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Capecitabine not working
what’s next after capecitabine (xeloda) failure? I am ER+ and HER2- . Took ibrance and letrozole for 5 years NED. Then tried Fulvestrant with no luck and now capecitabine first scan shows progression. What’s next for me? I’m scared.
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Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…
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On Anastrozole. Should I start Zometa? Had one Bone met that's gone! Tamoxifen instead?
HISTORY I just started this MBC journey 7 months ago. I had one small bone met in upper sternum and some possible mets to soft tissue in mediastinum and lymph nodes in same area. Only the sternum was biopsied. ER+ (90%), PR+ (30%), HER2+. I started on HP protocal and anastrozole the end of July 2024. No chemo. End of…
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Recent MRI has me concerned
This week I had an MRI and the results have me concerned. The impression stated "irregular 1.2 cm mass in the left lower outer posterior depth demonstrating rapid wash in and persistent kinetics" - BiRads 4 I have been recommended for an MRI guided biopsy. My mother and my grandmother as well as two of my grandmother's…
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What are your “Mantras” to get you through a test, treatment, a bad day?
We all need tools to get us through our most difficult moments. If you have a mantra, or strategy, please share here!
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DCIS - second opinion regarding a masectomy
Has anyone gotten a second opinion on your treatment for DCIS? My area if 4+ cm and the surgeon is recommending the complete masectomy of that breast. Thank you.
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Post mastectomy and feeling alone
hello, I am 7 weeks post-op bilateral mastectomy and feeling alone. I have gained weight and having a hard time with the pain from the tissue expanders. I am so disfigured and over my normal weight that I won’t go out in public. I am finding myself in a dark place and having trouble getting through the day. Did anyone else…
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peritoneal carcinomatosis
I am looking for others who have peritoneal carcinomatosis who would like to share their stories and treatments.
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Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)
I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?
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Synchronous Bilateral Breast Cancer IDC
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IDC Stage 1/Grade 2- ER+ PR- Her1 - (Next Steps for me + medication update)
I had my first meeting with surgical oncologist and plastics yesterday. First time meeting plastics dr and loved him. I am having a dmx. I have my sentinal node (sp?) biopsy scheduled for next Friday. I am STILL waiting on my oncotype score to come back. They had to resubmit another sample from my biopsy bc the first one…
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calling all t1A (> 1 mm but < 6 mm) sisters who are HER2+
I decided to start this thread to help others who may end up in this "grey" area and are struggling to make a decision about chemo/Herceptin or not. Current national guidelines do not recommend treatment for our stage. Treatment is only considered for 6 mm and up HER2+ sisters. HOWEVER, some docs do still treat t1A…
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Husband's anticipatory grief
Big sigh. My dear husband is not coping well with my worsening disease. I've had progression of my lobular MBC, previously in bones and now to peritoneum, omentum, GI tract. I am finally going to have a laparoscopy/biopsy next week and then begin weekly Taxol. My mood is better now that these things are finally scheduled!…
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Did you have SNLB done during Double Mastectomy?
Hi! I had a double mastectomy done 11/17. Surgeon did not get lymph node biopsy? I was wondering if there is someone here who have same experience? TIA
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Any long term survivor stories with ILC
Hi, Was hoping for some long term survivor stories. Found so much conflicting information on ILC. Not sure where the truth lies. I know each person is unique but overall hard to find good information on it.
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How could I ever have foreseen...that I'd be here at year eighteen?!
Checking in on my survivor sisters with my traditional cancerversary post. I remember how much it used to help me when I saw posts from Stage III-ers who were WAY out from diagnosis (and there weren't as many back then), Here's wishing you HOPE, which is one of the most important things we have in our toolbox! Hugs to all…
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ADH Club
Can we start a thread on ADH (known as atypical ductal hyperplasia)? There may be one already existing, but without a lot of hunting around, it's not easy to locate and may not be recent. I'm 51 and have (had) no risk for BC other than being a female - non smoker, no immediate BC in my family, I'm fit, I exercise, eat…
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Antidepressants
Are there any Stage 3ers on an antidepressant and if so which one.
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ILC stage 3 and 10 year survival
I am wondering anyone with ILC stage 3 diagnosis and made it to 10 year without any recurrence.
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To do Radiation or Not?
I am 48 years old, Stage 2 got diagnosed with ER/PR + HR2-. I grew up in a Alternative medicine household and barely ever went to the doctor so now that I am faced with breast cancer, I am trying to do a mix of conventional and natural stuff since I don’t totally trust conventional medicine. I was born and raised a…
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December 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Solo Herceptin after Taxol w/ Herceptin - Changes in SE?
Completed my 12 rounds of Herceptin every week with Taxol (Hooray)! I will be starting the every 3 week Herceptin only this next week. Did anyone experience changes in their side effects? I had minimal SE while on the Taxol/Herceptin - no nausea, but did have insomnia, headaches and was very tired in the last few weeks. Is…
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High number of positive lymph nodes
Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.
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Cancer (and other medical conditions) research halted
I signed on today to see if this had already been posted by the BCO Mods. Nope, not a word about all cancer research meetings being halted. Here's a link to the article. https://www.nature.com/articles/d41586-025-00231-y
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Risk of discontinuing tamoxifen
I have read several reports from others that noted that their medical oncologist gave them a percentage benefit from tamoxifen (or AI’s). When I asked my MO she would not provide me with this type of information. Can anyone tell me where this type of information would come from? I want to be prepared for my next…
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Brain mets in stage 4 more common than thought
https://www.sciencedaily.com/releases/2025/01/250128162827.htm
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Considering TH regimen for HER2+ microinvasive (very early stage) BC
Anyone have feedback who has done Taxol plus Herceptin? I just met with a medical oncologist to discuss possible chemo as I was thought to have DCIS but in fact, at mastectomy, was found to have about 8 foci of microinvasion (defined as < 1mm each). I was wondering what your experience has been with the TH regimen. The…
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In Search of Holistic Treatment After Lumpectomy
Hello =) I am looking for like-minded people who would prefer to use holistic means rather than the traditional standard of care after surgery. What do you do? Intermittent fasting? Organic plant-based diet? No sugar/dairy? Quality supplements? Do you see a Functional Doctor for guidance? Do you get regular bloodwork work…
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Looking for answers!
Hi All. I am 41years old. When I was in my 20's I was diagnosed with PCOS. In 2023 I experienced a slight tingle in my right breast I knew was hormonal, but to appease my nagging husband, I went and was seen by my GP. She agreed that it was most likely a blocked milk duct as there were no other abnormal signs. I check…
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Need help thinking through AI with ovarian suppression
My MO would like me to start an AI and ovarian suppression/removal. I am 42. Onc score was 31 for IDC with lobular component. No nodes. I understand that I do have a risk of recurrence but I also value an active lifestyle. I had no question mentally regarding the mastectomy and chemo. I do not feel peaceful about the…