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Verzenio and hair loss.
I’m going to be starting verzenio in a few days and I read that 30% of people who take this medication experience hair loss. I asked the pharmacist about this and he made it sound like I could go completely bald again like I was from chemo. It sounded like he was reading from a script and I’m not sure if he really knew…
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Upper back pain, tingling and numbness in left arm and both feet
Good morning, I haven’t posted here in a while but, I do check in to read the posts from time to time to gain knowledge and peace. I’m very thankful for the ladies here, though I wish none of us were here. So, if I could get some of you to offer advice, prayers, or experiences I would appreciate it. So, in early October I…
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Breast MRI call back
I had an mri a month ago. I finally called my Dr to get the results. I was told over the phone no cancer but I could schedule an appointment to discuss. I put it off because of hearing no cancer but yesterday I got a call to find out why I haven’t booked an appointment. (??). So now I’m going in on Monday and I’m not even…
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Celebrex/Celecoxib
I'm just curious as to who else is taking Celecoxib. I have arthritis but am really taking it as an anti-inflammatory that I hope will delay progression. I've been taking it daily since last June but today a Physician's Assistant refused to renew my prescription. Her reasoning was that my kidney numbers on the GFR test are…
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Small asymmetry in tissue and scared
hi! I’m f22 and felt something asymmetrical in my left breast a few months ago. I do acknowledge I have a lot of health anxiety, so things like this are blown out of proportion. I have no family history or risk factors. A couple months ago in my left breast, right above where the top of my areola ends, when I press in I…
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It's OK - No Surgery, No Chemo
Hi Community I haven't found this topic yet, so here's a start (if it's too long, I apologise in advance): I'm in Stg IV with the HER2 cancer growing from the right breast, and first discovered a grape-size lump in Aug 2018. I couldn't get a biopsy until June 2019 (SSA had cut SSI funds), directly before which my PCN said…
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Anastrazole
hello! I’m supposed to start anastrazole but I suffered a fall and broke my tailbone. I’m wondering if anastrazole will slow the healing time for the fracture? Has anyone experienced that or heard of that? Also, I just got hot flashes and night sweats and chemo induced foot neuropathy under some control and I’m honestly so…
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LD Flap yes or no and why
I am new to this group. Due to a few failed previous surgeries. My plastic surgeon is recommending the LD flap. I’ve heard that you can lose a lot of strength. I’ve also heard there’s a lot of pain. Does anyone here have any experience good or bad? I would love to have your feedback!
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Heart Transplant after Chemo induced Heart Failure
Hello, I don't know where to post my story, so please let me know if I should move it. Here goes! I was 49 years old, in great shape and without a family history of any cancer. 11/2020 found lump in right breast 12/2020 diagnosed with triple positive, multi focal IDC and at least two nodes 1/2021 began chemo - AC THP…
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Breast reconstruction revision
Hi! I am new to the forum. I was diagnosed in 2013 and after a double mastectomy I had reconstruction using expanders. I am interested in getting my implants removed and possibly replacing them with new implants. The problem is I was living in Florida when I had my reconstruction. I now live in Hickory, NC and have no idea…
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Coming off tamoxifen early to have a baby
Hi everyone I'm a little lonely over here in the UK and was hoping to find some kindred spirits. I'm now almost two years on from my diagnosis. I was diagnosed with Her 2+, weakly ER+ breast cancer in April 09 at the age of 37 about three months before we were due to be married and a few weeks after completion of our first…
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Medicare Brokers
Charlene, I spoke with my girlfriend and she IS licensed in Pennsylvania (it's where she is originally from). She'd love to help you out. Let me know if you're interested. I can give you her info. Jodi
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Revision Surgery (swapping UTM to OTM)
Hi All! I would love to hear from those that have swapped UTM (subpectoral) implants for OTM. I had my mastectomy in 2015 and UTM was recommended. I have since developed capsular contracture, as well as animation deformity which has had a noticeable impact on my chest strength/yoga practice. I also have an overall tight…
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Trying to stay positive is hard.....
…when the news just keeps getting worse. I found out today that my cancer is Stage IV. I have metastasis to the bone. One rib. I've had pain in that rib for a month now and just isn't going away. It has improved. I thought I had just pulled a muscle because it hurt fiercely for about two weeks but then subsided to just…
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Swollen lymph nodes below collarbone
Doing the waiting game again. 3 yrs ago I found 3 masses, all came back benign but one area did have microcalcifications. And they wanted to watch it in 6 more months. At 6 months, I went to a breast clinic, and right from the start they made it clear that I was "too young, and wasn't at risk". I was 34 with a history of…
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Breast cancer and possible lung issues?
Hello. I just finished chemo, surgery and radiation for triple pos breast cancer that was also in a lymph node. I had a complete response to the chemo and was cleared in mid October, sentinel node negative. I recently had a ct scan of my back after a hard fall down some stairs resulting in a broken tailbone. The scan also…
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MSK will no longer be covered by Anthem Insurance
We just received a letter that my cancer center, Memorial Sloan Kettering, will most likely no longer be covered by our insurance Anthem (Blue Cross Blue Shield) starting January 2025. Is anyone else in the same boat? Has anyone gone through the same experience with their insurance cutting off coverage for their medical…
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Need a little encouragement, advice, feeling a little sorry for myself and frustrated...
So, I had a mammogram in June (first if 4 years, I know, not the best but I hate doctors). Came back that I needed to follow up now with another mammogram and ultrasound. Had that done in July with a reading of benign breasts with moderate fibrocystic changes. BIRADS 2 - BENIGN. I read every "cyst's" dimensions and they…
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Fulvestrant and ribociclib with Turkey Tail Extract - can anyone help?
Hi to all, I am writing on behalf of my mother who is currently undergoing treatment for her metastatic breast cancer. The tumour travelled to her spine and to liver. She had to undergo extensive spinal surgery a few weeks ago which she is currently recovering from. She has now began her treatment with fulvestrant and has…
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My boobs keep trying to kill me
Hello Sisters! It’s been awhile since I’ve last checked in, but am in need of advice/recommendations/encouragement. Background – Diagnosed with de novo ILC (ER/PR+, HER2 - ) with innumerable sclerotic bone mets in 2018 at age 50. This was found on a routine mammogram – I was totally asymptomatic. Had a R mastectomy and…
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Mastitis lingering or IBC?
Hello there I’ve recently had a second baby and am breastfeeding. Experienced mastitis twice in first two weeks of baby being born, familiar with it as had it with first. After the last bout of mastitis I noticed a red patch on the side of boob and 6 weeks later it still hasn’t disappeared. It has a very slight orange peel…
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Adding MRI to 3D Mammograms May Save Lives of Women With Extremely Dense Breasts
Adding MRI to 3D Mammograms May Save Lives of Women With Extremely Dense Breasts Sep 25, 2024 While the benefits of supplemental screening are clear, the additional screenings may also lead to more false alarms, which can take a financial and emotional toll on people. Read more…
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Starting chemo July 2014
Guess I'll go first. I start July 1. Your turn! Here's our list: 11PattiS – June 25 Magdalene51 – July 1 Too young momof2 – July 2 Blownaway – July 3 Mumford – July 4 Ladytdf – July 7 VerukaNY – July 8 Hemmie – July 9 ChaosRains – July 9 MomtoIrishQuads – July 9 CoyoteNV – July 10 RainDew – July 11 Z-Kitty – July 11…
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Newly diagnosed IDC Stage 2 Er+(25%), PR-,Her2-
I am newly diagnosed and fall within a grey area with only being 25%ER+. My oncologist at the Cleveland Clinic is still finalizing treatment plan and taking me to tumor board to get more opinions. Currently going to treat me as both tnbc and hr positive with surgery first. Are there any in the group that have had a similar…
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Seattle -- looking for info./advice re: MBC treatment options/ locations ....
Hi all — my beau and I are likely to be moving to the Seattle area next spring (exact area not decided yet). I am looking for info. / advice regarding where to get MBC treatment and tips re: transportation and other practical advice. I am generally aware of Fred Hutch, but again am looking for practical tips about getting…
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Port removed vein still prominent
Hi Ladies! I’m wondering if anyone has experienced this or knows what it could possibly be. I had a port placed in Nov 2020 and just had it finally removed the end of April 2022. For at least one year that I had the port and quite possibly longer, I noticed that the vein that had the catheter in it would stick out in a…
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Active Monitoring May Be as Good as Surgery for Low-Risk DCIS
Active Monitoring May Be as Good as Surgery for Low-Risk DCIS Dec 20, 2024 Two-year rates of invasive cancer were similar for women whether they had surgery or frequent mammograms, but more research is needed. Read more…
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Advocates’ Thoughts on SABCS 2024
Advocates’ Thoughts on SABCS 2024 Dec 13, 2024 What are patient advocates excited about at SABCS 2024? Five tell us. Five patient advocates share what they like and what they’re excited about at the 2024 San Antonio Breast Cancer Symposium. The advocates are: Antoinette Greer, of My Sister My Friend Breast Cancer Support…
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Top Research at SABCS 2024
Top Research at SABCS 2024 Dec 13, 2024 What were the hot topics at the 2024 SABCS? Dr. Marisa Weiss details the highlights. The 2024 San Antonio Breast Cancer Symposium featured five days of research presentations, educational sessions, and advocacy meetings. Dr. Marisa Weiss, founder and chief medical officer of…