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Revision/Corrective Reconstruction Surgery - What's Your Experience?
Please share in this thread your experiences with revision or corrective reconstruction surgery. As a reminder, we'll be hosting a webinar called Corrective Breast Reconstruction: Getting the Results You Want on July 9 at 6pm ET. You can register here:…
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Multicentric ILC
Hello, I am new to this site but hope to find support with others who have my condition. When I was first diagnosed with BC, I was optimistic based on the initial results, namely very early stage because of the tumor size. However, as I proceeded with additional testing - biopsy and MRI - the diagnosis just kept getting…
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TC vs. CMF
I had a lumpectomy a month ago. The tumor was smallish with micrometastatic carcinoma in one lymph node. The doctors initially thought that I would need radiation but not chemo, but after getting my oncotype (28), the medical oncologist is strongly recommending chemo, too. She's given me two choices: AT (4 doses, each 3…
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ADH and low dose Tamoxifen
I’m 65 years old and have had normal mammograms until this year. I had a lumpectomy last month after a biopsy indicated atypical ductal hyperplasia. Because of this and the fact that my mother, her sister, and her aunt all had breast cancer, I am now considered high risk and my oncologist is recommending low dose Tamoxifen…
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Exchange City
We love to include everyone's surgery dates - Please PM me and I will update the list to include you! The list keeps changing since we try to move forward as the dates move forward. Thanks. - Jean Useful web sites: Mentor: http://www.justbreastimplants.com/implants/mentor_specs.htm…
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Anyone take Tamoxifen after Uterine Cancer
just wondering if anyone out there has taken Tamoxifen after a hysterectomy for uterine cancer.
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Have to make a radiation decision
I have IDC…stage 1, HR+, PR+, HER2-, Grade 2. I’ve had a lumpectomy with tissue rearrangement and sentinel node biopsies. The sentinel nodes came back clear. The RO said that since I’m 73 yo and the tumor was small, 1.9 cm, that I can either have no radiation or a partial breast accelerated radiation course of 5 days. Even…
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Long term side effects of radiation theraphy
for my sister doctor suggested her for 33 sessions of radiation theraphy after mastectomy I just want to long term side effects of radiation and how soon we can go for radiation theraphy after mastectomy kindly share your experience
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ISO a really skilled surgeon
Hello, I was diagnosed Stage 1A Triple Positive IDC in 2019. Genetics showed positive for ATM mutation. Had a bilateral mastectomy with direct to implant reconstruction, three fat grafting surgeries. All well until now. I need more fat grafting AND I think I may have BII. My right foob is really swollen and irritated after…
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THIS or THAT Game
Which do you prefer....THIS or THAT? Express your preference....and then present a new question! Salty or Sweet?
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Upcoming biopsy for "subareolar mass" 1 year after mastectomy for extensive DCIS
I am trying not to get too panicky yet, and I'm more annoyed than scared at this point. I was diagnosed with DCIS in January 2023 after many years of monitoring and multiple biopsies that showed benign papillomas. I then found out I was CHEK2 positive and stepped up the monitoring with annual MRIs. I had very "busy"…
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HRT after Breast Cancer? Maybe!
I just wanted to share this information I've found. The first is a book cowritten by an oncologist, Dr Bluming, called Estrogen Matters. The second is an article he just had published in Cancer Journal entitled 'HRT after Breast Cancer - It Is Time.' I would be happy to send a copy of the article to anyone as he was kind…
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which Chemo for 2. Primary Breastcancer Hormonal + Her-
Dear Ladies, I had Hormonal + Breatcancer in 2009 T1, N1, G3, Her- which was treated with 4 EC and 12 Pacly. And 10 years Tamoxifen as I was 35 at that time. Now I have a new one in the other Breast (T1C, N?, G3, Her -) and gettin Neoadjuvant TC 6x Chemo. I am still not in Menopause. No E this time. I am living in Germany…
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Neuropathy
Hi, I am new here so I hope I am doing this correctly. I had cancer and treatment in 2013 and had taxol. I had bad neuropathy for a few years after, took gabapentin which helped reduce pain and went off the medication because I was ok. I have had the neuropathy- mostly pain-sometimes since then like once a month. The last…
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Unofficially Diagnosed?
Hi all! I am 42, and went for a diagnostic mammogram and ultrasound yesterday. I’ve been going since I was 30 since my mother had bc at the age of 40. I had noticed some tethering of the underside of my left breast and then felt around and found a new lump. I have firbrocystic breasts with multiple cysts and fibroadenomas…
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Worried
Hello All, I am a 38 year old female with two small children. I have been having breast discharge (only when squeezed) since I last breastfed 3 years ago. I thought this was normal but I mentioned it at my last check up. I had a normal mammogram and ultrasound. However, they tested the fluid and found Rare atypical…
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Young Women With No Genetic Mutations Have Low Risk of Second Primary Breast Cancer
Young Women With No Genetic Mutations Have Low Risk of Second Primary Breast Cancer Jun 17, 2024 The risk of a young woman developing a second primary breast cancer is relatively low, unless she has a mutation linked to breast cancer. Read more…
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Gene BLM pathogenic variant
Anyone with stage 1, grade 1 HR+, HER2- Invasive Ductal Carcinoma with a pathogenic BLM variant? Still waiting for final pathology after lumpectomy. With this genetic variant, a history of eczema & atopic dermatitis and numerous allergies, sensitive skin and hypermobility (connective tissue disorder), I am leaning towards…
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Interactive decision support tool!
Hi All, We're letting you know about a new interactive decision support tool for patients that could be helpful in making treatment decisions for people with a metastatic breast diagnosis. It was developed by Clinical Care Options, LLC, and it can provide you with recommendations from 5 experts regarding treatment. We hope…
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Truqap experience
stage 4 Mets to lung, liver, bones and lymph On the sixth week of truqap, handling it pretty well. Some diarrhea that is unpredictable so I always have Imodium on hand. Sometimes I get nauseous and my taste is off. My concern is for the blood sugar levels. Trying to keep my diet during the four days which is no sugars but…
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Primary lung cancer after treatment with chemo
Just read this article - https://www.epicresearch.org/articles/women-with-breast-cancer-especially-those-who-received-chemotherapy-at-increased-risk-for-subsequent-lung-cancer Apparently new information has come out showing a higher rate for primary lung cancer after breast cancer treatment with chemo. Something like a 57%…
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14 YEAR STAGE 3 ILC SURVIVOR
I’m hoping someone can provide me some guidance. I am a 14 year Stage 3A ILC survivor. I did all the right things including chemo rads double mastectomy and 13+ years of Arimidex. Believing that you get long term benefit of protection from long term use of Arimidex, I made the decision to stop taking it because I was…
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Genetic Testing Saved My Life
Genetic Testing Saved My Life May 31, 2024 Dr. Brooklyn Olumba explains how discovering she had a BRCA2 mutation led to earlier breast cancer screening and detection. At the 2024 American Society of Clinical Oncology (ASCO) Annual Meeting, Dr. Brooklyn Olumba was part of ASCO Voices, a program that gives people in the…
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Share a photo to create a bright moment in someones day!
Hi All! #GivingTuesdayNow, a new initiative in response to COVID-19, is on May 5 and we're using it as an opportunity to talk about how Breastcancer.org community members give support to each other. The goal is to spread positivity through photos. What can you share or suggest to create a bright moment in someone's day?…
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ILC stage 3 and 10 year survival
I am wondering anyone with ILC stage 3 diagnosis and made it to 10 year without any recurrence.
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Have you experienced PTS or PTSD following a breast cancer diagnosis?
Please share below your experiences with PTS (post-traumatic stress) or PTSD (post-traumatic stress disorder). How has this affected your life, the way you feel, your relationships, activities? And how are you managing?
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How many reconstructive surgeries are too many?
I've had a setback with my reconstruction and I'm not sure what I want to do. I had a mastectomy on the right side in November 2022 and had a tissue expander placed, which was swapped for an implant in October 2023 after I healed from radiation. I had mild discomfort from the implant even after recovery and wasn't super…
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Taxotere Linked to Less Neuropathy in Black Women
Taxotere Linked to Less Neuropathy in Black Women Jun 17, 2024 In Black women with early-stage breast cancer, Taxotere every three weeks caused less peripheral neuropathy than Taxol every week. Read more…
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Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu offers better survival than chemotherapy for pre-treated, metastatic, HER2-low or -ultralow breast cancer. Read more…
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Fertility Treatments Safe for Survivors With BRCA Mutations
Fertility Treatments Safe for Survivors With BRCA Mutations Jun 11, 2024 Assisted reproductive technology doesn't increase the risk of breast cancer coming back in young women with BRCA mutations and a history of breast cancer. Read more…