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Herceptin and Perjeta side effects after chemotherapy.
I have been on Herceptin Hylecta and IV Perjeta mono therapy. I have 6 treatments left. I had more gastrointestinal issues while on chemotherapy (TCHP) than I did on HP mono therapy (no GI issues whatsoever for first 4 rounds of mono HP). However, since my last two HP treatments, my diarrhea has picked up. I also have…
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Specialty Swimwear for Single-Breasted Ladies
I'm so excited! The first batch of prototypes for my swimwear line have come in. These are designs that highlight and showcase an asymmetric body, and allow the scar to be shown. I will be launching with 5 designs, but I hope to expand if these do well. Fashion for survivors by survivors!
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Starting Taxol-Herceptin Jan. 2024 would love you to share your journey💕
Hello all! I’m over the moon to have found this forum to share with actual ladies on similar journeys. I was was diagnosed through a routine mammogram in June of 2023, completed a biopsy and then lumpectomy in August of 2023 with 2 resections to follow as the cancer kept evading my medical team. It was the determined by 3…
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Stage 3/4 TNBC - delays in BC, Canada
Hello, I’m curious what the community here has experienced in terms of time from diagnosis to start of treatment. I am concerned about accessing treatment and delays where I live. Dec 9, 2023: found lump Jan 19, 2024: ultrasound and xray, suspicious Feb 1, 2024: core needle biopsy, clip inserted, additional ultrasound and…
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Her2 2+ Fish test
Hello ladies. I have a question. My mother is almost 76 years old and she has breast cancer with bone metastases almost everywhere, at least this is what the pet ct showed. Her biopsy says Er+ 95%+++ 5%+ Pr+ 60%+++ 10%+ Her2 +2 Her tumor is only 8mm. I read that her2 +2 is "equivocal". This means that the HER2 status needs…
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DCIS lead to IDC, receptor status question
hey all, I had my bilateral mastectomy on 2/1/24 with expanders placed. End up being invasive, so have to go back in this Tuesday for lymph node removal. They did not get the receptor status on the 1st, so currently waiting for that feedback from provider. My question I have and just don't understand is, if on Tuesday…
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Biopsy scheduled Thursday… looking for support.
Hi there. I have spent the past few weeks reading different posts on here… trying not to Google my MyChart results.. I am wanted to share what’s going on with me… and hoping I can get some support and lots of prayers. I had my regular mammogram which resulted in a Diagnostic mammogram and ultrasound due to some…
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oophorectomy or ovarian suppression after treatment
Hi all, I'm back here after quite a while, with a question. I was diagnosed at 42 so premenopausal and along with all the other fun got put on lupron/letrozole. I had a bad time, major depression, all the hot flashes, etc. Got switched to tamoxifen after a few months and eventually things got better. 3.5 years out I am…
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DCIS recurrence 4 years out from IDC
Hello all, I love all of you but really never wanted to revisit these boards!!! However, I need some sanity and most of you know the anxiety, worry and sick feeling in the pit of your stomach with a diagnosis - let alone a recurrence. Jan 2020 - diagnosed with IDC ER, PR+, HER2- Grade 2 - KI67<5% - 2 tumors and one lymph…
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Magtrace?
Has anyone here had a magtrace done instead of sentinel lymph node biopsy? I'm scheduled for bilateral mx at the end of this month. They're doing the slnb on my left, since that side has invasive cancer, but on the right where they've found only DCIS the doctor has mentioned doing a magtrace instead. She says this will…
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Starting Zoladex advice
I've been on Tamoxifen for nearly a month, now. Had a telephone appointment with one of the Oncology team today and they're going to start me on Zoladex as well next Monday. Does anyone have any advice or can tell me what to expect from a patient's perspective, please?
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How long is too long to wait? Canadian Wait Times and BI-RADS 4B
I’m concerned about the wait times for basic diagnostic appointments…best practices is symptoms to pathology (in Canada) in 7 weeks. BC recommends 4 weeks as their standard. I have waited 6 weeks for an initial mammogram/ultrasound after finding a large, new, hard lump in my right breast. I am now on week 2 of waiting for…
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How many of you are taking Tamoxifen indefinitely?
I'm going into year 8 of my BC diagnosis. I've always handled Tamoxifen well, it's like a sugar pill to me… minus the fact I have zero sex drive now. :) In any case, I'm still in my 40s and my oncologist wants me to just stay on Tamoxifen indefinitely. I plan to readdress at the 10 year mark, which would make me 50. I'm…
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Lumps and bumps after mastectomy
Hi all Anyone have any palpable lumps after mastectomy? I have a lump on my inner breast (cancer side but not where the actual tumors were). I actually also feel small lumps in the axillary tail on that side- noticed them at about the same time - 6 months after surgery. The inner breast one is hard and smaller than a pea.…
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Micromets in sentinel lymph node
Hi, I was wondering if anyone has had similar situation. I am 49 and premenopausal with HR+ HER2 - IDC with micromet found in 1 sentinel lymph node removed . The MO refused to do Oncotype due to RX ponder study and is recommending chemo. Anyone with similar situation who decided to be treated per oncotype score and ovarian…
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Stage III TNBC. Looking for stories of hope
Hi. My 30 year old wife's been diagnosed with TNBC. Unfortunately our treatment right from the start has not gone as per the standard algorithm. In fact her 4cm lump was determined to be a fibroadenoma and excised by a general surgeon, and it turned out to be tnbc with LVI, ki-67 65-70%, necrosis present, closest margin…
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Help Interpreting Preliminary Pathology
Hello, I was diagnosed with breast cancer this week. I just saw my preliminary pathology reports uploaded to my health portal; is anyone able to help me understand what it means? Invasive carcinoma of no special type Preliminary Nottingham grade 3; tubular score = 3, nuclear score = 2, mitotic score = 3 Carcinoma involves…
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Ladies in their 40s
Hello All, I just wanted to start a new thread for ladies in their 40s. Although we are considered "middle aged," many of us are still dealing with issues concerning young women, such as fertility, pre-menopausal status and related treatment decisions, young children at home, being single etc. Both younger ladies (in their…
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Metallic Taste - Ideas?
I’ve had just one chemo; taxotere and carboplatin. Thrush started around day 6. A horrible metal taste started soon after on day 8. I’m hoping that the metal taste will go away when the thrush does. Was anyone lucky enough for that to happen? I can’t imagine this taste for 18 weeks! Food tastes horrible. Any suggestions on…
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Capecitabine not working
what’s next after capecitabine (xeloda) failure? I am ER+ and HER2- . Took ibrance and letrozole for 5 years NED. Then tried Fulvestrant with no luck and now capecitabine first scan shows progression. What’s next for me? I’m scared.
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Fulvestrant and ribociclib with Turkey Tail Extract - can anyone help?
Hi to all, I am writing on behalf of my mother who is currently undergoing treatment for her metastatic breast cancer. The tumour travelled to her spine and to liver. She had to undergo extensive spinal surgery a few weeks ago which she is currently recovering from. She has now began her treatment with fulvestrant and has…
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Radial Scar - Observe or Take Out?
I'm recently diagnosed with a benign radial scar. First seen on a screening mammogram as an area of "focal distortion." Called back for diagnostic mammogram and ultrasound. It persisted on the diagnostic mammogram as architectural distortion and a 0.7cm irregular mass was found on the ultrasound. The radiologist came in…
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Newly diagnossed: Questions to ask surgeon
Hello all, my first time posting. I am meeting with a doctor tomorrow to discuss my newly diagnosed DCIS (Ductal Carcinoma In Situ). What questions should I not forget to ask? What had you wished you had asked in your first appt? I have a list of questions i am asing but I am sure there's stuff I don't even know what to…
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Timeline between diagnosis and surgery??
Hello — I was diagnosed with ILC in right breast on September 22nd of this year, it is ER/PR+, HER2-, no BRCA, primary lesion at 1.8. I'm curious about the recommended timeline between diagnosis and surgery. I had a follow up MRI which showed additional lesions and am now scheduled for an MRI Biopsy at the end of December.…
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Zoladex injection
I’m getting my first Zoladex injection today and my doctor is also keeping me on the Tamoxifen as well. Why both? Also, why Zoladex now after 3 months of tamoxifen?
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Starting chemo February 2020
I searched and didn’t find a thread so I guess I am the 1st one lol. I am starting chemo on 2/6. DDAC every two weeks, 4 times w/ Neulasta. Then Taxol weekly for 12 weeks. Who else is starting?
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Taxol & Herceptin experiences to share?
Hi! I met with my oncologist yesterday to discuss my upcoming chemo regimen. I'm 52. I have (had) IDC stage 1a in my left breast- triple positive. I had a single MX on 2/9/23 with reconstruction (expander). In late March I'll begin 12 weeks of weekly Taxol and Herceptin. After the 12 weeks, I'll continue the Herceptin…
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Hormonal breast cancer and the benefit of chemotherapy
I was diagnosed with breast cancer ,oestrogen positive -stage 1 in September.I had an operation in December and now the doctors are telling me that they found a smal amount of cancer cells into one of the sentinel nodes and question is to have a chemotherapy or to continue only with radiotherapy and Letrozole.One of the…
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How much does surgical scar tissue change over the years?
I cannot find my previous posts, but I was here in 2018 when I had a Birads 5 mass. My physician and radiologists told me to prepare for a cancer diagnosis. I had two benign core biopsies which were discordant, a normal breast MRI and finally an exicisional biopsy / lumpectomy at the end of 2018. The diagnosis was…
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CDK 4 6 inhibitor for Stage 2 ILC
Hi Everyone, I was wondering if anyone with stage 2 ILC was prescribed CDK 4 6 inhibitor. My sister was diagnosed with stage 2 ILC. Her oncologist prescribed her only AI but another doctor that she got second opinion from recommended CDK 4 6 inhibitors + AI because her ILC is 100% estrogen positive . Did anyone with early…