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Are mammograms effective?
I have read that there are studies showing the rate of cancer is no better for those who get regular mammograms when compared with those who haven't had them. Also, mammograms have been linked to causing cancers. I plan to thoroughly research this and, if true, I may ask my healthcare team for an ultrasound instead. What…
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Anyone in So Ca area?
I'm in the Santa Clarita Valley. Anyone else here, or neighboring areas or valleys?
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AET omission in ER-LOW early stage breast cancer
I'm being asked to consider aromatase inhibitor therapy even though my ER receptor level is low. Relatively new research indicates a significantly worse overall survival when AET is omitted. (Grace Mei Yee Chong et. al. And Mayo Clinic).What have others heard about this? I was HER2+, went through chemo and Phesgo,…
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Nodes confusion before or after surgery?
Confused here. I was told that if you went in for Lumpectomy (dcis) but final surgical pathology shows some invasive then you go back for surgery to examine nodes. But, then someone told me, they evaluate the biopsy before surgery to see if you need nodes evaluated during lumpectomy all at one time. (Which makes sense and…
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Not responding to treatment
Hello. I am new to this group and was curious if anyone else has had a similar experience with their breast cancer fight. For full back story, I was first diagnosed with DCIS back in May of 2020. I opted for double mastectomy because they said it was the best chance of never having to deal with it again. My margins were…
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PET-CT scans after node recurrence (and while on Verzenio)?
Hi everyone. Looking for some advice from all you wise, brave folks. I had IDC 18 years ago; ER+, PR+, HER2 neg/double mastectomy/chemo/tamox/negative sentinel nodes. A year ago was diagnosed with an aggressive axillary node recurrence; surgery to remove 8 nodes, 4 pos, 4 neg. Went on letrozole, had radiation, now 9 months…
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Blood Thinners and Invasive Breast Carcinoma ER/PR+ HER2-
Good morning, last week I was diagnosed with Invasive Breast Carcinoma ER/PR+ HER2-; most likely stage one, depending what they find in the surgery. I am 42 with two young children. I have a history of blood clots and pulmonary embolisms and have a stent in my iliac vien. I am on an anti-coagulant for life. I don't know…
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Chemo curls?
who else has hair coming in EXTREMELY curly?! I’m wondering if it’s here to stay or just “chemo curls” and will subside. My dad has extremely curly hair so wasn’t sure what was happening! My hair used to be dirty blond and slightly wavy now it’s almost BLACK with LOTS of curls. Who else?!
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Metallic Taste & Appetite Loss on Chemo (AC regimen/ TNBC) – Any Tips?
Hi everyone, I'm caring for my mother who was diagnosed with Stage II Triple Negative Breast Cancer in November last year. She is the third generation along my maternal line to be diagnosed, but her genetic markers came out negative. She’s been undergoing chemotherapy for the past 5 months and is currently on Adriamycin…
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Tell me about the environment at the clinic where you get chemo
Hi everyone. I'm halfway through a 12 week treatment plan, and wondered what things are like in other chemo treatment centers. In mine, the nurses are nice but there's no effort to make the place quiet or peaceful. They yell back and forth across the floor at each other, speak really loudly, and there's one tv in the…
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Asymmetric Non Masslike Enhancement
Hi there. I'm high risk because of a strong family history (no known genetic mutations) and had been alternating yearly MRIs and Mammos. I was a year behind on my MRI and had one yesterday that came back with asymmetric non masslike enhancement in one breast. (Ironically NOT my troublesome one that had been biopsied…
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PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
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Bigger of the PASH
Hi guys I had got biopsy and confirmed with PASH, B9, and i had regular check up these few years. However, it seems the size of the lump with PASH gets bigger. I know someone who suggested that just wait and see, but i m really worried about the enlargment. I am not sure if it the lump will be come back after removal? Will…
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Movement! Set a goal that feels right for you.
Whether it’s chair exercises, daily walks, or training for something bigger. Every step matters, and you’re not alone. Join us, share your progress, and lift each other up.
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POLL: How are you supporting your well-being?
How are you supporting your well-being? Our community is made stronger by the ways we care for ourselves and each other. What’s feeling most meaningful to you right now? How do you express care for yourself or others? Share your reflections and inspire others in our community—we’re on this journey together. Share your…
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I guess it hit me today that my days are numbered
I’m not sure why today is any different than the last two months when I’ve known I’m stage 4 with bone mets and my days are going in the negative direction. Maybe because tomorrow is Mother’s Day, and as usual, nothing in the mail from my kids. I guess they aren’t thinking that this could be my last Mother’s day and that…
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Should I skip recommended radiation?
I am grade 3 DCIS ER/PR negative and had a lumpectomy. My surgeon mentioned that I needed to take radiation due to high grade. He referred me to a radiation oncologist, whom I met this morning. The oncologist said my recurrence rate is 20 to 25%, and radiation can reduce it to be less than 10%. The side effects include…
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A place to talk death and dying issues
This post is for those of us with concerns and issues about death and dying to talk about them. IF YOU CANNOT HANDLE IT, THAN GO TO A DIFFERENT POST PLEASE. We do not need people telling us to live life or to hear that other people have lived a long time, we have concerns. We are living life and would like for our…
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Recurrent Breast Issue
Forgive the longer post. I'll try to be as concise as possible. To preface, I am non-lactating due to having a hysterectomy in 2019. I am 36 years old. Back in 2022, I had an excisional biopsy for a fibroadenoma in my left breast. About one month later, I developed a seroma and had it drained. Fast forward to 2024, I…
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Focal architectural distortion
Hi All, i need some advice to help me stop from spiralling out of control. Thanks in advance for your guidance. I am 40 years old. My screening mammogram identified a focal asynmetry (BI RADS 0) in my left breast. The followup diagnostic mammogram said focal architectural distortion 12 o clock centrally 5 cm from the…
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March/April 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Scheduled for Surgery May 2025? Gather here for support!
Add to the discussion below to share your scheduled surgery date, type of surgery, what you're doing to prepare, ask any questions you have about what to expect, share your experience after surgery, how you're recovering, tips to help others recover, products and other practical advice for those coming after you. We're all…
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Familial history of BC and risk
I had stage 1 idc at 47 successfully treated, and a cousin had dcis. I’m concerned about my adult daughter’s risk, especially since she has dense breasts. She will get her first mammogram this year, but does an MRI every other year help detect problems sooner? Are oral contraceptives risky, or only after a diagnosis?
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What does local recurrence after mastectomy look like?
Hi, what are the various ways that a local recurrence after mastectomy could look like?
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wireless indentification tag?
Hi, facing another lumpectomy for dcis, and the surgeon explained they don't do wires anymore, that they use a wireless Identification tag which helps maintain breast tissue by targeting the precise area of cancer during surgery. (Not sure I'm saying this right…. ) Anyway, I'm told it's placed before surgery with…
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Tuesday night MBC group
A place to stay in touch during the week. :)
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Worried
I’ve been having Breast pain for a little over6 weeks. I went to my OBGYN she ordered a diagnostic mammogram and ultrasound. Both of which came back clear, they told me to continue screenings when I’m 40. I’m currently 33. I still have the pain intermittently and I’m a nervous wreck. This past weekend I developed horrible…
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Waiting for test results
I was dx with stage 2B breast cancer in December 2006. ER+, PR+, HER - . Three tumors, 4 positive lymph nodes. Mastectomy, dose dense Chemotherapy and Radiation. It was a long year and I had a high risk of Mets. I have celebrated 17 years NED, good health and a wonderful life. I left my job and went to nursing school (a…
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Plastic Surgeon in Maine Recommendations for Treatment of Capsular Contracture
Hi all. I had bilateral mastectomies in 2008 after a diagnosis of bilateral BC. I had implant reconstruction with a successful outcome. However, in the past couple of months, I have noticed capsular contraction on one side. Since my surgery, we have moved to Maine and I need to find a plastic surgeon who is an expert in…
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Pulsing/Vibrating sensation in lumpectomy breast
Just wondering if anyone has experienced a pulsing type vibrating sensation in their breast following surgery and radiation and what they did about it? I am 4 months post-lumpectomy and 2 months post-radiation and for the last 4 days I have had a strange, constant, high speed vibrating sensation in the lumpectomy area. Is…