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One year into this and noticed something new
Hi all so last January I had a biopsy due to microscopic calcifications in my left breast that were grouped and suspicious, the results came back radial scar with hyperplasia, my breast surgeon suggested lumpectomy in Feb, those results showed radial scar with atypical ductal hyperplasia. My dr had put me on the high risk…
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Quitting Tamoxifen
Hi ladies. I'd love to know: -How was going off Tamoxifen in general? Any side effects from Stopping? -Has anyone quit after 5 years though Dr wanted you on for 10???? Tamoxifen has made me hold Immovable weight. I've been on for a little over 5 years and would love to ditch it - unless any of you have info of problems…
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Some thoughts as we Progress in our Journey
We had our first visit back to the clinic after starting treatment yesterday. Not a lot new to report. Bloodwork was good and liver function is fine. Nadia also seems to feel that the tumor in her breast is shrinking. As a husband, I am still waiting for the objective measure that we are making progress against this. She…
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Nerlynx/neratinib and vegetarianism
I’m about to start a year of Nerlynx and I’ve been a vegetarian for more than 20 years. I eat a ton of beans, nuts and raw vegetables (got cancer anyway). These are all things the pharmacist and nurses recommends avoiding to help with diarrhea risk. I’m wondering if the fact that these are already such a part of my diet…
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Has anyone had a preventative DMX years after Lumpectomy?
When I was going through breast cancer in 2021, my breast surgeon, my radiation oncologist, and my oncologist counseled me to get a lumpectomy and radiation. They told me that getting a SMX or DMX for what was thought to be a 5mm tumor (it turned out to be 3mm) was like trying to kill an ant with a sledgehammer. The…
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Pre surgery questions and aftercare
I met with the consultant yesterday and he told me the results from my second biopsy (on a 2nd lump that showed up on MRI) came back as non cancerous, but atypical cells. He is awaiting further investigation on that biopsy. I thought this was positive news because now l can get booked in for surgery. I wanted to ask if…
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Angiosarcoma
I have been diagnosed with angisarcoma. Caught very early and removed from breast. Actually double mastectomy. Stage 1. Now getting second opinion on treatment. It is very very rare. Anyone out there with it?
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Where to get financial and disability / work advice?
I am a veteran with PTSD who had a bilateral mastectomy in 2020. I have not had health insurance or care for about 3 years, since the VA is not trustworthy, and it lost my community care case referral (out to a community facility, since the VA itself lacks breast cancer resources where I was). I am also now bankrupted.…
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Sacituzumab Govitecan (Trodelvy)
Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…
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Worried to skip Radiation Therapy following Mastectomy and pCR - DCIS w/ lymph node
First time post. Thank you for any input. I apologize if I’m not describing this correctly and am too long winded in my description. I am 60 years old and was diagnosed initially with DCIS (Grade 3, ER, PR negative) Stage IIA, but have some invasive component as I had one positive lymph node following biopsy. Lymph node…
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Lower back pain fear
Hello everyone, sorry for my not very good english. I have been reading this forum for a long time and I thank you because here I have often found answers to many of my questions and also a lot of hope. I am 39 years old. I got diagnosed with IDC in february 2024 : 2.5 cm T2N0M0 no LVI, + - - (ER 50% PR 5% Her2 1+).…
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Kisqali and Time to Response
hi there. My wife is about 22 months into a stage IV diagnosis, original mass in right lung and multiple bone mets . PET report today showed avidity in the liver. She’s a little over 2 months into Kisqali. I’m wondering how long it took for the drug to “kick in” for you. Basically I’m just trying to find a reason to be…
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TRIPLE NEGATIVE (Age 74) Lumpectomy (twice) ONE positive sentinel node - REFUSING TREATMENT
Good day, I'm writing on behalf of my 74 year old mother. She was diagnosed February 2023 with Invasive Ductal Carcinoma and Ductal Carcinoma In Situ (IDC & DCIS). Triple negative was our diagnosis. Ki67 is 20-25%, Grade 2, Apocrine features. First lumpectomy - (March 2023) clear margins, one out of six sentinel lymph…
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3D tattoo vs. nipple reconstruction or both
I see that someone posted a similar question on a different forum without a lot of responses. I thought I'd post here too. I've had my bilateral mastectomy and implant reconstruction and am now at the point where I have to decide between nipple reconstruction, 3D tattoo or both.( I have decided to do something, not just…
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Breast cyst or I think what is this
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What should be my next step?
My biopsy confirms that I have Invasive Mammary Carcinoma in my right breast, which is hormone receptor-positive (HR+), HER2-negative, and a high Ki-67 proliferation rate of over 80%. Can someone tell me more about that Ki-67 number? Is it normal? Also the doctor initially said it was only one centimeter but the report…
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2-Year Her2+ Cancer-free Roll Call
Hello Ladies, According to CancerMath.net, our risk goes down if we Her2+ ladies survive 2 years and are cancer-free; or we have NED (No Evidence of Disease). Risk then decreases with each passing year. I'd love to hear from those who hit the 2 year mark and beyond and are still cancer-free. How's it going out there? I…
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triple positive, node negative, and microinvasive--now what?
Hi. I posted before when I was not sure if I had microinvasion and now everything is confirmed. I wondered if anyone is +++ and miccroinvasive out there. I think that my MO will not recommend further treatment beyond the mastectomy but I wonder if anyone else has been through this. I feel like the recent articles I've read…
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DCIS new
I was diagnosed with left breast DCIS high grade ER-PR + on 1/24/25. During surgical oncology appointment on 2/12/25 was recommended R mastectomy with SNBL. I have appointment with Plastics coming up to discuss options for recon. However I am leaning towards AFC at this time. My other (right) breast is extremely dense and…
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Recent diagnosis
I was diagnosed with grade 3 DCIS, hormone positive HER2 negative at the start of January. After an MRI another tumour was found. I have an appointment this Tuesday to hopefully have the results of the most recent biopsy. Every time I have met with the consultant I feel like things become more complicated. Hoping this time…
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From HIGH DCIS to 7MM invasive - HER2 + need advice chemo or not to chemo
hi there, I am new to this forum and currently going through breast cancer treatment right now. So far, I have had a skin-sparing mastectomy DIEP to the right breast on the 23rd October last year. My results show they found 7mm invasive tissue, that my sentinel lymph node was clear and I am Her2 positive… I am in that grey…
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Keto/low carb sisterhood
Hey everyone! I'd love to connect with other women who are currently on a keto/low carb diet. Let's support one another with accountability, recipe exchange, research findings, tips/tricks, struggles, and mutual support. Please introduce yourself, when and why you went keto, and share your fave keto treat. ***************…
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Finished Verzenio but having problems
I finished act chemo, Masectomy, radiation then two years of Verzenio - September 2024. Still on Zoladex and Femara. Since stopping verzenio, the most concerning issue is slightly elevated alt and ast - 50 and 70 at this point but ultra sound and mri without contrast show no Mets. Also, It has taken about 5 months for my…
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Chest tightness - post Bilateral Mastectomy
I've done a search, and have come up empty handed.....so I'm asking those of you who have had bilateral mastectomies (without reconstruction)......what about chest tightness???? I am now 11 days past my BMX. Two (of four) drains were removed three days ago, and the tightness wasn't so bad then (otherwise, I would have…
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Unbearable, relentless pain after core biopsy and clips over 20-years ago.
3mg Iverheal which is 12 mg Ivermectin, has cured, ended, the searing pain I've endured, on and off, after a breast biopsy 20-years ago. I did not have cancer. "Calcium deposit." It has been 12-months since I took the Ivermectin. One dose. I can arrive at no other conclusion, at this moment. All the women describing their…
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Reporting forum feedback and technical issues
Hello Everyone, As with any new technology, it can take time to work through issues and adapt to the new site. We thank you for your patience and understanding, and are here to help support you. Our team is dedicated to giving you the best experience possible, with plans for adding features and enhancements over time. We…
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Mammogram ultra missed polyp mri now scheduled
At this point I’m just hungry for support. Saw aereola changes last July while moving to a new state. Saw Md in September and received immediate mammogram and diagnostic ultrasound for palpable small polyp underneath areola. Results only showed very dense breast tissue. I should’ve known, but didn’t do the research about…
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Upper back/shoulder blade pain / Chest CT & CT angiogram
Last year, I went through TC chemo and then 30 doses of full chest, armpit radiation. During radiation, I developed a weird feeling in my back, directly behind my affected breast. It's near the bottom if my scalpula. If I squeeze my shoulder blades, there's discomfort in that area. During that time, I had a ct angiogram…
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Dry Skin: Anastrozole (Arimidex) Side Effect?
Have you experienced dry skin issue while taking Arimidex? How did you handle it? My skin has been dry this winter, especially my face and feet. It appears to improve with oils/vaseline etc. Just wondering if it has to do with Arimidex?
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ILC Long Term Survivors
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy