-
Xeloda response time?
I have been on Xeloda now for about 5 months. Recent PET scan shows a "partial" response to a liver lesion, but still not great. I see my onc next week. Very worried about what he will say. How long does it take for this drug to achieve maximum effect?
-
Unilateral breast discharge post IDC
I was dx with right breast IDC and DCIS in January 2021. Had lumpectomy, radiation and on Letrozole. For the past two weeks I have noticed dots of orange fluid in my bra and on nightgowns from the left breast. I have never had this before. My question is would it be ok to wait until my scheduled diagnostic mammogram in 5…
-
Odd Nipple Sensation
So for as long as I can remember, it seems like one breast or the other is more "noticeable" in terms of discomfort, etc. I've learned to deal with it and not let it cause too much stress, but for the past month or so, I've had an odd sensation in my left nipple- it's a cold sensation, and sometimes it almost feels wet,…
-
DIEP and seroma
I had my DIEP four weeks ago and noticed last night when I pressed on the left side of my abdomen incision I got the rolling waves hallmark of a seroma. Contacted my BS today and they confirmed that's probably what it was and told me I could come to the office and attempt to drain it. I have my next appointment 02/28/23…
-
Starting Chemo September 2023?
A place for the September sisters to gather and support each other! For inspiration and what to expect, see August 2023's thread.
-
What does this letter mean?
Hi all, While breastfeeding my kid, I've had some weird lumps, and an indent appear. It spurred a docs visit which led to 2 ultrasounds over a year, and both showed nothing. I'm a worrier, so my doc sent me to a surgeon. The surgeon sent me for an MRI and mammogram. I did the MRI first and it came back clear. A month later…
-
Orilissa?
Hi Found this drug on another thread under this topic. Wondering if anyone is currently on this drug instead of Lupron or Zoladex to reduce the amount of estrogen being produced? If you are on it, what side effects you are experiencing? Are you also taking tamoxifen as well? Thanks
-
Lupron plus tamoxifen
I have just started this combination after recovering from radiation. My onco gave me a Lupron shot to see how I felt first, and now I am on both. We are thinking two years on this protocol, and then switch to an AI. Does anyone else do this?
-
Tai Chi for People With Breast Cancer
Tai Chi for People With Breast Cancer Jan 19, 2024 Judith Sachs, an experienced tai chi teacher, explains what tai chi is and the benefits it offers people with breast cancer. Tai chi is described as meditation in motion. But what does that mean, exactly? Listen to the podcast to hear Judith explain: what tai chi is and…
-
Jane McLelland protocol / COC protocol for STAGE IV members ONLY
Hi 😊 Just wondering if anybody in here is doing the Jane McLelland (COC) protocol? If yes: For how long and did it have any effect? I’m seriously considering it but need to hear from other MBC’s whether to do it or don’t. Thanks in advance and hi from Denmark
-
Bleeding during biopsy - is it normal?
I've had my biopsy on Monday and I have a question about the procedure. I was too stressed to ask the doctor when she was doing it, and then when it was all over, I couldn't wait to get out of there. So, here I am, asking you. I was lying on the side with my arm up, I kept my eyes closed during the biopsy, but the first…
-
breast cancer
hi my names cheri and i finish chemo and i am dealing with alot of emotion
-
post mastectomy pain syndrome
I am looking for a doctor in the Dallas area that treats Post Mastectomy Pain Syndrome. Is there anyone out there that has been treated for this syndrome?
-
DIM for 70 year old
Hello I am caring for my mother and I was wondering if DIM is safe for a 70 year old. I know DIM is usually used to lower bad estrogen but since she is post menopausal, is it safe?
-
ultrasound results
I was previously on this site in 2020 with my 2nd scare that turned out benign. Now I'm at my 3rd scare. I've had 4 screenings post age 40. 2 required a biopsy that resulted in benign findings (one was an excisional biopsy because the needle biopsy was discordant). Finally in 2022 I had a clean screening for once! Now in…
-
What does oncologist do for you when there is essentially no regimen left?
Hello, I am not really sure how to appropriately phrase this question, essentially what does your oncologist do for you when there is no option left, beside suggesting clinical trial? Maybe this is a better way to put it, Beside suggesting clinical trial, how does your oncologist decide on your next regimen when all…
-
Just got Pathology report, Invasive Ductal Carcinoma, looking for others with similar diagnosis
Hello friends, I just found out earlier today via a Pathology report that my biopsy came back as Invasive Ductal Carcinoma. My tumour is approx 4cm wide, and it seems like I also have abnormal axillary lymph node. These are my results and I am trying to understand them before I go in and speak with the Surgeon on Friday:…
-
Reconstruction
Hi - I'm not even sure what to ask here. I haven't even been to see my specialist yet. Can someone please tell me the pros/cons of reconstruction (implants/flap/going flat)? I'm curious about all three. Thank you!
-
Lymph node enlarged
I had a mastectomy two years ago following 8cm DCIS. They found 5mm of tumor and sent it for oncotype but not enough to be analysed so no chemo. All lymph nodes clear and had reconstruction. Last year I felt a raised part under my arm same side as mastectomy. Had an ultrasound and nothing showed up so consultant thought it…
-
Worried About an Abnormal Mammogram - Architectural Distortion
Just had my annual mammogram and have always had normal screenings. I'm a 46 y/o with heterogeneously dense breasts. Got the call about an hour after the screening that I need f/u imaging due to "subtle architechtural distortion" of the left breast. Needless to say I'm scared and can't get an appt. for a diagnostic mammo…
-
Not quite a horder - decluttering
Okay friends, I'm updating this info. I love the picture though so I'm leaving that!! I continue to look at a very unorganized house. My friend Zogo had an idea about a thread for decluttering and I thought why not get one started. Feel free to share decluttering or organizational ideas or hold yourself accountable to us.…
-
Looking for ILC Survival Stories
Hi All, I'm looking for ILC survival stories to give me hope. My older sister was diagnosed with ILC in October. After Ultrasound, MRI and MRI guided biopsy they realized that her tumor is multi focal ( about 5.5 cm ) or it could be larger. They are scheduling her for surgery ( double mastectomy) . Her stage at this point…
-
The wait is agonizing
Hi all. My whole body and brain is so anxious, and I know so many of you understand. I found out 3 weeks ago that I have another recurrence, so this is my third diagnosis. You would think since I've already been through this initial stage twice now I would roll with it better, but it's so so hard to wait without knowing…
-
Long-Term Benefits of Verzenio for Early-Stage Breast Cancer Confirmed
Long-Term Benefits of Verzenio for Early-Stage Breast Cancer Confirmed Oct 30, 2023 Five years of follow-up show Verzenio continues to reduce early-stage breast cancer recurrence risk long after people stop taking it. Read more…
-
MBC to bones
Hello girls 🙂. My mother today was diagnosed with MBC to her spine and hips. I read on the web that life expectancy is 19 to 25 months. Is that true? Sounds so little. I read some of your stories and I see that many of you have already live much longer. My mother soon will be 76. I love her so much, and she is so though…
-
Does anyone have experience with Covered California marketplace?
My husband just started a new job, and we switched from COBRA from his prior employer (that had excellent insurance) to his new job. We verified coverage with the hospital and MO that I've been going to for years prior to enrolling, but are now finding that the information was not accurate…. The hospital and Dr. were…
-
Sudden high blood pressure
During the past two weeks I noticed that I was hearing my heart beat in my ears. I have always had fairly low blood pressure my entire life, at the most 120 over 75. I decided to use our home blood pressure monitor two days ago and yikes! My pressure was 166 over 92. Today wasn’t much better, 154 over 84. I thought maybe…
-
Hormone therapy, osteoporosis, and cholesterol
my oncologist is prescribing hormone therapy (AI). I’m kind of opposed for 2 reasons. One of the reasons is that it can weaken bones, and I am already opteopenic. The second is that it can impact cholesterol, and I am already taking meds for cholesterol. Can anyone comment on their experiences? I am 76, just had a…
-
Any local recurrence (within few yrs) early stage despite AI?
I am curious whether there are many local recurrences of early stage BC even though a person has followed all treatment recommendations (lumpectomy or mastectomy, and endocrine therapy (aromatase inhibitor, etc). I opted not to do the AI as was told that rad therapy was most important and AI would only add 3% protection,…
-
New Jersey/NYC/CT/Eastern Pennsylvania ladies
I've seen a lot of postings from women who live not so far from where I live in Central New Jersey. Since I know that many women travel for treatment, I've been thinking it might be helpful to have a thread of our own to share resources - not only doctors but support groups, locations for Reach to Recovery, retail sources…