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Breast Cancer Risk Remains High for BRCA+ Women After Age 50
Breast Cancer Risk Remains High for Women With BRCA Mutations After Age 50 Mar 2, 2023 Women with BRCA mutations continue to have a higher risk of breast cancer after age 50. Read more...
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Side effect difference going from tam to an ai
There’s a chance I will switch from tamoxifen (2 1/2 years now) to an AI. I am premenopausal but contemplating hysterectomy then switching. I haven’t had much trouble with weight gain or hot flashes on tamoxifen, and I wanted to know if that for sure will change if I switch. Also, is it a dramatic change in side effects or…
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Are recurrence risks as high as they seem?
I was diagnosed with hr positive/ her 2 negative breast cancer in August at 38 and have been in a horrible mental place since. I thought a place like this would help me feel less alone, but instead I think it makes me more fearful. My doctors keep saying that I have the “easy” breast cancer, but after looking at posts, it…
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Should I switch to a different chemo provider, or is this normal?
Hi everyone! I'm brand new here, just had my first Taxol treatment yesterday. Reading through these message boards it seems like there's a lot of information my chemo center left out, I'm honestly thinking of switching to a different provider but wanted to ask here if maybe I'm overreacting? Before my first treatment, I…
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Rejecting hormone therapy
I had a lumpectomy last month with clean margins, no lymph involvement and an Oncotype of 17. I start radiation next week and it has been suggested by my MO that I start a 5 yr course of Tamoxifen upon completion of my 21 radiation treatments. The Tamoxifen side effects I've read about seem real quality of life destroying,…
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Looking for advice re: hormone treatments
Hello - I am a 77 year old, post-menopausal woman and am new here. I was recently diagnosed with invasive lobular carcinoma of the breast. I've had multiple tests, including CT scans, MRI's, ultrasounds, biopsies, and an Oncotype DX Breast Recurrence test. I had a lumpectomy about a month ago. They removed a 23mm tumor…
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My Chemotherapy Journey
My infusion nurse suggested I make a journal so I will do it here hoping people can find information that may be helpful to them. Let's start: June 11 - port placement. It went well, I guess. But not sure if there was an injury with my surgeon. I saw him discussing something with the nurse like his finger got pricked or…
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My wife's period is back after 5 1/2 years of Tamoxifen
My wife was diagnosed with Stage 2A ER/PR positive, Her2 Negative back in June 2019. She went through 2 surgeries, chemotherapy, radiation and hormone therapy. She started taking Tamoxifen in late 2019 or early 2020. She has co-morbodities Thyroid Cancer, Type 2 diabetes, liver steatosis, diabetic nephropathy, and likely…
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Phesgo?
Has anyone taking Phesgo every come down with a really bad itchy rash?
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Estradiol cream and focal asymmetry
I just had my annual screening mammogram and need to go back for more imaging. Focal asymmetry BiRads 0. The best I can tell, the radiologist saw a new area of density in the left breast compared to three previous films. A few months ago, I changed from Premarin vaginal cream to Estradiol cream. The dose on the estradiol…
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Feeling nervous about starting the Baby Tam
Hi everyone. So, I was diagnosed with ADH recently , I had a lumpectomy with clean margins about a month ago. My Breast Surgeon/Oncologist recommended that i start taking 5mg Tamoxifen daily for 3 years. She said that i have a 41% chance of getting breast cancer in my life but if I do the baby tam protocol it would reduce…
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Scared and Confused
Hi! I'm sorry to keep posting, I'm just so confused and scared about my diagnosis. I spend most of my time googling which is making things worse and it's because my surgeon and RO seem to be on the same page but my oncologist says something different so I don't understand what is going on. I was diagnosed with ER positive…
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The husband's and partner's corner
A gathering space for the partners of loved ones with breast cancer to discuss your unique experiences.
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BREAST IMPLANT SIZING 101
DISCLAIMER! I am not a physician or medical professional. The information provided is my own personal opinion. You must discuss every aspect of your reconstruction with your plastic surgeon. PLEASE NOTE: New information!! Allergan now has a very easy chart to follow to help you see how sizing works in relationship between…
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Regaining Muscle Strength and atrophy
I am early in this journey. I had my first consultation with the plastic surgeon yesterday. I'm 66 and opting for a bilateral mastectomy with reconstruction. The oncologist will take one lymph node on the right side. I am concerned about the recovery time and loss of strength in my arms as I am a ceramic/ clay artist and…
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Important new info for HR+ patients.
https://ascopost.com/news/march-2025/delays-in-breast-cancer-surgery-could-raise-mortality-risk-for-certain-subtypes/?fbclid=IwZXh0bgNhZW0CMTEAAR3HTugfy_qAU3fIwIraBwt0eHdjWvLprCmCy_w9M6Jx-gUbRLAhiCzz6xg_aem_o7SeeQmiqi9pSuMrxvfT4Q
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Does anyone have experience with Dr. David Otterburn in NYC?
I am strongly considering a revision surgery to go from sub-pectoral to pre-pectoral implants. While I have a good (sub-pectoral) cosmetic result if I stand up very straight and don't move, I have felt inhibited by animation deformity and ptosis for so many years (I am single). I have talked to several surgeons, and they…
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Lymph-bypass in forearm after unsuccessful axilla surgery
Hello, I was supposed to have LYMPHA (bypass) during my double mastectomy/ALND in 2023. The surgeon at that time could not find any good vessels to make the connection in the axilla. So, I wear a sleeve 8 hours every day and do regular manual lymph drainage to manage mild lymphedema and keep it from progressing. I've also…
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Has anyone had success with DO IT YOURSELF Cold Capping to prevent hair loss
I’ve found that Cold Capping for an AC-T regimen (4 AC and 12 Taxol treatments) will cost $4,700.00 in Ontario. Was wondering if anyone had success with purchasing their own cooling caps and just using ice vs dry ice to cool caps. If so what caps did you purchase and how many? Thanks in Advance.
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Low positive ER, HER2+ treatment
I'm wondering if anyone has had early stage cancer that is low positive ER and HER2+? My ER is only 5%, but my oncologist wants me to do the standard radiation/tamoxifen protocol. I've seen several studies that indicate a low positive ER should be treated as negative, and that hormone therapy doesn't help low positive ER…
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Thickened womb lining
Hi all. I don't even know where to start, can't quite believe iv found myself on this path again. I was diagnosed with BC back in Nov 2021 had chemo and mastectomy etc and was put on zoladex injections for 19months, finished them a year ago and have been on tamoxifen ever since. Iv not had periods since starting chemo as…
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Bi-Rads 4: Waiting for Biopsy
Hi, this week as been a mind F. I got the below MRI results and my biopsy in in 11days. I am very concerned. I researched the mri respults and all together I am very worried about a diagnosis. I am 42 with two young children. I dont know how i am going to be able to get through the next week and a half of not knowing what…
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Accuracy of markers in Bone Mets
Hi All Just wondering if anyone knew accuracy of CA153 and CEA in detecting bone mets I am very anxiously awaiting results Initial blood test showed ALP was above 200 however CA153 and CEA were well within normal ranges etc Were your markers elevated when bone mets discovered?? and any other symptoms?? Many thanks Love to…
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Got mammo results. awaiting my call back appointment, in a month.!
I’m 77 yr old and have had abnormal mammo. Family history my sister ( diagnosed age 49) who’s had bilateral mastectomies and a paternal aunt who had unilateral mmastectomy. I don’t have any pathology reports on their Cancers. my recent mammo report says: There is an irregular focal asymmetry with spiculated margin in left…
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Is exemestane a steroid?
Hi, everyone. After 2 years on anastrozole, my oncologist has switched me to exemestane, due to my complaints about how I feel. I am now reading about exemestane and many articles refer to it as a steroid. My oncologist had not mentioned this to me, so I just called her to discuss it. She told me that it is NOT a steroid,…
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Break from Letrozole for 2 1/2 months
I will be going back on letrazole after a break after 2 1/2 months due to sudden onset of constant palpitations and one short episode of a/fib. I had to get a cardiac work up and getting that done has taken time. Getting in to see a cardiologist, wearing a zio patch for two weeks, waiting for the results and then scheduled…
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How long after your diagnosis did you stop getting bloodwork to check tumor markers?
I am 5 years out from my stage 1 diagnosis, and I have been getting the bloodwork done every six months since then. They now want me to start getting it done once every year indefinitely. Is this normal? When did you stop?
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Honoring my Mother
My mother died of breast cancer 47 years ago, when I was 30. I was diagnosed 2 years ago and had 2 lumpectomies and radiation. I've written a book about her cancer and mine called "Given Time." The title comes from a poem about olives needing time to ripen on the tree to become edible and the cover is Van Gogh's painting…
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Surgery for DCIS
Tomorrow I will undergo a partial mastectomy not really nervous but I am wondering how long it will be before I make a good recovery? Not sure what to expect in the next few weeks.
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What do you find is best at helping you manage fatigue?
Choose the option that you find helpful to you, and maybe get some ideas, too! Share your thoughts in the discussion below.