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Member of the "6 Month Watchful Waiting Club", Unite!
Oops, meant to say "Members" in the title - guess I need more coffee! Hi ladies, just wanted to start a thread to pull together thoughts from many boards on this subject. I've been in the 6 month club for 5 years now. Like someone else out here recently said - if I don't have cancer now, I surely will get it from all of…
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Male cancer that presents as HER 2+ metastatic breast cancer
My partner was diagnosed with CUP that is presenting as HER 2+ metastatic breast cancer. He received radiation treatment for a brain tumor and now is experiencing radiation necrosis. Boswellia has been prescribed. We are looking for some information about using this supplement. Thank you.
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Met with my medical and surgical oncologists yesterday (99% ER+ 96% PR+ HER2-, prognostic stage 2A)
Long post incoming, sorry. Following up on my initial IDC diagnosis — ER+ (99%) PR+ (96%) HER2-. Grade 2 tumor. Premenopausal (40F). Prognostic stage 1B or 2A per the MO, but leaning 2A. One 1.9cm mass and at least one axillary node confirmed positive from biopsy (three additional nodes noted to be suspicious on initial…
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CTs to Determine Circulatory Mets with Negative Nodes (warning - this is long!)
Warning - this is a book - LOL! I have just joined this group and really enjoying everyone's input on various topics, and sharing their journeys. I'm an mBC newbie, initially diagnosed in 2018 (post-meno) with Stage 1A HR+ HER2- IDC. I chose lumpectomy and radiation and started anastrozole after radiation (my OncoTyping…
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Pain on my mastectomy scar 15 years later
I have alway had discomfort sometimes bad. Now it worse and pretty constant. I have mastectomy left side with no implant had it taken out to help relieve pain obviously it didn’t help that much. Anyone else have this? Thx
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Post Masectomy Pain After Emptying Drains
After single masectomy (right) surgery a single drain was put in a has to be emptied throughout the day. After emptying, there is pain radiating side to side, which seems to be from the drain vacuum pressure when it's empty. Any recommendations for pain management? we are Taking pain medication as prescribed Emptying drain…
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Pain with tissue expanders two weeks post double mastectomy
hi all - I had a skin saving double mastectomy two weeks ago and at the one week follow up the nurse said “you look pretty full” and saw that the PS filled one at 450 and the other at 400. After the one week appointment, as the surgery swelling went down, I started getting sharp pains at the bottom of my left chest, by the…
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Stage one Her2+ negative KI_67 1% estrogen positive lumpctomy did on march
My surgy say to skip radition but take hermon thearpy but consultation with radition doctor say to take radition for 2 weeks so I confused which better for me with radition 2% without radition 8% for cancer come again
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10-Letter Word Game
Dare we start a new 10 letter word game? Change only up to 4 letters. Here's a start using two words I have found here on the BC discussion boards: encouraged courageous
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81 year old: should I take Tamoxifen for an additional 5 years
Just finishing 5 years on Tamoxifen. Tried AI's before but had horrible side effects. Saw MO today. She said I could continue the Tamoxifen after the 5 years if I wanted. Would love to be rid of the SE's but I am thinking, what would I be gaining if you know what I mean staying on the drug. Wondered what you all think🙃?
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Triple negative 4mm - No chemio?
please help I have a TNBC, 4mm. My doc said no chemio but I am so so afraid. Please, could smb share an Experience? Please help, I need help
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Breast implants
I just turned 43 and was diagnosed with invasive ductal carcinoma grade 3 & high grade ductal carcinoma in situ. Im planning on a bilateral masectomy. Im meeting with my surgeon on Tuesday. Im having a hard time deciding on if I want to get implants or not. My question is how did you decide on reconstructive surgery or…
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Exemestane (Aromasin)
My MO recommended I leave letrozole because of SE and start exemestane. Can you please share your experience with this medication? Tips? Good news: Exemestane, a synthetic steroid drug widely prescribed to fight breast cancers that thrive on estrogens, not only inhibits the production of the hormone, but also appears to…
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Tamoxifen vs. Ovarian Suppression & AI
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
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Should I push for MRI?
Hi all, A few years ago I posted here. I have had one breast that has breast tissue which feels thicker/firmer. Basically if you look up descriptions of ILC it's exactly what it sounds like in my breast. The other breast is much softer. I've had three ultrasounds, one where it was a consultation with a breast surgeon. Lots…
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Just diagnosed
Hi my name is Stacey. I just got the results from my biopsy today. The doctor said it’s invasive ductal carcinoma grade 2 and as of right now it’s between stage 1 and low 2 with clear lymph nodes but that could change after surgery. I did talk to the patient coordinator and she is going to schedule me to see the oncology…
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Hypoechoic mass on initial ultrasound, not concerning on subsequent ultrasound
My Mammogram came back normal, I'm 43 years old with no cancer history in the family. This is the first year I've asked for an ultrasound as I have dense breast tissue. The results were as follows: "Ultrasound was performed by the technologist. Representative images of all 4 quadrants and subareolar breasts were obtained.…
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Cannabis Basics
I have been using cannabis for the past few years. My main goal in using this is pain relief, de-stressor and for sleep. I have read some stories of using cannabis to cure cancer, but there is simply not enough data for me topursue it's use for that purpose. Let me start by saying that I live in a legal state, both medical…
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8 years post BMX...am I missing anything?
Hello all…. I've asked this question of my primary care, gyno, and breast surgeon and have yet to get what I feel is an informed answer, which is why I'm coming here! I was diagnosed with encapsulated papillary carcinoma in 2017 (ER+ HER 2-) and after multiple opinions, opted for a BMX. Although I've needed follow-up…
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Pre-Menopause Oophorectomy Side Effects Worse With Letrozole?
I had a bilateral salpingo oophorectomy (BSO/ovary removal) on March 4th. I had not begun menopause (based on MO ordered hormone tests). The side effects I've had since that surgery are debilitating. I'm supposed to start taking Letrozole tomorrow. I'm trying to find out (no response from SO or MO) if the symptoms will…
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Are you dealing with infections or bandaging during palliative care??
Hi everyone. I'm starting this topic because I haven't found a similar one to help answer questions and offer me advice. I know I'm a rare case managing my own palliative care, in Asia, while under the care of a great doctor who's using both eastern and western medical traditions. I'm on hormone therapy (Tamoxifen then…
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Ki-67- ONCOTYPE? What was everyone’s experience?
I’m just sort of curious. For those who had a ki-67 number before your oncotyoe, what were your numbers? I’m wondering how often a high ki-67 results in a high oncotype, and vice versa. What’s your experience?
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Breast Cancer Risk Remains High for BRCA+ Women After Age 50
Breast Cancer Risk Remains High for Women With BRCA Mutations After Age 50 Mar 2, 2023 Women with BRCA mutations continue to have a higher risk of breast cancer after age 50. Read more...
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Side effect difference going from tam to an ai
There’s a chance I will switch from tamoxifen (2 1/2 years now) to an AI. I am premenopausal but contemplating hysterectomy then switching. I haven’t had much trouble with weight gain or hot flashes on tamoxifen, and I wanted to know if that for sure will change if I switch. Also, is it a dramatic change in side effects or…
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Are recurrence risks as high as they seem?
I was diagnosed with hr positive/ her 2 negative breast cancer in August at 38 and have been in a horrible mental place since. I thought a place like this would help me feel less alone, but instead I think it makes me more fearful. My doctors keep saying that I have the “easy” breast cancer, but after looking at posts, it…
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Should I switch to a different chemo provider, or is this normal?
Hi everyone! I'm brand new here, just had my first Taxol treatment yesterday. Reading through these message boards it seems like there's a lot of information my chemo center left out, I'm honestly thinking of switching to a different provider but wanted to ask here if maybe I'm overreacting? Before my first treatment, I…
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Rejecting hormone therapy
I had a lumpectomy last month with clean margins, no lymph involvement and an Oncotype of 17. I start radiation next week and it has been suggested by my MO that I start a 5 yr course of Tamoxifen upon completion of my 21 radiation treatments. The Tamoxifen side effects I've read about seem real quality of life destroying,…
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Looking for advice re: hormone treatments
Hello - I am a 77 year old, post-menopausal woman and am new here. I was recently diagnosed with invasive lobular carcinoma of the breast. I've had multiple tests, including CT scans, MRI's, ultrasounds, biopsies, and an Oncotype DX Breast Recurrence test. I had a lumpectomy about a month ago. They removed a 23mm tumor…
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My Chemotherapy Journey
My infusion nurse suggested I make a journal so I will do it here hoping people can find information that may be helpful to them. Let's start: June 11 - port placement. It went well, I guess. But not sure if there was an injury with my surgeon. I saw him discussing something with the nurse like his finger got pricked or…
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My wife's period is back after 5 1/2 years of Tamoxifen
My wife was diagnosed with Stage 2A ER/PR positive, Her2 Negative back in June 2019. She went through 2 surgeries, chemotherapy, radiation and hormone therapy. She started taking Tamoxifen in late 2019 or early 2020. She has co-morbodities Thyroid Cancer, Type 2 diabetes, liver steatosis, diabetic nephropathy, and likely…