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Worried About Inflammatory Breast Cancer? Start here
Hi! We know you're here and worrying about a symptom or change to your breast or breasts. You may have found yourself Googling your symptoms, which led you to finding information on inflammatory breast cancer (IBC). Before coming to any conclusion, we hope you can take a deep breath, and read below from the main…
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Worries about local recurrence
Hi Everyone, it's been awhile. I just passed my 3 year cancerversary, and it's been a tough ride. In a nutshell, I feel like I've aged about 20 years due to stress and having all the estrogen sucked out of my body. I've also struggled with AI side effects and had several legit health scares (all turned out ok or at least…
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Risk of diagnosis or recurrence after COVID booster(s)
Just a thought… I was watching today a youtube medical channel (Dr. John Campbell) and saw scientists interviewed coming up with evidence that the Covid boosters were extremely dangerous and the statistics of cancers are off the charts because of the spike protein vac. I myself was diagnosed triple negative 5 months after…
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Any New Brunswickers with stage IV?
Finding it difficult to find local ladies dealing with Stage IV. Would love to hear from you!
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MRI after benign breast biopsy
I wanted to see if anyone else had this happen after their biopsy. My mammogram showed an asymmetry and distortion and the US showed an hypoechoic mass and another hypoechoic area with shadowing. I was thrilled when they said the biopsy showed benign fibrous changes. The radiologist wants me to have an MRI in 4 weeks to…
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Ultra hypofractionated (accelerated RT) in large breast cup? Help - need to decide!
I have stage 1 node negative invasive lobular breast cancer. Oncotype score of 9. I met with my radiation oncologist who gave me the option of the 3 week whole breast radiation with 1 week targeted boost (standard of care) or the ultra hypofractioned 1 week whole breast with same 1 week boost. Studies show it is equal in…
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What to expect from Kisqali (side effects)?
Hi, I'm a caregiver to my mom, who was diagnosed de novo with metastatic breast cancer just last month in August 2024. She has metastases to the bones, liver, and lungs, and she's scheduled for a brain MRI next week. She's started on Letrozole, which was paused while she's been undergoing palliative radiation therapy to…
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Drinking Alcohol!
Hello, I figured I better come here for some advice. I am a 8 year Breast Cancer Survivor. I have a history of Breast Cancer on my Mothers side of the family. However, I am a bit worried. I drink alcohol. I have about 4 drinks a week. If not more. I am a social drinker. I am to the point of getting worried that my Cancer…
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Pain in Breast 7 years post Radiation
I am seven years post radiation therapy on my right breast. I am very active and work out regularly. I have had very few issues. All my mammograms have been normal except showing fibrosis of the right breast. I was discharged early from my cancer doctors because I was not able to tolerate Hormone Therapy. Over the several…
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Just found out today
I'm so glad there's a group like this! Just got results from the patient portal - TN IDC stage 2 in my left just like I had 13 years ago in my right. The MRI I had in May was totally clean. As you can imagine I'm feeling all the feels. None of my providers has actually called to speak with me yet (in fairness the results…
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Breast lymphadema (what does it feel like)?
I am newly diagnosed with breast and arm lymphadema. My symptoms are a tightness across my breast/chest and upper arm. Swelling and aches in both my arm and chest. My breast almost feels like when you put a wet washcloth on it. Sounds weird, but it’s the only way to describe it! Does anyone else experience this? I’m seeing…
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Letrozole Side effects-- throaty
Have been taking letrozole for about 4 months after DCIS (w/clear margins), and preventative radiation treatment. Seem to be free of noticeable side effects except it appears to cause a cough and a 'drippy' feeling in the back of my throat. I confirmed this by going off it for 2 weeks, when these symptoms disappeared. Has…
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Moving on from Ibrance to Orserdu
After 7.5 years on Ibrance & Letrozole I had slight progression. A blood biopsy was ordered and I remained on I/L. I had developed great pain in my shoulder and this was found to be cancer. Blood biopsy reported ERS1 & PIK3CA mutations. I completed 5 rounds of radiotherapy to the shoulder and 2 days later on 29th of March…
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ER & PR positive, HER2 negative - chemo or no chemo??
Evening all, new here and looking for some opinions xx In Nov 2024 i had surgery to remove cancer in my right breast after biopsy (Oct 2024) confirmed a 20mm core ER8, PR8 and HER 2+1. The surgery wasn’t completely successful and the final histology reported it to be 47mm stage 3 ER8, PR positive and HER 2 negative with…
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AC-T Latest advice?
hi all, Am starting AC-T and wanted to know if there is any up to date advice or tips to consider? I have heard cold cap isn’t good with it but will use it anyway. Anyone used Paxman with AC-T? Welcome any tips to keep me sane!
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Scar Tissue
I wanted to share some vital info. I've been having chest tightness for over 2 years. I've been tested for PE's, acid reflux, etc., but everything would come back negative or not something they could fix. I do have acid reflux and take Prilosec twice a day to keep it under control. I kept asking all of my doctors if it…
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RCB III - Terrified
Hello! Recently (12/12) I successfully underwent a double mastectomy. I'm healing pretty well and my pain seems to be getting better every day. Today, I had a post op appointment with my Medical Oncologist that has made me both sad and scared. We went over my post surgery pathology and there were more infected lymph nodes…
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Extreme tumor markers (CEA, CA 15-3)
Hi Everone, I'm Peter; this is my first post in this forum. However, I used to read it a lot. I'm here to understand my wife's situation; maybe some of you have experienced similar things to what we did a couple of days ago. Long story short, my wife was diagnosed with hormone-positive breast cancer in October 2020; she…
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Finished radiation Dec. 23 - cancer free after lumpectomy
I have terrible blisters on my chest wall. Stopped using aquaphor using recommended calendula. Going to see about using silver sulfadiazine. Calling nurses tomorrow. Don’t want it all to get infected ugh. Go back to work Monday. I feel like they are open sores now - very uncomfortable. They said it would be the worst at…
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Axillary Lymph Node Dissection Dissection
hello, I just completed chemo and am scheduled to have ALND. I am concerned with lymphedema. (Cancer was found in two of my lymph nodes , luckily were very small which was warranted chemo) I recently read about a less risky procedure called Targeted Lymph Node Dissection. Has anyone had this? I live on Long Island and am…
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Arimidex side effects?
Side effects?? Need advice!
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Liver Pain
I’ve read that pain is not a common symptom for liver metastasis, but it can happen. For anyone that did discover that cancer spread to their liver and had pain -can you describe it? Is it central to one place, does it tend to move around, is it constant or intermittent, worse with activity or rest? I think I am dealing…
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A question about follow-up MRI for clip placement
Has anyone had a breast MRI for clip placement? Do they do the full MRI with IV contrast or is it abbreviated—e.g. no contrast—and only check to see if the clip is in the correct place? My doctor has already sent in the requisition for a post biopsy MRI to confirm clip placement, but I have a new palpable lump that isn't…
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Mastectomy after radiation - healing issues?
Hi there! New to the forum. Was diagnosed with DCIS a year ago and had 2 lumpectomy surgeries (to get good margins) plus radiation. Now a year later, they have found Atypical Lobular Hyperplasia in my other breast. Looking at another surgery, possibly more?, heightened screening and probably medication for estrogen…
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Radiation to Regional Lymph Nodes
Hi there! I was diagnosed with stage 2a IDC and one sentinel node removed was positive. I will be undergoing radiation to my regional lymph nodes. Should I be concerned about any side effects other than lymphadema? Please let me know if you have undergone radiation to regional lymph nodes and how you are doing. Thanks in…
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Abnormal ALP level
My ALP level is 134 and the cut off point here for a normal level is 130. I have to have it tested again on Christmas Eve... Do you think it is a sign of metastatic spread to bone? My other liver enzymes were normal. This is the first time that my ALP has been abnormal, so I am very worried and I have convinced myself that…
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Do SSRIs Affect Hormones?
https://us.v-cdn.net/6037276/uploads/CZZ6UQK7R8LS/the-six-most-widely-used-ssris-decrease-androgens-and-increase-estrogens-in-the-h295r-cell-line-sciencedirect.pdf I'm hormone positive and recently started an SSRI for ongoing anxiety due to survivorship. A few weeks into it, I started having random side effects like…
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PREDICT: Updated Breast Cancer "Survival Calculator" Tool
The PREDICT "survival calculator", based in the UK, has updated their algorithm as of Spring 2024 to include additional data inputs such as progesterone receptor status, smoker status, metastases status, plus an option for patients who accept or decline radiation. This tool may be helpful to those that're newly diagnosed…
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Psychological reactions to aromatase inhibitors.
I'm sure this has been discussed on other pages but I want to start a thread specifically for this discussion. For the second time, I have had a severe neurological response to Aromatase inhibitors. The first time I was told there is nothing that would help so I quit taking the meds That was 6.5 years ago. I recently had a…
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Small lump by excision biopsy scar
hello all I received an excision biopsy in 2018 and the result was atypical lobular hyperplasia cells. At the time the breast surgeon wanted me to take tamoxifen, but I declined. I have been receiving mammograms & a few MRIs at the beginning of surveillance period. Then went to just mammogram/ultrasound. Periodically, I…