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Diagnosed with stage 4 metastatic ILC
My mother ,who is 62 years old, was diagnosed with Invasive breast carcinoma favoring lobular carcinoma, Grade 2, NBR Score 6. Her IHC panel shows : ER - Positive, PgR - Weak positive, Her-2/neu - Negative, Ki-67-22% and No PDL1 expression seen. PET findings are Lesions in all quadrants of right breast infiltrating skin…
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Questions on Paget's disease
This is my first time to ever post on a blog like this. Honestly, the fact that I am actually doing so scares the hell out of me. I'm hoping to get some clarity on Paget's Disease. The information I have found is minimal, my doctors office doesn't seem to have much experience and the blog comments are old, but I am hopeful…
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Calcifications to chemo
After 20 years cancer free from triple negative at age 47 my last screening mammogram came back with loosely grouped calcifications with focal asymmetry. Diagnostic mammogram suggested with ultrasound if necessary. I go Tuesday. I am now 67. I had a left MX with tram flap recon with first diagnosis. My question is can…
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Micro-invasive DCIS that is her2+++
By clinical definition a true microinvasion is "IDC(Invasive Ductal Carcinoma) that is 1mm or less in its greatest dimension". As requested a separate forum index for those of us who had true Micro-Invasive DCIS that was her2+++. Yes, we are a rare bunch but lately there have been a few more of us that joined BC.org and…
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MRI
Hello! I am 47, I was diagnosed with DCIS (grade 2) last week. My second mammogram confirmed a small (3mm) spot near my nipple. I met with my oncologist on Thursday for my first appointment with him, pretty uneventful since I haven't had my MRI yet. I am scheduled this Thursday for my MRI and then meet with the breast…
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Loosely grouped calcifications wit focal asymmetry
I was diagnosed 20 years ago with stage 1 triple negative. I had a mastectomy with tram recon and four rounds of chemo. All mammograms good till now. This one showed loosely grouped calcifications with focal asymmetry. No speculated masses noted. Just said needs further films and possible ultrasound. I have been back to…
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Invasive Breast Carcinoma ER/PR+ HER2-
I recently found out my diagnosis early this month and has been taking it hard on myself for the past few weeks. My scheduled appointment with my Surgeon/Oncologist is on May 2nd. I'm 39yo, married with 3 kids (11, 8, 5). Been taking Tamoxifen 20mg every night at 8pm since April 11th and with just a few days in i got a…
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Confused
Hi, was diagnosed 11/4/2024, surgery for what drs call closest thing to 0 as possible, no biggie 9mm tumor. Pathology came back as showing triple negative in breast tissue, fastest most egressive there is but lympnodes & margins clear with additional 3.9 mm tumor. 2nd pathology states it appears the 1st tumor was triple…
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Surgery/reconstruction
I have my surgery for double mastectomy next week with reconstruction. How do you handle the anxiety? What do I need 2 know or have ready when I get home?
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ER/PR positive and Her2 negative and Ovary removal
Hi all, In 2019 I was diagnosed ER/PR positive and Her2 negative and mastectomy done on right side. No chemo, no radiation I am 45 and this month I was diagnosed with ER/PR positive and Her2 negative on left breast. Dr suggested mastectomy, later they decide Chemo or radiation. I have been hearing more about removing Ovary…
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Immediate Reconstruction or Wait?
Hi, I am new here and was diagnosed with IDC about 3 weeks ago. I am stage 2, but my tumor is aggressive, so Surgery is scheduled for 4/22. I have a strong family history as well. As of now, they say my lymph nodes are clear and are recommending immediate reconstruction with implants ( I am not a candidate for DIEP flap).…
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Help! Scanxiety & stress over watching my sister in pain.
My sister has MBC, stage IV, mets to the lungs & bones. Originally diagnosed Stage 2-A, IDC, underwent radical right breast mastectomy in 2020. In 2022, metastasis to the bones & lungs. Her 2nd line of treatments, Capecitabine & Lapatinib, poisoned her system resulting in stomach issues (diarrhea, gastritis, etc. She has…
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DCIS
I’m 1 week post mastectomy and just received results of focal duct carcinoma in situ, intermediate nuclear grade without necrosis. I’m low key freaking out right now and would like any information that someone could provide. I opted for the mastectomy after I had a lumpectomy and mammogram that stated I have benign…
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Phesgo
Diagnosed July 2024, started treatment Aug 24 with 7 cycles of chemotherapy with EC x3 Docetaxol x4 , completed December 24 Surgery in the form of therapeutic mammoplasty with removal of tumour bed Managed 16 out of 18 cycles of phesgo for HER2 positive BC ( last injection 18.8.24) Radiotherapy x10 with boost for the last…
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Pain
Hello, I am going on 7 years cancer free. I had a mastectomy with reconstruction and nipple sparing. I have been having pain/pressure in the area where the cancer was. The pain has been some time now. I have an upcoming appointment at Mayo soon but I'm concerned. The pain/pressure also radiates to my back behind my armpit…
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Have had mammo, ultrasound and awaiting biopsy
my mammo was Birads 0 (needed additional tests), ultrasound was Birads 4. That radiologist ordered US guided biopsy. However, the radiologist I was referred to decided a Sterotactic biopsy was more appropriate. I have an initial appointment this week with the Cancer specialist and then the following week I am scheduled for…
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Lymphedema self massage
Hi ladies! I wanted to share a link to a self lymphodema massage treatment that has helped me and my neighbor who also had breast cancer. Please ok it with your doctors before trying it, because our situations are all unique. I had a lumpectomy with node removal Mar 2021. I was able to see a lymphodema therapist soon after…
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Starting Chemo in February 2016?
I didn't see a thread starting for *my* month, so I figured I'd start one... Anyone else getting ready to start their chemo in February? I start my first tx on Feb 16th. I'm doing 4 cycles of docetaxel and cyclophosphamide (also called TC, I think?). I've been doing tons of reading about whether I need to ice my fingers…
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Long-term LCIS?
Hello, Has anyone been diagnosed with LCIS and not developed invasive cancer after 10, 15 years? I've been diagnosed with LCIS and elected to take anastrozole and nothing else. But I'm nervous. Thanks
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Should I stop HRT
I started HRT at the beginning of December. I have an Estradiol patch and which I change every 4 days abd 200mg Utrogestan daily. I went for a mammogram and the results were “Small apparent non-specific density” I have to go back for more imaging and potentially a biopsy. Should I stop the HRT?
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SGAP-15 years out
Hello, I am curious how many of you have had SGAP procedure and your results after at least 10 years. I am 17 years out and about 4 years ago, my left leg has gone numb somewhat and had to go to physical therapy. I am not sure if this was related to any nerve damage that may have been due to the flap taken from my butt. I…
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Tamoxifen Side Effects
How long were you on Tamoxifen before you started to notice any side effects? Also, what was your age when you started Tamoxifen
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Reconstruction options
My wife has finished six months of chemo and immunotherapy and scheduled for a mastectomy at the end of the month, to be followed by up to six weeks radiation. We have discussed reconstruction with both the primary surgeon and a plastic surgeon. Quite frankly, these have been good discussions, but we still feel confused as…
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Switching from AI to Tamoxifen - Bone loss
Hi, I just met with a new oncologist after the retirement of my previous one. I have been on an Aromatase Inhibitor for six years with worsening bone loss. Taking Fosamax. The new oncologist suggests switching to Tamoxifen. Total treatment time would be 8 years vs. target of 7 if I stay on AI. Has anyone had or considered…
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Implant exchange 10+ years later
Hello fellow survivors. I’m now 10 years out from my reconstructive implant surgery and it’s time for implant exchange. Since surgery, I’ve moved more than 4 hours from my plastic surgeon and am considering seeing a surgeon nearby. So, I’m wondering do I need to look for someone who specializes in breast reconstruction…
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Blood draws with arm/foot lymphedema
Hi I'm back. I was here many years ago. I used to talk to Benny and others and I did some modeling for lymphedema's sleeves. I'm in huge trouble now. I have terrible osteoporosis and I need blood drives desperately yet I have injuries on my feet and bilateral lymphedema and I'm in a wheelchair. Where else can we get a…
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Whether to take the drugs that take away the estrogen
I found out in August of 2024 I had ductal carcinoma in situ, 1.1 cm. There was no evidence of invasive carcinoma. No cancer found in the lymph node on the left side. I had a lumpectomy and did not require radiation or chemo. My cancer is positive estrogen receptor status. I have a decision to make regarding taking…
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Tumor Markers with Different Results
I just got back results on 3 tests. The Ca 15-3 test and the CEA test were both normal. However the CA 27-29 test came back as high (57). Anyone have any experience like this? Of course being Saturday, I will have to wait until Monday to talk with my oncologist. I am 2.5 years out from surgery. This is the first time he…
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Ringworm drug for dogs (Fenbendazole) might also cure cancer
This sounds kind of crazy but I'm tempted to try it, especially if standard treatments stop working: https://www.dailymail.co.uk/health/article-6965325/Oklahoma-grandfather-claims-drug-DOGS-cured-cancer-tumor-free.html Mods adding this link to a podcast from BCO: Podcast: What My Patients Are Asking: Can Dog Deworming…
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Anastrozole
Hi. looking for opinions. I was diagnosed with invasive carcinoma of breast the breast. My tumor was 4mm. I was HER negative. Estrogen Receptor 60%, Progesterone Receptor 40%, KI67 proliferation no longer marker 3%. I had a lumpectomy. When they did the surgery the tumor was already gone from the biopsy. Nothing spread to…