-
Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…
-
Bone strengthening meds
what is the protocol on prescribing bone strengthening meds for women on aromatase inhibitors to prevent recurrence?
-
Life After Treatment: Hair?
Hey all, First I am extremely grateful to be alive. Given the choice to go through chemo and preventative hysterectomy, I would happily do it again without any questions asked about my hair. But at the same time I thought to ask the question, and maybe some of you might have some resources for me that are safe and not…
-
Pros/cons to continuing reconstruction surgery
Good day to all my fellow Warriors! I’m a 65 year old woman who had a bilateral mastectomy with breast tissue expanders for future reconstruction surgery, on 3 26/24. The JP drains were removed on 4/4/24 and my first saline injections to the expanders, was doe on 4/11/24. On 4/12/24, I developed a low grade fever and their…
-
Starting Chemo July 2019
I think it’s time to start a July Chemo thread.. who’s on board? I having my port put in on July 23rd and chemo on July 24th. I will be having Taxotere, carboplatin AUC 6, Herceptin and Perjeta for 9 treatments every 3 weeks before surgery. Good luck to all
-
Numb toes
I'm starting a new thread because I don't see anything recent in the discussions. I've been having a weird feeling in the bottom of my feet. I don't even know how to describe it. Now, I'm noticing numbness in the toes in my right foot—mostly the little toe. It doesn't hurt, and I don't think it's neuropathy like I had when…
-
Question
I am thinking of stopping chemo. I’ve got through 3 cycles of TC but have had a shocker of a side effects ride. This chemo was oncotype score 41 driven as catching any left or mop up. my grade tumour was 3 but node negative. I’ve had two surgeries and will have radiotherapy next. Anyone else got to 3 of 4 chemo and…
-
Discordant benign - excisional biopsy follow up
I had an MRI guided core needle biopsy and the results came back as discordant benign. The doctors recommended I follow up with a breast surgeon for an excisional biopsy which I have scheduled for next week. Has anyone been in this situation and if so what was the outcome? I have mixed emotions that it's benign but it…
-
Wellbutrin and anastrozole
My MO prescribed Lexapro because he knows more about it, he said. I asked to try Wellbutrin instead because of the depression and fatigue I am feeling from the AI. I have been on ADs in the past, including Wellbutrin, and know it’s a commitment if you want to benefit from them. I started Lexapro but quit after a few days.…
-
CALLING ALL ARTISTS- Lets make an art gallery!
We would like to create a slide show gallery of our YOUR art! Paintings, sketches, ceramics, sculpture, crafts, gardens, quilts, photography, jewelry, stained glass, mosaics, poetry .... you name it! We may show this slide show at our annual Rock the Ribbon event on October 22nd. Please post photos here, even if you have…
-
IBC Worry
Good evening! Long story short, I started having a severe pain in my breast 3 weeks ago. I ended up at my high risk breast specialist where they did an ultrasound. Turns out I had an abscess. They drained it with a needle and put me on antibiotics. The antibiotics I started with didn’t work and my abscess filled up again,…
-
37 went for a Mamo,BiRad4 no subcategory non palpable nodule found. waiting for biopsy. Confused
I am 37 4 years ago I started getting very painful swollen cysts in my breasts. I had a Mamo and US done in 2020 no findings. Had my yearly with my GYN and he sent me to a surgeon to see about draining the cysts. The surgeon ordered another Mamo and US and the findings are as follows :Result: 4D 4 - DENSE Suspicious…
-
When to stop anastrozole
I'm coming up on 5 years of anastrozole... After lumpectomy and radiation for stage 1 grade 1 idc. My oncologist knows Im always anxious, but he isn't really definitive on whether or not I should stop the AI. He said I should probably stop it but knowing how anxious I am maybe stay on it for another year or so... I'm a…
-
Her2 recurrence treatments
hello everyone What kind of Chemotherapy regimens are you getting for a Her2 recurrence after treatment with TCHP first time around? Drugs, cycle and duration? For your recurrence, what was your time to recurrence?
-
Gift ideas anyone? 5- year anniversary coming up
Hello everyone. This June 3 will mark 5 years since my wife was diagnosed with Stage 2A breast cancer (invasive ductal carcinoma, ER/PR positive Her 2 negative) and papillary thyroid cancer. I won't soon forget the terror we felt in early June 2019, what with test results pending and not knowing where it was all going. It…
-
Options for reconstruction when you've had radiation previously
I have breast cancer for the third time but had lumpectomy and radiation with prior breast cancer. I am having consults with plastic surgeons for DIEP surgery. For the second time this week, my husband has asked me if there are any other options (don't think he realized how large a surgery this is). I previously told him…
-
Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…
-
Weight loss question
Hi All I’ve been a member here for 20 years and 2 years ago I had my 4th BC DX. My recurrences have all been locally advanced, the latest grade 2, initially inoperative, though eventually after shrinking with Palbocyclib it was removed lat September, but path showed perineural invasion and prob lymphovascular invasion. (Nb…
-
LCIS - BC in family -- NIGHTLY HOT FLASHES & PALPITATIONS - Can't sleep - MISERABLE & CONFUSED
Hello, I am 61 and have been in menopause one decade. I lost my dear sister to BC at age 42. About 10 years ago I had a surgical biopsy that said LCIS. Since then normal mammos but dense breasts. I have waited for these symptoms to "pass" but now it's pretty clear they never will. My nightly routine is horrible…
-
opinions needed
So I'm highly hormone positive, but failed ibrance after 5 years. Got a new triple negative. Did carbo/taxol. Mastectomy, then new hormone positive mets after 8 months of xeloda. Doctor wants to do enhertu because she is worried about hormone treatment resistance and possible triple negative cells still floating around.…
-
BIA-ALCL Symptoms ??
Yes, I am aware BIA-ALCL is not breast cancer. I’m having some vague symptoms and what to assuage my fears. Prophylactic mastectomies in 2012 for BRCA-1 mutation. Sientra high profile textured implants below the muscle in 2013. For the past few weeks I am exhausted all the time. Not “I worked or exercised” hard tired. It’s…
-
Drinking cold things feels weird after mastectomy
Every time I take a drink of ice cold water (or anything ice cold), it feels as though someone is pouring ice cold water down my chest on the outside! It takes my breath away! Is this normal?
-
Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
-
New Implants - Not Satisfied
Hi. I had my exchange from expanders to implants 1 week ago. I can honestly say that I was happier with the look of my expanders. There is little to no projection with my implants and I have my post-op appointment tomorrow. I've done what research I know to do, but is anyone else in the same boat? I know there was a huge…
-
BII
Hi, I haven’t been here for some time. I was diagnosed with ILC left side/ stage 1 at age 53. Intuition told me to have lumpectomy where I had a lump that randomly had sharp pain. , My surgeon wanted to aspirate, it was the tissue beneath the lump that was ILC. Dble mastectomy/ expanders/ Mentor smooth silicone implants. i…
-
5 year survivors, post your screen name here!
Seeing this will inspire our newbies!
-
Reconstruction ‘PLANE CHANGE’ from under muscle to over muscle
In 2015 I was diagnosed and had double mastectomy with reconstruction. At that time they recommended subpectoral (under muscle) implants as. Over the years the animation deformity when I flex has been annoying and uncomfortable. I am an active person a feel it every day. One side has started to droop noticeably and I am…
-
Sharing towels with others, including a young kid, after more than a year of radiation therapy
Hello Everyone, I was just wondering if anyone shared towels with your husband and young children after more than a year of radiation therapy treatment. I did share with my kid sometimes, especially things like going to the beach or pools or accidentally using mine when he finished showering. So, is that fine? Thank You!
-
Surgery for newly diagnosed stage 4 MBC?
Hey there. Newly diagnosed with stage 4 MBC ER+PR+HER-, multiple spots in lungs. When the lump was first discovered the expectation was that it was curable as there was no spread and the lymph nodes looked clean - that all changed with the PET scan. So…question: The only option offered now is hormone treatment, but the…
-
Flap Reconstruction - Decisions
Hello all! I was diagnosed in 2012 and had a mastectomy with TE/implant reconstruction. In November, I had a biopsy (benign 🙏) on three tiny bumps on the reconstucted breast. Unforntunately, the wound became infected and the wouldn't heal so they removed the implant (which they then found was ruptured) and replaced it with…