-
Biopsy pathology report has me confused & scared
Hi, everyone! I have read through the stickied posts and I have a call into my radiologist’s office but I’m feeling mighty panicked right now and was hoping someone else has been in my shoes and can share their experience while I am waiting for an answer. I had a biopsy to my left breast and left armpit last week. The…
-
Anyone in Denver Want to Walk With Me 10/16?
I am leading a team to help support flat visibility at the Making Strides ACS walk on 10/16. I got to do an interview with Renee Ridgeley about the walk and about how being openly flat or uni can be such a reassurance to other people facing a mastectomy. I hope to see y'all in October! Instagram - Interview with Stand Tall…
-
leptomeningeal carcinomatosis
Hello, I found out last night at 10pm that I have leptomeningeal carcinomatosis. I have been in the hospital since Friday (it's Tuesday). I may go home today or tomorrow or who knows. I have to start WBR today. And I will be switching chemos from Gemzar to Abraxane and Carboplatin. My MO said that if the WBR doesn't work,…
-
Walking barefoot and neuropathy?
I am just starting chemo and notice that some people have written that one should not walk barefoot. I'm not sure this is because walking barefoot hurts if you develop a neuropathy in your feet or because walking barefoot can contribute to or exacerbate existing neuropathies. I'm grateful for an insights. Thanks.
-
Daughter BC Mets Ovaries- Help
Help My step daughters BC has now been found in her ovaries. She meets with her MO this Friday. What should we be asking! She had a lumpectomy, 3 years later a bilateral mastectomy, ovary removed last week and Monday they called to say BC metastasized. Ugh. Thank you Yall have helped me over the years
-
Tampa area BCO sisters II
The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you…
-
Denovo Her2 +++
Denova ladies, 1. How long were you on Herceptin and perjeta before ( if) you had progression? 2. If no progression, how long have you been Ned or stable? 3. Who all has gone off treatment? This has probable been asked before but I couldn't find it. Thank you sisters. I am grateful for the support.
-
BI-RADS 0: Incomplete- Should I be worried?
Just got my mammogram results today and it's BI-RADS Final Assessment Category 0: Incomplete-Need Additional Imaging Evaluation. Kind of worried now! They have me scheduled for a follow-up mammogram for Thursday. BREAST DENSITY: B-The breasts demonstrate scattered fibroglandular densities. Left breast: There are…
-
New liver progression - looking for advice/suggestions
Hi all -- I am looking for some current advice / suggestions regarding options because I have some new progression. (Note: tried searching the different threads but new format continues to make that difficult, and lots of posts are pretty old.) I'm HR+ / HER2- (+1) based on initial MBC liver biopsy 3 years ago. I've been…
-
Chest wall metastasis?
About a week ago I started having tenderness in one area of my right breast. The tenderness is deep so I have to push on it to feel it. At first I attributed it to upper body light weights but it’s not getting better. I have extensive scar tissue from surgery but that’s not what is tender. I also notice when I bend forward…
-
Lump and indentation- negative mammogram
Hi all, I really hope I can get some answers. I’m 40 yrs old with no history of any breast conditions. About two months ago I noticed a dark spot on my left breast as I was getting in the shower. I was running late so I put it out of my mind until another couple weeks had passed and I noticed it again. Once I looked again…
-
Do metastatic patients never fully get rid of the cancer?
Hi all, I am a metastatic breast cancer patient, after 12 years remission from ER+, PR+, HER2+ my cancer came back as ER-, PR-, HER2+. It is a mass in my chest, in the lymph nodes of my right armpit and a tumour on my pancreas. However both my breasts are clear. I've been receiving Paclitaxel, Pertuzumab and Trastuzumab on…
-
Annoying health ads online
Does anyone else find those clickbait health-scare 'ads' on the internet upsetting? I just bumped into one on my Fac*bo*k feed -- 'Nine things not to say to Metastatic Breast Cancer patients'. It raised my stress level and annoyed me; last thing I felt like experiencing on a Sunday. I know the human brain is wired to look…
-
HER2 FISH Results timeline
I was diagnosed with IDC Grade3 HR/PR+ on Monday. I have been followed by a high risk clinic for four years due to a previous wide excision for PASH. My last mammogram in October of 2021 was BIRADS 0. Tomorrow, I will go for an MRI and bloods for staging. I have been told that the HER2 FISH could take weeks due to staff…
-
Chemo before or after surgery?
Hello everyone! Can't believe I'm actually here. I was diagnosed with Stage 1 invasive ductal carcinoma in my right breast on 8/26. Then they wanted me to get an MRI done at a real cancer center a month later. I live in a remote area. So, I did on 9/22. Got the results 9/23 and they found MORE masses now in my left breast.…
-
INFLAMMED BREASTS, WENT INTO SHOCK AT HOSPITAL
A rash started around my breasts and where my bra lies. And then it spread to the rest of my stomach, shoulders and arms, as well as my panty line and thighs. I went to the hospital, threw up and passed out. Was shivering. But my entire body felt like it was on fire. Especially my breasts. There were spots all over my…
-
Zoladex injection- increased bruising anyone?
I’ve been on zoladex shots for a number of years. Last month, I had a rather large and painful bruise afterwards. I chalked it up to the new MA but still reported it to my MO. Today when I went back, he tried twice to get me to come back with him and I wouldn’t. I held out for the other MA who has given me countless…
-
Ruptured Implant
Hello All! It has been awhile since being here. Had BC back in 2008 and had surgery and BIL/MX and immediate reconstruction in1-2009 .Opted for silicone implants as at that time did not have enough to do anything else from tummy etc. Was very thin and with a leaky gut to add to the equation !!! I had a recent MRI as it…
-
Undiagnosed-- Seeking tips on how to manage Lymphedema symptoms
Hello lovelies! What're you gals/guys taking or doing for pain relief outside of compression/elevation for lymphedema? Does Prednisone help?? Other meds?? Tips? Tricks? Is icing ok? Is it safe to wear pharmacy compression when I await testing?? I have to wait 2 1/2 weeks to be seen by vascular doctor for evaluation/tests…
-
Anyone on Herceptin-only have tips for chills, body aches?
I finished up my TCH sessions three weeks ago (yay!) and have moved on to a Herceptin-only phase that's expected to run through August. I really thought I'd have zero side effects from it; I've been more concerned about monitoring/watching for cardiac issues and didn't even look into other side effects. Well.... first…
-
Plastic surgeon recommendations in southwest Florida
Plastic surgeon recommendations in southwest Florida
-
Cannabis to manage AI SEs
Anyone out here willing to share their experience using Cannabis to manage SEs for AIs? Has anyone discussed it with their MO? If so, what were the MOs thoughts on it?
-
Referral for a lawyer familiar with ERISA law in California
I need someone to review paperwork and provide advice regarding disability benefits. So far I have been running into dead ends trying to get formal advice and find a lawyer who wants to take my case. Thanks!!!
-
Waiting for Surgery
Hi everyone! I was just diagnosed with breast cancer two weeks ago. Everything has been moving so quickly up until now. I had my biopsy 3 days after my diagnostic mammo and ultrasound. It only took a couple of days for my results and I had my initial consultation with the breat surgeon a week ago today. This afternoon I…
-
Journey vs Ordeal
I am wondering if anyone else gets annoyed when others refer to breast cancer treatment as a journey. A journey may be described as moving from one place to another. However an ordeal is defined as a horrific experience, often painful and protracted. For me it's an ordeal. It will forever take up rent in my mind.
-
Waiting for test results, oncotype I think
I just had my appointment with the medical oncologist. Very nice doctor. So now because my estrogen as low positive at 3% and the progesterone and Her2 are negative, he also mentioned the a test to see the biology of the cancer to see if chemo would actually help or not. I’m thinking oncotype He said if I were all…
-
Freaking Out!!
So I was diagnosed back in July. Nothing I saw, but the past few years there was something there because I had to keep repeating my mammograms, until this year, the radiologist recommended a biopsy. Yep, it was cancer (6 o'clock). Went and saw two separate breast surgeons, both seem to agree on the treatment. One Dr.…
-
Two-month wait for callback mammogram
Hi, all: I am 44 and just had my first screening mammogram. I've been called back for a diagnostic mammogram (BiRADS 0). Neither the radiologist nor the PCP has shared the reasons; I've tried reading the radiology report myself and have gathered that my right breast looks different from my left breast. I've been told that…
-
Mara’s inspiring story.
Mara is a BCO champion with an inspiring story. She has graciously agreed to share her journey: https://advancedbreastcancer.net/living/mara-interview
-
Mets to bone only
Hi, I am stage 4 and have mets to bone only. I aspirated on an almond and was hospitalized for 5 days. I went in to have my regular labs and to have my med list reconciled since the hospital had made some changes. I asked for a raised toilet seat and a walker. The palliative care nurse then says "are you thinking about…