your own home. Hospice care is covered by most health insurance…
-
What is palliative care?
Palliative care focuses on improving the quality of life of those who are facing challenges associated with life-threatening illness, along with their families. Symptom management includes physical, psychological, social or spiritual care, and involves a variety of services delivered by a range of professionals that all…
-
Timeline
Hi all, I'm new, I was just wondering what was the timeline from you from when you were diagnosed to when you had surgery? I had a biopsy on the 18th and it came back May 1st positive for IDC. I now have an appointment I think with the general surgeon on Tuesday May 9th. I'm sure she's going to schedule me for an mri, but…
-
second lumpectomy
I opted for a second lumpectomy on the advice of my surgeon instead of a mastectomy. Has anyone done the same and did you have a reoccurence of cancer?
-
Tissue Expander Placement Surgery - How Painful?
I had a double mastectomy with immediate reconstruction with TEs at the beginning of January 2023. In Feb. 2023, the expanders were removed due to non-healing wound edges from the mastectomies. Since then, I've been waiting to re-do the reconstruction (likely around the end of July/early August.) My question is, for anyone…
-
In Memoriam List from the BCO Community
[Note May 4, 2023: Due to its length and difficulty to load and make additions, we have closed this discussion. A new thread has been created by @celia088. If you would like a name to be added to the list, please visit the BCO In Memoriam thread, Part 2.]…
-
Mastectomy with close margins
Hi, I recently had a bilateral mastectomy to remove a large section of DCIS in my right breast. My surgeon said the margins were clear and that’s all that matters (the closest ones were the superior at 1mm clearance and the deep at 2mm clearance). He said the recurrence rate is less than 5%. However, I’m 35 and the dcis…
-
Stage 4. Feeling ready to throw in the towel
hi everyone, Im feeling very defeated. I have been through several of the pill options and have started iv chemo (navelbine). I have been on iv chemo for 3 cycles and my tumor marker continues to climb. Now at 1210. Im so sick and tired of the fatigue, the headaches, the nausea, the anxiety etc etc etc. Im thinking of just…
-
Right side Delayed Latissimus Dorsi Flap with left side preventive mastectomy and implants
I am 11 years out from neoadjuvent, modified radical right side mastectomy, radiation and Xeloda for stage 3b idc. I am now looking into reconstruction along with preventive mastectomy. PS recommended lat flap on the right w TE and TE on the left after mastectomy followed by implants. I am 60 years old now and seem to…
-
Being rushed for a biopsy, worried!
Hi everyone, If this comes across as "all over the place", I apologize. I had my very first mammogram last week as I just turned 40 this past December. I got called back. Completed my diagnostic mammogram and ultrasound and the doctor is worried. She rushing a biopsy for tomorrow and results by Monday. My head is spinning.…
-
recurrence patterns
I have been wondering if there are any statistics regarding recurrence patterns. When do most recurrences happen? In the first 5 years? 10 years? Or is it all just a crap shoot? Do treatment choices change recurrence patterns? I know that mastectomy has a lower recurrence percentage than lumpectomy, which makes sense as…
-
Architectural distortion but nothing on ultrasound
I’m 35 with a history of cysts in my left breast. I noticed a new more stretch marks and what looked like a dimple a few weeks ago. My doctor scheduled me for a diagnostic mammogram and ultrasound. The 3d mammogram found an area of “architectural distortion and two well circumscribed masses”. The ultrasound showed 2 small…
-
Uncertainty about life
We all have a busy life and on top of that we have to face up to the uncertainty and fear…about breast cancer. Let’s share some words, if possible, that bring each other courage on this journey.
-
I cannot believe what I have just been through with our local hospital
In Feb I found a lump in my breast and went to a bulk billing GP to ask for a3D mammogram as I had been told in the past that I had a dense breast tissue and it was hard to read. At this stage it was offered re bulk billing in 2 imaging services in Townsville 2 days a week. I 1st asked the GP for a blood test form as the…
-
Minimal response to neoadjuvant chemo. Hope needed
Hi All, this is my first post. I'm hoping for a little support I have just had pathology results following neoadjuvant chemo and have had minimum response. 7 nodes still positive and tumor still large. Im absolutely devestated. I have 2 small children and im struggling to see a light at the end of all this, I'm heartbroken…
-
Implants after radiation or go flat
I am about to have UMx soon. I met with my plastic surgeon. Once my PS heard that I need radiation, he started to talk me out of implants. I have small breasts to begin with, so if I do implant, I will need to augment the other side too. My PS worries that if I have capsular contracture - then I will end up with asymmetry…
-
Periods after Chemotherapy
Hello, want to know if/when your periods restarted after chemotherapy. I completed my chemotherapy on March 15 and my periods haven't started yet. I am receiving radiation therapy currently.
-
Bio markers for DCIS
hi everyone, I found out my bio markers for a large area of dcis were estrogen positive (11-33%) and progesterone negative, her2 status ( not tested). Does this matter with a dcis diagnosis? There does not seem to be a lot of people with this type of hormone status (er pos, pr neg). Trying to navigate this new normal of…